Generalized Enthesopathy and RA (and M.E. and Ekbom Syndrome.......zzzzz )

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Cordelia-Mary
Regular Member


Date Joined Jul 2009
Total Posts : 20
   Posted 7/16/2009 11:05 AM (GMT -7)   
 I am totally new and from the UK where it is now 18.49pm. I have had M.E. since 1989 and RA diagnosed in 1990, since when it was ignored by the medics after hydroxychloroquine threatened my sight. It has flared up inbetween, but been confused with M.E. Now after a misdiagnosed tennis elbow operation, they discover it is not tennis elbow/golfers elbow at all, but advanced Enthesopathy and the worst condition the surgeon had ever seen who had a fit when he saw it. smhair . They now tell me idea see a Rheumatologist, who, hey, won't be able to do anything much as it looks pretty bad all over (complete MRI) but will be able to perhaps do something. Does anyone out there have experience of Enthesopathy in shoulders, elbows, hands, knees, ankles and feet, combined with M.E. and RA - as it is a rather tall order, does anyone have just ONE kind of Enthesopathy??? and keep smiling yeah I would love to hear from you before I see the rheumatologist on July 29th. Never having done this sort of thing ever before, I shall now post this and wait and see wink   Thanks.

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 7/21/2009 7:22 PM (GMT -7)   
Hey Cordelia,
Sheesh, you have enough going on there dont you! I cant really help you, I do remember someone else posting with ME so hopefully they come along with some advice. Stay strong and good luck with your appt. next week - keep us posted.
Jo

Cordelia-Mary
Regular Member


Date Joined Jul 2009
Total Posts : 20
   Posted 7/22/2009 4:41 AM (GMT -7)   
Thank you Jo :-) will do. This support, the knowing that someone else I've never met can sympathise and care, is without price. Thank you.
Cordelia-Mary


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 7/27/2009 8:07 PM (GMT -7)   
Good luck with your Rheumy appt. tomorrow Cordelia-Mary.
Please let us know how you went.
Jo
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