RA and Oversleeping

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ladywriter
Regular Member


Date Joined Jun 2009
Total Posts : 112
   Posted 7/12/2009 3:39 PM (GMT -7)   
I accidentally scared the heck out of my parents today. We were going to meet for lunch, and they called me on my home phone when I didn't show up (I have a phone by my bed and an extension in the kitchen) and I was completely zonked out and didn't hear the phone. For 1 and 1/2 hours they kept calling and I was just so out of it I never even heard the phone.

Has anyone else had this level of fatigue? I didn't take my MTX this weekend because I have a bacterial infection, so I can't blame it on that. The RA does make me sleep a lot, take a lot of naps, and generally I sleep like a rock, but I almost always hear the telephone, especially if it rings repeatedly. Just wondering if anyone else has been through something like this.

My poor parents feared the worst, and even though they're both somewhat disabled, they made it up the 15 steps to my apartment, let themselves in, and when I woke they were both hovering over my bed asking me if I was OK. I felt terrible for frightening them like that, but that's what happened. They ended up going out without me, because while I was in bed I said I'd just throw on some clothes and we could go, but once I got up (with great difficulty) and had more pain in my feet, shoulders, and hands, than normal, I didn't feel like even trying to go out.

So basically, it's a low energy day with a flare up, and I slept like a rock. I don't think a tornado would have woken me. Has anyone else experienced this?
Rheumatoid Arthritis, Chronic Pain, Chronic Major Depression, Generalized Anxiety Disorder, Schizoaffective Disorder, Recovered Alcoholic w/15 years Continuous Sobriety


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 7/12/2009 4:27 PM (GMT -7)   
Before I was diagnosed and was very ill from the RA I slept up to 20 hours a day and when the doctor said I wasn't resting enough I agreed with him. I was so exhausted even the few hours I was awake I had to fight myself to keep from dozing off again.
I still have overwhelming fatigue during bad flares although the plaquenil has mostly cured that.

ladywriter
Regular Member


Date Joined Jun 2009
Total Posts : 112
   Posted 7/12/2009 8:48 PM (GMT -7)   
sjkly,
How long did it take before you didn't have to sleep so much? How much do you sleep now? I've been on MTX for just 5 weeks now, and my rheumy wants to start me on Remicaid in 3 or 4 weeks. Left to my own devices, I sleep 14-18 hours a day, and I'm still tired. However, I've been trying to get up after about 12-14 hours and get out of my apartment as many days a week as I can.

I don't do much when I'm out, just go to the coffee shop or grocery, or go have coffee with my unemployed friends. I drink A LOT of coffee and sugar-free energy drinks to keep going through the day, and I still have to take naps. I just feel like I'm going to go stir-crazy when I stay in my apartment all the time, even though I'm mostly sleeping or up and down napping.

I have the vague sense that all the coffee and energy drinks are not good for me, but I hate being so lethargic all the time!!! I wonder if the knocked-out sleep is my body's way of making up for when I keep it going through artificial means (coffee and energy drinks).

sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 7/12/2009 8:59 PM (GMT -7)   
Well, it took me a long time to get a diagnosis and good meds. Once that happened the plaq cured the oversleeping in about 6 weeks. I still need 8-10 hours most nights in order to stay well. If you are on MTX you need to make sure you are taking enough folic acid-and taking it everyday. I was looking at your list of other diagnosis and would say you may also want to look at how they are being treated-that could cause fatigue as well.

Also, the energy drinks and caffeen can be having a rebound effect where you have more energy for a while then really crash-don't go cold turkey on them though you will get really sick. I would recomend cutting back slowly.

_Christina
Veteran Member


Date Joined Feb 2007
Total Posts : 553
   Posted 7/14/2009 8:58 AM (GMT -7)   
Tonight I am going for a "sleep study" to see if I have sleep apnia. My rheumy suspects that the sleep I get is not good enough, and that's why I am so fatigued. The sleep Dr. agrees that I may have apnia- so here we go! I am sure that it is not the only reason I am fatigued, but if it helps any I will be sooo happy.

I sleep about 10-11 hours in the night, push myself to stay awake through most of the am, take a 1-2 hour nap (if I can) in the afternoon, and have most of my energy in the evening. The trouble is- my 3 kids don't have the same sleep schedule and don't deserve a "zombie mommy."
 Christina
Even though I do not understand where I am going on the path that God has laid out for me, I must submit to His plan and trust that He will take me where I need to be. 
 
Current medications:
Bipolar treatment-Lamictal, 200mg, Mood stabelizer, daily(main side effect: brain fog) Bipolar treatment-Cymbalta, 40mg, Antidepressant, daily(main side effect: GI upset, decreased clotting, insominia) Anemia, Fatigue treatment- Iron supplement, 65mg, daily(main side effect: constipation) Insominia treatment- Ambien, 10mg, daily(main side effect: amnesia eppisodes between taking pill and falling asleep) Mania treatment- Alprazolam, .25mg, Very rarely(main side effect: fatigue, slowing of thoughts, depression of CNS, can't take ambien or vicodin when on it) RA treatment- Plaquenil, 400mg, daily(main side effect: GI upset, decreased clotting) RA treatment- Methotrexate, 25mg, 1X weekly(main side effects: hair loss, stomach upset, mouth sores, sore muscles, fatigue, brain fog, compromised immune system, decreased Folic Acid absorption) GI upset treatment- Leucovorin Calcium, 10mg 1x weekly(main side effects: ?) Folic Acid defintioncy- Folic Acid, 1mg, daily(main side effects: ?) Multi-mineral Supplement (main side effects: constipation, GI upset) Constipation treatment- Docusate Sodium, 200mg, daily(main side effects:?) pain control- Motrin, 800mg, PRN Q6hours daily(main side effects: GI upset, decreased clotting) Pain Control- Vicodin, 5-500mg, PRN Q12hours 3-4 times weekly (main side effects: brain fog, fatigue)
 
 
 
 


ladywriter
Regular Member


Date Joined Jun 2009
Total Posts : 112
   Posted 7/14/2009 8:59 PM (GMT -7)   
Christina,

I could have sleep apnea-my dad has it. I'll mention it to my rheumy when I see him next week. It would explain the extreme fatigue, although it might just be from the RA and the MTX not working yet. I also suffer from chronic pain, and have needed 9 hours of sleep a night for years, but I chalked it up to the chronic pain. No doctor has ever mentioned the possibility of sleep apnea to me, so I didn't give it a second thought.

I hope your sleep study goes well. My dad's like a new person when he uses his machine and gets enough oxygen at night.

_Christina
Veteran Member


Date Joined Feb 2007
Total Posts : 553
   Posted 7/16/2009 11:54 AM (GMT -7)   
It turns out that I DO have sleep apnea, and will get my CPAP today. I have RA pain nearly all the time too, and I am also bipolar. I have always needed a lot of sleep- but since getting RA and starting on MTX it has gotten a bit ridiculous. I want to sleep all the time! I am hoping that after the CPAP has had time to work I will see across the board improvements in both of my conditions.
 Christina
Even though I do not understand where I am going on the path that God has laid out for me, I must submit to His plan and trust that He will take me where I need to be. 
 
Current medications:
Bipolar treatment-Lamictal, 200mg, Mood stabelizer, daily(main side effect: brain fog) Bipolar treatment-Cymbalta, 40mg, Antidepressant, daily(main side effect: GI upset, decreased clotting, insominia) Anemia, Fatigue treatment- Iron supplement, 65mg, daily(main side effect: constipation) Insominia treatment- Ambien, 10mg, daily(main side effect: amnesia eppisodes between taking pill and falling asleep) Mania treatment- Alprazolam, .25mg, Very rarely(main side effect: fatigue, slowing of thoughts, depression of CNS, can't take ambien or vicodin when on it) RA treatment- Plaquenil, 400mg, daily(main side effect: GI upset, decreased clotting) RA treatment- Methotrexate, 25mg, 1X weekly(main side effects: hair loss, stomach upset, mouth sores, sore muscles, fatigue, brain fog, compromised immune system, decreased Folic Acid absorption) GI upset treatment- Leucovorin Calcium, 10mg 1x weekly(main side effects: ?) Folic Acid defintioncy- Folic Acid, 1mg, daily(main side effects: ?) Multi-mineral Supplement (main side effects: constipation, GI upset) Constipation treatment- Docusate Sodium, 200mg, daily(main side effects:?) pain control- Motrin, 800mg, PRN Q6hours daily(main side effects: GI upset, decreased clotting) Pain Control- Vicodin, 5-500mg, PRN Q12hours 3-4 times weekly (main side effects: brain fog, fatigue)
 
 
 
 


ladywriter
Regular Member


Date Joined Jun 2009
Total Posts : 112
   Posted 7/17/2009 2:51 AM (GMT -7)   
Christina,
Let me know when it starts working. I think it began working fairly quickly with my father, although he doesn't have the same health issues we do. I'm on Cymbalta too, although I'm on 120 mg daily. It was prescribed for Chronic Major Depression and to help me deal with Chronic Pain I suffer from a couple of auto accidents, and it does help on both fronts. I also take Opana (oxymorphone) for the muscle pain, but the RA pain is so much more intense that it doesn't do anything for that. Prednisone is the only thing that helps the RA pain.

I keep having insomnia, at least twice a week, sometimes more, and nothing will put me to sleep. Then I end up sleeping half the next day away, although I try to get up after 5 or 6 hours of sleep, (as if I had anything to do). I'm 49, live alone with 2 cats and no kids or boyfriend, so my sleep schedule doesn't really impact anyone but me.
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