Total shoulder replacement

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Seajay
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Date Joined Mar 2009
Total Posts : 11
   Posted 4/3/2009 12:01 AM (GMT -6)   
Has anyone had a total shoulder replacement?  I have severe osteoarthritis and have had one hip and one knee replaced.  I need the other knee done and at least one shoulder.  I'm afraid of losing more movement in my shoulder than I have now.  The Doctor wants to do the reverse joint procedure.  From what I understand, they put the joint in upside down.  I do know it takes months of rehab and for a person who hates excerising I don't know if I could go through with this.  Please, if you have had such a surgery or know of someone who has let me know how it came out. 

Bing
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Date Joined Apr 2009
Total Posts : 2
   Posted 4/6/2009 1:01 PM (GMT -6)   
I am 9 weeks into recovery from a total shoulder replacement.  Range of motion is excellent.  I am still in pain, about the same as prior to the surgery.  It would be good for both of us to hear from others who have had total shoulder replacement and ask about level of pain first month after, second month, third month etc.  I did not have the "reverse" procedure.  I did have substantial glenoid erosion and needed bone replacement to build up the glenoid for success of the surgery.  idea

Seajay
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Date Joined Mar 2009
Total Posts : 11
   Posted 4/6/2009 2:30 PM (GMT -6)   

Yes, like you I hope we hear from more people.  I'm glad you still have your range of motion.  Did you have a great deal of pain before hand?  My sister has one shoulder that has no joint left and it doesn't hurt her.  The surgeon had never seen anything like it.  She does need the other one done and I think we are both waiting for the other to see if it works!

When I had the knee replaced I thought I would be out of pain sooner than I was.  My biggest problem with the knee was "trusting it".  I would say that pain lasted about six months but even now when I get out of bed some mornings there is pain.  I told myself no matter how many joints I have replaced, I still have arthritis! rolleyes BTW, the hip was a dream to have replaced in case anyone out there is interested.  No PT, no pain, nothing!  I think that spoiled me.  After a year, I still don't know if I want the other knee done or the shoulder. 


Seajay
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Date Joined Mar 2009
Total Posts : 11
   Posted 4/6/2009 2:33 PM (GMT -6)   
I forgot to ask, can a person have this done who lives alone?  Do you need a lot of help?  Someone was with me for two days with the knee.

Bing
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Date Joined Apr 2009
Total Posts : 2
   Posted 4/6/2009 2:43 PM (GMT -6)   
You can do the stretching and other exercises by yourself. :-)

Pamela Neckpain
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Date Joined May 2008
Total Posts : 1821
   Posted 4/25/2009 10:41 AM (GMT -6)   
I went in to have my C spine MRI'd. It came back with lots of problems.
Then, they did my shoulder. I'd had something to calm me and help with
the pain but it didn't work,

I moved and messed up the image. I didn't feel like I was moving AT ALL but
apparently, I was.

I was charged for the MRI that didn't work. I think it's unfair. I was in radiology
for FOUR hours. They were doing paperwork, blood work, emergency paitents etc.
By the time I got in the tube I was in SCREAMING PAIN. They played music for
me - scratchy music. The music they played would have been good if I'd been
riding a motorcycle. Unfortunately, it was scratchy and it skipped. No wonder i
moved.

It was a terrible experience for ME. I've had them before and they were no big deal.
This one was not ok.

Next time I'll have complete anesthesia. The thought of being completely out in that
tube is not a pleasant visual. My shoulder hurts really bad but maybe I'd just rather
deal with the pain then go back to the hospial FOR THAT. At this point, I just don't
know.

I take Methadone and think that the pre-MRI medication didn't work for me because
the Methadone blocked the effects of the MRI. I didn't have even a little pain relief or
feeling of relaxation.

The did tell me that the shoulder is the most difficult to MRI.

Pamela Shoulderpain
MEDICAL CONDITIONS

Osteoarthritis all levels of spine right down to Coccyx,Spondilytis,Myofascial Pain
Fibromyalgia,Bulging Discs,Spinal Stenosis,Scoliosis,Osteopenia,Chronic Constipation
Carpel Tunel Syndrome, Attention Deficit Disorder,
Depression & Anxiety

Methadone for Pain, Xanax for Anxiety, and more, of course.

Post Edited (Pamela Neckpain) : 4/25/2009 9:46:46 AM (GMT-6)


Seajay
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Date Joined Mar 2009
Total Posts : 11
   Posted 4/26/2009 12:52 PM (GMT -6)   
Pamela,  Wow, what an experience.  I am currently waiting to be scheduled for an MRI on both of my shoulders.  I do know if the whole body tube MRI bothers you there are places that do MRI's with a circular open tube MRI.  My sister flat out refused the full body one.  What upsets me is the personnel do not care how much pain you are in, they just want to get their pictures.  I found that out all too well when I had to have a myelogram for a ruptured disc at L4-L5.  The resident Radiologist was understanding of my pain in certain positions.  The teaching Radiologist took over and pushed me in the positions he wanted and didn't care about how much pain I was in.  The students watching had pain on their face just watching!  Four hours later came the MRI and I was forced to be in that machine for 45 minutes.  The tech said I kept moving when I didn't think I had moved a muscle!  These people will do anything to get the pictures.  I ended up with a dropped foot from nerve injury and will never be completely sure the x-ray department didn't further injure the nerve beyond repair.  My surgeon is also at fault as this was the second time I needed surgery on the same disc.  I told him three months after the first surgery the pain was back...his only reply...lose weight.  Ten months later he took me back to surgery after my foot dropped.  I don't think my total knee surgery is what it should be either.  Is it any wonder I'd prefer not to have my shoulders done??  My present PCP seems to think even if I have a torn rotator cuff, he can fix it with a "concoction" he uses and I won't have to go to surgery.  I'm thinking I should run the other way fast! rolleyes

Pamela Neckpain
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Date Joined May 2008
Total Posts : 1821
   Posted 4/26/2009 4:30 PM (GMT -6)   
Seejay,

What a story! If I do decide to have my shoulders done, I will go for
complete anesthesia. I will never try that again. I thought I was being
perfectly still. I was so impressed with this idea of being still that when
the RN pushed me into the tube she said, "Breathe! You CAN breathe"
When I came out, she was the one who said, "It's not your fault"

Four hours I spent in that place. They should have had a place for me to lie
down. It was a horrible experience.

For me, my shoulder feel so bad I can't imagine a surgery that would help
them and my C3-C4 discs.

I would imagine the teaching radiologis was showing off. Arghhh. I'm sorry
that happened for you.

You know, if a PCP offered me a "concoction" that would help me
with my neck and shoulders, I might go for it. Please let me know what
happens for you. Come on over to Chronic Pain sometime. I hang out
there.

Shoulders are the most difficult surgery, I've heard.

Pamela

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 4/26/2009 4:35 PM (GMT -6)   
PS

I'll be back here soon. This may be the forum where I belong.

It seems to me my primary cause of pain comes from arthritis -
Spondliosis.

Bing:

What a trial you've been through! What happened to your shoulders
to cause you to need total shoulder relacement. Sheesh.

Congratulations on your bravery and on your recovery.

Pamela

Post Edited (Pamela Neckpain) : 4/26/2009 3:39:14 PM (GMT-6)


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 5/1/2009 10:39 PM (GMT -6)   

Pamela I'd be very wary of shoulder surgery because of your back. I had my right shoulder reconstructed twice, not a replacement, they moved tendons from my back and biceps to make the cuff tighter and fused extra bone into the joint to make it more like a hip joint, but the pay off from this is its given me a scoliosis between my shoulder blades and my lower back has curved to correct my stance. Now I found the best ever osteopath who has kept my back going for the best part of 30 years but for you with your current back problems I'd be very hesitant. Despite all my arthritis my shoulder is good, I will never have a full range and it can hurt but it no longer dislocates all the time.

What horrible MRI experiences, Seajay and Pamela, I've only had the smaller circularchamber and really lovely staff. What creeps, why be in the medical area if you're going to be so uncaring?


joze
New Member


Date Joined Nov 2009
Total Posts : 1
   Posted 11/6/2009 9:20 PM (GMT -6)   
Had four surgeries on my left shoulder, first they though it was impingment, or rotator cuff, didn't help, had shoulder replacement, didn't help, had reverse shoulder replacement, still have the same pain I had before.  After replacements  they found out that I have rheumatiod arthritis and now I have the pain in my right shoulder.  My knees are also a problem so don't know what to tell you.  I am on methatrexate (?) for the arthritis and have no relief.  I didn't have much pain from the replacement surgery, and most of the exercises you can do at home.  As I said I am the same or worse off now.  Good luck

jackson2773
New Member


Date Joined Dec 2009
Total Posts : 1
   Posted 12/7/2009 12:16 PM (GMT -6)   
yes i have had a total shoulder replacement in may of 09,although the doc said 6 weeks back to work pain free,i have run into some serious problems.the implant in my arm is almost an inch to high,causing the piece on the shoulder side to loosen and crack.I am going back under in feb. I advise anyone looking to have this done,to do there homework on the doc and hospital,this is not a easy surgery.I wish I would have waited and just dealt with the pain.I was only 35 when i had this done,now only after a few months I need it done again.sucks to be me!

erox
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Date Joined Dec 2009
Total Posts : 1
   Posted 12/29/2009 8:38 PM (GMT -6)   
I had a partial shouder replacement 2 months ago(hemi-arthroplasty).I had reconstructive surgury twice by the time I was 36, I was told I needed a replacement but was too young. So when I turned 50 I had it done. The pain from arthritis is gone but after a month of therapy I can't raise my arm waist high. I could before,but only waist high. I know I have severe muscle atrophy seeing I have not used the arm in nearly 20 yrs. I can move my arm laterally now but it feels like it's catching or skipping and lots of pain. Doctor took more x-rays and said implant is good and therapist said it feels like tendon.
Does anyone have the same thing?

pdufrane1108
New Member


Date Joined Sep 2010
Total Posts : 6
   Posted 9/27/2010 5:22 PM (GMT -6)   
I am 7 weeks post op from total shoulder replacement.  I feel like I am moving backwards this week, lots of pain and it really hurts to move arm.  I have only done 1 physical therapy session and will go to another tomorrow.  My shoulder replacement surgery has been a lesson in patience.  Had my surgery on 8/9 had to go back in operating room to put new shoulder back in place next day and then about 10 days later I developed a blood clot.  I returned to work part time this week and am doing just administrative work.  I can only last about 4 hours comfortably.  I feel like my pain level is a 7.  Can anyone tell me how they felt at 7 weeks and how long it takes the pain to go away.  I also had the nerve block and now have numbness in three fingers.  Dr says it will get better, but the more I use hand the worse the numbness gets.  I think the key to this is patience and a caring doctor.  I have the later and am working on patience.  Anything will be better than before surgery
 
 
 
 
 
 

pdufrane1108
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Date Joined Sep 2010
Total Posts : 6
   Posted 9/28/2010 7:24 AM (GMT -6)   
shakehead  Woke up this morning and I can't move or feel my arm, on way to doctor office to see what is going on.  I can not afford for something else to go wrong.  I need to be able to work at least a few hours a week.  Thank god that I have family that I am living with or I would have been out on the streets already.  New medicine helps with the pain but puts me to sleep, so i have to have someone drive me all the time now. I really hate being dependent on other people.  I was promised after ten years of pain that this would help, I really hope she told me the truth, because right now I don't believe it.  I could chop my arm off right now shocked shocked shocked shocked

Bhmom1
New Member


Date Joined Oct 2010
Total Posts : 2
   Posted 10/14/2010 1:00 PM (GMT -6)   
Hi to all who are posting about shoulder replacement. I would like to find out if any of you have had complete shoulder replacement and then reverse shoulder replacement. My husband had complete shoulder replacement surgery in November 09, had a glenoid removed in July and now is told he needs a reverse shoulder replacement!! He has been in constant chronic pain since the surgery and therapy is a nightmare. Pain meds hardly touch the pain he's in and his range of motion is around 40%. Has anyone else had to go thorugh this? He is just under 50 years old and was told that there is no going back after the reverse. I'm fearful that the reverse will leave him in more pain and dont want him to be on pain meeds for life, its just no way to live. If anyone has experienced the same or similar, can you please reply. Thanks.

pdufrane1108
New Member


Date Joined Sep 2010
Total Posts : 6
   Posted 10/14/2010 6:44 PM (GMT -6)   
BHMOM
 
I am almost 9 weeks post op from total shoulder replacement.  I was doing really well until about 2 weeks ago when I woke up one morning unable to move my arm and severe pain.  My doctor prescribed Nucynta for the pain, which worked well for me, just very expensive.  We have managed to rule lots of things out, but have not figured out what is causing all the pain.  We have had to stop all PT since I am in such pain.  Many days I dont even get out of bed.  This has been a very frustrating experience for me.  The one thing I would say, is make sure that you have a doctor that you can talk to and will listen to what is going on.  I have been very lucky that my doctor listens to me and knows that there is something going on.  I am going for MRI of shoulder and arm.   My pain is mostly in my area between shoulder and elbow.  I have found out that I am very allergic to tape, sterile dressings and anything that sticks or cements me.  I am hoping that I am not have some type of reaction to the rod put in my arm.  I just want the nightmare to be over with.  I could not imagine having to have this surgery done a second time.  Tell your husband to keep the faith and make sure he is totally ok with his doctor.  After having many surgeries and dealing with lots of medical problems, I can say that I have total trust in my orthro doctor.  She really listens to what I am telling her and does not make me think it is all in my head as so many doctors have.  It took me 10 years of pain to finally find a doctor that was willing to do something for me.  Everyone told me I was too young for a shoulder replacement.  Please be sure to keep us posted on your husband so we can help you through this process.  I know the feeling of being in constant pain and not being able to get relief.  Tell him to talk to his doctor about the new medicine, it helped me when oxocodone wouldnt.

Bhmom1
New Member


Date Joined Oct 2010
Total Posts : 2
   Posted 10/14/2010 7:55 PM (GMT -6)   
Hi, thanks so much for your reply. I will definitely tell my husband about the new medicine your referred to, I just don't want him to be on so much medication. He's tried practically everything. As far as his surgeon goes, he seems to dismiss the amount of pain he's in and referred him to a pain medication dr. And we just yesterday went to another surgeon for a second opinion. His original dr told him the device has failed, Im trying to wrap my head around that, how does a metal rod placed and cemented into his arm, fail? What the heck does that mean.... I don't know if we should seek a lawyer, the second opinion dr said it's a really big surgery to do a reverse, thats why he's dragging his feet about doing it. Its just since his surgery, his quality of life has suffered, so my whole households quality suffers. I thought after his surgery in November that everything would be great, not worse. I wish you luck in your recovery. Keep me posted.

pdufrane1108
New Member


Date Joined Sep 2010
Total Posts : 6
   Posted 10/31/2010 8:28 PM (GMT -6)   
BHMOM and Everyone Else
 
I am now more than 3 months post op from a total shoulder replacement.  My replacement is right where it should be and I have finally started physical therapy.  My issue now is with the swelling of the entire arm and the inability to tolerate the pain that is in the area between shoulder and elbow.  I have had every test known to mankind to try and figure out what is going on.  My doctor has tried all she can think of that might be wrong and everything comes back negative.  I have had to go back on oxycontin for pain.  I am due to go back to work next week and I just dont know how that is going to go.  I just basically can not use my arm.  I have severe pain from picking up my coffee cup.  I am wondering if anyone else has had the same problems or is this just something that goes on during the recovery process, Any suggestions any one may have would be really appreciated.  I so want to get my life back and quit using such heavy duty drugs for pain.

golitho
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Date Joined Sep 2008
Total Posts : 1670
   Posted 11/1/2010 6:37 PM (GMT -6)   
I had a shoulder reconstruction, 2 of them actually that took forever to heal. I ended up going to alternative practitioners for help, I lost so much muscle mass that my shoulder was dislocating all the time. I was told because the shoulder is so mobile it is really hard to get it to heal. Anyway this is going back 25 yeas, but I had accupuncture and an osteopath who finally got my shoulder to settle down. The accupucturist worked on the nerves that were all inflammed and the osteopath worked on my back which had wasted muscle because I wasn't using my shoulder correctly!
He built up my back muscles which stabalised my shoulder, then the physios got to work on my shoulder and finally after about 3 years I got my right arm back!
So I guess I'm saying don't give up. Keep looking for people who think laterally and may see an alternative pathway to help. When your injury takes off along an unknown route, western doctors seem to just fill you with pain killers and wash their hands of you, scared for you sueing them or whatever. I was just determined to get better. I tried so many things.
If your nerve pathways are all inflammed accupuncture may be an alternative for you. It wasn't the whole answer for me but it really helped. Anyway I'm not a doctor, I just feel like saying keep looking for answers. My shoulder has been brilliant for 22 years now, I don't have any pain and have a fairly good range of motion. I'd been told I would never have a fully functioning shoulder and put on disability by my surgeon. He was amazed at my recovery.
Best best wishes, keep positive, golitho

pdufrane1108
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Date Joined Sep 2010
Total Posts : 6
   Posted 11/1/2010 10:08 PM (GMT -6)   
Thank you for your story, it does give me a reason to keep going.  My biggest concern right now is the fact that work for a grocery store and am often needed to work the front end which means that I would be lifting and sliding things with my arm.  Right now that is impossible for me to do and i dont think it is something that is doing to come back any time soon.  I hate the thought that I many have to go on disability.  I am only 54 years old and dont like being in active.  The last three months have been difficult for me since I have not been able to do any of the things that I would usually do on my time off.  I get bored easily and when I am bored I have the tendency to eat.  More weight is not something that I need.  I had working hard on losing prior to my surgery.  I can not even hold my coffee cup in my left hand without it making my hand shake and I always have the feeling that I am going to drop it.  I have lost feeling in three of my fingers on my left hand and the swelling makes my arm so uncomfortable that some days I don't even bother to get dressed and spend most of my day in bed, needless to say the pain meds make me every tired also.  Did you have a hard time getting your disability approved, I have heard such horror stories about people trying to get approved for disability,

golitho
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Date Joined Sep 2008
Total Posts : 1670
   Posted 11/2/2010 5:56 PM (GMT -6)   
No trouble bu I am living in Australia. I'm not on it now, I was for about 3 years and did a retraining scheme, I ended up teaching at university. So it was a positive outcome for me.
I really feel for you though, its very easy to get depressed when you don't feel like youre improving at all. Have you seen any physio's or anything? Had any other opinions?
If you're arm is that swollen going to work would be detrimental. You'll have to go see your doctor and get their assessment. Keep us informed, golitho

pdufrane1108
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Date Joined Sep 2010
Total Posts : 6
   Posted 11/3/2010 3:47 PM (GMT -6)   
i have gone back to doctor numerous time, she has done all kinds of testing and nothing is showing up.  Therefore her answer is to do physical therapy and get on with my life.  I went to physical therapy today and basically cried all the way through it and then came home and had to go to bed because I felt so bad and had taken an oxycontin.  So I am sure that as I am going back to work on Saturday for 4 hours a day five days a week.  I will work my four hours and come home in extreme pain, take pain meds and sleep until it is time to go tow work again or physical therapy.  Sounds like a wonderful life doesn't it.  I thought I had made the right decision in the beginning because I was feeling so well 6 weeks ago and then the swelling started and it has been downhill ever since.  I can tell that I am starting to loose feeling in arm due to swelling.  Typing is hard since I dont feel my fingers much at all.  I go back to the doctor in three weeks and when I do I am going to give her the choice of either going in and see what is happening or just be honest and tell me this is as good as it gets and help me get disability.  I can not do anything without pain and I refuse to live on pain medication for the rest of my life.  I have a grand daughter who doesnt understand my grandma doesnt want to do anything or go anywhere any more.  Up to this point I was a very active person.  I hate my life right now, there is nothing to do to make the situation better, we have done every test known.  To my doctors credit, she has really listened to me up to this point.  I just dont know what else there is to do.  If there was I way to could reverse this I would.  I could handle the pain that I was in prior to the surgery, but not this.  having to take oxycontin all the time makes it difficult to lead any type of normal life anyway.  I am wondering if there is anyone else out there that might have had the same thing happen to them and if so, what was your answwer to the problem.  Someone please answer, as I desperate at this point cry cry cry

sunbunny
New Member


Date Joined Dec 2010
Total Posts : 1
   Posted 12/13/2010 9:13 PM (GMT -6)   
I Feel bad for you,I'm at 4 months post op on my total shoulder replacement.mine is the non-cemented procedure..It's the only way my surgeon would do it because of my age..he said the cemented one are great ,but for me the non cemented one would be better because i have strong bones and good muscle tone..thankfully i didn't lose that he was very impressed that i had the movement i had ,because my shoulder was bad bone on bone ..it was very painful.so august i agreed for the surgery to be done..And no one can prepare you for the pain your in after surgery..I woke up feeling great till that night the pain block wore off..i was in severe pain even the pain meds weren't helping..I regretted it so much .but my shoulder pain is all gone now from before,what i have now is surgery pain..it's slowly getting better.i ice it still very much that helps..and i don't go to physio anymore my surgeon wanted to see my exercises i was doing said I'm doing great on my own ..and because I'm in so much pain after physio to stop it..well it's been two weeks now since I've stopped physio and I'm happy to say the pain is allot better..and I'm slowly healing..i still have pain between my shoulder and elbow..but my surgeon told me it's common..as long as it isn't hurting all the time ,and it doesn't only when i over do it...
I'm off of work till march..thankfully my surgeon is great and knows it's better to heal slowly then to rush it..

grassvalley
New Member


Date Joined Apr 2011
Total Posts : 1
   Posted 4/12/2011 8:25 PM (GMT -6)   
I am 5 months post op from total Shoulder arthroplasty. Started PT 2 months post op was making great gains with motion as well as strength, minimal pain.  about 5 week ago started have jolting and cramping like pain when I lowerd my arm. I went back to the surgeon though I might have torn the rotator cuff. I had a OPCT/CT scan done Rotator seems to be in tacked but they think the glenoid, PVC in socket/scapula, may have separated from the scapula. We are going to give it another 3 weeks, now 6 months post op if no improvement more surgery. FYI this happens in 5% of shoulder replacement, lucky me. Has anyone else experienced this kind of problem and where are you 5 months post op pain wise?

Post Edited (grassvalley) : 4/13/2011 5:25:22 PM (GMT-6)

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