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Abol76
Regular Member


Date Joined Mar 2010
Total Posts : 74
   Posted 5/2/2010 10:35 AM (GMT -7)   
Hi guys, I recieved a copy of a letter my Rheumy has sent my GP and He says He wants to start me on Remicade along with increasing my mtx shots to 20mg. Does anyone else have any experience of this drug and what form does it come in? Many Thanks X
Arthritis, GORD, IBS, PCOS, Neurosarcoid, Hypothyroidism, psoriasis, mental health issues, BIH, high blood pressure and high cholesterol. . . Methotrexate injections, folic acid, Prednisolone, Alendronic Acid, Adcal D3, Morphine, Lansoprazole, Domperidone, Norethisterone, Metformin, Levothyroxine, Amitriptyline, Sertraline/lustral/Zoloft, buspirone/buspar, Carbamazapine/Tegratol, Risperidone/Risperdal, Melatonin, Lisinopril, Atorvastatin ". . . but hey, Tomorrow is another day!" :-)


wearyRAsufferer
Veteran Member


Date Joined Mar 2010
Total Posts : 2329
   Posted 5/2/2010 5:54 PM (GMT -7)   
Hey Abol- I don't know much about the drug other than it is an infusion. Best of luck with it!

ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 5/3/2010 11:06 AM (GMT -7)   
Abol76, yes, Remicade is done through IV.  You can usually start out having a nurse come to your house to do it or you can go to a doctor's office or outpatient infusion center at the hospital.  I had the nurse come to my house.  The infusion took about 2 hours.  about a year in, I started having allergic reactions and had to go to the hospital and have the infusion done much more slowly...over 12 hours...to try to eliminate the reaction.  I decided to stop taking it because I'd developed antibodies against it and it wasn't working any more anyway.  I was taking it for Crohn's disease.  It did put me in remission, but once I lost response to it and started having the allergic reactions, it wasn't worth the cost or inconvenience anymore.  It is a very expensive drug...but I don't know how your insurance will bill it, as it's been years since I was on it.  I think the manufacturer may offer some kind of financial assistance to those who qualify as well.  Try going to the Crohn's forum and there will be tons and tons of threads of this drug that you can look up. 
Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


Abol76
Regular Member


Date Joined Mar 2010
Total Posts : 74
   Posted 5/7/2010 5:51 AM (GMT -7)   
Thanks for the infor ZenaWP. I'm actually in the UK so no cost is involved. recently spoke to my GP about it and i'll be going to the hosp for it and having it over 2hrs and for the first three times will stay and be observed for two hours after. I will be given anti hystamines and paracetamol before infusion incase of allergic reactions. they're hoping this with my 20mg mtx shots I waill be anble to come off steroids and reduce my Morphine down to a less powerfull pain killer it's just all a bit overwhelming! thanks everso much though it's just good to hear from someone who has actually had it. will look in on the Chron's disease forum though. Go well Abol X
Arthritis, GORD, IBS, PCOS, Neurosarcoid, Hypothyroidism, psoriasis, mental health issues, BIH, high blood pressure and high cholesterol. . . Methotrexate injections, folic acid, Prednisolone, Alendronic Acid, Adcal D3, Morphine, Lansoprazole, Domperidone, Norethisterone, Metformin, Levothyroxine, Amitriptyline, Sertraline/lustral/Zoloft, buspirone/buspar, Carbamazapine/Tegratol, Risperidone/Risperdal, Melatonin, Lisinopril, Atorvastatin ". . . but hey, Tomorrow is another day!" :-)


ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 5/7/2010 9:14 AM (GMT -7)   
Abol, it's great that you don't have to pay for the Remicade...I really wish the U.S. had a better health care system.  I hope that all goes well for you.  I always premedicated as well (they gave me benedryl through the IV and I would premedicate with benedryl pills each day for a week before), but I still ended up having reactions after about a year.  But, I react badly to a lot of medicines, so hopefully this will work great for you and get you off of the pred.

Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 

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