new here. recently dx w spinal arthritis

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gilligan
New Member


Date Joined Jun 2009
Total Posts : 4
   Posted 6/3/2009 10:47 PM (GMT -7)   
hi, im new here. im 48 yrs old. actually, 49 later this month! heres a little history about me. growing up, i had one episode of my eyes getting extremely red, and burning. i was about 14 at the time and the incident happened during the school day. as i was shy, i never went to the nurse or told anyone. i also was diagnosed with scoliosis when young but was told to exercise my back rather than have to wear a brace as i was only borderline for needing the brace. as a nurse, about 15-18 yrs ago, i once suffered a disc bulge (l4-5)and meniscus repair when i literally held up a man that was about to fall. somewhat recently, i was told that i have ostepenia, ddd, and also roto scoliosis! rotoscoliosis is when the spine turns onto itself in addition to having a curve. in other words, my spine is continuing to change form for the worst, with the back section twisting to the front. scary and gross. now, i have arthritis in the spine. im very healthy in appearance and only take fosamax, calcium and vitamins. i was doing fine, running a few times a week (3 miles...im slow though!) and really not being in pain. then, about 3 months ago, whenever i drove the car, i would get right hip pain, like sciatica, and would have to stop the car and walk around. i went to pt, but what really seemed to help was the core video workout that i did in my home. now, i have another new sensation that im worried about. whenever i sit, or bend slightly forward, i get painless pin and needles over my left hip and into my abdomen. i looked online and see that the sensory nerves that arise from lumbar 1 run right across this area! but. omg! another new thing that i JUST found out today, is that i have an orange-sized fibroid in my uterus. im hoping that this somehow is the cause of the tingling as perhaps it could be pressing on a nerve. id like to ask the others who have spinal arthritis, if suddenly, like one day out of the blue, is it like you cant walk or have intractable pain?? or, does it progress like mine...symptoms that come and go...then eventually stay? sorry for the long note. thanks in advance. gina

gilligan
New Member


Date Joined Jun 2009
Total Posts : 4
   Posted 6/3/2009 11:00 PM (GMT -7)   
oh, this is interesting for y'all. ive also been reading alot about osteopenia, porosis and discovered THAT THERE IS A DIRECT CORRELATION BETWEEN LOW BONE DENSITY, AND SCOLIOSIS!! i know this a isnt an arthritis positing but i think its important for everyone to know this. if you have a child w scoliosis, i would do everything nonsurgical that i could to stop its progression. or, if you yourself have been dx with scoliosis years ago, you owe it to yourself to ask for a bone scan for osteoporosis. somewhere on this site, i also learned that one md recommends taking 3,000 mg of vit d for a year to quickly increase bone density. i bought vit D tabs recently and am taking about 2,000 mg day. beware though, vit d is a fat soluble vitamin meaning that it can accumulate to dangerous levels. unlike other vitamins that get flushed out of you body if you take too much of fat soluble vitamins (d, e, a and k), they will accumulate. be aware of the risks of overdosage to learn the side effects. thanks.
gina

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 6/5/2009 7:05 PM (GMT -7)   
Hi Gilligan, welcome to healing well. I don't know much about scoliosis but there are alot of people on the chronic pain site who have major back problems and who may be able to help you out. Arthritis wise, I find joints can flare then settle then flare again depending on weather, my usage or if I'm putting extra pressure on that area from limping due to another issue!!! If that makes sense. I get numb spots in my right leg which seems to be caused by my hip compressing the nerves, infact my hips seem to be causing lots of other issues. Inflammation and pain just seems to create concentric circles of inflammation and pain in radiating areas, we all seem to have many overlapping conditions... anyway if I was you I'd go and see your doctor and describe all symptoms no matterhow unrelated they seem. Good luck, golitho

gilligan
New Member


Date Joined Jun 2009
Total Posts : 4
   Posted 6/5/2009 7:26 PM (GMT -7)   
thanks so much for your response and advice. i called my rheum today...got the covering md instead. she said they might consider an mri. i had one years ago (20) when i was in my 20s (for an annular tear, disc bulge at l4-5 (after holding up that patient that almost fell when i was working as an rn...the dr then could NOT believe my spine. i dont know what she saw but at the time, she told me that she expected my spine to start CRUMBLING IN 20 YEARS! (that 20 years is now!) she also told me that i had the spine of a "MUCH" older person. as she was only treating me for a l4-l5 annular tear and disc bulge there, she felt i guess that she wasnt obligated to treat me for something else that she saw on that mri :(. she also told me to take calcium...im still not sure what she saw... i tried to get the scans years later but they were thrown out after 10 years. i also forgot to tell the covering dr today that i also have episodic tingling in my hands. ill let you know, golith if i am prescribed the mri. i think the arthritis there is pretty back. does your back make cracking sounds when you move like mine does? :O!

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 6/6/2009 4:15 AM (GMT -7)   
I thought cracking sounds came with the territory!!! I think they're to do with tendons and bones rubbng off each other but I'm probably completely wrong. Hopefully they will do the MRI and it will fill in the blanks for you. I always feel a bit better when I can imagine what is going on!!! Keep on hassling the rheumy's until you get some sort of answer. I get the numb hands especially on the computer but also everynight. My rheumy had the OT make me some splints and they work wonders at night for me, really cut down the pins and needles. I still wake up numb but not on fire during the night. I get pins and needles in my neck too but having just started with a physio, she thinks my hips have put my lower back out which has put my neck out to compensate... and so it goes on. Your back sounds as if your hips could be compensating.... but get yourself checked properly. All our conditions mean we're very good with sympathy for others, pain is a humbling commonality unfortunately. Just keep posting, golitho.

PEGGOYLINA
New Member


Date Joined Jun 2009
Total Posts : 3
   Posted 6/8/2009 1:19 AM (GMT -7)   
I would like to say as well I have almost the same condition on my Left Groin Pain. It started out as pins and needles then into throbbing pain off and on every day in which I was experiencing lost of pain when I would sit, bend over my left hip and into my abdomen.
I was told from my Family doctor it was a Gyn problem. I went to the Gyn; I was told I'm so healthy nothing is wrong around that specific area. Then I was told to have a colonoscopy maybe it was an intestine problem, but all was good. I kept on asking for an MRI but my suggestion kept on being dismissed for 10 months. I was told an MRI is very expensive. But wait? All theses years of paying health insurance don’t I have a right to have an MRI Scan? Mind you I was still in everyday pain.
Everyday I was hearing excuses. maybe its the heels your wearing, maybe its your menstrual cycle. maybe because your 10 pounds overweight.

After demanding, demanding and again demanding, finally my Family Doctor referred me for an MRI. The MRI with contrast was performed with a Needle inserted into my Bone.

The Conclusion is. I am diagnosed with a Mild Degenerative Disc Disease with a small broad based disc buldge with multiple cysts in between the pelvis and hip area.
I was told Vitamins, pain killers or any other supplement will not help my condition, within 1-5 years a hip replacement will be needed and that I'm one in a million young adults to have this problem. Maybe from a fall when i was a youngster or its just out of luck.

New England Baptist Hospital in Boston is speacilaized with Bone Problems

I hoped this help,:)

gilligan
New Member


Date Joined Jun 2009
Total Posts : 4
   Posted 6/8/2009 8:50 AM (GMT -7)   
first of all, i wish you luck with your diagnosis. thanks also for the cyst info. i have an appt today with a general md. will ask for an mri and will let them know about your similar situation. it might just save me lots of running around for a proper diagnosis. thanks again.
most sincerely,
gina
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