bookworm21 I do not know if Remicade is helping your situation, sorry.
But I do know exactly how you are feeling. I have been having RA like symptoms and PAIN since Feb2008, so over a year now. I have almost all my blood taken out of me for tests( or so it feels like) I have had the Rh factor test too. I have had x-rays and even an MRI. and my doctor and rhuemy have not been able to actually give a name to my symptoms either. All my tests show inflammation, but on the days when I have appointments my joints do not co-operate and have visible swelling. I hurt most every day. I do not play piano, but do play the flute once in a while as a pass time. I had it out the other day and played for a bit, and during and after I paid for it. My choice but I put it away for now till another day where I feel okay and wont mind hurting a little after.
My doctors are still doing tests and trying to come up with a diagnosis, they are pushing that its RA but wont show us for sure yet. So until they can confirm what they believe, I am being treated for my pain. The know I am having chronic pain,and inflammation and are just going to treat me for that for now. I take 400mg of plaquenil, 1000 units of vitamin D, and 10mg (maybe up it to 20 soon) of amitriptyline daily. I just started the amitriptyline and do not know how effective it is. I do know without my plaquenil that I am in more pain.
Best of luck to you and I am sorry you have to go thru this. But know that others know exactly how you feel. ((gentle hugs)) Have a good day.