Got online trying to find a chat room for people like me and there isn't hardly anything!! I would like to introduce myself. My name Is Sheila and from Ohio. Came down with RA when I was 19. First signs were stiff/swollen hands. They treated me for Corple(sp) and it just progressed. Doc gave me muscle relaxers to help treat it which didn't help. It got to a point I was taking 16 800 mg Motrin to work (now I have serious stomach issues, who'd figure!) a day! It travelled to my knees then my feet over the 2 years. One weekend after working so hard through that week, I locked myself in my room and couldn't move I hurt so bad. My family then took me to the Hospital, there I was diagnosed and treated for arthritis. A BIG shot of steroid and Toradol. I went out dancing that night....
That is when I had to start seeing a Rheumatologist. My RA count was 1220(ish), very severe. He put me on steroids and I felt so much better but weight gain came with it, etc.
about 12 years ago, I was in a wheelchair and it took me 6 years to get my Social Security. My age hurt my case.
I am right now on Retuxan treatments and seeking a secondary. Been on Enbrel, Orincia, Methotrexate, Remicade, etc. I have had surgery done on both feet and have bad joint damage. Right elbow is gone, left kneee has nerve damage and hands are horrible. I have it all over but yah know, ppl tell me I should get use to the in between treatment pain and of course, these ppl don't have a clue what Pain really is. That is where I am as we speak. Been so depressed the last week, its unreal. I have my GOD but having communication with others with the same disease would rock.
There is just so much that comes along with it and you never get used to anything. It is so hard sometimes......
Sheila from Ohio