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PalindromicRA
New Member


Date Joined Jan 2010
Total Posts : 5
   Posted 1/29/2010 9:04 AM (GMT -7)   
Hi everyone.  I'm using my diagnosis as my name.  I know that seems silly but I so seldom meet people who have heard of it.  I thought if I put it right out there I might meet someone who also has it.  There is discussion about whether it is RA or not but this forum is the closest to it that I can find so I hope it's okay for me to be a member here!  Thanks.

Alicat
Regular Member


Date Joined Aug 2008
Total Posts : 226
   Posted 1/29/2010 12:02 PM (GMT -7)   

there are so many different kinds of arthritis but my feeling is if you've got pain in your joints, swelling and/or deformity of the joints, it doesn't really matter which one they call it - they all HURT.   I'd say you're in the right place here.

They diagnosed me with psoriatic arthritis even though I don't have psoriasis of the skin.   My Dad did have the psoriasis very badly.  Anyway - I have the pain, the swelling and the deformity and have gotten much support and good info from this forum.

What medications are you on?

Welcome and good luck,

Alicatsmile


psoriatic arthritis, peripheal artery disease


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 1/29/2010 3:56 PM (GMT -7)   
Welcome PRA, yea we all struggle here with some form of RA. Its a great place to whinge or rant or just get things off your mind.

Tell us more about yourself, golitho

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 1/30/2010 4:46 PM (GMT -7)   

Welcome PRA to HW and the RA forumsmilewinkgrin

I agree with Alicat and golitho - you are at the right place. Arthritis is Arthritis - painful and deballitating.

Come on here any time for a vent or chat.

Jo


Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


PalindromicRA
New Member


Date Joined Jan 2010
Total Posts : 5
   Posted 1/31/2010 12:31 PM (GMT -7)   
Thanks for the welcome.  I'm on plaquenil, methotrexate and relafin.  I'll put that on the bottom of my posts like you all do once I've had a look at the control panel.  They treat PRA just like RA and at least half of PRA cases turn into RA.  I seem to have the flu like symptoms most of the time, unless it's the methotrexate causing it.

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 1/31/2010 7:13 PM (GMT -7)   

Hi PRA,

I have flu-like symptoms too. I thought it might be the MTX too, but someone said RA itself can cause this - who knowseyes  - its annoying either way:-)

Jo


Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 2/1/2010 2:37 AM (GMT -7)   
Hi PRA,
Welcome to HW, There are alot of good ppl here.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on and Humira. B-12 injection once a month.
Also diagnosed with Rheumatoid Arthritis.


star73
Regular Member


Date Joined Jan 2010
Total Posts : 40
   Posted 2/1/2010 8:05 AM (GMT -7)   
Hey PRA....I first heard of PRA while watching the Food Network competition for the next Iron Chef and Seamus from New York has it. There are a few interviews online about him and what he has experienced. My ears always perk up these days when I have the TV on and I hear the words rheumatoid arthritis. I think the flu-like feeling you have goes along with these conditions with inflammation. Sometimes I wonder which is worse...the fatigue or the pain? Welcome to this board :)

Jake7
New Member


Date Joined Dec 2009
Total Posts : 1
   Posted 2/7/2010 1:34 PM (GMT -7)   
In 2006 I began experiencing weird, intermittent episodes of swelling mostly in my hands and wrists, and which would occur 24-48 hours after exercise. I finally had a severe episode with perhaps the worst pain I have ever experienced while out of town, staying at a hotel. I was seriously considering going to the er, but was able to make pain bearable with iburprofen. Symptoms subsided after a day or two, but I continued to experience intermittent, slightly less painful episodes. Long story short, went to PCP who did blood work to rule out RA, Lupus, etc. Everything came back normal. referred to rheumatologist, who examined me, looked at my records, and pronounced that I did not have a systemic inflammatory disease. Gave me some cock and bull story about having something similar Reflex sympathetic dystrophy, which never made sense. Recommended steroid injections in shoulders, ice packs, no exercise. Symptoms mostly cleared up, I was relieved, but continued to experience unusual pain and inflammation in muscles after playing softball, which I did frequently. Symptoms gradually increased over the next few years and I now have RA, with constant pain and swelling in hands and feet. I had never heard of palindromic rheumatism, but in doing research I came upon it, and it sounds just like what I was experiencing. WEll, I have a new rheumy, who seems much more compassionate and involved has me on leflunomide and in the near future Humira. Not much relief so far, but I am hopeful. By flu like symptoms I guess you mean the ache and fatigue. Yep, got those too. Good luck.

PalindromicRA
New Member


Date Joined Jan 2010
Total Posts : 5
   Posted 2/22/2010 5:03 PM (GMT -7)   
Thank you all so much for your kind responses!
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