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Veteran Member

Date Joined Aug 2009
Total Posts : 1221
   Posted 10/17/2009 8:48 AM (GMT -6)   
is anyone dealing with costo and if so, what kind of doctor confirmed it?  i want to go to a specialist because 3 primary care docs i have seen just say "oh it could be costo" but don't even do a physical examination!  frustrating - they are only guessing!!  doesn't make me feel very at ease.  either that or GERD.  which i don't think i have many symptoms of it but apparently sternum pain is a symptom.  i have been having the pain alot when i wake up lately.
i have had this stupid thing off and on for about 6 months probably - usually after carrying my son or lifting him on the weekends alot if will come back.  he is 3 and sometimes i have to (like in a store and he is misbehavig or when he is sleeping back into the house).  so it's almost impossible to NEVER lift him.  every morning when i leave for work he is sleeping.  i wake him but he always wants to be carried.  my doctor who is a woman even said she has grandchildren that are the same age and she does it too. 
anyway, finally i called yesterday and said i have been taking mly GERD meds for a week now and it's not getting better.  she called in some Mobick which is an anti-inflammatory i guess. that's it.  said i should go to a GI doc.  hmmm.  just want to go to a doc that knows alot about costo.  what test confirm it?  any?  nothing else has been ruled out.  they think because i am young (40), not overweight, my blood pressure is good, i don't smoke, that i am fine.  i have the pain under my left breast - to the right of my left breast by my sternum and my upper chest wall i guess which would be my 2nd and 3rd ribs.  soooooo annoying!!!  i just want it gone!

Regular Member

Date Joined Sep 2009
Total Posts : 44
   Posted 10/18/2009 12:45 AM (GMT -6)   
hazelnutI have had this horrible pain that I can never describe so just out of curiosity I looked up "costo" wow it descries exactly what I have been feeling. I have not talked to my rheumy about this but I sure will on my next visit,I did talk to my rimary and well he just blew me off. I hope you find someone to treat you for this problem as I know it is annoying and painful.
Lupus,Sjogrens Syndrome,R.A.
Mother of one wonderful teenage son,blessed wife
33 yr old  Teacher Assistant in Okla.

Veteran Member

Date Joined Sep 2009
Total Posts : 1176
   Posted 10/18/2009 12:52 AM (GMT -6)   
Hazelnut, I had the same thing, in conjunction with severe pain in my upper back/shoulder blade area, and when I complained to my PCP, she totally blew me off. It hurt me just to breathe!!

The pain lasted on and off for weeks and I could hardly move sometimes it was so bad. But no one I was seeing at the time would take me seriously. Finally my PCP gave me Vicodin for the pain.

It finally got better and then went away. I always thought it was part of my fibromyalgia because costochondritis can be associated with fibro.

I'll be praying that you feel better soon!
Autoimmune hepatitis, Hashimoto's thyroiditis, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD. Possible lupus and/or polymyositis - diagnoses pending.

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

Veteran Member

Date Joined Nov 2006
Total Posts : 1331
   Posted 10/28/2009 12:46 PM (GMT -6)   
Yes, I have had this and it is the worst gripping pain ever, to the point you can't breath or it hurts!! I brought up to my rheumy, who frowned and said if it keeps happening to go to my gp rolleyes Maybe he has never heard of costo? I had assumed it was caused by inflammation.  I'm so sorry you have to deal with this and can't get an answer or any help.  My episodes aren't as frequent as yours, but I always assumed it was linked to the RA.

Veteran Member

Date Joined Sep 2008
Total Posts : 1670
   Posted 10/28/2009 11:10 PM (GMT -6)   
Yup I've had it too, crippling pain, hard to breathe, hard to lie flat. Impossible to get comfortable. I had a course of steroids given to me by my chest specialist and then my rheumy ended up injecting the hot spots with cortisone when it came back again. I had 4 or 5 jabs and that did the trick. It was diagnosed by my rheumy, she knew instantly what it was by where the pain was and how it was radiating. I suffered for 10 weeks, it was the pits.
Hope you get some help soon. Steroids were the answer for me, golitho
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