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tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 1/26/2010 6:01 AM (GMT -7)   
Hello all. New here. Dx;d recently w. RA. Was regular contributor to Fibromyalgia Forum, for years. Dx'd w. fibro in 1990, along w. Hashimoto's Thyroiditis, pernicious anemia, endometriotis, and a whack of other stuff. It all began shortly after birth of second son w. different blood type. Also, I am depressed beyond belief. Wake up in pain. fall asleep in pain. in pain all day. it takes a whack of medicine to get comfortable. So, yeah, hello.

star73
Regular Member


Date Joined Jan 2010
Total Posts : 40
   Posted 1/26/2010 11:18 AM (GMT -7)   
hey tyno...I'm new to this board too! Welcome! I see many have viewed your post but nobody has commented...hmmmm...I don't understand that as I also haven't gotten any responses yet. oh well.....glad to meet you! Sorry you are in so much pain. I have been too and now starting on Arava and increasing my Mtx. What meds are you on if you dont mind my asking? when do you see your rheumy next?

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 1/26/2010 1:51 PM (GMT -7)   
Hi Tyno and Star, the problem is the RA arthritis site is inundated with Aussies who are on a different time zone!!! Its only 7.45am here.

Sorry to hear you're in such pain, Tyno. What are you on for the RA? Lots of meds take months to kick in for RA but in the meantime you should visit your PCP and get something for the pain and talk about your depression. I reached a real low at the beginning of last year. I ended up seeing a pain psychologist and learning some meditation techniques, getting involved in hydro (water) therapy classes and getting some pain meds. I am coping much better now.

Its a horrible disease, we all go through these real low spots, come and moan anytime. Its a great way of getting it off your chest.

Welcome to the Ra site, golitho

tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 1/26/2010 2:17 PM (GMT -7)   
Thanking you kind folks for the welcome. I am not currently on any meds for RA, scared to broach topic w. Doctor as I don't want t be human guinea pig. So, my fibro meds are Tylenol 3, flexeril, and Trazadone for sleep. That's it. Cannot tolerate Mobic, or any NSAIDS as I have irritable bowel which makes RA and Fibro pale in comparison, pain wise. Rheumy, well about 18 months waiting list. New Doc might speed that along. Here's hoping. Thanks again. Canadian Contributor.

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 1/26/2010 2:47 PM (GMT -7)   

Welcome to the RA forum Tynosmilewinkgrin

I understand how the pain meds affect you. I have Crohn's Disease and the strongest pain med for me is Panadol all the others cause my gut excrutiating pain - not worth taking them.

Thats a long waiting list to get in to see a Rheumy - I hope you can get that speeded up.

Dont be scared to take  maintenance meds for your RA - I know most of them sound hideously scary - but you want to have quality of life and being maintained by meds will give you that - although it can take a while to find the right med.

Good luck and keep posting.

Jo

PS -  Are you looking forward to the winter Olympics coming up over there?


Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 1/26/2010 7:55 PM (GMT -7)   
18 months sounds ridiculously long! Hopefully something will come up sooner than that, I'm usually about 6 weeks to see mine. Is it because you're new?
I know we all resisted taking meds for RA initially, they are so toxic, the list of side effects so daunting but as time goes by I have also fallen into the med trap. Searching for the ultimate cocktail of meds to give me back some quality of life.

Don't start until you're ready or the pain becomes overwhelming. The biologicals have given so many people their life back, but they're a huge step to take and play havoc with your immunity to other diseases.

Come and chat, we've all been there, golitho

star73
Regular Member


Date Joined Jan 2010
Total Posts : 40
   Posted 1/26/2010 8:24 PM (GMT -7)   
golitho...thanks for the info.....I should have thought about the time zone difference! Maybe those who had viewed the post weren't even people with RA who knows? I'm glad to have found you guys! :)
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