Welcome to HW. Sorry you too are suffering with this.
Has you Rheuny mentioned putting you on Remicade? I know the biologics like Remicade and Humira are scary, Im waiting for approval on Humira and am scared of taking it myself, but am hoping it makes my quality of life better.
I too get savage headaches (not sure if they are migraines) when I am flaring - might be part and parcel with this disease.
Current meds: Methotrexate, Prednisone