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Veteran Member

Date Joined Dec 2005
Total Posts : 1782
   Posted 4/6/2009 2:54 PM (GMT -6)   
So, I finally got to see my rheumy last week since his return from being ill. I have to tell you, it probably was one of the worst appointments I have ever endured with him. He is not the same man. He was quite brusque, a bit rough when he was handling me (checking all my joints) and almost seemed angry with me that I was on absolutely no med's, but yet was in pain. He still thought I was unemployed (although it's noted in my files that I do have new employment and insurance). We always had a great rapport -- he was always considerate of how things were going (good or bad) and he was more gentle in his approach when checking my joints and stuff.

In any case, he sent me for labs (including Hep B & C?), xrays, and a new TB test (negative). I had 2 spinal xrays, 2 chest xrays, 1 hand xray, 3 feet xrays, 2 SI joint xrays (and a mammogram earlier in the day). I should've glowed in the dark on Friday! Why the Hep B & C tests anyway?

The xray tech had a hard time with my spine xrays as I seem to have developed quite the "C" curve. You can really see it on my xray. Just what does that mean anyway? Actually, my lower spine looks wonky - where it's been hurting alot lately, but of course, I can't read xrays so it could just be me.

We talked about treatment options - Remicade is out (allergic reaction), Humira is out (didn't do a thing), so it's back to Enbrel without the MTX (my choice). I won't do Rituxan and Orencia wasn't discussed (although I'm not sure I'd that one either).

Frankly, I didn't want to do anything - I'm tired of needles and the unknowns. I don't know what to do. I hate taking pain med's, I hate having to schedule my life around injections and lab's and I really hate being a lab experiment.

I'm whining and I apologize. I'm just sad about my rheumy and tired of this merry-go-round that we seem to get caught on. I should hear something about my labs and "pictures" this week.

Any suggestions to get me out of this funk?

koi collector
Regular Member

Date Joined Oct 2008
Total Posts : 35
   Posted 4/6/2009 4:46 PM (GMT -6)   

if it were me, i'd take a huge pain pill and several pounds of chocolate or a cheeseburger (substitute a food you love thats not healthy). then go to sleep, hoping tomorrow to wake up from this bad dream. so far it never worked, but the chocolate was tasty.

good luck,

on a side note: i hope Enbrel helps you, it helped me quite a bit.

Veteran Member

Date Joined Sep 2008
Total Posts : 1670
   Posted 4/6/2009 8:50 PM (GMT -6)   
Hi Star, why won't you take rheumy drugs? Arn't you scared of long term damage if you do nothing? Have you tried heaps of different combinations and are just over it? I think all of us get sick of being patients all the time and I certainly get sick of taking all this medication especially when it doesn't take all the pain away. But I live in hope that I will eventually find that winning combo to put me into some sort of tolerable zone. I hope you're feeling better, I hate it if a trusted doctor seems short and cranky, we put up with enough without our caregivers not being a support, it must have been really disappointing. When do you see him again?

Veteran Member

Date Joined Dec 2005
Total Posts : 1782
   Posted 4/6/2009 9:32 PM (GMT -6)   
Koi -- for me, freshly baked french or some sort of fabulous bread is my "unhealthy" food of choice. I could eat a loaf of it right now, no problem! Lovely suggestion and it made me chuckle...thanks!

Golitho -- I've been on all sorts of drugs over the years. The damage is done as I wasn't diagnosed until my 40's (almost 6 years ago and I have had the AS since my 20's, RA since my 30's). Enbrel worked well for awhile, then we added the MTX to help things along. When it was thought I had Crohn's (I don't), we switched to Remicade. That was the best thing ever until I had an unexpected but thoroughly awful allergic reaction. I then moved to Humira which did nothing. I went back to Enbrel but unfortunately lost my job and benefits. While I did get another job and insurance, my rheumy was quite ill for quite a few months - Friday was the first time I had seen him since last July. No, he didn't refer his patients to anyone else -- he's the "big" cheese of the department.

I guess I'm just tired of the experimenting. Like everyone else I want relief -- now. I'm tired of needles, blood tests and all that goes with it. I'm not stubborn enough to say no, so we're going back to Enbrel. We'll see how it goes.

I see him in 8 weeks.

There you have reasons for whining :-)


Post Edited (starrnr) : 4/6/2009 8:37:38 PM (GMT-6)

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