Good Moanin' Healing Well V68

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babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 7/7/2009 10:50 AM (GMT -7)   
well, not sure how to start a new thread like Ducky always did, but since the last one was locked..here goes....
How is everyone?????  I hope some of my old friends are still around and reading...sure do miss all of you so very much.....Ducky, Erin, bear, Yally, Boo, Mom, CaMamma, Raven, Imarrzz,Joan....I know I have forgotten so many..but please forgive me, i just really miss days when we were all here checking in every day or two.  You became my "cyber-family" and it meant so much to me! Not too mention how you all helped me get through the early days of RA.  Don't know what I ever would have done without you.
Florida is, well, its Florida is July....hot, hot, hot.  I think we are doing ok, lots of changes and need for prayer in our family right now.  Youngest son still out of work..nothing promising out there at all for him yet...future daughter-in-law also lost her job recently. (She's with the son who is a teacher)  They have a house together, and right now, no income at all for them until he starts teaching again for the new school year.  Hurts to see your kids hurting, knowing that there isn't a lot you can do to help them!
As for me...just getting over a bout of shingles, on my face no less. I guess I was really forunate, some suffer so horribly with this, but my case wasn't too bad.  Hopefully, I won't suffer the bad after-effects some have had.  I think I remember Joan having a really bad time with this?  Dr said there is a big increase in the number of cases of shingles she has seen lately....wonder why?  Does anyone know if we are more at risk because of our immune system problems? Had to stop my enbrel for a couple of weeks while I was on the anti-virals, and I guess the old saying is true..you don't know what you've got til it's gone!  Boy was I glad to poke myself yesterday! Also had to take a break from exercising and kickboxing cry    That was really hard!!!                       
 
We had to change internet providers, once again, so I have a new e-mail.  I updated it in my profile, so if anyone wants to shoot me an e-mail...it's right there for you to access, please, I would love to chat, anytime.  Mom, we have talked about doing that several times and have never gotten it done, so please feel free to contact me!
Still have all the little ones crawling at my feet....though a couple of the older girls will start pre-school in the fall.  Guess that means I'll be looking to start a couple of new babies at that time.  Always kind of nervous to start the interviewing process...but hopefully I'll get some calls.  Things have been a little slow in that department as well.  Would be nice to take things a bit easier for a bit, but...not the time economically to do that.  Guess we all know that, though, right?
Well, dear ones, have  to sign off.  As usual, nap time will be ending way too soon...need to take care of some house things before the little ones pop up their little heads.
Take care......Hugs all around!
Love,
Jody

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 7/9/2009 3:02 AM (GMT -7)   

Hi Jody, The RA site seems fairly quiet of late...when I first joined there seemed to be constant chatter going on. I can only assume people have moved on and things are going well. I still log on a few times a week to keep an eye on things. Its a tough time right now economically. My husband is a builder so I have my fingers crossed for a new contract, we're ok for a few months but it'd be good to have that "next" job on the horizon. I teach part time and only have two days next semester, so I worry about the lean times too. My kids are younger, 15, 13 and 9, still at school, so life is fairly hectic at times.

I live in Australia and so its winter here. I'd like a bit of that Florida sunshine to warm up my joints!!! We bought a new gas heater which is a poor substitute for a bit of sunshine. Having a very wet winter so far.

Shingles sounds terrible. I hope you're ok. I've got bronchitis right now with a bit of asthma thrown in but think I'm picking up. I held off the humira for 10 days but was scared to go longer. Don't want to flare just when my joints have finally decided to start to settle!!!

Good to meet you, Jody, best wishes, golitho :-)


babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 7/10/2009 10:48 AM (GMT -7)   

Hi there,

Nice to "meet" you, too!   Yes, seems likethings are awfully quiet here, didn't always be like this.  Don't know where everyone else, but I hope they are all ok.  I think I joined a couple of years ago, and then there was a group of us that were on all the time..   Australia?  How cool is that!  From what I have seen you live in a beautiful country..LOVED the movie lol.   Stange to think of anyone having winter weather when we are in the heat of summer here.  But I would gladly trade you a little of our heat for some of your cool, if only I could!

I'm one of the "old" ladies here....my kids are all older, four boys, ages 33,32,30, and 24.  no daughters-in-law or grandkids, yet...but keep hoping.  I do childcare in my home though,  (hence the name "babyplace") have been doing this for almost 22 years. So, building is down in your part of the world,too?  It's terrible in the states..keep hoping things wil pick up.  Shingles are almost gone, thank you for asking.  I have been most blessed from what I gather from others.  I seem to have had a rather mild case, so major pain or scarring.  Have been able to be back on my meds, so that has helped alot.   How are you doing?  How do you like Humira?  My doctor was thinking of switching me to that, we weren't sure the Enbrel was doing all it should....

Well, my afternnon break is over.  Have a wonderful weekend!

Jody


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 7/10/2009 5:13 PM (GMT -7)   
Hi Jody, humira started off as a true miracle drug just seemed to wipe out all my symptoms but as time goes by they're creeping back in all the time. I'm now on 20mg of mtx as well and that seems to be helping. Like everyone I seem to get good days and bad days. My knees seem to be permantently swollen but lately its been my hips as well. Carpel tunnell comes and goes and is firmly with me now! I sort of hobble around the place at times!
Maybe swopping and changing meds is the answer!
I like the humira for the fact there seems to be NO side effects!!! Its the first drug I seem to be tolerating but my immunity is fairly shot... I have to go, youngest hassling me...I'll write again, golitho

momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 7/13/2009 8:48 AM (GMT -7)   

Jody!!!! Is that really you??  I have missed seeing you here, well you know what I mean! I can't even imagine how hot it must be there in Florida.  Do you have the humidity? It is hot here in Colorado, but when I lived in Kansas it was an entirely different kind of hot, either way, I'm ready for Fall!

I have heard about Shingles going around and have noticed that many of the pharmacies are doing shingles vaccines? I've never had the chicken pox and neither has my daughter, my son's had them at the same time and still my daughter who was two at the time never did get the chicken pox, it was the strangest thing!  I know my mother in law is worried about getting the Shingles, and it sounds so painful, I'm glad you are on the mend! Can you get them more than once?

I'm  so sorry to hear about your son who is out of work, that is the story with so many now sad We have a couple that we are good friends with and she pretty much just goes from temp job to temp job, whatever they can offer her.  It seems like everyone we know is struggling financially, and we have cut back our spending and going to the grocery store is a shocker! I think groceries are going up each week!

The site has been terribly quiet, I check it maybe once a week if that, since nobody every posts here anymore, but when I noticed that you had posted, I had to write a few lines tongue

Try to pop in more often!


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 7/13/2009 6:08 PM (GMT -7)   
Hi Mom, If you've never had chicken pox or your kids get yourselves vaccinated!!! Of all the childhood diseases I hated chicken pox the most. Made the kids into whinging tyrants and my son got so sick he ended up in hospital with chicken pox pneumonia. When you get the chicken pox in your lungs!!! I had my youngest vaccinated and it was such a relief for me not to have to go through it a third time when it was doing the school rounds!!! I think it gives you immunity for shingles too but I'm not sure.
I totally agree with groceries, two teenagers I spend nearly my entire part time wage on food!!! Or thats what it feels like. Meat prices seem to have skyrocketed in Australia too.
I mainly chat on the Chronic pain forum these days although I don't really concider myself a true CPer at least there are regular chatterers there and they don't mind me joining in.
Talk again soon, golitho

babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 7/15/2009 6:43 PM (GMT -7)   

Hi guys,

Yes, mom, It really is me!  So sorry that I keep disappearing from time to time..dont mean to, just my life these days.  Yes, the shingle are a real pain..in more ways than one.  From what I understand, once you have had the chicken pox, the virus goes dormant in your spine in one of the nerve trunks.  Then something can kick it into gear, and it shows up as shingles.  I had hoped you couldn't get it more than once, but this is my second go round with it.  First time was about 8 years ago when I had pneumonia.  But, it was on my side, and this time was on my face.  So..leave it to me lol!  There is a shingles vacine, but I don't think you can take it while you're on some of the meds.  A friend of mine had to be off her enbrel for six weeks before she could take it.  Anyway, I certainly would talk to your doc about it though, because golitho is right, it can have some serious complications.  Sometimes permanant nerve damage...mine was near my eye, and they were watching it very closely. I would also really encourage your mother-in-law to check into it as well...I wouldn't wishthis on anyone!  However, one word of caution....my nephew's little boy got the vaccine...and still came down with a mild case of the pox at Christmas time.  He's 2 1/2....and the doc said it isn't that unusal......so......

Boy do I hear you guys about the grocery prices!!! Feeding the daycare kids, and a 24 year-old (think he eats what hubby and I do combined!!) is unbelievable...plus I still like to fix meals and send them to people  once a week or so, and it is getting harder and harder to do. cry     We sure are changing our menus.

Yes, Florida is brutal right now...we have the air-conditioning bills to prove it!  We put all new super-douper windows in to help with the power bills, but then they went and raised the rates!  Our bills are still higher....seems like we just can't win, ya know?  I just don't know where everybody went....it sure isn't the same here is it?  My son made me a facebook page (haha)..can't believe I'm actually doing this,but it is kind of fun.  A couple of the old gang have contacted me...,if you ever do that stuff, shoot me an e-mail, and I'll send you the info to look me up..it's kind of fun to exchange pictures, etc...

By the way mom, weren't you having your son for a month this summer?  Is he there now?  If so, how are things going?  Think of you so often...remember all too well how painful that path is with those boys!

Our son has a hearing to appeal the denial of his unemployment..that will be next Wednesday.  W are really praying that goes well...he hasn't had one call from all the apps he's put out.  He's getting pretty discouraged, not to mention broke!

My friend with breast cancer finally finished her chemo and radiation.  This week she opted to have her ovaries out so that she could take the best medicine available to keep the cancer at bay.  Not sure abut it all, but something about how her options for treatment were limited because her tumor was estrogen-fed, so this surgery will take care of that. It sure has been a long, long road for her....but she has been AMAZING!  

Golitho, Im so glad you found a forum where there are some regulars!  I only wish that was still the case here!  I can only pray that maybe some of them will see this and stop back in....and i also pray that they are all ok....Please pop in here when you can...at lease mom and I are here for now....and it's so nice that you are too.

Well...I have written my usual book here...I never can write a short post LOL!  Must get ready for bed though..going to the gym really early tomorrow.

Hugs,

Jody


momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 7/16/2009 8:22 AM (GMT -7)   
Hi Jody,
 
The shingles sound like a nightmare, and I really will encourage my mother in law to get the vaccine.  We drove past a Wal Greens that was advertising and she told me they are around 200 or so dollars....she just purchased a hot tub for our anniversary, she is a very generous person and has the financial means to do, however when it comes to taking care of herself? Forget it!!! mad This is something that just gets the family!!! We tell her all of the time, she needs to take care of herself, do things for herself..nope sad We love her dearly and worry about her because of this.  I hope she does not get the shingles.  Now I will worry about my boys getting shingles as well.  When my daughter was a toddler, and getting her vaccinations, they had just come out with the chicken pox vaccine and she was just turning two, but your child had to be between 15 and 18 months, anyway I was told she was too old? So she never did get that one.  I guess now anyone can get it at any age? She will come up for shots fairly soon and I will ask for it at that time.  I would like to get it as well, but I hope I don't get the chicken pox.  I don't ever remember having them, and my mother said I never had them. 
 
Having to go off your Enbrel to get the vaccine, that is an iffy situation...especially since you have done so well on it! With your kickboxing yeah
 
I'm starting to dread the grocery store, and I buy mostly the store brands when possible and I still end up spending the same amount.  The kids are home for the summer and it seems my husband eats as much as a teenage boy, so I can't seem to save any money!
 
 about my 17 year old coming for a visit? No, he decided not to come out, he got a job and bought a BMW instead rolleyes It's all about the image you know! At least in his mind it is anyway. Honestly, I can say he isn't the same boy that left here last summer, he has completley changed.  He works and buys all of his own clothes, but what he buys is beyond ridiculous, for what he pays! just a t-shirt is $50 and his tennis shoes are well over a hundred.  We wouldn't support his expensive tastes here.  To say I'm dissapointed, is an understatement. My daughter went down there for a visit this summer and told her brother all he is doing is helping to support the sweat shops that exploit their workers so that he can look good.  She is 12 and the way he is really bothers both his sister and brother, neither of them understand him.  He has another year, and then he will be on his own and will have to pay for everything on his own and then he will find out how difficult it is to afford everything that he wants.
 
I hope your son hears something soon, it just seems as if there are so many applicants per job application.  However, our friend did find an office job.  I'm not sure if it is a temp postion or what, we will find out this evening, but at least it is something.  I know your son is running low on money and that is when it gets scary and stressful, not knowing when something is going to come his way.  Bless his heart! I know he is hanging on the best he can. At least he has a wonderful family to help him through this tough time.
 
I'm glad to hear your friend is beating her cancer! That is great news, and yes she did the right thing by removing her ovaries, although I know it had to be a difficult choice, especially if she is younger.  Just knowing that she will be cancer free and will have her life back, I can't imagine what that will be like for her and her family, but I wish her the best! It sounds like you have been a wonderful, caring friend throughout this entire time for her.  She is blessed to have you as a friend.
 
My daughter has been having some issues with kidney stones for awhile and yesterday we took her to see a pediatric urologist who said he only removes stones, and that she needed to see the nephrologist across the hall and they managed to squeeze us in later in the day.  It turns out she has hypercalcuria and will need a medication most likely life long, to keep the excess calcium under control.  If it isn't one thing, it's another! But hopefully this will keep her from having anymore kidney stones.
 
I will email you soon, I'm off now to help my sunburned child! She went to a pool party with  friends and I sent her with SPF 70 and when I picked her up, she was lobster red shocked Needless to say, that was on Tuesday, and she is still miserable today.
 
Have a great day!!
 
 

babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 7/21/2009 7:05 AM (GMT -7)   

Hi again,

Another weekend flew by...now it's Tuesday already...better than monday lol.... We had our normal fast-paced few days.  One of the boys came in for the weekend with yet another girlfriend, but he seems quite smitten with this one, and afterall he is 33 (how did THAT happen??).  Only thing that worries me is that she is only 23....yikes..but seems to be years ahead of herself, and he is not at all a normal 33 yea-old..so maybe they meet in the middle??  Had our whole family over for dinner on Sunday..not even sure of the headcount anymore, must be well over 20.

How's the daughter's sunburn, mom?  Sorry to hear about your boy...gosh. those boys... Some of them just seem to have to take the rough road growing up.  I just know he'll be ok, though, you've given him a solid foundation of good values.  Once he's through all this, he'll come back around, they always do...some just take longer than others. Ours went through all the "brandname coolness" stuff too.  Think alot of that is just all the peer pressure of high school....once they got out of school, it was amazing how many "cool deals" they found at Walmart!  So excited like they found a brandnew thing.  Sure hope the meds work for your girl!  Atleast they found this at a young age, hopefully they will be able to keep it under control..kidney stones are no fun!
Golithgo...how you feeling?  Hope you are better!
Well, the little natives are getting restless here.  Breakfast is over, hope to get them outside to run off some energy if the heat and the bugs aren't  too bad..
Hugs to all,
Jdoy

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 7/21/2009 9:22 AM (GMT -7)   
Hi everyone! Yes, I miss the chatter here as well!!! I'm finally getting some time to catch back up with you all. Our 2 week trip was wonderful! I'm back to work. We've had the high heat and humidity here in SoCal and our air conditioner broke yesterday! Ugh! It's miserable without it! I work from home today, but would think about going in to the air conditioned office today if I didn't have a rhuemy appt and my daughter's orthodontist eval is today. I cannot believe how fast summer is flying by!

All this talk about shingles is so scary. It's one of my biggest fears! I know that sounds stupid, but my mom and so many other people have had it and I hear and see how painful it is. I am glad to hear you are getting better. Will the nerve damage heal by itself at all? A bunch of kids in my area came down with the chickenpox last year even though they were vaccinated.

Okay, more posts to catch up on. So good to see you all again! I hope all the family issues smooth out soon for you all. (sorry to make that general rather than specific to each of you.)

:-)
 


momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 7/21/2009 9:43 AM (GMT -7)   
Good morning Jody :-)
 
It sounds as if your son is trying to find that special girl, and while there is an age gap, if this girl has had the opportunity to go through college, get educated and has an idea of who she is, it may work out just fine.  There was an 8 year age difference between my first husband and myself, I was 17 and he was 24 and we married when I was 18, needless to say, I wasn't ready and he was more like a parent as he would never allow me to go anywhere with friends etc. I think 23 is a much easier age difference, I wish them the best and hope it works out well!  Although, I do have to say from my own personal experience, I met my current husband at 29 and the older you get the easier it is to choose a mate, because you just know yourself and what you are looking for, more so than in your 20's.
 
My daughter begins her medication on Weds morning and we will monitor her closely and she will most likely be on it life long, but at least she will not be at risk for osteoperosis in her 20's or 30's.  The sunburn was much worse than either my husband or I realized! It was so terrible that it ended up oozing pus shocked Had we of known it was that severe, we would have taken her in the day she actually got the sunburn!!!!!!!!!!!!!!! It was so painful, that for the next three days, she could not stand to have any clothes touching her shoulders, I felt like the worst mom ever. On her back, she had white stripes from where she had rubbed the sun screen but I guess missed the rest somehow.  I should have taken her to the party and put the suncreen on her myself, but she is going to 7th grade and told me she was fine, and that I was "hovering".  I get that a lot lately from both kiddo's.  However, after the fact she told me she wished I would have been there.
 
My oldest son is also into the girls and always has a new one! every week it is a new one and this week, she has piercings (belly button and tongue)  But really what CAN you do? I just sigh and shake my head and yes, while he looks down at places such as Wal Mart and Target, he will eventually end up there, just like the rest of us tongue I really like Target!
 
Speaking of kids, my 15 year old begins drivers ed today and it goes all day, and he refused to let me pack him a lunch, it would be uncool to be seen with a lunch, so when I pick him, it will be interesting to see how his day went.  I made him eat breakfast, but still...stubborn!!! rolleyes
 
How about I trade you one pre-teen plus a 15 year old for your little ones? tongue
Have a great day!! :-)

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 7/21/2009 11:42 PM (GMT -7)   
LOL, mom, you are too funny!
 


momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 7/22/2009 6:49 AM (GMT -7)   
Camama, how are you? How is your summer break going with your kiddo's? Honestly though, if I hear the, I'm bored from my son one more time, I am going to lose my mind! He slinks around the house whining that he is "bored" If I remember, yours are still young enough that all things are still fun :-) My daughter is still there for the most part, but teeters on the edge of boredom on some days. However, she will be seen in public with me and it is still cool to go places with mom.  I know you haven't posted in a while so you must be busy busy these days.
 
Not too much going on around here, for whatever reason I'm having a flare and not sure what brought it on, and my daughter is in 4-H, and we are behind in preparing her projects for fair, so it is a busy week trying to get those wrapped up.  My daughter begins her kidney medication this morning and I'm terrified to give it to her.  She has never really taken any kind of medicine before and this is actually used for congestive heart failure, so I've done enough research to scare myself.  However, it is a case of we don't really have a choice.  Hopefully all will go well and she won't experience any scary side effects.
 
I really don't have any other moanin except that it is so hot and I'm really looking forward to Fall!
 
I hope everyone else is well! Yally, Boo, Bear?

Raven67
Regular Member


Date Joined Sep 2007
Total Posts : 155
   Posted 7/23/2009 10:15 PM (GMT -7)   
Hi All,
 
I'm guilty.  Haven't checked in for a while.  Still struggling with all this crap.  I don't know, some days seem so good and others well.......................  I am having trouble dealing with the extreme fatigue.  All the Doctors have different reasons for this.  Some say its meds but if it was the meds would it not be constant.  I've changed mt diet drastically.  I do not eat anything processed at all.  All fresh fruit and veggies, free range chicken and fish, no aspertame and I have lost weight, but as for the RA and Fibro, not much change there. 
 
I would love to say that I'm feeling great but I'm still pluggung away everyday hoping the next one will be better.
 
 Does anyone else suffer from chronic fatigue and when I say fatigue I mean sleeping about 12-15 hours a day some days.  Would love to hear I'm not alone!
 
Hope everyone is well and I'm going to try to visit at least 3 x week.  I miss my HW family.
 
Take Care as I'm going to try and catch up,
 
Raven
When you get to the end of your rope, tie a knot and hang on!!!!
 
Current Diagnosis- DCIS, Rheumatoid Arthritis, Insulin Dependent Diabetes, Osteoarthritis right knee, Osteoporosis. Stress!!!!!!  New diagnosis of Fibromyalgia 04/08
Current Meds-Methotrexate 24mg s/c weekly, Plaquenil 200 mg BID, Celebrex, Folic Acid daily, Cesamet1 mg @ bedtime, Oxycontin 20 mg 3 x day, Lorazepam 2 mg dly Actonel weekly, Insulin-Humalog 35 units TID and Lantus 40 units BID, Calcium, Vitamin D  Arava 20mg daily


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 7/24/2009 12:53 AM (GMT -7)   
Hi everyone, I sleep alot Raven, not quite 15 hours more like 11 but often have to nap after work just to recover. I think the mtx takes it toll on me. I stopped it last year for a few months and felt so much better off it health wise, unfortunately back on it again now for the arthritis!!! It seems to be a nasty drug...have you crossed it out because you're no longer on it? Arava messed me around too, how long have you been on that one?
I'm much better bronchitis now just a rumble in the chest...doing hydro therapy for my hips and knees and I'm feeling the difference, much stronger. Do you guys call it aqua therapy? So supportive in the water and its so warm feels great. I'm feeling much more positive with it.
Regards golitho

ladywriter
Regular Member


Date Joined Jun 2009
Total Posts : 112
   Posted 7/24/2009 3:54 AM (GMT -7)   
Raven, I sleep about 12 hours when I go to bed for the night, and an additional 2-5 hours during the day and evening naps. I've been so tired, like today, coming home from a doctor's appointment at 3 pm, that I was tempted to pull into a parking lot, lock my doors, recline my seat as far back as it would go, and just sleep for an hour or so. I managed to get home without doing that, but I was so exhausted that it seemed a reasonable thing to do. I may start carrying a pillow in my car for that purpose.

My rheumy says this is due to the RA, and it will get better as we get the disease into remission. I was just diagnosed 2 months ago, and take only prednisone and MTX for the RA, and will start remicade in a couple weeks. I have other conditions that I take medications for, but this exhaustion began when my RA symptoms began 3 months ago, so I know it's due to the RA. I'm just waiting for the RA meds to kick in, to relieve the exhaustion. My rheumy wants me off work for 3 more months, as he believes that's how long it will take to get this into remission. Hopefully you and your doctor will find a med that will relieve this exhaustion. It's terrible to be so tired that I lay on the couch looking at something in the other room that I want, and don't have the energy to get up and get it. I sympathize. ladywriter
Rheumatoid Arthritis, Chronic Pain, Chronic Major Depression, Generalized Anxiety Disorder, Schizoaffective Disorder, Recovered Alcoholic w/15 years Continuous Sobriety


momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 7/24/2009 8:52 AM (GMT -7)   
Hi Raven, it's good to hear from you! I'm sorry to hear you have been so tired. Have you had your labs taken recently? Although I have had mine taken over the past year from my rhuemy (cbc) he never mentioned my low red count, and a trip to the urgent care and having labs taken showed a very low red cell count and I had just been to the rhuemy, I then went to my pcp, who compared to the last time I was in, and said it was getting lower.  At this point she was getting concerned, and it turns out, I have a vitamin B12 deficiency (megalobastic anemia) I pretty much went this past year, exhausted and getting up a flight of stairs made me out of breath and my heart would be pounding by the time I reached the top.  I kept telling my rhuemy how tired I was but just figured it was the RA, MTX etc.
 
I hope you figure out why you are so tired.  It is no fun being tired! My B12 injection doesn't last the entire month so by the end of the 3rd week, I start to go downhill, and the last week, I have been known to cancel appointments etc because I'm just too tired to drive and I don't have the energy.  So I can sympathize!
 

babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 7/28/2009 5:58 AM (GMT -7)   

Good morning everybody!!!

So good to see everyone here!  Raven...been missing you..did you get my e-mail??   So, so sorry to hear that you are still struggling, I was really praying that things were improving and that is why we hadn't heard from you....how are the kids? My sleep issues areen't sleeping too much, it's never being able to get enough!  I'm lucky if I get about 6 hrs a night, then by the end of the week I could pratically fall alseep standing up!

Welcome, ladywriter...sorry you needed to find this site...RA is no fun...but we're glad you are here..hopefully we will all be able to help each other. I think I've been at this about two and a half years now, don't know what Iwould have ever done without the people on this site...they were my lifeline.

Mom, oh my gosh...don't know if I'd be able to handle all those piercings!!  I give you alot of credit...so afraid I would get myself in trouble over that one! But my boys all called me the "smother mother" lol...still am to a huge degree I think.  But, tell them I just can't help it..I was born this way..Heehee. How's the daughter healing..is she ok with the meds?  Email me sometime, ok?

CaMama...how'd the rhuemy go?  Boy..I remember the braces days..semed we'd never get done....I even got them on myself in my late 30's.....HOw's the job going? Don't really have any lasting effects from the shingles , thankfully!  Every once in a while I feel some timgling in my scalp, but nothing serious...I was very very fortunate!     So glad you're feeling better golitho..chest colds are miseralble!  Plus this has hung on for a Long time, hasn't it?

We are doing ok at our house..just the normal craziness!  Another son flew in for a visit, has been here since last Friday morning...goes home today cry ..I miss him already....we've had a great time, and of course I went on a cooking/baking marathon beofre he got here. I need to cleanup my diet like Raven!!  Then I wouldn't need to do so much exercise like a madwoman....I just like food (all the bad stuff) way too much. Jeremy is the one who lives in Memphis, and he is his own force of nature...just as ADHD now at 32 as he was at 2..So, it's been a nonstop flurry of activity since his plane landed.  But, I love the fact that all the guys enjoy spending time together, and it's a bonus for me, cuz I get to spend alot of time with all of them!  Always said that as a parent I will always love my children, but my prayer is that they grow up to be people that I LIKE...and I can honestly say that I do like them all, but what's even better is that they like each other too. I just love to sit back and watch them interact with each other..so much fun...they are a blast.
well, time to get breakfast  for the kiddos...hope you all have a great day....will check in later!
Hugs all around!
Jody

Post Edited (babyplace) : 7/28/2009 7:06:44 AM (GMT-6)


momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 7/28/2009 9:53 AM (GMT -7)   
Hi Jody..Sounds like you had another busy weekend as well? Summer is almost over and I'm wondering where the time has gone too?? I had so many plans to get my house in order before fall, and it just hasn't happened yet.  Like you, it is just non stop! As for the girl and the piercings.... rolleyes He is 17 and lives in Kansas, I always hope he will find a nice girl, but honestly sometimes the ones he chooses...My husband tells me I will never be happy with any girl the boys choose, and this may be true, but sheesh a tongue ring???? Even I have my limits!! The funny thing is, he has no piercings, but seems to attract those that do. 
 
My daughter has had some side effects from her Thalitone, but they should subside in a couple of weeks, and she goes Thursday for a bone age/density scan at Children's, after that a couple of more tests and she should be fine for the next 6 months or so.
 
Not much going around here, but there has been a reported and confirmed case of the swine flu at my daughters gym, so we are hoping that the girl recovers quickly and that no other girls become ill.
 
I haven't read all of the posts but Camama is getting braces? My daughter has had braces (phase 1) and will have phase II sometime in September.  There was a mom at our school who wore braces and when she got them off, she had beautiful teeth!
 
Gosh is it only Tuesday?? I had to have a re-treatment of a root canal this morning, that I had done several years ago, it was "failing", so it was a trip to an endodontist.  There is a dentist who specializes in root canals, who knew? I guess you can have a root canal done twice shocked
 
I hope everyone's week is off to a great start :-)   Boo, Yally, and Bear, hope to hear from all of you soon.
 
 

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 7/29/2009 8:49 PM (GMT -7)   
No, I'm not getting braces...my daughter might, but it would be early intervention, not a 'phase 1' or something.

At the moment, I'm not doing great, I"m having a problem with my GERD/BP/etc thus giving me a panic attack, I haven't had one in a while and of course I"m home alone. It seems to be getting better slowly, hopefully that really is the case and I'm not up all night long scared to death.

Someone asked about my kids and their summer...we've been pretty busy overall, even with me working...so they haven't had a whole lot of time this year to say they are bored (thankfully!) And they aren't even in a camp or organized activity. LOL.

My new rhuemy seems pretty nice....we'll see how it goes the next time I see her.

Stay well everyone. I used to have extreme fatigue, and it does come back during flares. I do recommend (as someone else did) a good B complex vitamin. It could help a little bit.
**
 


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 7/30/2009 11:31 PM (GMT -7)   
Sorry to hear about the panic attack Camama, that sounds really awful especially if you are alone. Is there anything you can do for them or someone to call to help you get through them. I don't like the idea of you being alone.
I'm glad your new rheumy is nice. My kids have just gone back to school (I'm in Aus) and we seem to be back in busy mode. There seems to be alot of school activities planned for this term, my calendar is bursting for the next 2 months!
I finally seem to have hit a plateau with my sero neg arthritis. My knees hurt but arn't getting worse, I still have carpel tunnel and sore hips from bursitis but its all constant now. I feel so much happier, I was getting so depressed for awhile there.
Now I've just been told I need surgery for a gynae problem!!! You can't win, golitho

momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 7/31/2009 7:18 AM (GMT -7)   
Golitho...School will be starting soon here as well, in a few weeks anyway! My 15 year old told me he is ready to go back to school. It seems here the kids go back a bit earlier each year.  I'm not so sure I'm ready to get back into the routine yet myself, and I know what you mean by all of the activities (volunteering?) Sorry to hear about an upcoming surgery.  I remember those and they are most unpleasant!! Hopefully this will be an outpatient and not a six week long ordeal for you.
 
Camama..I'm happy to hear you have a rheumy that you like as well.  Sorry about the misunderstanding on the braces, I didn't read all of the posts. Here where we are, they put the braces on the kids early with the palate spacer (before age 12 on girls) and call it the first phase because they will most likely need another round of braces which is the case with my daughter, her teeth are now terribly crowded in the front, and when her dentist made the comment that she would need orthodontics at her last cleaning, I knew she would need another go around sad He had no idea she had even had prior treatment. At this point, she will be getting full on railroad tracks as she calls them.
 
Not much to moan about around here, it has been raining and in the 70's which I really can't complain, I love the rain and the cooler weather but my hips have been really sore due to the change in weather.  Other than that, just on the countdown to school starting and trying to get everything done in the meantime.
 
I hope everyone has a terrific weekend :-)

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 8/1/2009 1:13 AM (GMT -7)   
I did call a friend or two to get my mind off things....eventually it did lower, but I double=checked to make sure I had left over heart medication from last year's blood pressure issues. Thanks for asking.

School starts here in about 3 weeks. I'm not ready for that routine again...my daughter is a bear in the morning and their school starts pretty early. Too early for my taste! LOL.

Mom, I had the palate separator when I was 11 as well...not fun....they didn't say my daughter needed that, at this point...but just preventative work to help straighten a few teeth. Still deciding on that one. want to get a 2nd opinion about starting now vs. waiting for the rest of her teeth to come in. I haven't heard braces called "railroad tracks" in years! Too funny!
 


momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 8/2/2009 12:04 PM (GMT -7)   
Camama...Schools do seem to be starting earlier and earlier every year! This year the kids have to be at school at 8am, and last year it was 8:05, and I know it's a measly 5 min, but sheesh every minute counts when your commuting in. I'm not ready for the endless routine either, so I know what you mean by that. I have two that will be bickering over the bathroom and the mirror because they both have to get ready and fix their hair (my son has long hair) rolleyes and my daughter isn't always a ray of sunshine either! On her own she's fine, add a brother to the mix and look out.
 
I agree with getting a second opinion about the braces.  I didn't think my daughter would be very accepting about her "railroad tracks" but she seems fine with them so far.  We are just going to get them done while we still have dental insurance at this point because without it we wouldn't be able to afford them.
 
Are you feeling better??
 
It looks like the weekend is just about over, already! I hope everyone else is doing well.

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 8/2/2009 10:17 PM (GMT -7)   
Feeling better...yes...hurting worse...yes...I spent the last 3 days cleaning, running errands, etc...getting the house ready for visitors for the week....now I'm beyond sore...but I'm done with the bulk of the work! YEAH! Just gotta convince the kids (who are coming home from a trip with their dad right now) to pick up their toys and clutter tomorrow before everyone gets here. Of course,all my great work will be ruined after they unload a week of dirty camping gear, clothes, and food all throughout my house! sad

LOL - my kids don't fight over the mirror, but my high-maintenance daughter won't leave for school until SHE is ready...it's very frustrating! THEN, she refuses to stay upstairs alone to finish getting ready by herself, and screams at her brother who wants to come downstairs and eat breakfast. LOL.
 

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