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wearyRAsufferer
Veteran Member


Date Joined Mar 2010
Total Posts : 2322
   Posted 5/11/2010 10:59 AM (GMT -7)   
Had my every 2 month blood test today- curious as to what it will say after being on Humira  for 2 more months (3 total). If I was to guess basing it on the way I feel- I would say things are elevated but I know after 2 1/2 of this that they will probably come back perfect and that will make the doctor smile and pat himself on the back and tell me how wonderful it is that I am in remission.
BS! Not for nothing I'm the first one to say I am fully functional and have come a long way from onset but I don't feel flipping right! Today my knees are stiff like I need an oil can. My shoulders are getting shooting pains. Hands and wrists have been worse but are somewhat stiff and painful during certain movements. Ankles and feet-same thing.
 
I go see him next Monday and if he acts like he did the last time I might just have to tell him I'm insulted. Of all people your RD ought to be able to relate to how we look good, our blood looks good but we don't feel good.
Am I wrong?

sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 5/12/2010 6:26 PM (GMT -7)   
My rhuematologist basis her opinions and medication and everything else based on three things, clinical exam-hands on probing of my joints, my experience which I have to write down for her just prior to the visit and then she has me tell her how I am doing, she listens and asks question. The last thing she looks at during the appointment are the last labs which by then are 6 weeks old. We make decisions about meds together then I have new labs done as I am leaving the office.

Sounds like you may need to talk to your doc-or if he won't listen-get another one who will.

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 5/12/2010 6:45 PM (GMT -7)   
I agree, often my bloods are fantastic and I can feel terrible. The rheumy has to listen to you and to your symptoms, symptom relief is what makes life managable with this disease, are you swollen in your joints at all. Hot?

If he doesn't listen to you this time, change specialists. It is so important to have a sympathetic ear, we spend so much of our time waiting for meds to kick in or waiting for meds to get out of the system, I find the frustration of waiting as hard to handle as the symptoms at times.

You deserve a good rheumy, believe me, golitho

wearyRAsufferer
Veteran Member


Date Joined Mar 2010
Total Posts : 2322
   Posted 5/12/2010 7:02 PM (GMT -7)   
My doctor does examine me but I have not had significant swelling since onset. Plus I am very small boned so the swelling I have looks normal to normal sized people. He does talk to me and ask me questions and I think I am probably partly to blame for the problem. I am a "people pleaser" so when he is happily pointing out how much better I am than I was at onset I agree with him. I usually feel my best for some reason when I'm there too! It's like when you take your car to the auto mechanic because it's been making this noise and suddenly the noise is gone...do you know what I mean or am I crazy?

I don't know how your RA is but mine is freaky. The way I feel changes often all through out the day. I'll be getting shooting bone pains all over and then I'll have a period of time when nothing hurts until I move something the wrong way. I've gotten pretty good at knowing which moves not to make and have adapted by doing things in new ways. Haven't you?

So when he asks me what my pain level is on a scale of 1-10 it's difficult to give an answer. It's been different so many times!

My RA for the most part I consider controlled- I am not one of the people who has what I call refractory RA - the kind that doesn't respond to meds- the kind that makes you have to ride scooters or leave your job. However I am not myself. I am tired, I have constant background pain. It's not severe but it wears me down.

Is anyone else like me?
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