Test positive for RA factor but doc still says I dont have it

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New Member

Date Joined Nov 2009
Total Posts : 4
   Posted 11/26/2009 2:31 AM (GMT -6)   
I am new to this site.  I have a question about the blood test the doctor give to to test your RA factor.  I have tested about four time since 2004, my RA factors:  the first test 28, the second 32, the third 42, the fourth 35. The doctor's office told me at highest it should be 13.  I have pain every day of my life.  I have been diagnosed with fibermyalgia and osteoarthritis of the knees.  My knees aches every day almost all day.  Mornings are worse, and stiffness is horrible.  My back and elbows along with knees hurt every morning and sometimes my feet.  I see the rheumatologist on Dec. 1st again.  I haven't talked to him since the last blood test.  I don't know what to do, but I need answers.  Can a person test positive over and over for the RA factor and not have RA.  Another question please, I didn't know that RA of the knees was a seperate diagnosis, can a person have that and not full RA? 
Meds currently:  Celebrex 200mg one a day and Lyrica 200mg two to three times a day every single day and still pain, when the pain is worse I take ultram along with tylenol.
Thanks ~ Bella_RA

Regular Member

Date Joined Jun 2009
Total Posts : 112
   Posted 11/26/2009 4:36 PM (GMT -6)   
Welcome Bella,
I'm 49, was diagnosed with RA in March 09 with an RF of 169, so along with my symptoms, which were bilateral (both sides) pain in my joints, severe fatigue and pain that was worse in the morning but got better as the day progressed, along with swelling in my fingers and the inability to make even close to a fist in both hands, and a truckload of bloodwork, I was diagnosed with RA.

I'm no doctor, but with your symptoms, I would think about getting a second opinion from another rheumatologist. I've heard that you can have a slightly elevated RF and NOT have RA, but from your other symptoms, I would get a second opinion. I can't tell you if you have RA or not, and hopefully you don't, but those symptoms sound pretty suspicious. Good luck !!!

Rheumatoid Arthritis, Chronic Pain, Chronic Major Depression, Generalized Anxiety Disorder, Schizoaffective Disorder, Recovered Alcoholic w/15 years Continuous Sobriety

Veteran Member

Date Joined Sep 2008
Total Posts : 1670
   Posted 11/26/2009 7:06 PM (GMT -6)   
Hi Bella, Lady writer is right we're not doctors but your symptoms sound suspicious. Have you asked why he/she thinks its not RA? I started in just my knees for about 6 months they were my only swollen joints, I have slowly but steadily become more systemic but I'm still atypical it affects my large joints not the small ones as much. We are all so different and we all respond so differently to the meds. It seems a difficult disease to diagnose at times.

I was always told if its symmetrical and involves swelling of the joints rather than nerves or tendons, it points to RA regardless of blood tests. My rheumy told me it can take years to show up in the blood and others can have positive RA factors yet no arthritis at all. I was initially diagnosed with swollen knees and no response to antiinflammatories for over 3 months. That was enough to set me on the sero negative arthritis path, now after 3 years I'm unfortunately upgraded to RA status.

Get a second opinion, goodluck, golitho

New Member

Date Joined Nov 2009
Total Posts : 4
   Posted 11/29/2009 11:05 PM (GMT -6)   
Thanks for your replies. I will see the doctor on Tues. and we will go from there. I have been doing some research and I have a lot of questions for the doctor. I will also use this site for help with my symptoms.

Thanks, Bells RA
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