Wonderful, fantastic, glad the first are over for you, no thanks necessary, you helped me a while back, and that's what we're all here for - to help one another... I'm sure Humira will help, as you said keep us posted.
My treatments of Remicade have kicked in after 2 sessions, I'm getting out of bed in the mornings with no effort, no back pain, little pain in the ankle/foot but much improved from really bad pains. During the day if I do too much it's straight back to how it was, but it's all do able at the moment and I'm so so hopeful that with more treatments and a few months down the line that I will be able to have at least a couple of weeks where I'm good. See the specialist at the beginning of December where we are dicussing doubling up on Mthx so that may help it along.
I actually managed to go to a Melbourne Cup function yesterday in the city, suffering this morning with ankle/foot pain and swelling, but worth going and having fun. Didn't win though
Take care and have a good weekend.
golitho - I am currently on 25mg MTX orally and tapering the pred and currently at 20mg of pred dropping down 5mg a week. The lowest dose of pred I have been on the past few years is 15mg so I will be interested to see how I go when I get lower than that. I have been on pred for 6 years straight now so I know I have to go really slow when I get under 15mg. I will probably hit you up for advice though Sheesh its hard to pick the Melbourne cup winner . How are you feeling lately?
Peggy - Im so pleased for you that the Remicade is helping, you are right about giving it a few more months - hopefully it will be even better for you Lucky you to go to a function - I stayed home in the air-con as it was 39 here yesterday, its only 24 today so much nicer.
Have a good day everyone.
A very hot day yesterday Jo, thankfully indoor function held at the restaurant my son is a chef at in Sydney. On coming outside when my husband picked me up the heat hit like opening the oven door!!. Today fog, rain and cold here down south and looks to be this way for the weekend!
Golitho: the IV's aren't too bad, they make you as comfortable as they can,offer drinks and lunch while your sitting there for 4 hours and always the other chairs are taken up by others having their treatments, so if you like you can chat, watch t.v or just sleep in your chair. You just feel so tired when it's finished and I sleep for ever.. As for Embrel it wasn't offered, I've been giving myself Humira injections (plus Mthx) for the past year and needed something a little stronger and more direct into the blood system. I'm on Mthx as well and that's being doubled at Christmas to see if it helps even more. By the way 'Blue is a very fetching colour and my favourite", plus your so right about the hospitals, but I go to the POW in Sydney and they are great, but under staffed.
Have a great day everyone.
golitho and Peggy - no more apologies for venting to each other on here - we all need to do this and to what better people to do it to than someone who is going through the same thing. I find it a great comfort to tell my woes and especially to 'listen' to other peoples.
So I say vent away! Here I go lol
I have been suffering with a massive headache today - sheesh I could just about chop my head off and all I can take for it is panadol (due to my Crohn's disease I cant take anything stronger or I will have hell to pay tummy-wise) Other than that I feel good - a bit achy in places but thats good for me
golitho - Im glad that your classes are going to be less strain on you (physically, anyway) I too push my body through the frustration of not being able to do 'normal' things - Im the queen of denial - until it all falls down around me Hope you are resting at home now!
Re: the pred - I had hit the pred up to 40mg when I first realised I was flaring and am slowly going down 5mg per week - Im really scared to do this too fast and will be asking the GP for some 1mg pills so I can taper very slow past 15mg - will try and discuss a plan with her about tapering when I see her.
I live closer to Penrith, but I was born and bred at Camperdown, even worked at RPA from when I was a teenager till I had my first child - had my 4 children at KGV Hospital. If I move any further away from the city I will end up at Broken Hill
Peggy - how are you doing? and you never 'butt' in
Off to make a cuppa
hope we all feel great tomorrow
golitho - Sorry to hear the HRT is not helping - when is the two weeks up and what do you think will be suggested as a substitute? Thanks for the heads-up on the water - Ive actually been taking Claratyne and that has helped, but will push the water next dose. Hope you are resting inside and away from this heat - UGH.
Peggy - Are you able to have your Remicade shots in fewer week intervals? Maybe its losing its effect inbetween doses - can you ask your Rheumy?
You made me feel bad about my mother today (she lives in a granny flat out the back of our house) and she was whingy yesterday and today I was prepared to tell her I would swap my health for hers anyday (she has great health despite smoking 30+ a day!) when I realised she is entitled to have 'off days' and I should just listen without being mean.
Im sorry you are going through this with your mother. It would feel like you have lost her already and being so far away would be sad too. Thanks for reminding me that Im lucky to have mine (even when she is whingy ).
I hope you both have a had a better today, stay out of the heat.
Peggy - you didnt really upset me - my Mum and I have this thing were Im forever guilt ridden about things regarding her - for never any good reason - does my head in sometimes
How awful for you - being 'divorced' from your family - it is the last thing you need while you are so unwell - sounds to me like they dont deserve you anyway!
I had to quit my job today, as I really could'nt tell them when I would be well enough to come back. they were really good about it and said to call in the New Year and they would slot me back in. The Humira has done the trick for my Crohn's, just feel fatigued and am having Nanna naps a few times a day - but Im not complaining, anything is better than the pain I was in
Its suppose to be 36 here tomorrow - UGH - although it could be worse we could live in Adelaide
golitho - how are you?
Hope everything is ok.