I am 57 years old, was diagnosed with this in 1997. I feel like no one understands how I feel. The Dr.s had to do a family history check to find out my problem. When I told the Dr. my grandfather was in a wheel chair, I had two aunts that were in a fetal position. When they passed away I don't know how they got them in the casket. Mine started with pain in the buttocks, diarreah, fatigue hip pain , knee pain just a general feeling of being sick. They gave me Mobic, methotrexate, asufaladine. I also have severe scolosis. The Drs. said I had a double whamy!.I don't want to take remicade, but does anyone know what will happen if I don't. Also does anyone beside me have migraine headaches that go along with a flare up?