Is anyone else on a gluten-free diet?

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_Christina
Veteran Member


Date Joined Feb 2007
Total Posts : 553
   Posted Today 12:21 PM (GMT -7)   
My father was out of town on business and spoke to a rheumatologist who suggested that when someone my age (30) gets RA that it is often connected to a gluten sensitivity or intolerance.  He mailed a book home for me to read, and it makes sense.
 
wink Don't get me wrong, like everyone else I have people telling me I should "try this" all the time.  (Come here and stand on your head on a blue rug for half and hour- it helps, trust me!)  If it sounds plausable I read it through and look it up online.  I have just enough medical training that I can understand the research, but not enough to draw my own conclusions.rolleyes
 
From what I read, connection between RA (and other immune diseases) is commonly accepted overseas, but in the USA (where I am) it is not seen as connected.  When I called my Rheumatologist to get his take on it, the nurse stated that they do not use diet as a treatment to RA, nor do they believe that it will have any affect on the condition.  As stated, a gluten-free diet will not do any harm and if I want to try it, I should feel free to do so.  I should remain on my medications as directed.
 
I do not feel that I have celiac disease, but maybe a subclinical sensitivity.  In my mind it is at least worth a try.blush I would like to know if anyone else has seen this information, and if you have, have you tried it?  Has it helped?
 
To anyone who lives in a country where the connection is more accepted in the medical community- has your doctor mentioned this?  Were you tested?  Is there anything that you know about this connection that I might not be able to find here?
 
 Christina
Even though I do not understand where I am going on the path that God has laid out for me, I must submit to His plan and trust that He will take me where I need to be. 
 
Current medications:
Bipolar treatment-Lamictal, 200mg, Mood stabelizer, daily(main side effect: brain fog) Bipolar treatment-Cymbalta, 40mg, Antidepressant, daily(main side effect: GI upset, decreased clotting, insominia) Anemia, Fatigue treatment- Iron supplement, 65mg, daily(main side effect: constipation) Insominia treatment- Ambien, 10mg, daily(main side effect: amnesia eppisodes between taking pill and falling asleep) Mania treatment- Alprazolam, .25mg, Very rarely(main side effect: fatigue, slowing of thoughts, depression of CNS, can't take ambien or vicodin when on it) RA treatment- Plaquenil, 400mg, daily(main side effect: GI upset, decreased clotting) RA treatment- Methotrexate, 25mg, 1X weekly(main side effects: hair loss, stomach upset, mouth sores, sore muscles, fatigue, brain fog, compromised immune system, decreased Folic Acid absorption) GI upset treatment- Leucovorin Calcium, 10mg 1x weekly(main side effects: ?) Folic Acid defintioncy- Folic Acid, 1mg, daily(main side effects: ?) Multi-mineral Supplement (main side effects: constipation, GI upset) Constipation treatment- Docusate Sodium, 200mg, daily(main side effects:?) pain control- Motrin, 800mg, PRN Q6hours daily(main side effects: GI upset, decreased clotting) Pain Control- Vicodin, 5-500mg, PRN Q12hours 3-4 times weekly (main side effects: brain fog, fatigue)
 
 
 
 


gfpamela
New Member


Date Joined Dec 2009
Total Posts : 8
   Posted Today 10:45 PM (GMT -7)   
 
     I went gluten free about 2 1/2 yrs. ago because: 1) celiac disease is in my family  2) I've had lifelong IBS symptoms, worse as I get older 3) when my IBS started getting worse about 3 yrs ago I also developed sacroiliitis with major pain in my hips and low back.  After 2 yrs. of gluten-free (the last 6 months with no cheating on the diet) my sacroiliitis symptoms became much more manageable and the pain level was minimal.  Then I decided to do a 'gluten challange' about 3 1/2 months ago to see if I actually had celiac disease.  In a nutshell I don't, but a endoscopy after 5 weeks on gluten showed inflammation.  I kept going and after 3 months my sacroiliitis was much worse and my worst IBS symptoms are back.  And I think I may have mild ataxia now.  No one can tell me it's not related to a gluten sensitivity which, I've read, can cause significant digestive, neurological, skeletal, and autoimmune disorders.  I'm having a gluten sensitivity test in the next week and I should have the results in about 3-4 weeks.  I'm really hoping to go gluten-free in less than a week and start healing again.  I love my gluten-free buttermilk bread and plan to collect the best gf recipes for pie crust, cakes, etc.  Gluten-free is not that bad; I thought I would miss certain wheat foods like donuts, etc. but when I had them again it was a disappointment.  This might sound funny but everything seemed kind of 'doughy'.  (Ok except toaster strudels.)  To anybody who wants to check it out I say do gluten free for a year or two.  It does take longer for adults to heal so you have to give it some time.  And don't cheat - do it right and be strict - to give the diet a chance.  When you actually list the things you can still eat, it's a long one! 

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 12/5/2009 7:51 PM (GMT -7)   
christina, I've heard similar things about gluten as well. I had some health issues last year and went on a strict diet that cut out a lot of things, including gluten. I was only on it (unfortunatly) for 3 months (a kitchen remodel around the holidays and laziness took me off it) but I felt wonderful while on it...granted, that could also have been b/c I cut other things out as well (like sugar).  I had an endoscopy last year as well and they said I do not have celiac's disease...but that doesn't mean there is not some allergy your body may have to it.
 


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 12/12/2009 4:02 PM (GMT -7)   
Hi Christina,

After my own research over the past year and a half, I'm now convinced that the human body is not designed to process grains of any kind...period.

I won't try to convince you of that now wink, but just wanted to say that going at least gluten free may help any autoimmune condition to some degree. I have SEVERAL AI diseases and have seen improvement in a number of my symptoms since I began the gluten free diet a year ago. My husband and I are now trying to go grain free (sort of a Paleo Diet) because of the number of people who say that is helpful for RA and other conditions like fibro, Crohn's disease, etc.

I am not symptom free yet by any means (hence the Paleo diet); unfortunately celiac disease is a very complicated disorder and it causes your body to produce a number of different types of autoantibodies against various organs. The autoantibodies that damage your intestines will go away on a gluten free diet, but the autoantibodies that damage bone (causing osteopenia/osteoporosis) and the central nervous system (causing ataxia, blurry vision, headaches, vertigo, etc) do NOT go away on the gluten free diet, according to various medical articles I've read recently. But I have to say that since I went gluten free, I have noticed a distinct improvement in all of my gastric symptoms, plus my frequent migraine headaches. My ataxia has improved as well.

Of course, I have lupus and fibro and other conditions that can cause neuro symptoms too, and I've just found out that my Lyme ELISA test is positive! Lyme disease can attack any system in the body and trigger autoimmune diseases....which may explain a lot in my particular case!

If you want to read a good primer on how to go gluten free, please see the post at the following link:
glutenfreegoddess.blogspot.com/2006/01/morning-after-diagnosis-that-is.html

Good luck! Please keep us posted!
JoAnn
Autoimmune hepatitis, Hashimoto's thyroiditis, lupus, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD.

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Darvon, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


autoimmunediseasesgfliving.blogspot.com


_Christina
Veteran Member


Date Joined Feb 2007
Total Posts : 553
   Posted 12/12/2009 9:10 PM (GMT -7)   
I survived the first week of the diet. I don't think I have had anything since last Sunday when I had a communion wafer without thinking about it. (I want a cheese pizza right now soooo bad) I don't think I notice much of a diffrence yet. It would be hard for me to tell much right this moment though, since the Bipolar symptoms have been really bad the last couple of weeks and has gotten worse this last week. I'm just messed up, I guess.
 Christina
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CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 12/12/2009 10:14 PM (GMT -7)   
Hang in there Christina!
 
JoAnn, I'll look in to that link. YOu mentioned some very interesting things I'd like to learn more about.
 

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