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MissRudy
New Member


Date Joined Jan 2010
Total Posts : 1
   Posted 1/5/2010 11:59 AM (GMT -7)   
I just wanted to thank everyone on this site...
I was diagnosed with Crohn's Disease about 10 years ago when I was 23 years old. For the most part, my disease was manageable - only a few little blips along the way, but my life didn't need to change terriblly. I recognize how fortunate that I am in that respect.
Last year, I was diagnosed with Rheumatoid Arthritis.... I can't say that I've been as 'lucky' with this disease as what I've been with my Crohn's. I'm struggling a great deal right now as we try to figure out how to get things under control. Despite being on Immuran, Humira and Prednisone, it just doesn't seem to be working (to be fair, I've only been on the Humira for 4 weeks, and am in the process of trying to taper off the pred).
 
Anyway, as my fiance and I have been navigating our way through this, I wanted to let you know how much each of you have made the journey just a bit easier.
It's comforting to now that I'm not alone in this.
 
Wishing everyone good health....

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 1/5/2010 2:21 PM (GMT -7)   
Hi Miss Rudy, I'd stay on the prednisone until your humira kicks in! Give it a few months then taper. Otherwise you can flare terribly coming off prednisone. I'm sure your rheumy has you under control. I'm back on the dreaded p myself but everytime I've come off it it has been a major struggle. The ole body just loves that prednisone. But it is so bad for us long term and causes so many hassles.

Sorry mixed messages, I'm in true holiday mode and my thoughts are jumbling around. Hope you make some sense out of my rambling.

Welcome anyway, we just love to share our struggles and frustrations, so come and join in anytime, golitho

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 1/6/2010 12:45 AM (GMT -7)   

Welcome Miss Rudysmilewinkgrin

I have Crohn's Disease and RA too - double whammy - wonderful isn't iteyes

I agree with golitho, stay on the pred and wait for the Humira to kick in. The Humira kicked in pretty fast for my CD but is only just starting to help my RA and I have been on it since late October (I think lol).

Please keep posting and let us know how you are going:-)

Jo


Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


peggy baggins
Regular Member


Date Joined Jul 2009
Total Posts : 153
   Posted 1/8/2010 3:35 PM (GMT -7)   
Welcome MissRudy,
You couldn't have come to a better place. 
 
As for finding the right balance it takes a while, so try and be patient (we know it's hard). Stick with it and don't worry you will find the right balance and tools to cope.  The Humira really is good when it kicks in.   Just ask any question you like on the site and I'm sure you'll get lots of answers to help you along the way.
 
 
 
Take care and keep posting.
Peggy
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