Not sure what I have, advice while waiting

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nroden
New Member


Date Joined Jan 2008
Total Posts : 6
   Posted 12/31/2009 4:50 PM (GMT -7)   
I am a 23 year old male. about 3-4 years ago I began to have pain in my fingers, elbows, toes, and ankles. It didn't seem to be necessarily in my joints. I was extremely tired and slowed down mentally. I went to the doctor who did blood and urine tests. I was supposed to go back and never did because of some problems with my parents. I got used to living with this and it seemed to not be as painful after a while.

This past summer I began to have night sweats and talking in my sleep. I was having difficulty sleeping and would wake up in the night. This has persisted since then. Then in October I got swine flu and since then my body has been aching and the night sweats became worse. I went to a different doctor in November who ran some blood tests. I went back last week and she said that I didn't have Lupus, Arthritis, strep throat, or Lyme disease according to the tests but did show inflammation. I have an appointment scheduled with a rheumetologist for March 24. She gave me a Medrol pack. It helped the pain during the time that I took it. I also lost over 10 pounds during that week and had great difficulty sleeping. Now just days after ending the pack the inflammation and pain is returning, visibly in my fingers and toes. My chest often pops when I move the wrong way and my joints pop, even though the doctor said that is just normal fluid buildup it was happening much less during my Medrol week.

At times the glands in my neck, under my arm, and in my groin have swollen or become painful for over the past several years.

Sometimes, usually the same time as the night sweats, I little tiny pimples with white heads on my back and on my stomach. My body almost always has larger pimples and other things that sometimes just ooze an oily substance. They are often hair follicles. I am now getting these on my head.

I also have some tiny red spots showing up and growing on my forehead.... these don't go away once they appear.

The first doctors visit I had high blood pressure. She had me wait around for a while and it was still high. The second time I went it had dropped to being near normal so she didn't have to give me any medication for it.

What should I do until my rhuemetologist appointment? Any supplements or OTC products that help? I don't like to take a lot of medicine. I just want to be able to make it through the next semester at college.

My grandmother had Lupus and Scleroderma for many years until she passed away this past spring. My sister had chronic fatigue when she was in college. She is now 39 and is still often very tired. My younger brother has had ongoing kidney issues since elementary due to strep throat infecting his kidneys.

Post Edited (nroden) : 12/31/2009 5:22:22 PM (GMT-7)


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 1/1/2010 2:18 AM (GMT -7)   
Hi nroden,
 
You have a lot going on there!
Glad you have an appointment with a Rheumy.
 
Until then maybe you could try heatpads on the painful areas, hot showers/baths or maybe bandaging the affected area.
Sorry Im not much help.
Hopefully when you do see the Rheumy he/she can put you on the right med combination to help eleviate your suffering.
Keep us updated on how you are feeling.
Take care.
Jo
Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


peggy baggins
Regular Member


Date Joined Jul 2009
Total Posts : 153
   Posted 1/2/2010 4:24 PM (GMT -7)   
Hi Nroden,
You poor thing, you sound so frustrated, confussed and stressed, which probably isn't helping with all the other things you have going on at the moment.  Like Jo I'm glad you have an appt to see someone be it a few months away, in the meantime try the things Jo suggested, along with resting and sleeping when you can, try to stay calm and wait until you can speak to the specialist.
 
As I always tell people, start making notes of what's happening with you body so you can tell them the syptoms your having, and also make notes on questions you would like answers to.  It may take a while to sort things out so in the meantime use the site here to ask questions, vent your frustrations and general sound off, we've all at some point needed to do that as our conditions are on going and although we have them confirmed, given the medications etc, we still have hiccups and down times when things are going right or we need to change meds due to the body getting used to them.
 
Keep us up to date with how your going, what's happening. Sorry I couldn't be more help, but I'm here to listen if nothing else.
Peggywink

nroden
New Member


Date Joined Jan 2008
Total Posts : 6
   Posted 1/3/2010 4:14 PM (GMT -7)   
Thanks for your support. I'll keep in touch!

nroden
New Member


Date Joined Jan 2008
Total Posts : 6
   Posted 1/7/2010 4:56 PM (GMT -7)   
Hi. While waiting I've been trying to take care of my health by eating better and keep track of my calories using www.myfitnesspal.com. I've also been looking into taking supplements. I'm trying to feel better, sleep better, have more energy, and be able to better focus on studying when the semester starts on January 20. I have some supplements left from when I tried a program called the UltraMind Solution. How much of these should I take a day and during what part of the day? Are there other things that you would recommend taking?

  • Walgreens One Daily For Men with Lycopene
  • CVS Vitamin C 500 MG
  • Spring Valley Super B-Complex
  • Nature's Bounty Odorless Omega-3 Fish Oil 1200 mg
  • Sundown Naturals St. John's Wort 150 mg
  • Natrol 5-HTP 50 mg
  • Paragon L-Phenylalanine 500 mg
  • Paragon L-Tyrosine 500 mg
  • CVS Melatonin 3 mg

Post Edited (nroden) : 1/7/2010 6:01:50 PM (GMT-7)


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 1/8/2010 1:33 AM (GMT -7)   

Hi nroden,

Im not sure about the supplements you have mentioned other than the fish oil which is said to be good for RA.

I myself take calcium which has added vitamin D, a multi-vitamin and folic acid.

I would run the supplements by my Doctor before taking them though. Maybe your Doctor could suggested supplements that will help too.

Jo


Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


nroden
New Member


Date Joined Jan 2008
Total Posts : 6
   Posted 1/12/2010 10:33 AM (GMT -7)   
The One Daily is just a multivitamin. I take one with breakfast.

Of course vitamin C is vitamin C. I take one with breakfast.

The B-Complex and I've been taking it with breakfast. I'm just going to take until the body is empty. I don't really see any benefit to the extra B in addition to the multivitamin.

St. John's Wort, 5-HTP, Phenylalanine, and Tyrosine are all for depression and they have some other benefits as well. These really seem to help me get through the day and be more productive. I've been taking them for a few days now and it seems to be helping.

I take 300 mg of the St. John's Wort with each meal.
5-HTP I was taking 50 mg around 3-4 PM and 50 mg before bed at 10-11 PM. After 3 days I increased to 100 mg each time.
I take the Tyrosine 500 mg before breakfast, first thing when I wake up at 6 or 7 AM. I take another around 10-11 AM then again at 1:30-2:30 PM. After 3 days I increased to 1000 mg each time. After 1 week of Tyrosine I added the phenylalanine at the same times and after 3 days of it I will increase to 1000 mg.
(From what I have read DO NOT TAKE THESE WITH ANTI-DEPRESSANTS)


The Melatonin was recommended in the book for difficulty sleeping. Sometimes when I've taken it it has made it more difficult for me to go to sleep. Then I'm tired for about 4 hours in the morning after waking up from 8 hours of sleep. Taking the 5-HTP before bed (or possibly taking the St. John's Wort, Tyrosine, and Phenylalanine earlier in the day) seem to be helping me fall asleep within an hour of going to bed so I have quit taking the melatonin.

Although I am still experiencing pain this has been helping me get through the day.

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 1/12/2010 1:27 PM (GMT -7)   
Hi nroden, You could try glucossimen, I know I spelt that wrong. My rheumy told me the more fish oil you can tolerate the better. So swallow heaps of fish oil. But glucos.. I found made a difference to me initially as well.
Its specifically for joint pain. Worth a try. My rheumy told me to take 14 capsules a day of fish oil, I manage 4. Its too heavy duty for me!

But it may be worth a try if your system can tolerate it.

Best of luck, golitho
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