Severe Chronic Joint Pain and Family History of RA with NO Elevelated ESR??

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rnstudent7
New Member


Date Joined Apr 2009
Total Posts : 2
   Posted 4/1/2009 5:57 PM (GMT -7)   
I am searching for answers. Please help!

I am a 21 y/o female with a history of chronic and severe joint pain. My father has RA and my great grandmother on my mother's side had Lupus.

I've been to numerous doctors but still have no answers.

My symptoms include extreme fatigue, hair loss, irritability, severe joint pain that comes and goes, and thyroid lab tests that are off every once in a while.

Back in 2004 I had my CRP, CCP, ANA, and RA factor run. All came back normal except the ANA which showed positive. However, since then I have not had another positive ANA. Even more concerning to me is that my ESR is never elevated above normal.

As far as medications I have been on, there isnt much of a list. In 2004, my doctor recommended that I take 800mg Advil twice daily for 1 year to decrease the inflammation which she said was very visible in my body. I also had a lot of fluid in my knees at that time. Even though I wasn't sure that was very safe, I did what she asked. The Advil had very little effect on my pain or symptoms. Over the years I have come to use Aleve and Advil pretty much daily. My new doctor wrote me a prescription for 500mg Naproxen twice daily (which really is a joke to me considering how much pain I am in), and it isn't doing a thing.

I feel very ignored by the doctors I am seeing because they tend to not take me seriously since my lab work is coming back clean. I'm having a very hard time right now with pain and fatigue and am at a loss for what to do. My most recent lab tests came back today and the only abnormality was a low ferritin (iron) level. Please help!

Post Edited (rnstudent7) : 4/1/2009 7:13:49 PM (GMT-6)


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 4/2/2009 5:49 PM (GMT -7)   
Hi there, you can have sero negative arthritis where your bloods look good but your body shows all the symptoms of RA. Does your swelling happen on both sides of your body? Symmetrical swelling is a typical sign of Ra. Get a referral to a rheumatologist for a second opinion especially if its in your family. All I started with is swollen knees which wern't responding to anti inflammatories and lasted 3 months and that was enough for my dr to send me off to a rheumy. They now believe its better to treat hard and fast to stop permanent damage from occuring. So I'd go find a sympathetic Dr and see a rheumy, they take X rays as well as do a full physical and are trained in arthritic disorders. Goodluck
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