new here- possible RA?

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sgirl
Regular Member


Date Joined Jul 2009
Total Posts : 417
   Posted 3/28/2010 11:08 PM (GMT -7)   
Hi all, I'm new to the RA forum but have been on the colitis and crohns part for a while now. :)

bit of a backstory... dx with colitis in feb 09, then dx with crohns in dec 09.

I have been having problems with my joints the past few months and my GI thinks it could be RA and wants me to start sulfalazine (i think) and if that doesn't help he wants me to see a rheumy. anyways, my hands ache all day long, my middle knuckle on all fingers hurt the worst, mostly when it's squeezed on the sides. my hands feel swollen all the time and it hurts to bend them, sometimes even gripping anything is hard to do. My elbows have also been aching, sometimes so much that i can't even hold my 6 month old. my hips and lower back hurt. my knees kill (already know i have 'reg' arthritis in both as I have lateral patellar compression syndrome) but this is a bit different than normal pain there. My ankles, heels, and just overall whole feet hurt. my heels will sometimes go numb but not always, sometimes it feels like pins and needles. i stand and it hurts to have pressure anywhere on my feet. sometimes just touching them makes them jump. I can barely walk up and down stairs (sad since I am living in a basement) and it takes me forever to move around sometimes.

I don't know what to do. I'm getting a dexus(?) scan done wednesday to check for any bone density loss since I was on prednisone for 11 months. I'm already on meds for my crohns and i don't want to add any more to my list of pills. :( One thing after another keeps popping up in my health and it's not a good time. i don't have enough insurance to cover me and I can't get a regular plan because of my crohns. Tylenol only takes the edge off, but not enough to do any real help. :( I'm tired of being so exhausted all the time and having so many health issues. okay, now I'm rambling... but HI!
Diagnosed with UC in February 2009.
Diagnosed with Crohn's Colitis December 2009.
Flaring since October 2008

Medication: Pentasa 6x daily, Imuran 37.5 mg, multivitamin. Probiotics through yogurt.


TayIsa
Regular Member


Date Joined Sep 2008
Total Posts : 285
   Posted 3/29/2010 9:39 AM (GMT -7)   
Just wanted to welcome you to the RA forum. :)

wearyRAsufferer
Veteran Member


Date Joined Mar 2010
Total Posts : 2322
   Posted 3/29/2010 10:41 AM (GMT -7)   
Welcome. Hope you find out soon what's what and also find a resolution. All the best to you. Keep us posted.

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 3/29/2010 3:53 PM (GMT -7)   

Hi sgirl and welcome to the RA forumsmilewinkgrin

I have CD too and due to that I have AS as well - joy:-)

In the beginning I found that my AS would flare when my CD wasnt under control, but that no longer happens they will both flare seperately now.

Most of the meds for RA are the same as we take for CD, Im currently on Humira and MTX. Maybe its just a matter of swapping your meds around. I feel the MTX helps my RA but not my CD and the Humira helps my CD and not much for my RA.

It will be a trial and error thing to find the right combo of meds to alleviate your pain, maybe you could ask your GI what he thinks is the best to take for both or get a referral for a Rheumy.

Im sorry you are suffering so much there,  if its not one thing its another with these diseases.

Let us know how you went with your bone density test.

Good luck and keep posting.

Jo


Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis

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