Hi there Rachel,
Welcome to the forum.
I too support golitho's idea that there are many drugs out there to help you.
With this disease, you need to see your rhumey regularily when it is not in control. He has available some pretty good stuff these days.
All the best to you, and remember, don't sit this disease out, change of plan will work wonders. If you are not happy with your current rhemy. go to another one.