frustrated, not getting better, want to quit

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New Member

Date Joined Oct 2009
Total Posts : 2
   Posted 4/14/2010 7:51 PM (GMT -6)   
So, I was diagnosed with RA around last October. I was seronegative, but had a positive ANA and elevated SED and swollen, painful wrists and fingers. Since then I've been on Prednisone, Naproxen, and Plaquenil. I was started on Methotrexate about two months ago and I'm up to 20mg every Sunday.

My problem is, I'm not getting any better and I'm so frustrated. The side effects of the meds (mainly fatigue and diarrhea) are enough to make me just want to quit. My wrists and hands still hurt - I can barely type and can't even write anymore. My ankles and knees and hips have started hurting at times. It even hurts to chew sometimes. My mouth sores still come and go like before. And to top it all off, now I have strange itchy rashes that I didn't have before. I was tired all the time before - and now the meds have made that worse. I'm tempted to just quit all the meds because I don't think I'm any better - and may be worse!

I think my doctor is good, he's nice and has a great rep, but I've only seen him twice now, and he schedules my appointments so far apart.

The other issue which is really plagueing me is terrible tremors in my hands. My hands have always shook a little - even as a child, but now its bad. I have trouble even eating. Putting on makeup is a real chore, lol! Is this a symptom of RA? I'm starting to wonder if my diagnosis isn't wrong??

Please help! I'm at my wits end!!

New Member

Date Joined Mar 2010
Total Posts : 11
   Posted 4/14/2010 8:32 PM (GMT -6)   
hi there....felt really sad about ur condition but dont loose hope....
ur doc may be good but its better to see another doctor now...its high time..just coz ur doc is good u want to let ur joints hurt like this always????
please listen to me go to another doc & ask them to diagnose u thoroughly..
take care..may god cure u soon...

Veteran Member

Date Joined Mar 2010
Total Posts : 2282
   Posted 4/14/2010 9:07 PM (GMT -6)   
RN - welcome to the world of RA. It makes you feel like you are crazy. You are always second guessing your diagnosis and every new symptom you get you blame RA for. You are not alone. It doesn't help when you are sero-negative (I am too)- that makes you really wonder! MTX can take awhile to kick in- sounds like it should be soon. Has your doctor tried prednisone in the mix? That's what triggered me back to somewhat comfortable levels.
Don't quit your meds!!!! I had to go off MTX for an infection once and I got a big flare!
Try swishing with a little warm salt water for your mouth sores. Are you on a little folic acid? That is supposed to help- ask your doctor. I'd ask him about the trmors too- I really never heard of anyone else with RA complaining about them.
All the best to you that you find relief.

Regular Member

Date Joined Mar 2010
Total Posts : 74
   Posted 4/20/2010 7:35 PM (GMT -6)   
Hi there! I second the last post. Mtx can take up to 6months to kick in and then not always pill form works like me you might need it in shot form. Now also I was getting repeated mouth sores. With folic acid the general rule is you take AT LEAST the same amount of mg in a week of folic as mtx. I was doing this but coz of sores had it increased and now i'm fine. Perseverence is the key. Good luck and take care X
Arthritis, GORD, IBS, PCOS, Neurosarcoid, Hypothyroidism, psoriasis, mental health issues, BIH, high blood pressure and high cholesterol. . . Methotrexate injections, folic acid, Prednisolone, Alendronic Acid, Adcal D3, Morphine, Lansoprazole, Domperidone, Norethisterone, Metformin, Levothyroxine, Amitriptyline, Sertraline/lustral/Zoloft, buspirone/buspar, Carbamazapine/Tegratol, Risperidone/Risperdal, Melatonin, Lisinopril, Atorvastatin ". . . but hey, Tomorrow is another day!" :-)

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