ASO Titer was very high (1372)

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jj27
New Member


Date Joined Jul 2010
Total Posts : 3
   Posted 7/25/2010 7:55 AM (GMT -7)   
I have been telling my doctor of joint and muscle pain, rashes, IBS, muscle weakness, fatigue, headaches and many other syptoms for 8 years now. All they do is treat with pain meds and once in a while an antibiotic. It is not helping. I am getting worse!!!!!!!
 
A few months back my PCP sent me to a rhuemy, the rhuemy noticed that my ASO Titer was very high (1372) and put me on Sulfa for 6 months. My ASO Titer went down to 400. One month after I stopped taking the Sulfa, it was back at 800, then 3 weeks later its back over 1200.
 
Over the last 8 years, I have been shuffled around to over 20 doctors and specialists, none of which are concerned with what's going on with my body. I feel like they dismiss my complaints because there are so many! Along with the ASO Titer being over 1200, I also have a high C-Reactive Protein reading too, it is 9.0 with normal range 0.0-4.9.
 
Six years ago when I was having a really bad rash on my leg, obe doctor did a biopsy. The biopsy came back as Leukocytoclastic vasculitis (LV) and possible Henoch-Schönlein purpura (HSP). All of the doctors dismiss the HSP, mainly because they say my rash goes away too quickly. The only way my rash (or Vasculitis) goes away is with a very strong dose of Prednisone. Then within 1-2 months, it comes back.Then I take more Prednisone. It's a cycle and if one doctor would stick withit, they may find out what's wrong. I am lucky if a doctor will keep me as a patient for more than 6 months before shipping me to another doctor!!!!!

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 7/29/2010 5:51 PM (GMT -7)   
Hi jj27,
 
8 years is a long time to be messed around like that.
I was going to suggest finding another Rheumy, but it sounds like you have already been to so many.
Can your local Dr help with a referral to a more knowledgable Rheumy?
Have you had any other tests but blood tests done - like xrays or scans?
Sorry you are in so much pain with no medical help.
Jo
Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


mama6
Regular Member


Date Joined Jul 2010
Total Posts : 416
   Posted 7/29/2010 6:51 PM (GMT -7)   
jj27,
I know this fight all to well. My struggle and frustration has not been as long as yours, though. I have only been dealing with the most pressing issues of the dr.'s for about 2 years, and I am so over it I could scream sometimes. I had to continually try to find a Dr. that would listen and take the time to do what needs to be done. I have, possibly, finally found a new PR. and Rhuemy that have been refferred to me by people i trust(plus triple google checked by me). I haven't had the apps. yet but I am nervous to show up and once again be shuffled off or ignored, much like you have been through. I hope you can find someone to help you. You deserve that!! You deserve to be pain free, and helped by those that are hired to do exactly that. They need to remember that you are their boss, you employee them, and it is their JOB to take care of you. Hang in there. Hugs and prayers sent your way. Heather
Mama6

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