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Looking for Answers 2009
Date Joined Jun 2009
Total Posts : 2
Posted 6/3/2009 6:11 PM (GMT -7)
Ok, I have never posted anything online before.
I am needing help finding out what is wrong with me!
I had a baby 7 week ago. Almost 2 weeks after childbirth (c-section), I developed a temp (101.8) and had to go to ER- diagnosis bronchitis and possible mastitis (?) Given 3 doses of Clindamycin, developed allergic reaction (redness and swelling of face)- given one dose of Levaquin, had severe burning and numbness in my hands several hours later- I discontinued immediately. Also stopped breatfeeding. Prescribed Keflex, had another reaction, no longer on any antibiotics. Symptoms continued of numbness in my hands/fingers, along with nausea/vomiting, severe joint pain in neck, knees, hands, fingers, elbows, shoulders to the point that I become bedridden for a few days. My PCP prescribed Medrol dose pack, and symptoms went away. They returned a few days later- My PCP then took my Sed Rate, and came back at 50 even after steroids, elevated WBC. I then took Prednisone Taper, last dose was Monday, and symptoms disappeared, except for numbness in fingers. Then last night the symptoms returned -The pain in the middle of the night as almost unbearable. The pain is now also in my ankles and even my jaw- worse on my right side. Severe knee pain, ankles, hands, fingers.My husband had to lift me to the bathroom b/c I couldn't walk. I tried to keep moving my extremeties last night- stretching my muscles, couldn't sleep b/c I am so worried. I was prescribed Voltaren by PCP, which doesn't seem to be helping much. Today the pain has been better, although tonight I seem to be getting stiff again. He also prescribed Davron today to take at bedtime. I am scheduled to see a Rheumatologist next week. Also saw a Neurologist, who thought it might be Carpel Tunnel (doesn't explain any of the joint pain).
has Lupus (reportedly) and when I was 15, I had an unexplained incident where I was bending in front of fridge, lost all control of my legs and couldn't get up- saw a Rheumatologist- think it was "arthritis"- for years I took Celebrex, knees would swell and ache, esp when I stood on my feet for hours at a job. Symptoms went away in my 20's.
I am wondering what on earth is wrong with me- does any one have any ideas? I wonder if it could be a reaction to the Levaquin dose- I have heard joint pain and Peripheral Neuropathy can be rare side effects- or possibly arthritis, Lupus, or something else.
Thanks for any ideas!
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Date Joined Feb 2007
Total Posts : 553
Posted 6/3/2009 8:37 PM (GMT -7)
I agree that it may be connected with Levaquin dose. The timing would be right, even if it is rare. I'm sorry that the birth of your baby has to be complicated with all of this. I hope you have all the support that you need. Keep posting and let us know what happens.
, 200mg, Mood stabelizer, daily(main side effect: brain fog)
, 40mg, Antidepressant, daily(main side effect: GI upset, decreased clotting, insominia)
Anemia, Fatigue treatment-
, 65mg, daily(main side effect: constipation)
, 10mg, daily(main side effect: amnesia eppisodes between taking pill and falling asleep)
(main side effect: fatigue, slowing of thoughts, depression of CNS, can't take ambien or vicodin when on it)
, 400mg, daily(main side effect: GI upset, decreased clotting)
, 25mg, 1X weekly(main side effects: hair loss, stomach upset, mouth sores, sore muscles, fatigue, brain fog, compromised immune system, decreased Folic Acid absorption)
GI upset treatment-
, 10mg 1x weekly(main side effects: ?) Folic Acid defintioncy-
, 1mg, daily(main side effects: ?) RA treatment-
, 8mg(and decreasing...)daily(main side effects: increased manic eppisodes, constipation, brain fog, bone density degeneration, compromised immune system)
(main side effects: constipation, GI upset) Constipation treatment-
, 200mg, daily(main side effects:?) pain control-
, 800mg, PRN Q6hours daily(main side effects: GI upset, decreased clotting) Pain Control-
, 5-500mg, PRN Q12hours regularly (main side effects: brain fog, fatigue)
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Date Joined Apr 2009
Total Posts : 4
Posted 6/17/2009 8:50 AM (GMT -7)
I pretty much had the same experience. I was finally diagnosed with Rheumatoid Arthritis. It is amazing how many doctors cannot figure it out! Keep your appointment with the rheumatologist - that's probably what you have. RA frequently erupts after giving birth to your first child (something with the hormonal changes) - that's what happenned to me, too. It was excrutiating pain, and my husband was carrying me to the shower, and the ER as well.
Best advice I can give is to do your research, and find a top notch rheumatologist that will work with you on this journey. You can get it under control and get your life back with the right drugs - finding the right combination for you can be difficult, but it IS doable. Prednisone and ibuprofen should help with the immediate flare while they get you diagnosed.
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