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SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted Yesterday 3:04 PM (GMT -7)   
Good luck today with your first Remicade infusionsmilewinkgrin
Let us know how you went.
Will be thinkung of you todaysmilewinkgrin
Jo
Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


peggy baggins
Regular Member


Date Joined Jul 2009
Total Posts : 153
   Posted Today 12:55 AM (GMT -7)   
Golitho,
I feel dreadful I completely forgot you were having your remicade infusion today. So sorry. Please let us know how it went when your feeling up to it.
 
Just rest up now and be kind to yourself.  I felt like I had done 10 hours in a gym the following day, my whole body ached, but it's not been like that since so I think the body gets used to it.  If in deed you have aches and pains.  It took a few days to kick in.
 
Take care and look forward to hearing how you got on.
Peggy  smilewinkgrin

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted Today 7:19 PM (GMT -7)   
Hi guys I think they infused water! I feel nothing, I was hoping for some sort of reaction. I got a headache and that was it. My wrists hurt, my elbows hurt and my feet are swelling around my toe joints and my left ankle. Sitting for the first 2 hours did me no good at all. Stiffened up terribly. Then I took to walking around with my infuser. I was the lone patient must be winding down for Chrissy. Feel a bit disappointed but next one is in 10 days so we shall see. My hot flushes have come crashing back too, maybe its the heat.

But thankyou for asking, you're both sweeties. Have to go make a salad for the swim club Christmas party now. Have a nice weekend. Hope you're meds are doing something. Has the fentenyl worked Peggy? What about you Jo? Best wishes to you both, golitho

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted Today 10:24 PM (GMT -7)   
golitho - I guess no reaction is better than a bad reaction - but the swelling, pain and headache sound horrible - is it supposed to work faster because it is infused? Im not as updated on Remicade as I should be - having to learn about the Humira was bad enoughturn See, that having to be sitting for hours put me right off Remicade - that would kill my AS as I need to keep moving with it.
 
You could be right about the flushes being the heat - Im sick to death of summer already - and its only the beginningrolleyes
Re: the Humira - it is still working great for the Crohn's and this week I have had less neck pain - I even had a day where I didnt take panadolsmilewinkgrin
Hopefully the next infusion for you will kick the Remi along to do something good for you (and were'nt you lucky to get in again before Xmas!)
Hope you and Peggy both enjoy your parties.
Have a great weekend.
Jo
Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 12/12/2009 3:44 PM (GMT -7)   
Thanks Jo, the swim club party went well. We have a lot of new members with young families so its so good to see it growing. I have a new volunteer to help me with the handicapping and talking to her yesterday, she has AS!!! How funny is that, An RA and AS on the table! My wrists were swelling badly with all the writing and thats how we got talking, its too sweaty to wear my splints all the time.

I woke up with swollen eyes today, wierd huh? They seem to be settling now.

I feel positive. This treatment will work!

I'm so thrilled to hear you've had an improvement though. Thats what happened with me, I woke up and realised my joints didn't hurt to get up, no stiffness and I found I could run up stairs. It was such a liberating feeling. I want to get back there again. I hate the thought that being pain free is a memory.


Hope you have a lovely day, I'm so happy for you, golitho
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