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JanSands
New Member


Date Joined Apr 2010
Total Posts : 2
   Posted 4/6/2010 6:52 AM (GMT -7)   
 
 
Hello All,
 
 Not sure how much I should say so I will just give you a brief review:
 
Arthritis:25 years
Age: 49
Wife, Mom, Grandma
Showed signs after my daughters birth
2 joints fused: wrist and upper foot
Heart calcified had a pericardectomy in 2001 at Mayo
Have tried almost every med, disease keeps progressing only med that helps is prednisone!
Waiting to be cleared for Cimzia & Methotrexate (that is how I found you, looking up people who uses Cimzia)
Just stopped Rituxan, was not working for me AT ALL! Disease progressed while being treated with it.
 
Feel like disease is winning for the last year, I have fought this thing for a long time, never felt this bad.
 
Fatigue is horrible, tendon under left heel is flairing up, OUCH! It is a new symptom. Right wrist so bad thinking about getting it fused.
 
Wondered if anyone had relief with Cimzia after Rituxan not helping. Also, wondering the cost of Cimzia with above average insurance?
 
I was athletic now I can do yoga but no impact exercise. Very depressed. Gaining weight. 
 
Feel very lonely,that know one understands and I don't want to bore them with these issue's since you know everyone has arthritis (ha).
Jan 

wearyRAsufferer
Veteran Member


Date Joined Mar 2010
Total Posts : 2322
   Posted 4/6/2010 7:36 AM (GMT -7)   
Welcome! So sorry you are in the state you are in! I guess you have what they call refractory RA. I really feel for people like you who do not resond to meds and suffer as you do.
I have no knowledge in the areas you question but wanted to wish you all the best in finding a solution.

JanSands
New Member


Date Joined Apr 2010
Total Posts : 2
   Posted 4/6/2010 12:12 PM (GMT -7)   
I feel like your name wearyRAsufferer! LOL! How poiniente can you get.

wearyRAsufferer
Veteran Member


Date Joined Mar 2010
Total Posts : 2322
   Posted 4/6/2010 2:47 PM (GMT -7)   
Thanks Jan! That prednisone is a real drag with weight gain isn't it? How much do you take a day? I am off completely now but I remember a time I had to go to bed just to stop putting food in my mouth.

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 4/6/2010 6:57 PM (GMT -7)   

Hi JanSands and welcome to HW and the RA forumsmilewinkgrin

You have certainly suffered a long time with RAsad

Prednisone is a wonder drug, I wish we could safely take it long term. I find it helps with both my Crohn's and AS.

I now take Humira and MTX and it has finally helped me drop the pred without flaring (touch wood :-) ), hopefully by the end of this month I will be pred free for the first time in seven years.

I was once really active and like you do yoga. I find the yoga helps me be able to get out of bed each morning, I think some of the stretches really help with my pains.

I hope you find the right med combo soon to give you relief - keep trying till you do.

Keep us posted on how you are goingsmilewinkgrin

Take care.

Jo


Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis

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