Update on appt

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mariette
New Member


Date Joined Dec 2009
Total Posts : 17
   Posted 2/19/2010 3:39 PM (GMT -7)   
Hi everyone, saw my GP as I said, she couldnt help much, she said she didnt understand why the mtx wasnt working, and that the consultant should look at meds again.  I asked her for some pred to help, but she said she couldnt prescribe it without the say so of the consultant, as if anything went wrong she would be struck off.
I made a private appt on 29th January, the consultant was amazing, he listened and said he didnt understand why my RA wasnt being treated more aggressively, as if its left more damage will be done.
I managed to get an earlier appt at the clinic, and took the report with me, the consultant seemed surprised, but I told him I need to work, and at the moment its becoming impossible due to pain and swelling.  After examining me he agreed to give me plaquenil, butg not to start for 2 weeks, as i have to get eyes checked and bloods done.  Also some pred, 30mg to start for one week, going down to 20mg for 2 days etc,  while it was at the high rate it was doing a wonderful job, I was able to get upstairs normally, which I hadnt done for over a year.  I am just starting on the 5mg regular dose, but by the time I got to 15mg I could feel the difference, pain was back and stiffness and swelling.  Tried calling the rheumy clinic nurses, no reply so far.  Would it be usual to cut back so quickly on pred?  I thought it had to be done slowly, and 15mg to 5mg seems a big jump.  I know the pred is a temporary thing, and wont be a permanant one, but even so I was hoping for longer than a week!! Any ideas?  Still no results on the tests for lupus/mctd but have abnormal platelets, and haemotology have to get back to me with that.  So, meantime, back working with the babies, but feeling a bit down again due to pain.  Thanks for reading this cry
 
 
Mariette
 
 
dx- RA Sjogrens, Raynaud's carpal tunnel and overlap syndrome lupus/MCTD
 


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 2/20/2010 2:26 AM (GMT -7)   
Hello and Welcome to Healing Well RA forum. Usually doctors will drop the pred dose slow
until they take you off it.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on and Humira. B-12 injection once a month.
Also diagnosed with Rheumatoid Arthritis.


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 2/20/2010 3:10 AM (GMT -7)   

Hi Mariette,

Pred is great like that, makes you feel better in no time. I would have thought a drop from 15-10mg would have been better but 15-5mg isnt a problem when you have only been on it a week.

Good luck starting the Plaquenil. a lot of people on here have had success with this med and I hope they can come along and give you feedback.

Jo


Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


mariette
New Member


Date Joined Dec 2009
Total Posts : 17
   Posted 2/20/2010 9:16 AM (GMT -7)   
Hi teddybearweiser, and SydneyJo, thank you for yoiur replies.  I wasnt so much concerned with reducing the dosage due to problems, but due to it not working so well when on 5mg.  I am currently back to taking 15mg as I work weith young children, and need to be mobile.  On 5mg I felt the same as with out it.  The 15mg helps, not as much as the 30mg obviously, but I can get by on it.  I know its a short term solution, but until I get the plaquenil going and hopefully working it keeps me able to do my job.  I have already been advised by my GP and the rheumy clinic to stop working, but I dont want to until really necessary.  I cant bear the thought of being home and doing nothing all day, even though my job is physical, it keeps me sane and gives me confidence to think I am useful.  Maybe I am being optimistic to think I can continue to work, there are many people who cannot work due to their symptoms, and maybe soon I will be one of them, but for now I am hoping for the best.smilewinkgrin
 
 
Mariette
 
 
dx- RA Sjogrens, Raynaud's carpal tunnel and overlap syndrome lupus/MCTD
 


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 2/20/2010 3:24 PM (GMT -7)   

Hi Mariette,

I also feel the need to work, as it makes me feel productive too.:-)

Hopefully the Plaquenil will help you and you can keep working.

Let us know how you go on it.

Take care

Jo


Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 2/21/2010 8:10 PM (GMT -7)   
I'm on 15mg at the moment and find less than that fairly useless so I can relate. 15mg is not a high dose according to my rheumy and should be fine for a couple of months until the plaquenil kicks in but I'm not a doctor, just giving my thoughts.

Wish you well, golitho
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