Thank you so much to the both of you for your replies. It makes things easier to cope with knowing your not the only one going through these things. I've not had a negitive response from anyone I've spoken to about this medication and treatment so I'm hopeful that I'm going to start feeling alot more normal than I have of late. As my doctor said yesterday 'what other choice do I have"? the good results from this treatment out way the side effects. My life is seriously affected by AS and now have a permnant disabled sticker for the car. I just want to be able to wear a normal pair of shoes and be able to walk without pain I'll keep you posted.
Thank you once again.
Thank you for that, I'm so sorry your still suffering though I do believe that I will never be pain free, but boy would it be nice to have just a little time every month where I would feel normal and be able to wear my Oh so pretty shoes and not feel so sick all the time along with the pain in my ankle/foot!!
AS certainly gives you a run for your money, the Remicade is the last thing that can be offered to me unfortunately as we have tried everything else. I'm slowly coming round to the fact that I will just be like this for the rest of my life now and I'm adapting well. My family have helped by trying to see the funny side of things, which helps sometimes but only family can get away with that..
I do hope that the Humira injections help you and should kick in if they are going to work after about 3 months. I'm on Humira and Methotrexate at the moment along with all the other drugs for various things.
Here's to a good week for everyone...
You've been most helpful and informative with a rough idea on what to expect. I planned to take a good book to read with me and the idea of taking a note book to keep a record of how I'm feeling would help too. I've had nothing but positive responses to my questions both here and at the specialists, so I'm very hopeful, even if it's a relieve for a couple of weeks a month that would be good. Your news of feeling better is wonderful and I'm really happy for you knowing what it's like with this disease. I told my specialist yesterday about this site and how it's helped so much to know that I'm not alone with this, he agreed that anything that makes you feel better is a positive one. After listening to him record his usual letters to various doctors etc after my visit I was shocked...it hadn't dawned on me until then just how many things I have wrong and how serious things are. I don't mean that they will kill me but along with AS I have problems with my sight, heart, High Chloresterol, high blood pressure and insulin rest.disease... all genetic unfortunately. The only thing (god forbid) that I don't have that my mother has is COPD!!!!! but I've not been a smoker so that helps.
Have a good day.
Thank you so much for your comments, they all help to make a bigger picture and let me know what I may expect.
Have a wonderful pain free day