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lisac300
New Member


Date Joined Aug 2010
Total Posts : 3
   Posted 8/8/2010 10:06 PM (GMT -7)   
Hello I am new to this board and I would love to hear from others who have RA.  I also have a question I was diagnosed with RA ten years ago and have of course picked up some friends along the way. Fibro, Psoriatic arthritis, Chronic bladder inflammation, Sjogrens and now I have very bad lumbar pain just had Mri and will find out Friday what the cause is. My question is this has anyone had this problem I believe it may be Anklosing spondylitis.  I would like to know how it was diagnosed for others and what helps the pain.
 
 
                                                          Thanks so much
                                                              Lisa kathy29@aol.com

JayBespoke
Regular Member


Date Joined Jul 2010
Total Posts : 297
   Posted 8/9/2010 3:45 PM (GMT -7)   
RA and PsA?
21, Male, England.
Dx: Psoriatic Arthritis, Chronic Back Pain, Dyspraxia
Rx: 25mg Methotrexate Sub-Cut Injection & 50mg Etanercept (Enbrel) Sub-Cut Injection

Oh, and plenty of Tramadol, Codeine, Diclofenac, Diphenhydramide, Paracetamol, and SCOTCH.

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 8/9/2010 4:38 PM (GMT -7)   
I have Ankylosing Spondylitis [AS]. I also have Crohn's disease. My AS was diagnosed based on inflammation in the sacroileac joints that appeared on MRI. I also have enthesitis in multiple places and am HLA-B27 positive. Being HLA-B27 positive is not necessary to be diagnosed with AS however many with it are positive.

Psoriatic arthritis is a cousin of AS and is classified as one in the Spondylitis diseases. Treatment for PsA is very similar to treatment of AS. The treatments for AS are similiar to rheumatoid arthritis treatments.

Getting the inflammation under control is a key to reducing my pain. Finding the right combo of meds can take some time. Currently I am taking Simponi and it has helped alot. I also take Tramadol for days when the pain is bad.
Moderator Crohn's disease and Irritable Bowel Forums

CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, pulmonary hypertension, degenerative disc disease, asthma, severe allergy and a host of other medical problems.

JayBespoke
Regular Member


Date Joined Jul 2010
Total Posts : 297
   Posted 8/10/2010 2:41 PM (GMT -7)   
Ah, I understand.

I've had severe pain in my lower back for 3-4 months now, with absolutely no diagnosis. MRI and X-Ray showed nothing wrong.
21, Male, England.
Dx: Psoriatic Arthritis, Chronic Back Pain, Dyspraxia
Rx: 25mg Methotrexate Sub-Cut Injection & 50mg Etanercept (Enbrel) Sub-Cut Injection

Oh, and plenty of Tramadol, Codeine, Diclofenac, Diphenhydramide, Paracetamol, and SCOTCH.

momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 8/10/2010 3:50 PM (GMT -7)   
Hi there,
 
I have also been having similar spine pain, and I mentioned it to my rheumy at my last appointment, but he didn't seem too concerned. However, in July I was diagnosed with Osteoporosis, and my pcp forwarded the information to him, and now he seems very concerned about my spine/pain. I have a feeling at my next visit I will be getting an MRI to check things out. I was asked at the time, if I had any numbness in my legs etc and I said no, so he didn't suspect AS. I do have the bladder inflammation or IC.
 
Hang in there and I hope you get an answer soon.

lisac300
New Member


Date Joined Aug 2010
Total Posts : 3
   Posted 8/10/2010 8:49 PM (GMT -7)   
Thanks so much for the info, I will find out Friday my doc wants to also do a nerve test so I am worried. Needless to say that I am sick of this every time I think I am done something else comes along. I will post again with info on friday and god bless you all for sharing.

Lisa

lisac300
New Member


Date Joined Aug 2010
Total Posts : 3
   Posted 8/13/2010 10:14 PM (GMT -7)   
Went to doc today I have herniated dics, spinal stenosis and some arthritis all in lumbar area. when I asked if the arthritis was osteo he said no when I suggested that it might be AS he said (I dont think thats the problem) but of course he can't tell what the problem is. So I will see another spine doc soon and talk to rheumy I feel like crying.



Lisa

JayBespoke
Regular Member


Date Joined Jul 2010
Total Posts : 297
   Posted 8/15/2010 1:27 PM (GMT -7)   
Good with with your second opinion :) At least they're acknowledging something IS wrong!
21, Male, England.
Dx: Psoriatic Arthritis, Chronic Back Pain, Dyspraxia
Rx: 25mg Methotrexate Sub-Cut Injection & 50mg Etanercept (Enbrel) Sub-Cut Injection

Oh, and plenty of Tramadol, Codeine, Diclofenac, Diphenhydramide, Paracetamol, and SCOTCH.

mama6
Regular Member


Date Joined Jul 2010
Total Posts : 416
   Posted 8/17/2010 6:57 PM (GMT -7)   
It is better for them to at least have something to go off of. I am sure that makes you feel no better. I have herniated disc and sciatica so I can relate. i was just told I need to see a spine specialist because this is my 3rd time this year with it. I hope they can figure out something to help you. Goodness knows you def. don't need more added to your list. Good luck. Heather
Big Hugs, Mama6

DX. with Fibromyalgia, Narcolepsy, Poss. RA or Psoratic Arthritis, Herniated disc 3x in last 7 months
Meds: Nuvigl, Cymbalta, Tramadol

Mother to 5 wonderfull kids. Oldest is 18 and just left the nest for animation school. Youngest just started 2nd grade. So I am crazy, and feeling my age plus some.
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