Im a 29yr old female and dx with bilateral sacroiliitis... The pain is constant and unmanageable for me. I have been continously to a chiropractor, physiotherapist who practises acupunture. I have also been to an oesteopath. I have been on anti inflammatries and pain killers for months . I dont sleep for more than an hour at a time, because as soon as I move the pain is enough to wake me. I use heat creams, heat packs, warm baths, ice packs, sleeping with pillows between my knees, I dont sit for long periods, no lifting, minimal bending, I had a week of rest off work, but to not much relief. I bent over and emptied the dishwasher and almost immediately pain returned. I had some relief from the acupuncture as it releases the tense muscles I have in my lower back, buttocks and thighs, but the pain returns or the acupuncture is 'undone' with 24 hours or so... I am the process of trying to get an appointment to have CT guided cortisone injection, which I am not that keen on, (I have heard stories about infertility, its lack of effectiveness, weight gain... INFO ANYONE???) I may have to wait 3 months, but I dont know where to turn. Im too young for this and it is effecting my entire life. Ive become a burden/bother to my family, boyfriend,lost friends because after I struggle through a day at work I cannot manage to socialise without extreme determination and self convincing that i can which is exhausting in itself. I cant manage to spend a few hours walking around a shopping centre or sit down in the movie theatre comfortably. Play with my puppy, do my housework etc etc. I cannot perform my job properly (I manage a liquor store, alot of heavy lifting, moving, bending, kneeling which lead to my sacroiliitis). I seem to be rambling. It is so hard to get anybody to understand the pain Im in 99% of the time, I have very little time without it... I am wondering if anybody out there have found anything to relieve their pain and discomfort? Even the tiniest 'tricks' they use for relief. Or what treatment has worked the best? I really would like to discuss this further and hear other experiences.
My true hope is that I can get back to full living/working/functioning capacity, lose the 20kg I have put on since I have had this (about 6 months), I use to be very fit and my physical job helped with that. I am almost hoping to have children soon, but have been told I would not comfortably be able to carry them, And would have to be on complete bed rest for majority of a pregnancy. And I want to enjoy a pregnancy! I dont want to be a pregnant woman to whom pregnancy is a hinderance. I want to be the fun, lively, fit self I use to be. This has changed me dramatically, I am a completely different person than I was 6 months ago. I have always suffered from depression, since I was a teenager. This is making a lot of progress and work that I had made with my depression come undone.
Im sorry for rattling on, but I have needed to let this all out (I feel better just doing so!)
Thanks Brie, Australia Thanks for listening/reading... Hope to hear from someone....
Blocking the action of TNF has been shown to be beneficial in reducing the inflammation in inflammatory diseases such as Crohn's disease and rheumatoid arthritis.
As there are a few different diseases which include sacroiliitis it is wise to cover all avenues so that your condition is treated properly.
I suffer pain 24-7 as well and my whole lifestyle has also changed as I gave up work and things people take for granted like taking a bath or wiping your but become a painfull ritual. I am 37 and have been diagnosed with Ankylosing Spondylitis for 5years and had pain since I can not remember.
look forward to hearing from you again and again welcome.