Rhumitoid Arthritis sufferer

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zanzoey
New Member


Date Joined Mar 2010
Total Posts : 8
   Posted 3/6/2010 5:32 PM (GMT -7)   
 Hi I am a new member and have RA - I am currently taking Plaqinil, Methotrexate, Folic Acid, Vitimin B-12 and B-6, and now getting ready (just got the first 4 doses) to start Cimzia.  Does anyone know anything about this - I am terrified.

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 3/7/2010 6:00 PM (GMT -7)   

Hi zanzoey and welcome to HW and the RA forumsmilewinkgrin

I havent taken Cimizia myself, so I have no info to give you.

Hopefully someone who has taken it come along and answers for you.

Just wanted to welcome you :-)

Jo


Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


zanzoey
New Member


Date Joined Mar 2010
Total Posts : 8
   Posted 3/8/2010 8:45 AM (GMT -7)   
I am looking forward to hearing about everyones experiences.  I had a really bad one yesterday.  Could hardly move and every joint in me was at war.  I really wondered for the first time if it was all worth it.  Today is better and I am grateful and think it is going to be very nice to talk with others in the same situation,  it is hard for outsiders to understand, they seem to think it is not as bad as it is.  They seem to think we are making it up or something.  Welcome talking with like hearted.    
 Thanks for the welcome.

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 3/10/2010 11:06 PM (GMT -7)   
Welcome zanzoey. I have not tried that medication either, though I am on Plaquenil.
 
This site is a wonderful haven for us that don't have a good support system (and really, if you haven't experienced something, you can never fully understand what the other person is going though) - here there are many who not only understand, but have gone through the same thing.
 
Take care and keep us posted on the cizma.
**
 


TayIsa
Regular Member


Date Joined Sep 2008
Total Posts : 285
   Posted 3/12/2010 7:30 AM (GMT -7)   
Hi Zanzoey, and welcome to this site. there really are many kind people on here that will listen and try to help.  Even if its just a shoulder to 'cry' and vent on.  I too have not taken the cizma meds. I am on plaquenil though.  My symptoms started in Feb of 2008, and so I am fairly new to this disease.  Good luck and please keep us posted.

zanzoey
New Member


Date Joined Mar 2010
Total Posts : 8
   Posted 3/13/2010 2:17 PM (GMT -7)   
I have just had a very bad setback - not sure if it is normal or not but the Dr. wanted me to go to ER - I DON"T THINK SO - fever comes and goes, flush face, every joint feels like it is on fire and a headache like I have never had. I have a doctors appt on Monday for my Cimzia shots and I don't know if he will give them or not. Dr. also said no Methotrexate shot tonight. Does anyone have intestinal problems with the plaquinil or do I just have a touchey gut ??? Miserable for about 3 hours after meds. It is wonderful to find you all on this site. a godsend to talk to others. Thank you

TayIsa
Regular Member


Date Joined Sep 2008
Total Posts : 285
   Posted 3/13/2010 4:44 PM (GMT -7)   
I personally do not have any troubles with my stomach after taking my plaquenil.  I take mine about a half hour, sometimes hour before I go to bed at night though....Do you take yours with food? maybe that would help??

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 3/16/2010 1:13 PM (GMT -7)   
It took a while for my stomach to adjust and every time I have a lag in taking the meds, i hve to readjust all over again
 


zanzoey
New Member


Date Joined Mar 2010
Total Posts : 8
   Posted 3/27/2010 4:17 PM (GMT -7)   
I just had the worst 10 days of my life.  Ended up in the ER with 105 fever.  Mild seizers, infections, phenoumonia, strept throat.  All shots and med for RA stopped.  Now joints are going down hill quickly. I really appriciate all your imput and look forward to hearing from anyone.  Cimzia is very strong, violent, and hard drug to take.  I don't know if this would still have happened if I had not been started on it but !!!!!!!  Anyone considering using it, please be careful and do your research ahead of time.  Hopefully next week I will be able to start meds again.   I seem to have a very touchy system so I guess the plaquinil is just doomed to haunt me.  I've tried milk, food, changed the times of the meds all to not.  Again thank you all for imput.

wearyRAsufferer
Veteran Member


Date Joined Mar 2010
Total Posts : 2327
   Posted 3/27/2010 7:38 PM (GMT -7)   
Sorry- no experience but sending well wishes your way....hope you feel better soon

so very tired
Regular Member


Date Joined Mar 2010
Total Posts : 26
   Posted 3/28/2010 5:57 PM (GMT -7)   
Wow... scary. hope you feeling better soon, Never heard of CIMZIA. but I am new to this whole thing... Sounds intense! Seizures, very scary!! Sorry you had to endure that..

I was on Plaquinal with no issues.
Methotrexate pill made me a bit nausous and headaches- but I was on large dose. RA increased FOLIC acid and that seemed to help. Nausea went away. headache decreased.

BUt Neither did a thing to help my RA.

When I went on enbrel RA stopped plaquinal. after no luck with enbrel (RA actually got worse!!!)
stopped enbrel 3 weeks ago...

I have just started humira. She stopped METHo said if it was going to help it would have by now as I was on maximum dose...
. So I am on just Humira and gettign some relief for RA symptoms but within days had infection and was put on antibiotics.. So........ now I have to be seen and cleared by doc before continuing with humira.....

Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 3/28/2010 6:56 PM (GMT -7)   
I've been on Cimzia for over a year now...I have no bad side effects. However, I'm not sure you'll be able to start the medication as your fever is quite high. They don't want you to have any trace of an infection. I hope you are feeling a bit better...
"The earth laughs in flowers"


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 3/30/2010 9:38 PM (GMT -7)   
if the plaquenil is still bothering you after a couple of week, sounds like you have a touchy gut...at least, for me, it was just 2-3 weeks to get used to it initially.
 


zanzoey
New Member


Date Joined Mar 2010
Total Posts : 8
   Posted 4/7/2010 3:26 PM (GMT -7)   
Thank you all.  I am finally starting to get back to normal or as normal as we ever are.  Back on Methotexate shots, plquilnil and start the cimzia shots again in 2 weeks.  :-(    I will let you all know how it works and if it helps. 

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 4/8/2010 6:18 PM (GMT -7)   
Glad you are feeling more 'normal'.
Keep us posted on how the shots are going.

Take care
Jo
Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


Carrie1457
New Member


Date Joined Apr 2010
Total Posts : 2
   Posted 4/12/2010 7:32 AM (GMT -7)   
My name is Carrie, I'm 55 years old, and I was diagnosed with RA 8 years ago.  I've been on Enbril, Remicaide, Humira, and was doing great on Humira.  Last November, my rheumy decided, out of the blue and with no explanation, to switch me to Cimzia, two shots at four-week intervals.  I do great for two weeks and then feeling punky the third week, and can hardly move the fourth week.  I've called a pharmacist who told me Cimzia is FDA approved for one shot every two weeks or two shots every two weeks.  My rheumy won't change it, so I'm seeing a new one in two weeks.  It's a shame that we're at their mercy but they write the presciptions. confused  Currently taking Cimzia, 5 mg prednisone, folic acid, Vitamin D.  He also took me off of Mobic -- and I really miss it confused  but am taking two Arthritis Tylenol.  Not as good as Mobic.
 
Thanks for reading.  Had to vent.  HATE my rheumy, but in El Paso, Texas, we only have four!

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 4/12/2010 7:58 AM (GMT -7)   
Yikes, Carrie. Good luck with a new Rhuemy. I hope he listens. You know best at what works and what doesn't. If there's not a good explination as to why he won't change the Rx, then it's time for the new Rhuemy. I can't stand it when they don't listen or care!
 
Hang in there!
**
 


Abol76
Regular Member


Date Joined Mar 2010
Total Posts : 74
   Posted 4/12/2010 6:20 PM (GMT -7)   
Hi zanzoey! So sorry to hear you've been so poorly. How scarey for you! I've not tried Cimzia but are on mtx injections and pred. I'm currently taking morphine for pain as flare so bad. Can I ask how you've found mtx shots. I was on the pills for 7months no effect. Been on 15mg shots for 5wks things worse If anything. Saw Rheumy today who is increasing to 17.5mg for 1month then to 20mg to see how I go. He said today He thinks it's time for Biologics. Unfortunately I had a severe brain disease in 2007 which very nearly took my life. I'm in remission now but He has to check the Biologics won't cause it to flare up again. I saw you wrote earlier that it's hard for people to understand and it's almost as If people don't believe how bad it is. I totally understand that. I've been feeling it alot lately. It took me breaking down in tears for my Mum to look up recently and me to say I couldn't mind my niece and nephew for my sis to look up but as the others say, this is a fabulous site. Good luck with the Cimzia hun! And keep us posted XXX
Arthritis, GORD, IBS, PCOS, Neurosarcoid, Hypothyroidism, psoriasis, mental health issues, BIH, high blood pressure and high cholesterol. . . Methotrexate injections, folic acid, Prednisolone, Alendronic Acid, Adcal D3, Morphine, Lansoprazole, Domperidone, Norethisterone, Metformin, Levothyroxine, Amitriptyline, Sertraline/lustral/Zoloft, buspirone/buspar, Carbamazapine/Tegratol, Risperidone/Risperdal, Melatonin, Lisinopril, Atorvastatin ". . . but hey, Tomorrow is another day!" :-)


Carrie1457
New Member


Date Joined Apr 2010
Total Posts : 2
   Posted 4/13/2010 5:07 AM (GMT -7)   
Hi, Zanzoey,
 
Like I posted yesterday, I'm on Cimzia and have been since December.  I do two shots a month and it's not working as well as Humira once a week.  Read my earlier post.  My RA is fairly aggressive and I'm going to ask Rheumy to prescribe two shots twice a month.  Good luck with it.
Carrie Caulfield
 


wearyRAsufferer
Veteran Member


Date Joined Mar 2010
Total Posts : 2327
   Posted 4/14/2010 7:12 PM (GMT -7)   
I don't know anything about Cimzia but wish you all the best with it!

zanzoey
New Member


Date Joined Mar 2010
Total Posts : 8
   Posted 4/19/2010 4:50 PM (GMT -7)   
thank you all for the info and wishes. I did just get my first 2 shots on Saturday and so far - so good. No problems, keeping my fingers crossed for no side effects and help for the old joints. I am really glad to hear for all of your stories and feed back, it gives me alot to talk with my Dr. about. It is really very comforting to talk with you all when having a bad time. I am looking forward to sharing info on Cimzia with everyone. I appriciate you all and wish everyone good health.

zanzoey
New Member


Date Joined Mar 2010
Total Posts : 8
   Posted 4/19/2010 5:00 PM (GMT -7)   
My word Carrie, I am so sorry you are having such problems with your dr. They are suppose to be there to help you, yours doesn't sound like that is his priority. It is unfortunate that you only have 4 to choose from but i think I would seriously consider going to one of the others. You deserve better treatment than that. I have just started back up on my cimzia shots and would be lost without the support of my dr. I wish you well and will be anxious to hear from you.

jade-leigh
New Member


Date Joined Dec 2010
Total Posts : 4
   Posted 12/15/2010 2:08 PM (GMT -7)   
hi all im new to this web page and also new to rhumatiod arthritis, it seems to be one thing after the other with me as i suffered epilepsy then grew out of it then was diagnosed with polacystick ovarian syndrom now rhumatiod arthritis, im now taking 8 tablets and struggle taking them, was just wondering has anybody tried the medicine formula to methatrexate and whats it like? x

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 2/2/2011 9:10 AM (GMT -7)   
Hi Jade, did you get an answer to your questions? Methatrexate can help but can be difficult at the same time. You need to have your liver checked regularly (via blood test every month or every other month), drink lots of water, and take extra folic acid supplements. For some, the meds work wonders. For others, not so well. I had pluerisy (sp?) like symptoms while on it, my lungs were super-sensitive to everything, espeically smoke.
 
Good luck.

Kait
New Member


Date Joined Nov 2011
Total Posts : 2
   Posted 11/28/2011 9:01 PM (GMT -7)   
Hello everyone,

I dont personally have RA but my mother does. We found out in march of 2011 and she is still having alot of problems with stiffness. Any advise????

Also I am writing a speech for a college Communications class to persuade people to try Cimzia so if I could get any information back on that i would really appreciate it.

Thanks
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