RA Factor #? Is there a magic number that leads to a dx of RA?

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sf liv
New Member


Date Joined Dec 2009
Total Posts : 10
   Posted 1/15/2010 1:30 AM (GMT -7)   
Hi everyone. I have ulcerataive colitis, osteo arthritis, adult onseet asthma, uctd, suspected Wegener's and Fibro. I recently had my bloodwork done and for the 3rd time was flagged for an RA Factor of 30. It seem too high to me. Does anyone know how one is dx'd with RA? My doctor's office called to set-up an appointment after getting my bloodwork back from the lab. I asked them to fax the report to me and noticed that among other flags my RA was 30. Is this only slightly high?
Thanks to all. Let us try to forget the pain for a few minutes.
Happy Holidays.... hoping for a good New Year!


SydneyJo
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Date Joined Mar 2006
Total Posts : 1354
   Posted 1/17/2010 10:08 PM (GMT -7)   

Hi sf liv and welcome to the RA forumsmilewinkgrin

Im not sure about your bloodworks.

When I was diagnosed it was through scans and x-rays that my Rheumy ordered.

Have you been referred to a Rheumy yet? I would push for that so that you can have the appropriate tests run to confirm a diagnosis.  Most of the meds for RA are used for IBD, maybe you are taking meds already that may help (just guessing here:-) ).

Hope someone comes along that knows more about bloodworks than I do:-)

Please let us know how you go with your Dr.s appt.

Jo


Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


momto3
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Date Joined Nov 2006
Total Posts : 1331
   Posted 1/19/2010 5:47 PM (GMT -7)   
Most rhuematologists will diagnose and treat based on symptoms of RA not only a number. I'm not sure if your number is high or not (sorry!) however, if you are having symptoms of RA and joint pain, then you do need to visit a rheumy and set up a treatment plan if needed.  My RF factor was normal, however based on my joint pain and symptoms, I was treated.
 
Good luck!

sf liv
New Member


Date Joined Dec 2009
Total Posts : 10
   Posted 1/19/2010 9:40 PM (GMT -7)   
Thanks! I have a rheumy...but I haven't seen him in almost 3 years (I keep waiting to lose weight before I go back). And I thought that if I didn't think about being sick, I would improve... Silly, I know, and so I will face the music and make the appointment. He initially suspected Wegeners, then valculities then uctd, lupus ... and finally when he couldn't quite figure it out he added fibro. My blood work is always a little bit "off" in several areas. My primary physician is the one who first dx'd me with an "auto immune" not yet know; hence, the UCTD. The amyltriptyne that I take for the fibro also helps the u.c. I've noticed some big changes recently, mainly with sore joins and extreme fatigue. I've had very sore hands for quite a while and even the tops of my hands hurt. The tiny bones on the top of my right foot have been bothering me for a few months, and then last week the bottoms of both my feet became very red and sore and stiff. errg Overshare, I know, thanks for listening.

I hope everyone finds some peace this year
Happy Holidays.... hoping for a good New Year!


SydneyJo
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Date Joined Mar 2006
Total Posts : 1354
   Posted 1/19/2010 10:55 PM (GMT -7)   

Hi sf liv,

I think once you have one auto-immune disease you are a sitting duck for another (or in you case more than another).

I started off with Crohn's Disease and then added the AS to the mix, you have a few more than that going on. How's your UC is that under control?

I put off making Doctor appointments till Im desperate all the time, so I understand your reasoning there, but do make one soon, if only to ease your pain.

Take care

Jo

 


Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 1/20/2010 8:55 AM (GMT -7)   
I used to go to the doctor when I thought something was wrong, but like Jo in the last few years, I tend not to go unless I really have too.  My RA started out with a horrid stomach virus (I was a teacher of young children) and two weeks later I had knee pain, and it just progressed from there.  I do agree that once you have an autoimmune, there are others lurking.  I began to have difficulties and was diagnosed with POF, and ended up with the ovaries of a 50 year old women in my early 30's. At this point, I now also have the GI issues, and have noticed the time or two that I have had prednisone on hand, it clears up those issues.  So it is inflammation of some kind.  It seems the inflammation just kind of takes over! Now anytime I have pain somewhere, I figure it's inflammationrolleyes
 
I hope you find some relief and that your rheumy is kind and helpful.  Please don't apologize for "sharing" that is why we are all here, to share and help one another.
 
Feel better soon!

sf liv
New Member


Date Joined Dec 2009
Total Posts : 10
   Posted 1/22/2010 11:36 PM (GMT -7)   
Hi there. I have a sister and a 1st cousin with Crohns disease, I'm sorry as I know how serious and difficult it can be. I understand the feeling that all roads seem to lead to inflamation. My c.u. is pretty managable (symptom-wise), although the inflamation is constant. When I was initially dx'd it was completely unmanagable and very scarey for about two years. Thankfully, at the time, I was a stay-at-home mom, so at least I didn't have the stress of working (or missing work). Now, I begin treatment the minute I get a flare. I'm very lucky that I responde well (and fast) to Rowasa, so I'm able to keep it under control.

This is new to me and I'd like thank you. It feels very good to have a place where people understand. Fatigue is not the same as "a little tired". :-)

Good night.
Happy Holidays.... hoping for a good New Year!


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 1/23/2010 2:00 AM (GMT -7)   

Hi Liv,

Gee thats a lot of people in your family who have IBD - your sister, cousin and yourself!

Im hoping Im the only one to get it in my family - wouldnt wish it on anyonenono

Im glad you have your UC under control, hopefully you can find the right med for your RA and be painfreesmilewinkgrin

Let us know how you are doing and when your Rheumy appt. is.

Take care

Jo


Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 1/23/2010 6:56 PM (GMT -7)   
30 is not high at all. Mine was in the 90's and my rhuemy said she would not diagnose on that alone as it was only marginally high. But, I had other symptoms so she did diagnose me with RA.
On the other hand it is outside the reference range so if you have symptoms it is another clue.

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 1/24/2010 1:51 PM (GMT -7)   
I have to agree with the others, blood results aren't enough to diagnose RA, its all symptoms based and x rays help. I started off as seronegative athritis and moved into RA as the years have gone by and my inflammatory factor went through the roof.

But I met someone recently who has no inflammation just pain! It seems this disease affects everyone differently.
Rheumy's must see such a variety of symptoms. Mine was saying some people just have one symptom like tenosynovitis in the wrists and thats it. So a huge variety of auto immune responses.

Go and see your rheumy. They have more knowledge and hopefully will sort you out, sounds as if you may need to set up ashared care plan, so all your specialists can talk to each other about their combined treatment.

Goodluck, golitho
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