Moanalogue - February Edition

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SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 1/31/2010 7:16 PM (GMT -7)   
Hello everyone,
Well its now February (in Australia anywaysmilewinkgrin )
Not much to report as I posted at the bottom of our 'January edition".
Hope everyone is feeling goodtongue
Take care
Jo
Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 1/31/2010 7:30 PM (GMT -7)   
Oh Just realised I posted on the wrong one!
golitho

peggy baggins
Regular Member


Date Joined Jul 2009
Total Posts : 153
   Posted 1/31/2010 9:19 PM (GMT -7)   
Jo, great idea to start another post off, wow we all have a lot to say don't wesmilewinkgrin .
 
Jax, so glad you got the paperwork for the sticker, if only half filled out, don't you just hate that when that happens?shakehead   Can you leave it at the front desk and get her to fill it in or do you need to make another appointment?
 
Your right Jax, I think Jo is very brave, like you I'm worried and it's not me....we don't want to alarm you Jo, just that we care.:-)  Two things I'm on count down for: 1) my appointment with Specialist  2) your appointment for the breast.  Mind you it does us good to worry about someone else other than ourselves.
 
Jax, how long have you been off work? Is it full or part time?
 
I've not done anything about the Tai Chi as I've been ill these pass 8 days with a full blown cold, and coughing all the time. Not sure if I should get it checked again, I saw GP last week and he said it wasn't on my chest and I should go back if it didn't improve. What do you think. Infusion in two weeks?
 
Well I'll sign off now as going to pick up my son from work along with the groceries I've bought him so he eats. He's on his own now (broke up with his partner of 3 years, so no lady to cook for him).  He's not useless just hates cooking. They used to share chores, she cooked every night while he did the laundry and cleaning.  I have him over at less once a week for dinner and his brother (the chef) cooks for him one night with his girlfriend, leaving him 5 nights to either eat out with friends or eat in with what I buy. Don't you just love them???tongue
 
Well take care, hopefully this hot sticky weather will clear soon. Speak soon and hope all is well with everyone that posts here.
 
Peggywink

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 2/1/2010 5:28 PM (GMT -7)   
Hi all, I work at the uni, I teach visual art, printmaking to be specific so we get a 3 month break at Christmas. I work part time. 3 days normally. I also teach one class at TAFE (tech for those non Aussies), also printmaking and one class for another uni, drawing for architecture students. It all adds up to 3 full days. All I can manage. I love my art and I'm good at teaching, I'd hate to have to give it up. Keeps my mind off my worries and reinforces that I am someelse as well. Not just a patient and a mother, if you know what I mean?

My GP put me up on the fentanyl dose and I feel a bit better today, pain definately in the background. Cross your fingers these might work for me!

Sons are so dependent! Mags, should you still be shopping for him when you have so much pain? My middle child, 14, is very dependent on me. I'm trying to encourage him to independence, helping me cook etc. The youngest loves it and my daughter has done cooking at school so she is quite good now. The middle child is so lazy its not funny. 14 year old indolence. Getting him to do his homework or make an effort is like pulling hens teeth.

I hope your cold improves soon, watch your temps, Mags.

Hope you're good Jo, best wishes, golitho

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 2/2/2010 1:56 AM (GMT -7)   

Hi Everyone,

Just a quick hello as Im running behind on everything today.

Jaz - I envy you and your creativity - I dont have one artistic bone in my body (and if I did it would probably hurt lol)Doing a job you enjoy must be wonderful too.

 
Mags - hows that cold?
 
I had better get off and do my bits
Talk more when time permits.
Jo
Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 2/2/2010 8:48 PM (GMT -7)   
I am frustrated no end! Saw my rheumy but she is anti starting me on one of these new meds like simponi or actemra. She is leaning towards enbrel or back to arava!!! AAAHHHH!!! I feel like no no no I don't want to go back there. I want to move forward, try something new.

I know she means well, she injected my knees again but won't touch the feet. I'd love her to be able to do something for the feet. I had to fail my joints in 25 places which I did easily, she was counting, wrists, elbows, knees, hips and then just halted once I took off my sandles and she saw the state of my poor sad feet, ankles and heels. Even toes are swollen. I have to ring her back in a week for her decision, she is going to ask other rheumies for their help and advice. I just want to move on. be proactive, not passively sit here and watch my deterioration.

I'll seemingly have to wait for the remicade to clear my system, I just can't imagine what state I'll be in in 8 weeks. I mean surely if the stuff hasn't worked I don't have to end up in hospital to get permission to start something else?


Not happy Jan! Golitho

keep the faith
Regular Member


Date Joined Nov 2009
Total Posts : 91
   Posted 2/2/2010 9:40 PM (GMT -7)   
I am so sorry to hear your issues with your rhuemy. Hope and pray that the docs confer and come up with something really really good for your poor feet.
 

peggy baggins
Regular Member


Date Joined Jul 2009
Total Posts : 153
   Posted 2/3/2010 12:38 AM (GMT -7)   

Oh Jax I'm so sad to hear your not only in physical pain but mental pain as wellshakehead   It's all so frustrating and I fully understand you not being happy.  I've often talked with hubby about the time it takes to try one drug after another, waiting weeks before you can start again. The thing is we want an answer to our prays 'now'.  Although I know that deep down both you and I and everyone else knows that's just not going to happen anytime soon.

To hear you talk about the problems in your feet makes me feel teary eyed, I oh so know what pain your going through and thank god you can come on hear and vent to us. It sounds like a plan to me to ask other rheumy's for some back up and help, so that's a good thing. Hang in there kiddo we've got your back.

My cold is better just left a cough which my family say isn't sounding as bad as it was, so that's a blessing.. remicade in just over a weeks time. Had my blood tests today and fingers crossed for a good liver again so I can go back on mxth or something similar. I need some help in making the remicade work this time.

Jo I agree with you with regards Jax, I think she must be 'super woman' to do all that and renovate a house, be a wife and mother.  She deserves a medal...smilewinkgrin

Arron hows the yoga going...?

Well must away as cooking a veg curry for dinner, Oh by the way lost another kg last week making a total of just under 4kg in 3 weeksyeah . How clever do I feel, and such an easy diet to follow and we eat anything we want, no not having what you fancy so no stress. Highly recommed WW.

Take care and will look in again later in the week.

Peggywink


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 2/3/2010 2:31 AM (GMT -7)   

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 2/3/2010 1:53 PM (GMT -7)   

Hi Everyone,

((Jax)) - this finding the right med search for you has been a nightmare, surely your Rheumy would be willing to try anything for you by now. All this waiting cant do you any good. In the meantime are the fentanyl patches still working? How on Earth are you supposed to go back to work and cope?Im sorry - not much help but do feel your pain.

Mags - Glad your cold is better:-)  Way to go with the weight loss, you are doing so well there smilewinkgrin  How much did you want to lose altogether? Let us know how the blood results are.

Welcome Keep the Faithsmilewinkgrin

I popped on here for 5 minutes yesterday before my weekly headache made me want to scream and then promptly put myself to bed. Today I feel less than ordinary. All this might be because I am now down to 4mg pred - never have I been that low - still going to take baby steps weaning myself off though.

Better get organised for the day.

Take care everyone

Jo


Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 2/3/2010 4:10 PM (GMT -7)   
Hi everyone and thanks for your support while I'm going through this frustrating waiting game.
 
The fentanyl is helping , she put me on a 25 mcg patch as well as a 12mcg patch and it just sort of pushes the pain back over there somewhere. Like its in another room, I'm aware of it but its voice is muffled, if that makes sense. Using the joints, I'm ok for a while then its back in my face again. Ice, heat, rest then have to play their part. Plus I slept last night! First nights sleep I've had in years! My worry is obviously March when I return to University teaching and on my feet all day, I start back at TAFE next Tuesday so it will let me know what I can deal with. I made another GP appt for nxt Thursday to report back on the patches and how I cope with work etc. My GP has referred me to a pain management clinic but I don't know how long that will take to get an appointment.
 
Trying to be positive.
 
Meanwhile my kitchen benches are in and looking wonderful. Just love that stone finish, the tiler is in today to put up the splashback. Very close now to being finished. Just need the plumber to connect up the sinks, gas hob etc....And then the garden, and then the landing and then the bottom staircase and then.... and so it goes on. The house is keeping my mind busy and cheering me up enormously. I keep walking into that huge space and thinking this is all mine soon. Plus we have always struggled financially and suddenly we are making it into the middle classes, great feeling, not that we will be well off, just that we will have the space we've never had in these small workers cottages we've lived in for sooo many years.
 
I am pretty excited. With all our water tanks and solar heating, we hope we can afford to live there too! It'll be interesting how our power bills etc compare. Using so much rain water will help. 18000 litres and the tanks are already full.
 
Jo You sound so busy yourself with work, kids and your breast to worry about, plus all your work as a forum moderator and now these headaches. Make sure you rest too. Forgot to say, just stop the prednisone now, under 5mg does nothing according to my rheumy, tough it out. It takes about 4-5 weeks of feeling crappy before your body adjusts, otherwise you're just prolonging the agonyyeah.
 
Mags, goodluck with those blood tests, thrilled to hear you're losing weight and your cold is getting better. Watch that cough. When are you off to Hamilton Island?
 
Ivy, thanks for your care.
 
Keeping the Faith thanks for your thoughts too. Great to know there are people out there caring about me. Warms my heartstrings, on that note, best wishes to all, golitho (Jaxturn)
 
 

Post Edited (golitho) : 2/3/2010 4:13:14 PM (GMT-7)


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 2/3/2010 9:31 PM (GMT -7)   
Jo, do you mean to tell me that you're weaning yourself instead of doing it under your doctor's supervision? I'm not happy about that: you've been steroid dependent for so long that I think a *much* slower and gentler wean is going to be needed. We've been on high doses of pred for about the same length of time as each other, and you know that it took me 18 months to get off completely.

The first time I tried, I got massive headaches, like you, so had to go back up to a higher dose. And then I'd go into a Crohn's flare every time I cut back: I suspect, in retrospect, that this was because I was being encouraged to wean before my gut was properly healed. I am *still* in the process of healing (rather than healed), according to my c'scopy report, so please do try not to be impatient, and cut back SLOWLY.

The pred-weaning headache is horrendous. I honestly thought I was going to collapse and go unconscious with mine, and it sounds as if yours are like that too.

Please do think about it - it took me ages to get to 4mg.

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


peggy baggins
Regular Member


Date Joined Jul 2009
Total Posts : 153
   Posted 2/4/2010 4:44 PM (GMT -7)   
Jo, seems there's no let up with the headaches then?  How do you cope and do they come on the same day each week?  prednisone is not something I'm very familiar with but it sounds like it's a bugger to come off with lots of problems.  Is it something you have to come off or is that your decision? How's the rest of your body these days?
 
As for the weight loss I'm just aiming for 5kgs as they same set a goal that's not too stressful to get to for the first month, but in total I'd like to lose about 20kgs. :-) I know that sounds like a lot and it is but I'm not in any hurry so if it takes me a whole year that's o.k as long as it stays off.  My clothes are much loser now and I wont buy anything else as Autumn will be upon us soon.
 
I'm off to Perth in a couple of weeks shakehead (the week before my holiday) as I have to go on business to interview and train a new Merchandiser. Oh so don't want to go and know my body will suffer due to the long flight and on my feet for a bit, but hey what can you do? Takes all day Monday to get there and I'm coming back Thursday catching the 5.45am flight back in order to get me here at a reasonable time to drive back from Sydney to home (2hrs). Two days back, washing and ironing and off again to Hamilton Island for that break, boy will I need one!
 
I wont know the results of the blood tests until week Monday when we visit the specialist, fingers crossed. But today they should be discussing my case:-)  keep fingers, toes and everything crossed for that one and hope they have some things for me to try. I just can't get it out of my head and will be pleased to see Rheumy and found out the results.
 
Meantime, of course just when you think your ticking along something throws a curve ball in your direction. My hubby has been having tests for a few lumps and it seems there is concern on two of them not being quite right, they others are all hot and two are cold and very large in his thyroid he got the results on Wednesday and is in for a biopsy on them this coming Wednesday. It certainly has made me stop thinking about all my troubles and woes, as I'm scared for him and me. He's always been so fit active and well until these pass few years.  He's mother has had cancer and Paul has already had some lumps removed many years ago.  Like you Jo a concerning time.
 
Well must make this short and sweet, going to Bathurst for a weekend of childrens Birthday parties, our god daughter and her brother are having a joint party.
 
Take care all of you, have a great weekend and be kind to yourselves.
Peggywink

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 2/4/2010 5:08 PM (GMT -7)   
Ivy, my specialist told me under 5mg of prednisone does nothing even though I'd been on it for over a year and a half, she was quite happy for me to wean myself off it. Like you I went up and down on it a few times trying to deal with the side effects, but she told me it physiologically does nothing under 5mg??? Anyway we are all different and I don't have Crohn's. Now I'm on it again I dread going off it once again....

Mags, your poor hubby, what sort of growths are they? Is it a thyroid problem or just coincidentally on his thyroid? My hubby has an underactive thyroid, he was so ill when it was undiagnosed, took them forever to figure out what was wrong with him. How worrying for you both. I don't know whats going on for us lot, doesn't rain, it pours. Best best wishes for him. I really hope your rheumy has some good advice today and you have a successful appt Monday. I'm still annoyed about mine! Enjoy Bathurst, such a pretty place. I always enjoyed my daughter playing soccer there.

Jo, take care with those headaches, give your rheumy a call if they continue and get some advice about the prednisone withdrawal. Mine changed me to prednisolone as it breaks down differently in the body, seems to work better somehow. It might be worth a try.

Best wishes to all, Jax

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 2/5/2010 1:28 AM (GMT -7)   
My rheumy rang me and is thinking of putting me on Rituximab or Mab Thera? Anyone heard of it? Another infusion but one that wipes out B cells. I didn't even know B cells existed let alone we make too many with RA.
 
Anyway I still have to wait the 8 weeks for the remicade to get out of my system. So no big rush to make the decision. She thinks I should say yes.
 
Meanwhile I asked about the ankles/heals scenario and she will send me to have them x rayed and get cortisone injected under xray. So hopefully this will keep me going work wise. So progress has been made.
 
I also found out our dose of fish oil should be 2.7g of omega 3 per day. Thats 14 x 1000mg fish oil!!!
Or 5-7 capsules of concentrated fish oil. I asked her about freezing it and she thought that would work fine. So I'm ordering my fish oil concentrate and I'm going to freeze them and give it ago. Can't hurt. Ever since I met that guy in Qld only on fish oil I've been determined to give it a try.
 
My rheumy directed me to the website "Australian Rheumatology Association" it has lots of info on the meds, treatments, exercises, even Tai Chi, Mags. I was impressed, I didn't realise that resource was there for us. I'm so bad at researching things, get totally side tracked all the time.
smilewinkgrin
Have a great weekend everyone, Jax

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 2/5/2010 3:52 AM (GMT -7)   

Hi Everyone,

Mags - Sorry to hear about your husband, I think I know how both him and yourself are feelingsad Heres hoping for good news from the tests/biopsies he is having. Let us know when you find out, will be thinking of you both on Wednesday. Funny you should mention Merchandising, I have been applying for these positions for a few weeks now - any hints as to making my cover letter more 'eyecatching'would be gratefully appreciatedsmilewinkgrin

Jax -  Your Rheumy sounds great, already a new med on the cards for you. I must say I havent heard of the meds, will try and Google them, but do get 'lost' when I start looking up things - too much informationeyes  I made the mistake of Googling 'one swollen breast' and scared myself senseless for the day, so have banned myself from diagnosing onlineturn  Glad your home is coming along - gives you something to look forward to and is a nice distraction.

Ivy - Not sure if the headaches are from the Pred withdrawal as I had these before I started to taper (I looked it up in my diary from when the headaches started, to the pred taper) . Im tapering with my GP's help because my Gastro is useless and I cant afford to visit my Rheumy too often and I will be taking baby steps as Im scared I will go into adrenal shock - Im a big chickensmilewinkgrin  So far my Crohn's has been good (from 20 bm's to 1-3 a day) but I am feeling it in my bones - not enough to be debillating but painful nonetheless.

Thank you all for your concern on my latest health issues.

If its not one thing its anothereyes

Good luck in Perth Mags and have a wonderful time at Hamilton Island - lazing around reading is what I would dosmilewinkgrin

Have a good weekend everyonesmilewinkgrin

Jo


Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


peggy baggins
Regular Member


Date Joined Jul 2009
Total Posts : 153
   Posted 2/7/2010 3:55 AM (GMT -7)   
Guys,
Don't you just love it I'd written a huge post and just lost the whole thing....cry
 
Jax, we don't know what the growths are that he has hence the biopsy on Wednesday. He went to the Nuclear Medicine Centre and had those special scans done which shows up 'hot' ones that are o.k and then 'cold' ones that aren't shocked  that's what he has two of..... I can't think of my appointment on the 15th or my infusion on the same day until his is done.....
 
Have you had the coristone injection done before in the foot area? My rheumy wont let me have that as it will cause more damage to my foot...
 
Jo, when receiving a CV I always look more favourably on ones that come through with a covering letter. I'm old school and like a friendly brief introduction to who ever is writing to me. All to often CV's are sent with nothing and I think this is rude.  In your CV always include whether you have a car, mobile phone, fax, email and all computer experience no matter how small.  If you've done any other merchandising then make sure you give a really good full report on your responsibilities and duties within that job, along with the products you merchandised.  Hope this helps and feel free to ask anything else.
 
It's late here so signing off yet again (hope this one stays?). Not going to Perth until the 22nd of this month, I'm afraid I'm not looking forward to it as it's a long way to go and so busy while there. Hey ho never mind.
 
Take care
Peggy wink

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 2/7/2010 7:00 PM (GMT -7)   
Best of luck with the scans and results for your hubby. You must be feeling sick, my friend had a cancerous growth on her pituatary gland and they managed to shrink it with chemo but destroyed her thyroid in the process so she has to take thyroxin like my hubby.
 
I really hope all is ok for you both.
 
I haven't had injections in my feet, but have in my wrists, elbows, knees, hips and lots of ribs! Sounds as if they use the xray to inject where its needed. She said it can be done once but after that can damage the joints and surgeons don't like it more than once. So maybe thats where your rheumy is coming from as surgery is on the cards for you, Mags. If it gives relief I'm all for it.
 
I've been making myself sick with worry over this MabThera treatment, the more I read the more I worry, I think I'll talk it over with my GP. Sometimes they publish everything that can possibly go wrong but the percentage of people that something goes wrong in is infintissimally small. Heres hoping she understands more than I do.
 
Jo, goodluck with the CV's, I hate applying for jobs, I have to go through the whole rigmorole myself if this full time job comes up at the Uni! Selling yourself has never been my strong point. Prefer to hide behind the art!
 
Big week for you guys. I'm back to TAFE tomorrow, gotta get my teaching head back on. Put the home rennovation/ mother in the cupboard.
 
Best wishes, Jax

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 2/7/2010 8:02 PM (GMT -7)   

Hey guys,

Thanks for the cover letter tips Mags - Im big on doing cover letters too - think I sold my soul in the last one I didsmilewinkgrin  I need to find employment that fits in with my Crohn's, as although I am 'better' I am having urgency issues. need to find shorter hours with reasonable hourly pay - I'll just keep selling myself with my cover letter and CV.

Jax - try not to worry too much about the side-effects, I think what you said about the 'small percentage' is right, they have to list the 'worst case scenarios' so we dont sue them:-)  Good luck starting back tomorrow - try not to overdo it.

Well I'll be off to 'sell' myself on my next application.

Take care

Jo


Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


cbrossman
Regular Member


Date Joined Apr 2005
Total Posts : 191
   Posted 2/8/2010 2:24 PM (GMT -7)   
Hi Ladies, I'm back.
Enjoyed over 2 years of relatively pain free, drug free RA, but all good things come to an end.
Those who remember me will recall that I stopped taking my MTX and Enbrel in the spring of 2007, deciding to see if I could live w/o it. During that time, I've had plenty of colds and injuries, the types of things that could really send me into a flair, but none yeah
That all came to an end in December when my elbows, hands, shoulders and wrists began acting up, and after 6 weeks, it was time to see my Rheumy. I'm on Pred. temporarily so I can function, and will be on Enbrel soon.
The good news is I'm motivated more than ever for the 2010 biking season (you may recall I'm an avid bike rider and unicyclist) as I know that frequent, exhaustive exercise is my salvation.

Oh well.

I see a lot of familiar names on the forum, I kind of wish that was not the case and everyone was cured and stopped patrolling these hallways.

hang in there ... Craig

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 2/9/2010 2:59 AM (GMT -7)   

Hi Everyone,

Just a quick one today.

Wekcome back Craig - sorry that you are flaring, you seemed to have done so well there for awhile though:-)  Keep posting to let us know how you are going.

Mags - good luck tomorrow with your husbands biopsies - will be thinking of you both.

jax - good luck with going back to work.

Will try and get back on tomorrow.

Take care everyone

Jo


Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 2/9/2010 2:37 PM (GMT -7)   
Hi everyone. Welcome back Craig.
 
Work was good. Talked out, first class I do nothing but talk. So a bit exhausting. Good to be back, catch up with staff and old students. Lots of lost newbies in the corridors.
 
Feet were pretty sore after3 hours but I managed ok. Proud of myself, plus managed to wear my boots. I upped my prednisone by 5mg. I might stay on this dose while I'm working, I asked my rheumy's permission to play with the prednisone dose while I'm waiting for this new med.
 
Good luck Mags for the test results for your hubby and goodluck Jo for your applications. I'm being hassled to go by my youngest, I'll try and post again later, Jax

peggy baggins
Regular Member


Date Joined Jul 2009
Total Posts : 153
   Posted 2/10/2010 2:18 PM (GMT -7)   
Hi guys,
Firstly thank you for all your kind thoughts and concern. He had he's biopsy and came out smiling (mind you that was because he was numb!) he said that the doctor took a lot of fluid and said in his opinion it looked ok but had to be sent of for checking. This takes 3 days and we have an appointment for the results next Tuesday evening. In no time at all Paul was in pain both in his neck where he had to have his head bent backwards and in his throat area.  This morning he said he feels very bashed about, but he was warned of bruising so we know that's why. I feel so sorry for him at the moment, he's so upbeat and said he's not worried but I know he is and will rest better once we know.  Even if it's o.k it looks like he will still have to undergo surgery as he has the two large ones that may just get bigger and his blood tests are slightly off. So we wait.
 
Me, I'm still swimming 3 times a week (god it's painful but hey - it's painful anyway). I've lost 1.2kg this past week so .4kg under 5kg in 4 weeks. Everything is lose and Paul said it's very noticeable now. I've set myself another 5kg limit and 6 weeks to achieve that as it will start to slow down now.
 
Jax, I'm glad your first day went well, god you must have felt stuffed by the time you got back. Any date on the move in to the new house yet?  You mentioned that you had family coming so will it all be ready by then?
 
Jo, how's it going with the merchandising jobs?  Any luck yet and in what field have you been working in? I look after the merchandising around Australia for our business which is in Men's wear. There are so many types of merchandising, which I think makes the job more interesting.  If you had lived in Perth you could have come along for an interview there.smilewinkgrin
 
Well must away, shopping to do and we have men just arrived to chop down some dead branches on one of our trees.
 
Take care all of you and have a great two days leading to the weekend.
Jax and Jo, take it easy.
 
Peggywink

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 2/10/2010 3:45 PM (GMT -7)   

Hi everyone,

Jax - your poor feetsad  What mg of pred are you on? I self dosed my pred too - I think we know when our bodies need it and when to back off. Are you and your family watching "So you think you can dance'? I am absolutely hooked on it and amazed by such talent - the late night watching it isnt doing me any good though. In my son's school newsletter it said that one of the female dancers went to his school - small world eh. I just finished a Wally Lamb book - 'The hour I first believed' - wow he is a great writer. As soon as I saw the book at the library I remembered you mentioning reading his latest novel, so I thought I would give it a go and I couldnt put it down - thanks for mentioning him - I will be off to the library to check out his other novels.

Mags - Im glad your husband got through the surgery OK, although I guess feeling like he was bashed isnt a great feeling. I felt like that after my skin cancer removal, my whole face hurt, I wondered if they had leant all over my face to get to it. The pain of that went within a few days. so hopefully he will feel better soon. Trying not to worry too much is easier said than done. I am distracting myself with job applications, helping with kids homework and reading when I can. Keep each other busy (although you both sound like you are busy enough theresmilewinkgrin ) I have worked in the hospitality industry since I had children and am sick of the late nights, as well as other things. I did inhouse promoting, so am looking for merchandising jobs similiar to the experience I have already. Im also applying for any office work that is part time hours - I just want out of the Club industry. Oh well will keep applying till I get something.

Better head off as I have a few jobs to draft cover letters for (which takes forever UGH).

Stay well everyone

Joanne


Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 2/10/2010 7:41 PM (GMT -7)   
I said yes to my rheumy to try the Mab thera (rituximab), it wipes out your B cells. I think B cells fight virus' so not sure how I will go without them but don't feel I have much choice, I can't live on pain killers and with this much swelling, its only going to cause permanent damage. So bit the bullet and said Yes. Now she has to apply to medicare and get approval etc etc... but in the meatime I am going to get my ankles injected under x ray to give me some temporary relief, I hope.

My GP bumped up my fentanyl to the 50mcg patch, so it'll be interesting to see how I go on this one.
We hope to move Sat 20th, I have the agent going through this rental house this Sat so better go and tidy up a bit so she can get in the door! Can't wait to move, all that space just sitting there enticing me!

Cross my fingers the results of the tests are ok for your hubby, Mags, when do you find out?

Jo goodluck with the job hunting, is your breast the same?

Must away, Jax
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