Peggy and Golitho

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SydneyJo
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Date Joined Mar 2006
Total Posts : 1354
   Posted 11/24/2009 12:40 PM (GMT -7)   
I thought we need a new thread to post on smilewinkgrin
Im sorry you are both going through such a tough time at the moment - the heat we have had hasnt been much help either.
Peggy - My loading doses of Humira was - 2 x 40mg then next day the same, then the same a fortnight later and when I take it again next week it will be 40mg fortnightly thereon.
I feel the Humira is doing wonders for my CD but not my AS.
My computer keeps kicking me off the site, so will catch up more when I can.
Hope you both start feeling better soon.
Take care.
Jo
 
 
Crohn's Disease
Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07


peggy baggins
Regular Member


Date Joined Jul 2009
Total Posts : 153
   Posted 11/24/2009 2:23 PM (GMT -7)   
Hi Jo,
 

Agree with the new link.  Thanks for that information, that's quite a lot to cope with?  I just started and then every two weeks, maybe different as you have CD as well?  I'm pleased it's working for that, but sorry it's not having any effect on your AS, I know the feeling, I'm looking forward to speaking with my specialist on Monday to discuss having another MRI as it's been a year and I feel we need to look at what is going on in the ankle/foot area from a year ago.  The pain hasn't changed at all in that area, although so much better in my body elsewhere, so something is working.  I wonder if there is something else going on in my bones in that area??? I feel we need to investigate further.
 
Wonder why you keep having difficulty with the site and getting shut down? is it your computer?
 
Take care both of you, have a great week and it seems from this morning that the heat is on it's way yet again............
 
Peggy

golitho
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Date Joined Sep 2008
Total Posts : 1670
   Posted 11/24/2009 11:06 PM (GMT -7)   
thanks Jo. I'll write more later, under child pressure to go now...golitho

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 11/25/2009 4:04 PM (GMT -7)   
I kept being shut down too, logged on and couldn't access to log off!!! Some sort of technical glitch I'm sure.

Decided to cut down my prednisone yesterday so I slept last night. Hard to weigh up pain relief vs sleep. I get so wired on the dreaded pred.

Only taken 5mg today so I'll see if that does anything, its probably too little a dose. I just seem to be so senstive to that evil stuff.Meanwhile I'm now swelling in my thumbs and elbows and ankles. Really getting tired of this flare. My rheumy labelled my wrist condition as something though but it was too long a name to take it in. I wish I'd written it down. Lateral something, most frustrating. She said fusing the joints really helps it, any ideas? Oh the joys of RA.

Peggy lets hope the MRI shows up something they can treat for your poor ankle/foot. I like the MRI's they seem to show exactly whats going on for tendons as well as bones. Gives a good picture. Cross my fingers for you.

Jo, is there a specific treatment for AS? Or is humira suppose to help it?

Best wishes to you both, golitho

peggy baggins
Regular Member


Date Joined Jul 2009
Total Posts : 153
   Posted 11/28/2009 3:22 PM (GMT -7)   
it must be something in the air as I couldn't access the site either, several attempts to even reply on this post!!
I'm sorry your having a rough time Golitho, I really am. 
 
It must be the weather as I'm in the most terrible pain it makes me cry at the moment. I believe I know why though....I went and booked a pedicure 2 days ago and ever since I've been the worst pain I've every experienced the whole time. I seriously want to just cut the darn foot off...!  So it seems even the most simply pleasures that make me happy are now being effected by my AS and I wont be making another appointment for that again, I just can't go through this everytime.
 
I have an appointment to see my GP tomorrow (as requested when my husband made a visit on Wednesday) he wants to see me for a chat as he was seeing my Rheumy Specialist the following day (Thursday)!! I've made an early appointment so I don't have to wait any more, hopefully just a chat and nothing to serious? I see my specialist this coming Wednesday for a check up thank god, so that gets them both out of the way quickly so no real waiting around. Fingers crossed please... shocked
 
Well I must away as my husband has insisted that I rest up for the rest of the day as I'm feeling down and in pain, bless him. What would I do without him.  I see the worry on his face when he looks at me and I try and tell him I'm fine but he knows me and knows I'm not and put a brave face on it.
 
So sorry it's a down and gloomy post today but alot on my mind until these appointments are over and done with.
 
Cheers
Peggy. smilewinkgrin

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 11/29/2009 6:05 PM (GMT -7)   
Hope it goes well Peggy, both appts. I've decided to catch a chest infection, obviously needed something else to throw in the mix!!! Matches the stye in my eye and need I say more. I'm hoping I caught it early enough and got on antibiotics Saturday.
Have to go for my second swab today, I really hope I get well soon so I can try the remicade before Christmas.

I just want to sleep again.

Moan away, Peggy, I feel the same way entirely. I haven't been this bad on my meds ever before, its worrying.

I'm going to rest too, best wishes, golitho

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 12/1/2009 3:58 AM (GMT -7)   
Hi Peggy and golitho,
Im hoping I dont get booted off, so will be quick :)
You two sound terrible - do you think the seasons make things worse? My neck has been screaming all week, like it cant hold my head up???? I thought the Humira would help for the AS but clearly it doesnt for me, the morning heatpad and hot shower aleviate the pain and get me moving for the day, but the rest of the day its like my head weighs ten tonne and will break my neck - sheesh, if its not one thing its another. On a brighter note my CD is behaving very nicely and for the first time in many many years I actually feel normal - gutwise.
Hope you guys are feeling better this week.
Will try again on here tomorrow and see how I go.
Take care (gotta love the cooler weather)
Jo
Crohn's Disease
Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07


peggy baggins
Regular Member


Date Joined Jul 2009
Total Posts : 153
   Posted 12/1/2009 11:22 PM (GMT -7)   
Hi Jo and Golitho,
 
Well I must agree with you it is the silly season or it could be the hot weather or just our bad luck we're all in more pain.  I've just had the most terrible day shakehead . Went to see the specialist this morning with my husband and things didn't go too well.  I explained that the foot/ankle wasn't any better in fact since last week having the simple task of a pedicure it's been so much worse. He was dissappointed to say the least as he thought that remicade and methotrexate would do the trick, although he said it had only been 6 weeks and may need to wait until 12 weeks! Well after long discussions and checking my lastest blood tests everything change.  My results showed very high markers for my liver and he said to stop meth.straight away, too dangerous, this in turn means that my condition will worsen still shakehead .  Basically he said we are coming to the end of options and as I have been having sleepless nights, depressed and having trouble managing pain I needed something to help me get through this, therefore I am on Norspan patches (start tomorrow). He's ringing the hospital tomorrow to speak with the consultant there and will ring me if they come up with anything urgent. I'm getting an MRI next week and may have to result to the drastic surgery that I wanted to avoid, it will still be my last option as far as I'm concerned. After Christmas I will be attending one of his clinics where he meets with 15 other specialists and they examine and discuss your case - hopefully coming up with different ideas, he said it's a bit overpowering but could be very useful and he uses this for extreme cases that need that little bit of extra help.  My hubby and I feel shattered and for the first time Paul said he was worried and upset for me, then I really know it's not good. confused .  I'm sure all will come good soon.  I have to see how the patches go as they are very strong and driving may be out of the question as I could be quite spacy.
Once again sorry for being so negitive in this post, hope your both feeling a little better today. Will keep you posted on how things go.
Peggy.

SydneyJo
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Date Joined Mar 2006
Total Posts : 1354
   Posted 12/2/2009 12:53 AM (GMT -7)   
Oh Peggy ((((HUGS)))) Im so sorry that this is happening to you.
Im hoping that the patches work for you while the Remicade kicks in properly and does the work it should do.
It is scary to start a new med, especially painkillers, as you never know how they will affect you, hopefully all it does for you is give you relief from pain.
I saw your post as to whether anyone has taken the Norspan patches before - if you dont get a reply on the RA forum try posting the question on the Chronic pain forum - they are a great bunch of people and someone should come along pronto and answer it.
I have to say your specialist sounds very thorough and is looking into all options available for you - you are lucky there - only my GP would give me that treatment,
Please keep letting us know how you are going - Im sure I speak for golitho too when I say that you are entitled to vent on here anytime you like.
Take care
Jo
 
golitho - how are you
 
Crohn's Disease
Ankylosing Spondylitis

Current meds: Methotrexate, Prednisone, Humira

Bowel Resection Sept. 07


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 12/4/2009 1:12 AM (GMT -7)   
Hi guys, Sorry I've had one of those weeks. A bit of Christmas madness thrown into the mix. Lots of openings and other art related work committments but I'm getting there.

Peggy I'm so sorry your poor body is playing up on you. That happened to me when I was on arava, sulphursolasine and mtx. Had to stop the lot. Then mtx was reintroduced at a small dose 7.5mg and I was put on humira. How scary thinking of foot fusion, the idea of any fusion is terrifying isn't it?

I nearly fell off the chair when my rheumy said wrist fusion to me. I'm an artist for goodness sake how will I cope with fused wrists. Anyway a foot sounds much more involved, have they had good results from it? Is it actually the bones that have deteriorated or is it tendons too? I seem to have a lot of swelling along my tendon sheaths, tenosynovitis or something. Common for RA sufferers seemingly!!! I hope this conference throws some new options up on the table for you. I hope the patches work for you too. Big hugs from me too.

Jo is it the weather do you think? Would a massage help or is it the bones? Your poor old neck, Sending lots of healing energy to you both. How frustrating that the humira isn't working for your AS. Is it suppose too? Will it just take longer to build up in your system, I'm sure it was 3 or 4 months before it really kicked in for me.

The prednisone meanwhile, has kicked in, really taken the edge off, my swelling is still there just not hurting all the time, only if I overuse my joints. But I can't sleep. Prednisone makes me feel wired, I wake up 3amish and I'm wide awake. Reading my way through lots of novels. I need to get back to the library.

Well my dears, hope you both manage to relax this weekend (at some stage) I have LA's on in the morning followed by handicapping at swim club in the arvo but hopefully Sunday I will relax. OK time to go, my children are all arriving home expecting their dinner! Best wishes to you both, golitho

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 12/4/2009 2:24 AM (GMT -7)   
golitho - Gotta love the pred, except for the no sleep thing it does make you feel better quick, seems to have given you some much needed energy to get through all you have been doing too :).
I have finally got down to 10mg of pred, have'nt been on that low a dose for two years! I will be dropping 1mg every few weeks till hopefully I am pred free - will be taking baby steps with this though, as I dont want to end up with adrenalin shock.
The Humira is supposed to help with the AS, so hopefully it will kick in and help with that like it has for my CD.
Peggy - how are you?
Have a great weekend both of you.
Take care
Jo
Crohn's Disease
Ankylosing Spondylitis

Current meds: Methotrexate, Prednisone, Humira

Bowel Resection Sept. 07


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 12/4/2009 7:23 PM (GMT -7)   
Just booked for Circus OZ as a treat for the kids. I love that merry gang, hopefully lift some spirits.
I'm glad that the humira will eventually help the AS. We all deserve a break!

Got my permission from medicare to start the remicade. So now waiting on my third swab to come up clean on Monday and then see if its possible to start the remicade before Xmas. Oh the joys of medications.

Have a good weekend, golitho

peggy baggins
Regular Member


Date Joined Jul 2009
Total Posts : 153
   Posted 12/5/2009 4:40 AM (GMT -7)   
sorry guys, it's been a tough week, so haven't really be using my laptop a lot.  You both sound very busy I must say. Jo - the humira does take a few months to kick in, hang in there. I thought it wasn't working too well and soon discovered how much it was working when I stopped taking it for a while back in September before the remicade.  Talking of which Golitho, pleased to hear you got the o.k from medicare to have this treatment. I know it's not working for my foot, but boy does it give relief for the other aches and pains and movement.  For me it last about 2 - 3 weeks and then slowly things start to sieze up and aches return. That being said it's better to have that amount of time with some relief than none at all.  Not sure what to expect in the going weeks as off the mthx!  I have 3 more weeks to go before my next treatment so already the pains and aches are coming back! Oh such joy for the christmas period...
I've had the norspan patch on for 3 days now and the only (if only it was that simple) side effect is the most awful headache!!!! so bad I took to my bed today with pandadol as I couldn't lift my head and felt so sick.  I told my husband that the pain in the foot is no better at all and now I have the added joy of the pains in my head, why O why can't something just go right for a change? So over it all.shakehead
MRI this week and blood test to check the liver again, so quite a quiet week for me. lol.
I've got to start christmas shopping and get orgainized as we have 8 for christmas (including guests from france). The thought of walking around shops in so much pain feels me with dread..I even seriously thought of seeing if they have electric chairs  in westfield to help me get around from one end to the other, how sad am I?
 
I'm thinking of you both and send hugs and good thoughts to you both for a great weekend and week ahead.Circus Oz sounds great and reminds me of when I used to take my boys when they were little to the christmas pantomine.  Jo, do you really have to be that careful with this drug that it makes you go into an adrenalin shock?  Do take care.
 
well it's getting late and my bed awaits me. Take care and I'll let you know how things go.
Peggy

SydneyJo
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Date Joined Mar 2006
Total Posts : 1354
   Posted 12/5/2009 4:25 PM (GMT -7)   

Oh ((Peggy)) Have you taken that patch off due to the headache? or are you going to persist to see if it will work? I think that the side effects to the meds we take should never be worse than the disease itself - its not fair.

I wish I could come and do your Xmas shopping for you. When I have been at my worse I have thought about using one of those wheelchairs they supply at the major shopping centres but then chicken out and only go to the few shops that are close to where I parked. Dont be too proud like me and use one if you need to.

Re: the adrenalin shock - I have been steroid dependent for 6 years now - going on 7 in March next year, so I have to be very slow with the tapering now.

Good luck with the MRI, let us know how it goes.

golitho - Circus Oz - wow I havent taken my clan to that - might check it out.

Take care both of you.

Jo


Crohn's Disease
Ankylosing Spondylitis

Current meds: Methotrexate, Prednisone, Humira

Bowel Resection Sept. 07


peggy baggins
Regular Member


Date Joined Jul 2009
Total Posts : 153
   Posted 12/6/2009 4:52 PM (GMT -7)   

Jo how kind you are to offer help, I know you can't but the thought was much appreciated. I'll cope as I'm going with a girlfriend tomorrow, so all should be o.k and if not I'll just keep going. It's Monday and I thought new week, new me! That didn't last long as just had a phone call from one of my girls (staff member) to say she has just been told she has breast cancer and more and outcome is not good for her. I'm devasted!sad  What's wrong with the world at the moment?

I'm still wearing the patch and will continue and try the second one and then I'm back to the specialist with all the results of this weeks tests so will tell him it's no good.

Sorry it's short and sweet, was going to write more but  just not feeling up to it today.

Take care both of you and both your week ahead is filled with joy and happiness along with good health and no aches and pains.

Hugs to you both

Peggy.smile


SydneyJo
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Date Joined Mar 2006
Total Posts : 1354
   Posted 12/6/2009 6:22 PM (GMT -7)   

Peggy - What awful news about your co-workercry

Is this a sudden diagnosis or had she been unwell for awhile? Either way it is very sad.

Im glad to hear you have some company while you shop. I often meet with a friend who will help me with my shopping and she likes to rest as often as I do, so that helpssmile

I have been meaning to ask you how your sister is going? Did she ever get a proper diagnosis?

What day is your MRI?

Better stop cafoofing on the computer and get some housework done.

Have a good day.

Jo


Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


peggy baggins
Regular Member


Date Joined Jul 2009
Total Posts : 153
   Posted 12/6/2009 9:56 PM (GMT -7)   
Jo, it was sudden, found out today, she had a breast screening 5 weeks ago, results came back clear, found a lump last week and **** hit the fan. Since then it's been biopsy and results. She will take up the breast screening issue at a later date. Specialist said she cannot understand why they said it was o.k when you can clearly see two lumps even if you weren't a doctor. All very distressing.
 
My sister sees a specialist this week (Tuesday). Unfortunately being the in the UK she has had to wait weeks, I'm hoping they find something or at least agree to an MRI to find out what's going on. Something is clearly not right!
 
My MRI is this Wednesday evening along with blood screening. I'm sure something has changed in the foot in recent weeks so I'm interested in finding out the results myself.
 
I'm at home now resting and catching up with work emails, well should be but thought I would just check to see if anyone had been on.
 
Take care.
Peggy

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted Yesterday 8:03 PM (GMT -7)   
Sorry to hear about the headaches, Peggy. Remember lots of water always seems to help. But it sounds as if its not the drug for you.
 
Christmas shopping in pain is never easy. I'm trying to do small forays into the shops, sort of chipping away at it. If I have a good day I'm off to the shops.... had a shocker on Sunday but seem to be ok today again.
 
I've also been doing my household shopping online lately, really saves my knees and seems to save me money. I'm less tempted to buy extras!
 
Breast cancer seems to be everwhere right now and a friend's brother with prostrate cancer. All just before christmas. Doesn't seem fair does it? It certainly puts the rheumatoid into perspective, at least we're not dying from it. I hope your sister is ok though. Plus goodluck with the MRI lets hope it shows up whats going on and its a fixable thing.
 
Trying to wrap pressies in small amounts too, cut down my wrist movements. What with Jo's neck, my wrists and Peggy's ankle we could be a good team, all of us with some part to compensate the others!
 
So hot today, don't think the heat helps my joints either.
 
Jo it was so hard to get off that last 10mg of prednisone. I think once you hit 7.5 it just stops working and everything started hurting. I'd get yourself over Christmas before you drop that low. I used to cope for a few days then take 10mg to give myself a break occassionally. But my doc was dropping me 2mg at a time maybe 1mg is more realistic. Goodluck with it though.
yeah
Better get back to my wrapping, golitho

SydneyJo
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Date Joined Mar 2006
Total Posts : 1354
   Posted Today 2:10 AM (GMT -7)   
peggy - Missing the cancer in a screening????  Thats horrific, what if she hadnt picked the lump up as early as five weeks later???? Thanks for the reminder that these things can and do happen - not good enough though is it.
Good luck tomorrow  too - let us know what you find out.
 
golitho - had a laugh at you putting us all together with our pains - we sound so decrepit smilewinkgrin
Thanks for the pred tip, I will wait for awhile before dropping it and I will only drop 1mg at a time - too scared not too smile 
Take care both of you.
Jo
Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted Today 8:34 PM (GMT -7)   
I was told having recently had a mammogram that if your breast tissue is dense rather than fatty it is really hard to read on screening. So it makes me wonder if your sister has the dense breast tissue and that may be why they missed it? But it does sound really slack doesn't it. You have these screens and tests to protect yourself and false positives you hear of but a false negative is frightening!
 
Thinking of you today Peggy, let us know how the MRI goes, won't you?
 
I got my date for the infusion, this friday. Just in time to get my second dose in before Xmas (I don't think so) anyway I will be very positive. This will work instantly and I get to stop the prednisone soon after! Am I being foolish taking my Christmas cards in with me to write? How tied down are you? Is it like a normal canula or do you have to keep one arm still or do they infuse through some other portal? Lots of questions.
 
Been out with my daughter choosing splashback tiles for the kitchen. My architect is over glass splashbacks so I am trying to come up with a sort of funky compromise. Found some gorgeous coppery tiles and thought I might interspace them with some glass tiles. I have no concept of what it will look like . But the copper tiles have a metallic sheen and so do the glass mosaics so it should look pretty different. Cross your fingers it works.
 
The rest of the kitchen is fairly conservative, off white cupboards, drawers with an oatmeal veneer and crema bella limestone benches, we have wooden floors too so the copper goes so well with all the colours. They are putting in the kitchen at the moment so its very exciting to visit and see it all coming together. I have never owned anything new before it sure is some treat for us all.
 
We've given up on being in for Christmas it will be February I'd say now....
 
My husband just got all the timber milled for the stairs, they're going to look spectacular. Yeah I know a rheumy with stairs!!! Tell me about it, sort of asking for trouble. I'm hoping these new meds work out for me.
 
On that note I hope the humira works soon for you Jo and that you get a positive result today, Peggy.
Best wishes to you both, golitho 

SydneyJo
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Date Joined Mar 2006
Total Posts : 1354
   Posted 12/9/2009 1:12 AM (GMT -7)   

golitho - Great news about your infusion this Friday - this is early than you expected?? Good luck and I will be thinking of you.

Your kitchen sounds wonderful, nothing like a lovely kitchen as us Mum's spend a lot of time theresmile

Peggy - hope the MRI went well - let us know when you can.

Sorry this is short - am getting the hurry up from my sonrolleyes

Take care both of you

Jo


Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


peggy baggins
Regular Member


Date Joined Jul 2009
Total Posts : 153
   Posted 12/9/2009 1:55 PM (GMT -7)   
Wow, so much to talk about today,
Jo - The MRI went as well as you would expect other than being in extreme pain the whole time. My foot had to be enclosed in a boot with straps to keep it still, which I must confess was so painful it made me cry the whole time, but I stuck it out as it needed to be done. I have the prints but the report is being sent to my specialist (see him week Monday). Only blood tests to have on this coming Monday and all done for the next visit. I hope they find something else to be honest as to think it's just the AS getting worse would be very upsetting, having had so many drug changes these pass few months. But what will be will be. I have to be strong and positive.smile
I have a very sick husband at the moment which isn't helping as I can't be near anyone sick. We've slept in seperate rooms these pass few days and he is staying in bed until the weekend, but I wont be nursing him, too dangerous.
 
Golitho= so pleased you have your infusion this week....take in the Christmas Cards as something to do, if you have the time. I say his because so much goes on, nurses every so often checking your pulse, heart, temp etc, people around you having their treatments and chatting about what their there for etc, sometimes you plan to do something and the time just runs away. Also you feel tired sometimes and just want to shut your eyes and sleep.  They do mine in the elbow joint, which means I can't move my arm too much, but when you need the toilet they let you unplug the machine and walk with it to the loos....thank god their big enough to get you and the machine in!shocked  I get given lunch of sandwich, drink and piece of fruit, so hopefully your hospital will too.  It takes a good 4 hours, usually 3 for the infusion and 1 hour to sit afterwards as they don't let you go as you can have some bad side effects, stop breathing, heart attacks! They have to be careful, but it's highly unlikely.  I feel washed out for 3 days afterwards, so be kind to yourself and rest up. Let me know how you get on.  Where are you having it done, locally or in the city?
 
It's not my sister that has the cancer, that's one of my staff members...still dreadful, I know you said about the fatty tissue, but she has seen the copy of the xray taken of her breast by them and she and her specialist looked at it and you can see clearly the two lumps! She will take that subject up when she is feeling up to it, poor thing.
 
I can't belive your having your kitchen done. We are about to start after Christmas a massive re-model of our house. In the kitchen I'm having new work tops, sink and cooker top.  As we speak I'm sourcing splash backs.  I'm too over glass and looking at glass tiles or anything in red that's different.  I have a wall 5mtrs wide by 17ft high so a large area to cover. It's so hard to find something different, so let me know how you get on, I may pinch your idea..lolsmilewinkgrin   We are having wooden floors put in through from the front entrance, hall way, kitchen, dining, family room and carpets the other side of the house for the bedrooms and corridor.  All the rooms are being decorated through the house, so a big job but will look amazing.  We are having a pool put in outside around Feb time, so mess inside and out, we thought we should get it done in one go! I will project manage it as I'm home most days now. All very exciting and something to look forward to.
 
Jo - I did the shopping, didn't get a cart so nearly killed myself, but it's done. Hubby was less than impressed with my condition on returning, but at least it's all over now and only have to wrap the presents. I rested when I could during the day but now suffering, I know we never learn, do we?
 
Well will finish now as time to get up make a cuppa and start the day. Take care both of you and thank you for being here and listening and talking, it's much appreciated even though we don't know what we look like. Have a great safe, pain free weekend.
Peggy.smilewinkgrin

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 12/9/2009 10:41 PM (GMT -7)   
oooh Peggy the MRI sounded very painful - you were braver than I would have been. Hopefully after all that pain they can tell you whats happening with it.
Glad you survived the Xmas shopping - Im up to the wrapping part too, just doing that a bit at a time.
Your poor husband being unwell in this heat -and you trying not to catch it - UGH.
My son let a neighbourhood boy in to play this afternoon who had a cough that came from his toes - I pulled my son aside and suggested that he nicely ask him to go home and maybe come back when he is better - felt nasty but sheesh I dont need everyone in the house getting sick.
Better be off and supervise the homework.
Take care both of you
Jo
Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


peggy baggins
Regular Member


Date Joined Jul 2009
Total Posts : 153
   Posted 12/10/2009 11:18 PM (GMT -7)   
Jo,
It's so hard isn't it when people are sick, you feel sort of mean but then again you had to look after your self because if you get sick it effects the whole family not just you, plus if we get sick it's going to be ten times worst than anyone else! Hubby and I are still in seperate rooms as he's still coughing and blowing his nose, even though he feels much better I wont run the risk.  Someone said if it's that serious I shouldn't go out and then I wont get sick! I politely pointed out that I will not make myself housebound and cut off from the world, it's about taking calculated risks by not going to places full of people, or to visit friends knowing they aren't well. Some people really do have a nerve.!
 
Today I put up the christmas tree and put the presents all around it, thought I would wrap everything yesterday afternoon as I was feeling under the weather with pain, so best to push through and get things done. My own worst enemy my hubby says.  All done now apart from the menu for the christmas period whilst we have visitors.  Amazing how only a few days ago I had done nothing and now almost done...mind you the foot is killing me, kept me awake last night.
 
We are having friends and neighbours over tomorrow night for BBQ and drinks for christmas, so I'm looking forward to that. Not much to do as I'll prepare the finger food to be cooked on the BBQ which Paul will sort out and cook, drinks - they can help themselves as they know us anyway. lol. I'll sit with my foot up drinking water, god I miss the odd glass of wine here and there it's been such a long time since I had a good drink. It was the only pleasure I had left until they took that when I started Mthx!
 
I hope your shopping, wrapping gets done quickly, how's the humira going by the way.  Any reactions to it like sickness, tired etc? Also how you doing giving them to yourself?
 
Golitho, how's your pain and aches? Are you all ready for Christmas? Oh by the way I went out today looking for tiles and found the one. It's not glass though, it turns out that the glass tiles are the same price as the glass splash back per sq metre!  I've choosen a tile that's oblong in shape, red and has a lovely ripple effect glazed into it, very different and works out at $100 per sq metre. The wall will look great. Kitchen company came and quoted today for the ceasar stone work tops with waterfall end, fingers crossed it's not too expensive?
 
Anyway must away, take care and have a fun weekend.
 
Peggysmilewinkgrin

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 12/11/2009 1:11 AM (GMT -7)   
Peggy - ooh pre-Xmas get togethers are fun, although not being able to have a Chrissy glass of wine is'nt. I too cant remember the last alcoholic drink I consumed,  The brandy my mother puts in the pudding is enoughsmilewinkgrin
she always overdo's it. 
You have achieved quite a bit this week Peggy - any wonder your foot is killing you!
Not much happening this weekend, will maybe go to the local Xmas carols Sunday evening - if the weather is'nt nastysmile
Hope you both have a great weekend.
Jo
Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis

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