I got some bad news today!

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antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 6/24/2010 5:29 PM (GMT -7)   
My dear HW friends, lately I have just been feeling terrible! My back pain has increased a lot and I have pain everywhere else! All I want to do is sleep!!! Well today I found out why....My RA test came back positive! and from what the doc said on the phone....seriously positive....which he said probably means Lupus or something else along with it! I am very scared! The one good point is at least I know why I feel so bad! My regular doctor is in Africa right now but I have an appt with her next Friday to see where we go from here! Anyway....right now just kind of scared and....I think in shock! Just wanted to let you all know, and wondering what others with RA have found to be meds that help!

Take care of you....all of you!
Beckey

sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 6/24/2010 6:55 PM (GMT -7)   
I just put a long response on the chronic pain board.

I hope you feel better.

harrington49
Regular Member


Date Joined May 2010
Total Posts : 355
   Posted 6/26/2010 11:59 PM (GMT -7)   
Hi Beckey

Hang in there sweetheart, we are all thinking of you. As soon as you see your doctor she'll know what meds to start you on. I am on mxt, pred, celebrex, folic acid, and pain killers when needed. I am tired all the time lately as well but I am able to rest when I want to, unlike so many others on here who have young families and hold down jobs. I am thankful that my RA started after I left work.

I am thinking of you Beckey and I'll include you in my prayers tonight, I hope all goes well with your doctor on Friday.
Harrington49


antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 6/27/2010 2:25 AM (GMT -7)   
Thank you Harrington for the response and the prayers! I should still be working but just lost my "work at home" job because they canceled the home agent program, so I am currently unemployed! My biggest fear is having to go back to work!!! I also have chronic back pain... we live in a very small town with very few work options and the closest town with anything is 50 miles away!! Kills me to be in a car for very long! Anyway, we will cross that bridge later! Thanks again and wishing you a LPD!

Take care of you,
Beckey

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 6/30/2010 6:37 PM (GMT -7)   
Hi Beckey, sorry about your diagnosis. The good news is there are SO many meds out there to help you and the bad news is they all come with their associated toxic side effects.

She will probably start you on some of the less troublesome ones first and give you a healthy dose of prednisone to settle your current flare. Then its a matter of joining the waiting game to see what works for you. Its important to keep her informed of how you feel, we all have good days and bad days but if the bad days are outnumbering the good, you need to up your meds.

I've been attending a RA series of lectures run by my local pain management clinic, its been so informative and I feel a lot more empowered by all the information, especially learning about your immune system and how the meds actually affect it. But the one thing they keep ramming home to us is pacing yourself, listening to your body and don't overdo things. Keeping active even if it is only passive exercise during a flare (clenching a muscle and relaxing) attending hydro therapy, walking, doing some sort of exercise every day is really important for us. Tai Chi is recommended too. So there are a lot of things we can do to help our condition, strong muscles lesson pain.

So don't feel too worried. It is a horrible disease but we can help ourselves and its very common to feel grief at the loss of who we were orwhat we could do. If it all gets overwhelming go see a psychologist to help you through it all and you can always post here. Hope thats not too much info, best wishes, we're here for you, golitho

antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 7/1/2010 11:18 AM (GMT -7)   
Thanks so much golithio, it was not to much info....I am digging for all the info I can right now! I see my regular doctor tomorrow....she was out of town when they did the RA test. I know she will, most likely, refer me to a rheumy. It is just really bad right now. The steroids are helping the pain but....I don't know how to describe it.....I just feel yucky all over!!! I am soooo tired! I am awake a couple hours then I need an hour nap! I just want to get on with this! Just want to have some sort of a life again! Thanks again....nap time.....take care!

Hugs,
Beckey

sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 7/3/2010 3:04 PM (GMT -7)   
You are going to get your life back. I was sleeping 20 hours a day just prior to being diagnosed. The medications they have for this disease do help.

antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 7/6/2010 6:44 PM (GMT -7)   
Thank you sjkly, sorry it has taken a while for me to respond....still sleeping all the time! It helps knowing that because the way I feel is really getting me down!

Take care!

antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 7/15/2010 8:37 PM (GMT -7)   
Dear Possi,

Thanks for responding and even though it is under bad circumstances.....nice to meet you! I see the rheumy....finally....next Wednesday! I am not expecting immediate results, but hoping that once I start taking meds for the RA I will start to feel better!

Enjoy your family and take care of you!!

Hugs,
Beckey
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