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pjp
New Member


Date Joined Feb 2010
Total Posts : 6
   Posted 2/9/2010 9:42 AM (GMT -7)   
Hello everyone, I was looking for support for my son who was dx with UC, and I came across this forum and so glad I did. I was feeling very low and depressed. But reading through all the posts, I'm am feeling so much better.
 
I was DX with RA four years ago, I tried cleaning my body, I ate only fruits and veg and water, for 6 months. I was determined not to go on meds. I lost 20 lbs that I could not afford to lose and I was still in pain, I tried the antibiotic route next and still in pain.
Next I tried Plaquenil and a few other things, then MTX which I hated ,it worked awhile.
Then I tried to do the naural thing again, being in pain the whole time. I went to the Drs one day crying I was in so much pain I could hardly walk, he sat me down and said what kind of life did I want pain free or medicine free, I had to weigh it out. I went back on MTX and a combination of others and it worked, I had my life back. I can walk and even work full time now. I was able to get off the MTX and now I am on enbrel and it has kept me pain free for a year now. It has been a long 4 years trying to get the right meds to work.
Now I'm reliving it again with my son and having a terrible time and awful guilt that I did something wrong, I know I didn't but thats how I feel. Any ways enough of that, thanks for
listening.

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 2/9/2010 2:51 PM (GMT -7)   
Don't feel guilt over your son, You hardly chose for him to get this illness!
If we could all choose our pathways or our childrens then none of us would be sick!

we all battle between western meds and alternative. I think a good mix of the two is very healthy. I take a mountan of supplements with my rheumy's approval, plus use PT, OT and other practionioners to help, even an osteopath. Be sensible, don't give yourself a hard time. Some people are lucky and can control this disease on few treatments others can't. Just go with your head and make decisions based on your quality of life. My hubby is anti tablets and gives me a hard time.
'
He says you were aways so alternative! I reply I don't want to end up being permanently disabled just for my principals!

Not an easy road, how old is your son?

Keep in touch, golitho

Austin Misha
New Member


Date Joined Feb 2010
Total Posts : 7
   Posted 2/9/2010 4:21 PM (GMT -7)   
Golitho:

I was just recently diagnosed with RA and have decided to try Enbrel, so I don't end up permanently disabled. But, I would like to find out if there is a balance of alternative treatments that might help as well. I have noticed massage helps, but it seems only temporary. Do you mind sharing what supplements you take or if there are other alternative treatments/ exersizes that work for you.

Misha

Austin Misha
New Member


Date Joined Feb 2010
Total Posts : 7
   Posted 2/9/2010 4:55 PM (GMT -7)   
PJP:

So sorry to hear that both you and your son. It is hard enough to go through this yourself, but to watch someone you care about go through it must be so much worse. However, maybe you can use your experience to help your son to better adjust and deal with what he is going through. At least you can take comfort in knowing that he is not alone and that you understand what each other is going through.

I am glad to hear the Enbrel working for you. Have you had any side affects? I get my first injection tomorrow.


Misha

teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 2/10/2010 2:20 AM (GMT -7)   
Hi and Welcome to Healing Well,
This is the best place for support. Really caring people here.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on and Humira. B-12 injection once a month.
Also diagnosed with Rheumatoid Arthritis.


pjp
New Member


Date Joined Feb 2010
Total Posts : 6
   Posted 2/10/2010 5:01 PM (GMT -7)   
Misha,

I never had a reaction to the enbrel, just a little bump at the injection site. Did you get yours today? How was it?

pjp
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