REMICADE SEVERE REACTIONS

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SPORTY1588
New Member


Date Joined Jul 2010
Total Posts : 3
   Posted 7/12/2010 1:13 PM (GMT -7)   
MY MOTHER WAS PUT ON REMICADE AFTER A SEVERE FLAIR UP OF RHEUMATOID SYNOVITIS IN HER WRISTS AND HANDS.  THEY HAD TO OPERATE TO DRAIN THE RIGHT HAND AND IT WAS AS BIG AS MY CALF.    SHE RECEIVED 2 DOSES OF REMICADE 2 WEEKS APART WHILE ON LOW DOSE OF PREDNISONE, 10 MG.  SHE WAS FINE AFTER THE 1ST DOSE, NO REACTION.  2 DAYS AFTER THE 2ND DOSE SHE STARTED FEELING ALL OVER JOINT AND MUSCLE PAIN.  IT HAS BEEN 5 WEEKS SINCE THE LAST INJECTION AND THE PAIN IN HER LEGS AND KNEES IS REDICULOUS.  SHE WENT FROM WALKING A MILE A DAY TO USING A WALKER AND BARELY MOVING....HAS ANYONE EXPERIENCED THIS KIND OF REACTION AND DOES IT GET BETTER???
SHE IS STILL ON LOSE DOSE PREDNISONE OF 7.5 MG...PAIN MEDICATION DOESN'T SEEM TO TOUCH IT AND SHE CAN'T TAKE NSAIDS......ANYONE KNOW OF THIS???/ cry

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/15/2010 7:23 PM (GMT -7)   
I think it would be a very good idea to call your doctor about this.

I know the pain you mean: the doctors need to know about it so they can assess whether she should have Rem again, or whether she has some sort of infection.

All the best.

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 7/23/2010 7:20 AM (GMT -7)   

Actually, remicade is made from mouse proteins, but enbrel is made from human proteins.  Some people have had severe reactions to probably all of the tnf inhibitors, and I gather it's impossible to predict who, when, and where.  I've heard of other cases that involved taking enbrel for many years before developing a sudden, yet severe, reaction to it.  I do take enbrel--I've been on it for about 4-5 years with great results.  However, I'm aware that there are dangers associated with these drugs and i'm careful to monitor and document any changes I might have. 

I just responded to a post regarding carpal tunnel.  Now that I think of it (triggered by this post), I've been experiencing a slight increase in tingling in hands and feet.  The tnf inhibitors, including Enbrel, can also cause MS lesions, which would also cause tingling of the feet and hands.  I may mention this to my doctor, especially if it gets worse.


Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Lupus
Current Meds: Enbrel, Methotrexate, nexium, tramadol, nasonex, Nifedipine, Folic Acid, Tylenol PM


jamiesmeme2002
New Member


Date Joined Jul 2010
Total Posts : 1
   Posted 7/26/2010 6:29 AM (GMT -7)   
I HAVE BEEN GETTING REMICADE TREATMENTS SINCE FEBRUARY AND WILL BE RECEIVING MY FIRST REMISTART REBATE CARD, DOES ANYONE KNOW IF IT ONLY USEABLE AT THE DOCTORS OFFICE OR CAN IT BE USED ANY WHERE THAT MASTERCARD IS ACCEPTED

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 7/27/2010 9:53 PM (GMT -7)   
Wow...I took Remicade for 2 years before I stopped (i ended up getting non-stop respiatory infections). That is some scary stuff. Some things I attributed to the drug: I started waking up at night with my right arm completely numb, yet it hurt so bad...it doesn't happen as often now that I'm off it, but it did get worse for a while when I was on Arava. I also had a lot of hallucinations while on Remicade - espeically when I would start to get tired.
 

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