Humira question

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

nursecarrie
New Member


Date Joined May 2007
Total Posts : 11
   Posted 4/15/2010 4:06 PM (GMT -7)   
I don't post much, but feel I need to now as I need some of your expertise! I have lupus, but my rheumie has now diagnosed me with AS and possibly RA. I'm currently on Methotrexate and she wants to switch me to Humira next month. My PCP has literally scared me away from it by telling me horror stories of infections that patients get. Well, I am a nurse and work in a hospital...my fear is that I will get a nasty infection. Not sure what to do! I want to take it as my treatment now is not helping. But, I don't want to subject myself to an infection either. Thinking about asking to go on disability so I can avoid the possibility. Has anyone developed a bad infection?
Dx: SLE (4/07), IBS (1/99)
Meds: Plaquenil, Celebrex, and Lisinopril


wearyRAsufferer
Veteran Member


Date Joined Mar 2010
Total Posts : 2327
   Posted 4/15/2010 7:21 PM (GMT -7)   
Ask your doctor about what their experience has been with their patient's on Humira. My doctor said he did notice that people got infections and sometimes bad enough that hospitalization had to be done. I haven't been on it long and have already had a sinus infection but maybe it was a coincidence.

pksmdrag
Regular Member


Date Joined Mar 2010
Total Posts : 72
   Posted 4/16/2010 5:39 AM (GMT -7)   
I have been on Humira since Sept. 09 and have not had any problems with it. My mother lives in a nursing home and was recently hospitalized for cellulitis in her foot/leg. She also had pneumonia this winter, too. So, I have been around germs but, knock on wood, I'm healthy so far. Good luck with your decision.

Kim

Alicat
Regular Member


Date Joined Aug 2008
Total Posts : 226
   Posted 4/18/2010 4:12 AM (GMT -7)   
I put off taking the Humira shots because of the fears of the terrible side effects that "could" happen.  When the deformity and pain got so bad that I couldn't take it anymore I gave in and now wish I hadn't waited so long.   I've been on the Humira now for two years and it has literally given me back my life.     There is an increased risk of infection but I've learned to go to the doctor at the first sign of any problem.    It's especially important to call your doctor right away if you have a fever or any sign of infection.    I had to stop my shots a couple of times for a few weeks but so far haven't had any serious problems and most of the time I forget I even have arthritis.
 
As my rheumatologist says, "you can die from aspirin, if you're allergic to it".    There are risks with any drug but it becomes a matter of quality of life.     I first started on the Enbrel and did have a reaction at the injection site, they said most likely was from the preservatives in the drug.    For a few weeks on the Humira the site would be a little red, hot and itchy but now I have no problems at all.     It took a few months to kick in but then all of a sudden I was able to walk without limping.     I can even get down on the floor and back up again, which was impossible before the Humira.
For me it's been a wonder drug.
 
Wish you the best.    Keep trying and you'll find the right drug for you.
 
best of luck
Alicat
psoriatic arthritis, peripheal artery disease


nursecarrie
New Member


Date Joined May 2007
Total Posts : 11
   Posted 4/18/2010 12:58 PM (GMT -7)   
Thank you all for the replies! I'm happy to hear of the success stories. Too often you hear of the bad. I guess my hesitancy is stemming from being a nurse and knowing more than I wish too. I'm still debating on whether to take it or not, but I'm leaning toward trying it. Thanks again!!

tyancie
New Member


Date Joined Apr 2010
Total Posts : 2
   Posted 4/22/2010 6:00 PM (GMT -7)   
i have been on enbrel for 5 yrs it has stopped working i want to try humira but wonder if it will work if the enbrel is not.

Alicat
Regular Member


Date Joined Aug 2008
Total Posts : 226
   Posted 4/23/2010 2:35 AM (GMT -7)   
You would have to ask your doctor.    I was taking the Humira every two weeks and after awhile they had to increase me to a shot every week.    My rheumy said there are a few new drugs of the same variety out now.   there's a new once a month injection too.   So ask about what your options are.
 
good luck
 
Alicat
psoriatic arthritis, peripheal artery disease


andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 4/24/2010 7:11 AM (GMT -7)   
I was on humira a couple of years ago for crohns disease but found it didnt work although I was extremely sick and needed something to work real fast and those drugs do tend to take their time, so we stopped humira and I ended up with ileostomy surgery then soon after that I was diagnosed with RA so after trying other drugs and not able to tolerate many tablet form meds since they go straight through my stoma my Rheumy wanted to get me back on humira fast to help relieve my ever increasing joint pain and inflamation I am also on methotrexate injections and will hopefully start the humira again soon, the paper work was just sent off for it so shouldnt be too long and personally cant wait to go back on it cause I cant deal with this pain anymore. He seems to think between the methotrexate and humira it should help me get to a good place with this lousy disease. Last time I took humira I didnt suffer any ill affects from it apart from a few headaches and a bit tired but Im already tired from the methotrexate too. Good luck on whatever you decide to do. Keep us posted take care

nursecarrie
New Member


Date Joined May 2007
Total Posts : 11
   Posted 5/11/2010 5:36 AM (GMT -7)   
Thank you everyone for your replies! I'm so glad that I have found this site...it has been a blessing. After much discussion and thought, we have decided to give Enbrel a try. I will be starting it this week. My rheumie says that it has a slightly lower risk of infection and less chance of drug induced lupus. I chose this one since I work directly with patients in the hospital. I do work on a post-partum floor, so for the most part everyone is healthy. Hopefully, I will do well and it will help stop the progression of my disease.

Carrie
Dx: SLE (4/07), IBS (1/99)
Meds: Plaquenil, Celebrex, and Lisinopril


Alicat
Regular Member


Date Joined Aug 2008
Total Posts : 226
   Posted 5/11/2010 5:39 AM (GMT -7)   
I hope the Enbrel works well for you.   But, remember, there are lots of new drugs out there.   I started with Enbrel and had to switch to the Humira.   Hopefully you'll do well and can stay on the Enbrel.   Best of Luck
 
Alicat
psoriatic arthritis, peripheal artery disease

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, December 07, 2016 5:05 PM (GMT -7)
There are a total of 2,734,353 posts in 301,204 threads.
View Active Threads


Who's Online
This forum has 151324 registered members. Please welcome our newest member, worldviews.
354 Guest(s), 13 Registered Member(s) are currently online.  Details
Bololidat, 81GyGuy, hateuc, Ides, Teamchris, NiceGuyEddie, Scaredy Cat, Siqnik, holo100, magoo2, Huddie, jdcd57, Suffering34


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer