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golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 1/4/2010 2:38 PM (GMT -7)   
Ok I'll start it.
 
Had a great holiday but realised that for now until the RA is back under control my camping days are over!!! I had two nights of no sleep in the tent. Beautiful spot up the north coast but of course Boxing Day it rained and the combination of flaring and cold, on a blow up bed in a tent I just HURT BIG time!
 
I lasted 2 nights then luckily moved in with a friend's friend who lives nearby and abandonned my poor DH to the kids, the wet and the tent!!! We had 3 families camping side by side and a family living close by so we went there on their decking for meals etc. So we wern't completely soggy all the time. Day 3 the sun came out and we made it to the beach. It was great being with such hoardes, lots of laughter, lots of food, lots of children. Good energy.
 
Came back to Sydney for NY's eve, watched the fireworks from a vantage point overlooking the Harbour Bridge with another old friend and her son. Then NY's day headed south to stay with friends down at Austinmeer. Truely magical spot, glorious views and comfortable beds!!! They don't have kids but managed to survive our mayhem until yesterday. I got the kids out to the beach most days to give them some space. 3rd day it rained again! So we went for a scenic drive and the brought the kids to see Sherlock Holmes, bit of fun for them anyway. Yesterday DH took them for a wet swim and we had a cafe lunch with ourfriends as a way of thanking them. Great holiday.
 
Arthritis wise I'm not good, steroids have kicked in, I've gained so much weight but still my right leg hurts. Funny how the cortisone worked on my left knee and not my right? My feet are sore too but despite still being swollen my wrists are much better. Living on pain killers. Worried about the next infusion side effects. I'll have to try and contact my rheumy before the 25th Jan when I'm due for the next inflixamab.
yeah
So thats me, great to be home. Missed all you guys, best wishes to all, golitho

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 1/5/2010 12:42 AM (GMT -7)   

Hey golitho! Glad you are back with ussmilewinkgrin

How on Earth did you even attempt a blow up mattress? Crazy ladynono  OUCH

You have done some fun things during the holiday period, when are you resting?smilewinkgrin

Peggy - how did your Remi infusion go?

Just popped on inbetween cooking and tidying.

Talk again soon

Jo


Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


peggy baggins
Regular Member


Date Joined Jul 2009
Total Posts : 153
   Posted 1/5/2010 1:40 AM (GMT -7)   
Oh bother!devil I've just filled out a really long post to you guys and lost the lot, I'm short for time now but will write it again later.
 
I can't go without saying 'Hi to you Golitho' and welcome back  :-)
Your a brave woman that's all I'll say, although you sound like you've had lots of fun. Now please rest up and look after yourself as you sound in a bad way pain wise.
 
Infusion done, silly nurse hurt me by not putting the IV in my arm properly, several attempts until I told her to take it out please and put it where I asked in my favoured place.  She said it was strange that I had a favourite place and she wouldn't know where hers was!  I'm afraid I answered back 'well your lucky enough not to have infusions like us, but trust me we know our bodies inside and out'.  Silly woman.
 
Must go but will post soon to finish.
Jo, how are you? are you back to work yet?
Take care
Peggysmile
 
 

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 1/5/2010 2:14 PM (GMT -7)   
I got poked three times before they infused me last time. My favourite spot was a right off from a bad blood test! Huge bruise.
I did rest, I sat, I had gentle walks, I had no pressure on me to be anywhere. We ate and cooked and cleaned up en masse so it was fun, I wasn't in my kitchen so someone else had overall responsibility. It was a true holiday!

I feel quite relaxed, honest.

Whats up with this site, it is sooo slow at times. Maybe its gone onto holiday mode too.

Peggy do you get side effects from the infusion? Has your liver settled? I thought mtx helped the remicade to work in your system plus countered some of the side effects from it??? AM I wrong?

Jo, the blow up mattress was a mistake, but the rain and cold nights in a tent was worse. That cold just seemed to seep into my joints, once it warmed up I was just too sore to go back. Plus being so low really hurts my knees.

My head still thinks in an able bodied manner! Even if my body is not complying!

Good to be back, missed you both, golitho

peggy baggins
Regular Member


Date Joined Jul 2009
Total Posts : 153
   Posted 1/5/2010 2:26 PM (GMT -7)   
Well you do sound chilled, so that's good.
 
I'm not letting that nurse do it again, it's too stressful when she does and the infusion it's self is bad enough. How do you cope with the 4 hours in there? I usually read or chat if there are people that are friendly sitting in the room with me (4 chairs/machines to a room).
 
As for side effects, other than after the treatment I feel exhausted and sleep the two hours back home and go to bed early that day. I just feel out of it.  The other thing I noticed is that I cough a lot with a lose chest for about 24 hours after and hubby said that I do sound out of breath when I do things around the house, only I don't notice my breathing.  The hot flushes only started when I was taken off mxth!! I hate them, I went throught the 'change' 20 years ago so not happy that I'm having them again.shakehead It feels like someone has lit a fire inside me and they last for about 3 mins, with forehead sweats, not pleasant.  Your right Remicade works better with Mxth so as my rheumy my condition will get worse while I'm off it and remicade wont be so successful without it for a while, but he didn't want to stop it as it's great for my back problems, in fact it's wonderful for that area, just the feet that are screwed up.  Other than that no other side effects. What about you?
 
It is good your back we missed you for those few weeks. I'm feeling much better today, almost human!
 
Take care, keep resting and be good.
 
Jo, how's it going in your world?
 
Speak soon
Peggytongue

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 1/6/2010 1:16 AM (GMT -7)   

Hi all,

Ive become the crazy woman who pops on rambles and goes.

Between working and the school holidays I have no time to myself and heaven forbid if I sit at the computereyes

My RA is improving, thanks to the Humira, only slighty stiff in the mornings which I can deal with so thats good.

Im already being pestered to hurry up, so will catch up soon.

Jo

 


Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 1/6/2010 2:12 PM (GMT -7)   
Ha ha Jo, now I can say you should be resting!!! No its brilliant your humira is working, it really gives you your life back. Have you started dropping your prednisone dose again?

I'm so pleased the humira is doing its thing for you. Now we just need to sort out Peggy's foot and my stupid body and we'll all be happy! Peggy did the fentenyl patches work in the end? Or did your liver problems mean you had to come off them?

I'm still on panadeine forte for pain, takes the edge off but not much else. I think I've probably been on them too long.

I'm enjoying this early computer time, my kids are all sleeping in and it gives me time to myself.

I started packing. I'll try and do a box or two a day. Just chip away at it. Wardrobes are being put in on the 20th, so no big pressure yet. But I can certainly box up alot of books and winter clothes. Just sorting through what we can get rid of takes time too. Amazing the rubbish I keep finding on shelves.

Wishing you both a restful day, golitho

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 1/6/2010 2:50 PM (GMT -7)   

I start work a bit later today and my son slept over his mates place and of course the teenagers are still sleeping, so I found 5mins to myself to get computer stuff done - how selfish am iyeah

golitho - whens the 'big' move happening? Will you still be in the same suburb or there about? You will need all the painkillers and pred you can get to get through moving - ugh!

I have dropped the pred to 7.5mg and will drop down to 5 next Humira shot which is next Wednesday, after that 1mg at a time and sloooowww she goes:-)

Will try and get back on here tonight.

Hope everyone has a great day.

Joanne


Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


peggy baggins
Regular Member


Date Joined Jul 2009
Total Posts : 153
   Posted 1/6/2010 7:41 PM (GMT -7)   
Oh teenagers, I remember those days......I've always said that children should be deep frozen at 13 and thawed out at 17. lol. I'm sorry you have to go to work today, by the time you read this you'll be back and hopefully it wasn't a stressful day. Good to hear your cutting down on the Pred and the Humira is working.

Golitho, I'm not using the patches any more, stopped then after two weeks as they did nothing, zip.....My specialist has given me a script for panadeine forte and I take them sometimes but they did nothing after taking them for 2/3 days straight, so no point really, nothing seems to touch the pain. Liver still not good, more blood tests in two weeks time (fingers crossed) if they come back normal then I can go back on Mxth or similar drug which believe me I need, I'm suffering since coming off it as the rheumy said my condition will worsen while off it as both Mxth and Remicade work better together. I wont be on anything until I see him 15th Feb, giving me time to get this Liver back to normal. Hey Ho!
So like Joanne (I noticed you changed it Jo) said are you moving very far from where you are now? I'm not sure which direction you in now anyway. lol. By the way my name is really 'Mags' Peggy has always been a name my boys call me as a joke and I use it for some emails etc. So you may call me Mags if you like as my friends all do and I consider you both one of them. lol.

Well must away as I've just noticed the time and I've got friends coming for dinner tonight and done nothing!!!!!
So have a great day, take care and speak to you soon.

Mags

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 1/7/2010 3:08 AM (GMT -7)   
Well Mags and Joanne, my name is Jacqui. I'm not moving far, around the corner. We live in Rozelle, inner west, inner city girl. I packed up 5 boxes so made a start and got my son to load them in the car and my hubby to unload them in the house. So I have made the first of many trips. I'm actually trying to sort more than pack. The dreaded what we still need, what can go to ST. Vinnies, what can be thrown etc. I'll get help for the real packing.

Its sort of nice pottering around, no pressure. I'm enjoying myself.

We have some Irish rellies coming out at Easter so we need to be finished by then! I think it will be end of January when we truely move. The wardrobes come in Jan 20th, haven't heard about the benchtops. The stairs are currently under construction. bedrooms are painted and finished bar the wardrobes. Laundry is finished just waiting on my washing machine to be installed. It's pretty exciting. All my life I've lived in run down houses (married a builder) so at nearly 50 I can't quite believe I will have a new home. Kids will finally have their own rooms and we all get space. We are storing 15000 litres of rain water and have solar heating too, all the toilets and the washing machine will be run off the tank water. We just have heaps of insulation and fans, no air conditioning and it feels good inside. Our architect has made lots of cross flow ventillation paths. We've managed to build it all on a shoe string budget by using a mixture of second hand and new materials plus my hubbies tradies have been good to us. I know we'll run out of money before we finish it entirely but it won't matter to me. Can't wait!

Hope you had good days, not often I get on the computer at night, goodnight to you both, golitho

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 1/7/2010 1:57 PM (GMT -7)   

Hi Mags and Jacquismilewinkgrin

Just quickly popping on before work, will try for more tonight.

I didnt realise I typed my name in at the end of my last post. I had just came on here after sending a few emails and I sign them off with Joanne, so thats probably why I did thateyes

I always introduce myself as Joanne but everyone calls me Jo or as my younger work colleagues call me JoJo, so Jo is fine.

Well better be off. Hope everyone has a great day.

Jo


Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 1/7/2010 2:32 PM (GMT -7)   
Hi, I just had one of those crazy prednisone nights where I just couldn't sleep for more than a 2 hour stretch. Feel a bit dislocated today left the brain beside the bed or something. At least I got the washing done and out on the line, bathroom clean, kitchen good. All in small middle of the night increments...
 
Been looking at the sales wondering if we can afford a new couch for the new house. I'll have to sit down and count up the pennies. Scary stuff rennovating it just eats money.
 
Bought myself a Wally Lamb book for Xmas and I'm really enjoying it. Have you read him at all? Sort of mid west American location, jumping from present to now, interweaving memories and familily situations, emotions, etc. I'm really enjoying being transported to another time and place. One of those writers who sort of suck you in to their world, the imagery is so good. Its about identical twins, boys, and one brother is schizophrenic. A good read. Huge book, great for the insommniacs of the world.
 
Well my dears, I better go and do something useful. Read the paper or make a cuppa or something. Love these holidays.
cool
Jacqui

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 1/8/2010 2:02 AM (GMT -7)   

Jacqui - the way you descibed how you feel mentally is the way I feel everyday. I actually think 'go me' when I say something slightly intelligentsmilewinkgrin

I haven't heard of that writer before, will have to look him up at the library, as Im an avid reader, when time permits:-)  Im currently re-reading a book by Kathleen McGowan, as I couldn't get to the library this week. Might try to go to the markets this weekend, I love rummaging through the books there.

Did you get much more of your packing done? Glad you dont have far to move, that helps. It must be very exciting to be moving into something new, having grown up near there I understand 'old'. Our terrace house was made in the early 1800's and was actually used in the movie Pharlap - a brief walk by from one of the main actors - as his character actually lived in one of the terraces when training Pharlap. Anyway, Im waffling noweyes

Mags - How's was your dinner?

Hope you both have a lovely weekend.

Jo


Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


peggy baggins
Regular Member


Date Joined Jul 2009
Total Posts : 153
   Posted 1/8/2010 3:11 PM (GMT -7)   
Hi Jo and Jacqui smile    
 
Well where to start, firstly by adding I'm glad I'm not the only one with 'brain freeze' as my other half calls it.  Do you think it's the drugs we take or just our age??  We were only discussing this the other day after my treatment. When I have finished the remicade infusion I can't string a sentence together, say words properly or think straight, all of which we laugh about and does get better as the days go by, but truthfully I do sometimes get confused. Not in a way that's enough to inform the doctors but more than usual. Hey ho at least I'm not on my owntongue .
 
I've not heard of that author but will look out for it, a the moment I'm reading the latest book from Patricia Cornwell, I'm a huge fan of her books and read them all, I wait every year for a new one, sad as I am.rolleyes  I love reading and there is never a time when I don't have a book to pick up when the time allows, you can get lost in them. I've been known to stand at the cooker with it in my hand while cookingnono .
 
Jo your house story sounds really interesting, please waffle away on that subject. How exciting I may need to get the movie.tongue
 
Jacqui, renovating as you said is so expensive, I'm just waiting for the last two quotes before handing over the final figure to Hubby, we sort of know already that it's a lot as we're putting in new flooring (through whole house) decorating every room, upgrading the kitchen and putting in a swimming pool. God it's scary when I think of it, we hope to start end of February as I said we may as well do it all at once and get it over and done with. Our house is only 4 years old, we've been here two and have always had the idea of changing everything when we bought it. Mind you with an appt with the surgeon in March it doesn't bear thinking about, fingers crossed for good results from the specialist 'get together'
 
The dinner went well, nothing fancy just BBQ asian pork kebabs with pineapple and mango salsa, flat bread and salad.  Just a casual dinner for 4.  I did a silly thing and had a glass of wine. I woke with such a headache and feeling funnysmhair that I wont be doing that again. Paul said it was because I haven't drunk for a year or more and having a poorly liver it couldn't cope.....silly I know and I truly wont be doing that again, but at the time for some reason I just felt like trying.
 
We did a day out yesterday in my little sports car driving to Batemans Bay and beyond, nice lunch by the water, Tea in Milton and home by early evening, what a lovely day. Today is rest this morning and attempting a kayak trip late afternoon to fish for squid at Callala Bay, depending on the weather as I wont go on the bay unless there's no wind.
 
Well I've been going on too long, hope you both have enjoyable weekends, be kind to yourselves. Jacqui not too much packing, Jo have a cuppa and sit with your book as you've been working this week.
 
Speak soon.
Magsturn

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 1/10/2010 2:00 PM (GMT -7)   
Hi Mags and Jo, Sounds like a yummy dinner Mags. I had a glass of wine too Sat night. We took the kids to our favourite Indian restaurant and I decided to have a glass with lots of glasses of water as well in the heat. I felt a bit queazy too. Didn't enjoy it like I was hoping too. Although I had a glass of champagne NY's eve and that slid down very easily! I generally don't miss the alcohol.
 
But in those social settings occassionally I do. I find if I drink mineral water or something I feel ok not drinking. Must be psychological.
 
Love the idea of a sports car, especially in this weather. Went to Balmoral Beach yesterday and it was jam packed!!! Kids like to jump off the wharf and I wanted those big Morton Bay figs to read my book under. It was too crowded really, like rush hour leaving at 6.30pm!
 
The Mosman Council brought in parking metres, $14 for 3 hours! A rip off isn't it?
 
Mags why are you replacing flooring if your house is only 4 years old?
 
Jo your house sounds beautiful. We would have loved to rennovate an old house but in this area those houses are premium prices. Anything with potential to rennovate seems to go for enormous sums. We took on this place because the house needed to be demolished and the land was generous for the inner city. Its meant we had to rebuild a workers cottage look a like but its a 4 bedroom house with 2 lounges. a study and my studio! The rooms aren't huge but having the space will be amazing. We've always lived in tiny terraces or equivalents. I really can't wait.
 
The pool is small but I can see its going to be fantastic, we got solarheating for it and so it stays at 28 degrees celsius and is lovely to slide into. Maybe one day we will afford to get the gas back up so we can swim through winter too but for now solar is enough.
 
Only took 5mg prednisone yesterday and I slept all night. I was feeling so shattered. My joints are of course sorer today but its a trade off isn't it? I'll try to get hold of my rheumy as well and ask about countering the side effects before my next infusion is due. Someone from chronic pain told me I can take something as well as the remicade to cut back the side effects. Worth an ask isn't it?
 
Talk to you later, survive this heat, are you still feeling good Jo?
 
Best wishes, Jacqui

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 1/11/2010 3:32 AM (GMT -7)   

Hey Mags and Jacqui,

I should never say I am feeling well because that becomes the kiss of death. I spent all day Saturday with a massive headache which my GP said today was neuralgia. My neck also feels like it is about to snap, so its been joyous here latelyeyes

Sunday I felt better but didnt manage to do much.

Went out for lunch today with former work colleagues and took my son to play with one of their children in the play area. Nice to catch up with them and amuse my son at the same time:-)

I will be flat sitting my daughters flat at Bronte this weekend, gives me something to look forward to - a mini vacation. i hope to do the Bronte to Bondi walk and watch my son bodysurf - well thats the plans anyway:-)

This heat is killing meskull  How are you two coping? Im ready to move to Canada:-)

I have to work the next few days, so better go organise myself.

Mags - Ive read all of Patricia Cornwalls books except The Scarlett Factor. Have you read Kathy Reichs - same genre and great read also. Im currently reading a book about the War at Troy (finished the other book and got to the library) - feel like being anywhere but here and nowsmilewinkgrin

Jacqui - the house was my grandparents and my Mum and I lived there with them. Unfortunately the house I live in now is only 15 years old and we have been here for 10years - hopefully its not my 'forever' house - think I would like a seachange one day:-)

Have a great Tuesday

Jo


Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 1/11/2010 1:56 PM (GMT -7)   
Sorry to hear about your neuralgia, I seem to be more prone to headaches in the last few years never thought of connecting them to RA. Could be the meds too I guess (or the stress). Hope you're feeling better soon.

Its a lovely walk but not much shade, don't dehydrate will you. That will not help your head! Soo humid.

My rheumy changed my prednisone to prednisolone and I just started taking the new script, it seems stronger somehow so I dropped my dose slightly. It'll be good if I can wind down on it.

I'm off to the Gold Coast Thursday for 5 days. I think I mentioned my youngest boy dances and his group got into the finals of an esteddford up there. I'm bringing the 3 kids and hoping its restful! Its too expensive to do dreamworld etc, but wet n wild seems more affordable. I hate the fact my teenagers are adults for tickets now. Makes it so expensive. Especially paying for accomodation and flights, meals etc... Kids seem to understand. Can you swim in the sea at this time of year or are there jellyfish? I haven't been to QLD in years!

We get discount accomodation because of the group booking so thats good. I can see me counting my pennies the whole holiday. Better pay some money off the credit card!

Hope you both have a good day, golitho

peggy baggins
Regular Member


Date Joined Jul 2009
Total Posts : 153
   Posted 1/11/2010 2:32 PM (GMT -7)   
Hi Jo and Jacqui,
 
How strange life is?? I've been suffering terrible headaches, neck ache myself for the past 4 days which I put down to the increase in my diabetic meds (I don't have diabetis but Insulin Resistant disease). Or could it be the weather?  All I know is that the heat is killing me especially at night and I haven't slept in the marital bed for 3 nights now as I wake with headache, sweating and get up and go on the lounge so I don't disturb the other half.  I'm also still stuffering with back pain as it seems the Remicade hasn't been as successful this time (is it due to not being on Mxth at the same time I ask myself????). All very frustrating and upsetting as I would love to feel better.  The foot/ankle is in no less pain either, so still feeling like a lion with a thorn in it's foot! Still my approach this year is to be positive and not let it get me down.
 
I'm in the city at the moment going home tomorrow, we visited our son and girlfriend last night to be told the wedding this year in the botanic gardens has been cancelled and is now next August in FRANCE!!!!!  The last thing I wanted was to do another long haul flight!shakehead   Never mind hopefully by then I will be better eyes !!  The thing is we cancelled our holiday and lost money in order to attend the wedding this year and now it's not on...children no matter what age, never change..tongue   We've decided that lots of long weekends are the order of the day instead of one two week break, easy for us as we are semi-retired.
 
Now be careful in the heat Jo please as I used to walk that every weeked when I was normal and it can get hot and sticky. Take plenty of water or fill up at the taps along the way.
 
Wow Gold coast sounds like a plan, will you have to go down all those chutes at the water park? Please be careful if you do. I'm not able to answer your question re: jellyfish as I have only every been there on business and haven't even seen the beach!  Everything these days is so expensive, I always find that taking packed lunches and drinks with us helps keep down the cost especially if your visiting theme parks. Have a wonderful time both of you and look forward to hearing about your adventures when you return. Me I'm going fishing on a big boat with just me hubby and the skipper on Friday in St.Georges Basin as arranged by hubby, looking forward to fishing and catching something for tea. The idea being to get to know the basin and the best places to kayak and fish when we have the time and I'm up to it!
 
So until next time, take care, be safe and look after yourselves both of you.
Peggywink

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 1/12/2010 2:47 AM (GMT -7)   

Hi Mags and Jacqui,

Sorry to hear you are suffering too Magssad This heat certainly does not helpeyes

Wow a wedding, how exciting for you (even though its been re-scheduled). I guess weddings are a few years off for me - gives me time to save:-)

I have second thoughts on doing the beach walk now, as you two aren't the only ones who have warned me about the heat/lengthy walk. It must have been an able-bodied person who suggested this to me (cant remember where I got the idea from).

Have fun on Friday and I hope you catch your dinnersmilewinkgrin

Jacqui - Have fun at the Gold Coast and good luck to your son with his dancingsmilewinkgrin Hope your RA behaves for you while you are theresmilewinkgrin

We are off to the 20/20 cricket game tomorrow night - never been to cricket before - should be fun:-)

Take care to you both

Jo


Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 1/12/2010 1:15 PM (GMT -7)   
Hi Mags and Jo,
Wasn't it a hot night!
Its suppose to be cooler today so that walk would be beautiful now Jo. I did the Sculpture by the sea bit of it last Dec and it was really lovely. I managed most of it before the knees gave up and the pain killers didn't work any more. Its so glorious up there on that coast, I love it.
 
When I first came to Australia back in 1982, I use to go to Tamarama all the time and sit up on those cliffs watching those huge waves roll in. Found it really peaceful and calming.
 
Have fun fishing Mags. Sounds lovely too pottering around on a boat. What a pain with the wedding, especially when you've cancelled holidays. At least a trip to France will be a holiday as long as you can cope. Hopefully your foot will be under control by then. It's the flight that will be hard. 
 
We have my hubbies family coming over for our house warming in April and its such a rigmorole trying to get them to confirm dates and whether they want me to find accomodation. I keep thinking I'll end up with all these people and no where to put them. Hes from a 9 child family plus some of his cousins are coming. So slightly beyond me to put them all up! Its feeling like a wedding!!!! I'm going to try and get serviced apartments, if they will just confirm dates for me!
 
No Mags my knees and now feet are not up to water slides. I will watch, my daughter has a life saving medallion so she is much more able than me to save my 10 year old. I know shes only 16 but shes taller and physically stronger than me too, fitter as well. He'll be fine. Hes swum in the surf so much he looks really fit and strong anyway. All my kids are good swimmers. I'll go in the wave pool, that sounds more like my thing!
 
We're only doing wet n wild, I couldn't cope with the wandering around theme parks and they're too expensive. Wet n wild is very affordable in comparison. I'm hoping we'll hang out at the beach or swimming pool.
 
I'll post when I get back. Have a fun weekend. best wishes, Jacquiyeah

peggy baggins
Regular Member


Date Joined Jul 2009
Total Posts : 153
   Posted 1/14/2010 12:56 AM (GMT -7)   
wink i girls,
Well I've made a big decision this week!!!idea  I've been in pain for 2 years straight, the back is better with remicade infusions (although not quite so much this time without Mxth) my foot is well and truly messed up so what have I to lose?  Nothing.......therefore this week I started swimming in the pool at our unit, this I'm going to do 3 days a week  AND wait for it I've decided to loss weight!!!smilewinkgrin and joined weight watchers.  I'm not saying it's all pain free, the foot hurts more and using the stick more, but what have I to lose, at least I'm getting some form of excersise. The weight coming off has got to be good as I've piled on so much in the last two years from doing nothing.  I used to run 4ks a day, golf, bushwalk and cycle 35ks a week before AS, so 2010 is the year to be positive and try anything.  That's the plan and I will try and stick to it, not saying I wont fail here and there but wont bet myself up if I do, just try again the next day.
 
I must say the excersise has made me feel better mentally and the food we're eating is really lovely and I'm having trouble getting through it all. One can but only try...:-)
 
I will check with my rheumy about the swimming, but I'm sure that's o.k.  Oh and I've found out about Tai Chi for Arthritis......on the Arthritis site (as shown by the hospital) there is a link which gives you your local instructor in NSW.  I'm ringing next week to give it a go.   Have you heard of it or tried it??
 
I actually got some sleep last night in fact 10 hours!  The last 3 nights before I was up at 1am in pain, really bad hot flushes and feeling awful.  We came to our house last night and I was so exhausted went to bed at 8pm and slept until 7am, wait that's 11 hours. lol.  So cold here now and been raining non stop since yesterday at 4pm. Temps of only 17C during the day and last night down to 13C. It was lovely so comfortable to sleep....tongue
 
Well just a quick one, so have great weekends and look forward to hearing your news on your return.
Stay save and well.
Peggywink

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 1/14/2010 3:59 AM (GMT -7)   
Peggy, do you have access to Radio for the Print Handicapped in your area? Twice a day they broadcast a (very) gentle exercise programme which, as far as I remember, has been designed by a physiotherapist. It is designed for frail and elderly people, but I've been known to do it myself when I'm really struggling, as at least it's *some* exercise and may provide some movement for parts of the body I wouldn't use much otherwise.

If I remember rightly, the show is called "Movement to Music" and lasts about five minutes. I *think* one session is broadcast at approx 9 am or 12pm (I forget which) and there might be another one later in the day... I'm not sure.

Anyway, as I said, the show is designed for older people, but it does give us a chance to do some very short bursts of structured exercise at home, and I reckon it might provide similar health benefits to those Tai Chi for arthritis classes... without you having to leave the house :-).

Hope this helps; all the best,

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


peggy baggins
Regular Member


Date Joined Jul 2009
Total Posts : 153
   Posted 1/14/2010 4:44 AM (GMT -7)   
Ivy,
You too kind, thank you for posting that on here, I'll give it a go at finding it and will let you know as and when if I've found it and it's been of any use.
 
It's so difficult as they say exercise helps the pain and keeps you more supple, but it's more painful when you do!  I think it's just finding that even balance.  I'm hopeful I willsmile .  As I said I've got nothing to lose as it's painful either way, so I'll just try and push through it.
 
Many thanks
Peggy.

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 1/14/2010 7:12 PM (GMT -7)   
Peggy said:

t's so difficult as they say exercise helps the pain and keeps you more supple, but it's more painful when you do! I think it's just finding that even balance.

I know! It's so frustrating, isn't it? I have fibromyalgia and osteo and various other niggles (not RA or AS though) and have similar issues, and find it a constant challenge to find the right balance because it seems to change from day to day.

RPH is also known as Vision, but try not to confuse it with the national Christian radio station, which is also called Vision (just to make things confusing for us all :-) ).
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 1/16/2010 5:29 PM (GMT -7)   
Hi Everyone,
 
Is this like the moanin thread??? Golitho, I'm sorry to hear you are still having pain! I haven't been around much on the boards and need to read some of the postings to catch up.  I've been back and forth to the doctor trying to figure out why I'm in pain, although I think my doctor (my gp) thinks I'm a nutcase or worse yet a hypochondriac! Since a few days before Christmas, I've had the most horrid pain on the lower right side of my stomach and we thought it was the usual cyst, so had the u/s, nope just a small fibriod, and a couple of very small cysts on the left.  I even had a CT scan with contrast dye of all things, and nothing showed up.  I've managed to spend a ton of money on copays and no anwers to what seems to be my imaginary painrolleyes
 
Has anyone heard from Camama or Jody???? The board has been so quiet, I hope they are doing alright.
 
 
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