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mama6
Regular Member


Date Joined Jul 2010
Total Posts : 416
   Posted 7/28/2010 2:56 PM (GMT -7)   
cry   eyes confused Uhg, I am so irritated and over this pain and new stuff. No Doc. has called me back to try and move app. up. I had to leave messages to try to get into new Rhuemy because of work. I thought someone would have left a message by the time i got home on my cell or home phone but nope. I guess my pain is irrelevant. shakehead A diagnosis and or treatment will come sometime I guess.
So my middle and pointer fingers have been achy with sharp pains from the joints and down to the knuckles for a couple of weeks.(on top of all the stiffness and pain in hands, feet,knees,elbows w/shooting pain,feet , toes, and migraines) Now I woke up this morning with my ring fingers doing the same thing and even more difficult than ever to make a fist or move them how I want. Along with this the joints from my where my shoulder and arm meet are throbbing and shooting.I feel like ok, just finish it off...make everything hurt. But I don't dare say that out loud. I know so many have it worse than me, I am just frustrated and needed to vent. Thanks, Heather smhair
Mama6


JayBespoke
Regular Member


Date Joined Jul 2010
Total Posts : 297
   Posted 7/28/2010 2:58 PM (GMT -7)   
Sorry, are you saying that you appear to have developped Arthritis and are on a waiting list of some sort? (Just registered, new here!)

mama6
Regular Member


Date Joined Jul 2010
Total Posts : 416
   Posted 7/28/2010 5:26 PM (GMT -7)   
Sorry Jay,
 I more or less just vented i guess. I have been dx with Fibro about a year ago and have had a diff. time with the Dr.'s trying to get them to understand that this may not be what is going on. My Rhuemy hasn't even ordered all the test inspite of the fact that my symptoms of whatever eyes   have increased. I am so frustrated and last time my Rhuemy said he noticed my crp levels were elevated(tested twice in a month). I explained the new and worse pains and increased inmobility and he simply said yeah well I'll see you in 3 months. I pointed out the rashes on my hands and feet and he again said oh wow yeah i see it, anyways see you in three months.
Sorry, I vented again. So yeah I have a dx of Fibro and every dr. after that hasn't looked any further. No Mri no x-ray or other blood test. Now i will be going to a new pr. dr but have been waiting two months for this app. Trying to find a new Rhuemy, as well. In part due to insurance change and in part to lack of listening on their part.
Anyways welcome to the forum, I think I sent you a message earlier, but if not Hi. Sorry you had to stumble on my frustration turn Heather shocked
Mama6


wearyRAsufferer
Veteran Member


Date Joined Mar 2010
Total Posts : 2323
   Posted 7/28/2010 6:48 PM (GMT -7)   
mama- call the new doctor's office and ask to get on the cancellation list. you may have to take a last minute appt. but I have found you can get in much sooner this way. Someone always cancels.... All the best to you.

JayBespoke
Regular Member


Date Joined Jul 2010
Total Posts : 297
   Posted 7/29/2010 3:35 AM (GMT -7)   
Hi Heather,

That does sound very frustrating! My RF & CRP (& all other tests) have always been normal, and yet I'm on MTX & Etanercept... although there is some debate as to whether I have RA or PsA.

I was very lucky to develop arthritis at the same time my local hospital was running a clinical trial.... if lucky is the right word!

P.S.

I hope you sort it out, not familiar with the US system or how this "insurance" works wink but it sounds like a pain!

mama6
Regular Member


Date Joined Jul 2010
Total Posts : 416
   Posted 7/29/2010 12:33 PM (GMT -7)   
:-)  Thanks Jay and Weary,
It is so frustrating. I finally got an app. with a new Rhuemy that doesn't need my Primary care referral. Thanks goodness. Weary, I put a call in today to the pr. and had them put me on the cancellation list, thanks for the advice.
Jay, so you can see how frustrating it is to have something you know you have(not sure what, but know it's something) and either they don't listen or the few things they've done to check don't come out showing anything.
Hopefully I get somewhere with the Rhuemy, and new pr. I was referred to both of them by friends..so crossing my fingers. confused   Heather
Mama6


JayBespoke
Regular Member


Date Joined Jul 2010
Total Posts : 297
   Posted 7/29/2010 3:54 PM (GMT -7)   
It is extremely frustrating, fortunately with my arthritis, it was expected as my sisters had it, so they didn't doubt it so much, but I have chronic back pain and they're telling me my back is in "perfect" health, as if, on top of PsA, i'd fabricate that!

Keep us informed

mama6
Regular Member


Date Joined Jul 2010
Total Posts : 416
   Posted 7/29/2010 6:13 PM (GMT -7)   
rolleyes  Yeah Jay, I've come to realize that for the most part there are a lot of Dr.'s that seem to think either we are liars or we don't have a clue what is going on withour own bodies. shakehead My Rhuemy was the same way. It was easier for him to just except the pr.'s diag. even though I was going there for a second opinion. Then he up's my tramadol (which doesn't come close to touching my pain)when I tell him there is more going on could he at least run test. As if that is why I was there. No buddy, here to find out whats wrong. Anyways I hope you get some help for your back and can get one of those docs to listen to you. They forget they are employed to help us. smilewinkgrin Thanks for putting up with all my vents. Heather
Mama6


JayBespoke
Regular Member


Date Joined Jul 2010
Total Posts : 297
   Posted 7/29/2010 6:59 PM (GMT -7)   
My god, we are in very similar positions! :)

I am on 8*50mg per day of Tramadol officially, but take more. I told my doctor this, who initially suggested a Fentanyl Patch or Hydrocodone type drugs, and then wouldn't give them me because they were controlled. I told him repeatedly I didn't like taking so much of a drug, and would feel more comfortable on a lower dose of something stronger, as the Tramadol doesn't stop the pain always, especially at night!

His solution in the end was to give me 200mg slow release twice a day. So the same dose but extended release... so far, it's about the same, but I am supplementing with 30/500 co-codamol, 50mg trams, (and small amounts of alcohol and diphenhydramide - a first generation sleeping pill and anti-histamine, both of which are opiate potentiators and increase the effectiveness of tram and codeine) - I do not condone this though, I'm comfortable in what is and isn't safe for me, and fairly well versed in the chemistry behind the interactions.

What I'd give for just an occasional Valium or Hydrocodone, when it gets too much. The tramadol leaflet clearly states the max dose is for temporary use only, yet I'm long term. My pharmacy won't even dispense my dosage, I have to get two scripts from two doctors and visit two pharmacies (they know about this and each other, not a scam, haha)

James :)

mama6
Regular Member


Date Joined Jul 2010
Total Posts : 416
   Posted 7/29/2010 7:35 PM (GMT -7)   
rolleyes  I know what you mean about what you take officially. I take almost the same mg per day as you. It seems to be no more helpfull than an otc asprin. They gave me Cymbalta as well..which is a drug I recommend to no-one. If I had  the common sense at the time to know better I would have never taken it. I just wanted some relief. I think of something stronger more often than not, my pain tends to be worse just about the time I start to drift off to sleep. Which of course wakes me and keeps me that way for hours in the night. Someday Jay..hopefully...we can all live a much more pain free life. Until then we have to do what we can to control the pain in an attempt to live a decent life. Someone has to take care of us. Lord knows, for the most part, the professionals don't. Take care. Heather yeah
Mama6


harrington49
Regular Member


Date Joined May 2010
Total Posts : 355
   Posted 7/31/2010 5:29 AM (GMT -7)   
Hi Heather

You have pretty well described my pain, fortunately for me I am happy with my rheumy. I am on methatrexate, celebrex, prednisone and panadeine forte for the pain also and folic acid. It has controlled it but some days I have noticed that it is worse and they seem to be more frequent now.

On t.v. the other night there was a new discovery for RA sufferers and I am going to ask my Dr about it, the thing is I don't know what it is called but the person demonstrating it seemed to hold it against him where the pain was and apparently the pain went and he didn't need any more drugs. Sounds too good to be true but I am going to ask any way.

I wish you all the best of luck when you finally do get into see the new rheumy and I hope he understands your pain.
 
 
 
 
Kind regards
 
Harrington 49

JayBespoke
Regular Member


Date Joined Jul 2010
Total Posts : 297
   Posted 7/31/2010 3:42 PM (GMT -7)   
Accurately describes my pain too. As soon as you try to sleep there is nothing else to focus on, unfortunately!

mama6
Regular Member


Date Joined Jul 2010
Total Posts : 416
   Posted 8/3/2010 5:22 PM (GMT -7)   
It is so frustrating, and half the time the people close to you don't understand.Would love to wake up refreshed and ready to go. Alas that never happens. I feel like a bum, I know I do a lot but can't help to feel that way. Have a good day!!
Mama6
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