Update & Rheum nurse had me so upset & angry!

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Abol76
Regular Member


Date Joined Mar 2010
Total Posts : 74
   Posted 4/8/2010 6:04 PM (GMT -7)   
Hi guys! Before I start I just wanna say a big thank you for all your kindness, support and advice recently. Well I spoke to my GP today & He said I could take 6 spoons of liquid morphine on top of the morphine pills which was good coz i'd been having 4-5. Told him alot more pain, swelling & heat since stopped pred a wk last Tues. Coz i'm so young doesn't wanna give me higher dose morph & doesn't wanna give more pred coz supposed to be seeing If mtx shots are working. He said to call Rheum nurse & he'll see me Sat am. Left message on nurse answerphone & she finally called back @ 5pm. When told her put on morph 2 1/2 wks ago, she commented in a tone of voice that basically said "what do you need that for?". Then told her things alot worse with pain etc since stopped steroids a wk Tues ago. Even though at last apt she have me the depot steroid shot & script for pred I had to tell her i'd been on 10mg 4wks 5mg 4wks. Then she said in a horrible way "no wonder things got worse you're supposed to come of 1mg a wk not just stop at 5. Didn't you know that?" I said I didn't but was due to see her before end 8wks but no apt sent & when myself & GP called we were both told I wouldn't be seen unless i'd had 6 mtx shots & was still in pain (It'll be my fith tomorrow). To top it off, in a patronising way she then said "oh sweetie, do u think we should see u in clinic?" well it's been left that she'll TRY & get me an apt for next wk. I don't cry or get angry easily but when I came off the phone I burst into tears and was so angry. Am I being unreasonable? I've just had enough and want some relief from all this. Thanks for reading X
Arthritis, GORD, IBS, PCOS, Neurosarcoid, Hypothyroidism, psoriasis, mental health issues, BIH, high blood pressure and high cholesterol. . . Methotrexate injections, folic acid, Prednisolone, Alendronic Acid, Adcal D3, Morphine, Lansoprazole, Domperidone, Norethisterone, Metformin, Levothyroxine, Amitriptyline, Sertraline/lustral/Zoloft, buspirone/buspar, Carbamazapine/Tegratol, Risperidone/Risperdal, Melatonin, Lisinopril, Atorvastatin ". . . but hey, Tomorrow is another day!" :-)


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 4/8/2010 6:16 PM (GMT -7)   

Hi Abol,

How long were you on pred for?

I agree that going off the pred would make your pain worse, but surely the nurse could have told you how to taper, if at all.

I would think that maybe they should have kept you on the pred till the MTX kicked in, which can take as long as 3 months or more.

I hope the MTX kicks in for you soon and you wont need the morphine anymore.

Take care

Jo


Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


Abol76
Regular Member


Date Joined Mar 2010
Total Posts : 74
   Posted 4/8/2010 6:26 PM (GMT -7)   
Hi Jo! I was on the pred for 8wks. 4wks at 10mg & 4wks at 5mg. Apparently I should've come off it 1mg a week after that. I was on mtx pills for 7months before I started the shots with Only a slight improvement unfortunately! Thanks for replying Jo X
Arthritis, GORD, IBS, PCOS, Neurosarcoid, Hypothyroidism, psoriasis, mental health issues, BIH, high blood pressure and high cholesterol. . . Methotrexate injections, folic acid, Prednisolone, Alendronic Acid, Adcal D3, Morphine, Lansoprazole, Domperidone, Norethisterone, Metformin, Levothyroxine, Amitriptyline, Sertraline/lustral/Zoloft, buspirone/buspar, Carbamazapine/Tegratol, Risperidone/Risperdal, Melatonin, Lisinopril, Atorvastatin ". . . but hey, Tomorrow is another day!" :-)


wearyRAsufferer
Veteran Member


Date Joined Mar 2010
Total Posts : 2322
   Posted 4/8/2010 8:00 PM (GMT -7)   
A too quick taper can cause a nasty flare! Do you have a rheumatologist?

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 4/8/2010 9:26 PM (GMT -7)   

Im sorry the oral MTX didnt work the first time, maybe the shots need time to work - not sure how all that works - these meds are complicatedeyes

You must be in excrutiating pain to be taking morphine, Im sorry you are suffering so.

Has your Rheumy suggested Remicade or Humira? Or have you been down that road already?

((hugs)) to you Abol

Jo


Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 4/11/2010 2:02 PM (GMT -7)   
I'm sorry to hear you are in so much pain with your RA :( I'm surprised you are on something like morphine because most doctors know that the pain is caused by inflammation and pain meds due nothing for RA pain.  I don't know if your doctor has tried Plaquenil or a biologic such as Enbrel or Humira in combination with the MTX?? sometimes it takes more than one RA medication to get things under control.  There is also nothing wrong with a low dose of pred while trying to figure out the right cocktail of meds because at least that will get the inflammation under control unlike something like morphine.  I'm glad to hear you have a good gp taking care of you, but I also hope you have a good rheumy as well.
 
I hope you feel better soon.

Abol76
Regular Member


Date Joined Mar 2010
Total Posts : 74
   Posted 4/12/2010 3:20 PM (GMT -7)   
Hi guys! Bit of a result! Saw my Rheumy today (infact I saw the head of Rheumatology). I'm back on pred 5mg for 4wks, then coming off 1mg a wk till finished. I'm increasing my mtx shots for 1month then increasing again. He said he thinks it's time for Biologics but I'm in remission from a serious brain disease that very nearly killed me and He has to check the Biologics won't flare it up again. It's all a bit of a waiting game but at least something is being done :-). Thanks guys for all your support XXX
Arthritis, GORD, IBS, PCOS, Neurosarcoid, Hypothyroidism, psoriasis, mental health issues, BIH, high blood pressure and high cholesterol. . . Methotrexate injections, folic acid, Prednisolone, Alendronic Acid, Adcal D3, Morphine, Lansoprazole, Domperidone, Norethisterone, Metformin, Levothyroxine, Amitriptyline, Sertraline/lustral/Zoloft, buspirone/buspar, Carbamazapine/Tegratol, Risperidone/Risperdal, Melatonin, Lisinopril, Atorvastatin ". . . but hey, Tomorrow is another day!" :-)

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