Just a quick hello as Im running behind on everything today.
Jaz - I envy you and your creativity - I dont have one artistic bone in my body (and if I did it would probably hurt lol)Doing a job you enjoy must be wonderful too.
Oh Jax I'm so sad to hear your not only in physical pain but mental pain as well It's all so frustrating and I fully understand you not being happy. I've often talked with hubby about the time it takes to try one drug after another, waiting weeks before you can start again. The thing is we want an answer to our prays 'now'. Although I know that deep down both you and I and everyone else knows that's just not going to happen anytime soon.
To hear you talk about the problems in your feet makes me feel teary eyed, I oh so know what pain your going through and thank god you can come on hear and vent to us. It sounds like a plan to me to ask other rheumy's for some back up and help, so that's a good thing. Hang in there kiddo we've got your back.
My cold is better just left a cough which my family say isn't sounding as bad as it was, so that's a blessing.. remicade in just over a weeks time. Had my blood tests today and fingers crossed for a good liver again so I can go back on mxth or something similar. I need some help in making the remicade work this time.
Jo I agree with you with regards Jax, I think she must be 'super woman' to do all that and renovate a house, be a wife and mother. She deserves a medal...
Arron hows the yoga going...?
Well must away as cooking a veg curry for dinner, Oh by the way lost another kg last week making a total of just under 4kg in 3 weeks . How clever do I feel, and such an easy diet to follow and we eat anything we want, no not having what you fancy so no stress. Highly recommed WW.
Take care and will look in again later in the week.
((Jax)) - this finding the right med search for you has been a nightmare, surely your Rheumy would be willing to try anything for you by now. All this waiting cant do you any good. In the meantime are the fentanyl patches still working? How on Earth are you supposed to go back to work and cope?Im sorry - not much help but do feel your pain.
Mags - Glad your cold is better Way to go with the weight loss, you are doing so well there How much did you want to lose altogether? Let us know how the blood results are.
Welcome Keep the Faith
I popped on here for 5 minutes yesterday before my weekly headache made me want to scream and then promptly put myself to bed. Today I feel less than ordinary. All this might be because I am now down to 4mg pred - never have I been that low - still going to take baby steps weaning myself off though.
Better get organised for the day.
Take care everyone
Post Edited (golitho) : 2/3/2010 4:13:14 PM (GMT-7)
Mags - Sorry to hear about your husband, I think I know how both him and yourself are feeling Heres hoping for good news from the tests/biopsies he is having. Let us know when you find out, will be thinking of you both on Wednesday. Funny you should mention Merchandising, I have been applying for these positions for a few weeks now - any hints as to making my cover letter more 'eyecatching'would be gratefully appreciated
Jax - Your Rheumy sounds great, already a new med on the cards for you. I must say I havent heard of the meds, will try and Google them, but do get 'lost' when I start looking up things - too much information I made the mistake of Googling 'one swollen breast' and scared myself senseless for the day, so have banned myself from diagnosing online Glad your home is coming along - gives you something to look forward to and is a nice distraction.
Ivy - Not sure if the headaches are from the Pred withdrawal as I had these before I started to taper (I looked it up in my diary from when the headaches started, to the pred taper) . Im tapering with my GP's help because my Gastro is useless and I cant afford to visit my Rheumy too often and I will be taking baby steps as Im scared I will go into adrenal shock - Im a big chicken So far my Crohn's has been good (from 20 bm's to 1-3 a day) but I am feeling it in my bones - not enough to be debillating but painful nonetheless.
Thank you all for your concern on my latest health issues.
If its not one thing its another
Good luck in Perth Mags and have a wonderful time at Hamilton Island - lazing around reading is what I would do
Have a good weekend everyone
Thanks for the cover letter tips Mags - Im big on doing cover letters too - think I sold my soul in the last one I did I need to find employment that fits in with my Crohn's, as although I am 'better' I am having urgency issues. need to find shorter hours with reasonable hourly pay - I'll just keep selling myself with my cover letter and CV.
Jax - try not to worry too much about the side-effects, I think what you said about the 'small percentage' is right, they have to list the 'worst case scenarios' so we dont sue them Good luck starting back tomorrow - try not to overdo it.
Well I'll be off to 'sell' myself on my next application.
Just a quick one today.
Wekcome back Craig - sorry that you are flaring, you seemed to have done so well there for awhile though Keep posting to let us know how you are going.
Mags - good luck tomorrow with your husbands biopsies - will be thinking of you both.
jax - good luck with going back to work.
Will try and get back on tomorrow.
Jax - your poor feet What mg of pred are you on? I self dosed my pred too - I think we know when our bodies need it and when to back off. Are you and your family watching "So you think you can dance'? I am absolutely hooked on it and amazed by such talent - the late night watching it isnt doing me any good though. In my son's school newsletter it said that one of the female dancers went to his school - small world eh. I just finished a Wally Lamb book - 'The hour I first believed' - wow he is a great writer. As soon as I saw the book at the library I remembered you mentioning reading his latest novel, so I thought I would give it a go and I couldnt put it down - thanks for mentioning him - I will be off to the library to check out his other novels.
Mags - Im glad your husband got through the surgery OK, although I guess feeling like he was bashed isnt a great feeling. I felt like that after my skin cancer removal, my whole face hurt, I wondered if they had leant all over my face to get to it. The pain of that went within a few days. so hopefully he will feel better soon. Trying not to worry too much is easier said than done. I am distracting myself with job applications, helping with kids homework and reading when I can. Keep each other busy (although you both sound like you are busy enough there ) I have worked in the hospitality industry since I had children and am sick of the late nights, as well as other things. I did inhouse promoting, so am looking for merchandising jobs similiar to the experience I have already. Im also applying for any office work that is part time hours - I just want out of the Club industry. Oh well will keep applying till I get something.
Better head off as I have a few jobs to draft cover letters for (which takes forever UGH).
Stay well everyone