Doctors appointment tomorrow... apprehensive

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JayBespoke
Regular Member


Date Joined Jul 2010
Total Posts : 297
   Posted 8/22/2010 3:09 PM (GMT -7)   
Seeing my GP (USA: Family Doctor ??) tomorrow, about all the strange and disabling symptoms I've been having of late, like bad back pain, jaw pain, insomnia, headaches, extreme fatigue/lethargy. My suspicions lie with Fibromyalgia, given my Rheumy has ruled just about everything out with MRI scans and blood work up.

I sincerely hope I don't leave with another script for Tramadol and a pat on the head, I'm sick of telling doctors I don't want to take Tramadol! (Yet, I don't have a choice, nothing else works unless it happens to be illegal.) I also hope another myriad of tests aren't carried out, because undoubtedly the outcome will be that nothing is found, and nothing is done. I'm scared I won't be able to remember all the symptoms I'm having when I get in there, or it won't come across as serious as it is. I'm going to try and write some things down for it, but don't want it to look like I'm reading from a script.

I'm also seeing my Rheumy on wednesday, I'm going to get an independent assessment from each, kind of life a pre-emptive second opinion. As good as my Rheumy has been with my Arthritis though, he seems unconcerned about the _really_ bad back pain I've been describing for the last three months, and despite promising stronger pain killers (but no treatment, per se), all I get is ******** tramadol! (Choose your own expletive)

Stress.

Ranting.

Love.

James
21, Male, England.
Dx: Psoriatic Arthritis, Chronic Back Pain, Dyspraxia
Rx: 25mg Methotrexate Sub-Cut Injection & 50mg Etanercept (Enbrel) Sub-Cut Injection

Oh, and plenty of Tramadol, Codeine, Diclofenac, Dihydrocodeine, Paracetamol, Diphenhydramine, and scotch

Contact: facebook.com/ jabutler // burnley219 (a) googlemail.com (Anti-spam)

wearyRAsufferer
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Date Joined Mar 2010
Total Posts : 2329
   Posted 8/22/2010 3:39 PM (GMT -7)   
Best of luck at your appt. let us know how you make out. Writing things down is a very good idea. I used to make a list of complaints for the same reason- I'd get side tracked and forget to mention things. I'd just hand it to my RD and say- these are some things that are bothering me and he would address them one by one. It was good to be upfront and it was a way to start a conversation. Of course now the list is same old same old and he turned wishy washy so I stopped bringing it out of frustration.

SydneyJo
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Date Joined Mar 2006
Total Posts : 1354
   Posted 8/22/2010 9:24 PM (GMT -7)   
Hi James,
Im a list writer too, it helps with all the specialists I see. Write and take a list with you and if you need to justify reading from it tell tham its brain fog (another Fibro symptom)
Good luck and let us know how you go.
Jo
Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis

golitho
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Date Joined Sep 2008
Total Posts : 1670
   Posted 8/22/2010 9:28 PM (GMT -7)   
Jay, I go in with dot points. Because often there are too many areas I ant to cover, like symptoms, pain relief, drug interactions, side effects... need I go on.
I didn't like the tramadol either, my doctor is good with that and I've recently gone back on the patches, I find these really good. Takes out a lot of background noise, then I just take oral meds for when I have PT or a big work day. I have a bit of a range of these including endone down to panadeine forte so I tailor make my pain relief accordingly.
I think from talking to people who are n chronic pain, tramadol works well with muscle relaxers. Anyway, good luck, write that list. Admit you have a lot on your mind you want to cover from the start and go for it.
Thinking of you, golitho

MELttdown
Regular Member


Date Joined Aug 2010
Total Posts : 49
   Posted 8/23/2010 4:30 AM (GMT -7)   
Jay, I have my next (second only!) appointment with my rheumatologist in a couple of weeks (noob here hehe) and I'm planning on going in with a list. It's important that hey hear everything - that's what they're paid for! - it could be just one or two minor things that make up the last piece of the puzzle.

I am keeping a diary (I'm using an online diary). Only for this purpose: to keep a track of particularly nasty days, or to make a note of whatever out of the ordinary is happening (first three days after my lowered dose of prednisone my feet & legs cramped at night, that kinda thing).

Well, that's the plan.

Good luck with the appointment. :)

JayBespoke
Regular Member


Date Joined Jul 2010
Total Posts : 297
   Posted 8/23/2010 10:43 AM (GMT -7)   
Mel, have you recently been diagnosed with RA? If so, my condolences!

Got back from seeing my doctor today, he has decided that my back pain is physical/mechanical (in spite of Xrays and MRI scans saying otherwise) and has referred me to muscle/skeletal "people" which is basically just a small room in my local physical therapy dept. He dismissed all my other aches, pains, anxiety, etc as being either due to tramadol, MTX or just plain "in my head".

So yeah, useless. He told me I should wean off tramadol, but wasn't willing to replace it with anything.

I had a long (45min+) chat with an unnamed Rheumy at an unnamed hospital today, very much off the record, and the long story short is that if I was his patient, he'd happily prescribe Oxycodone/Oxycontin/Fentanyl etc, and says it sounds to him very much like I have Fibromyalgia. I was also told that a GP/Family doctor would never make such a diagnosis, and that my Rheumy will probably ignore me, given they're PsA/Anti-TNF specialists and researchers - even if I get a Fibro DX, I won't get proper treatment.

I told him I was truly at my wits end with it, and was going to start self-medicating with something like gabapentin. He said he could not possibly comment on it, smiled, and suggested Lyrica at 150mg, and warned me against gabapentin. Apparently, Lyrica is "cleaner".

After my doctors appointment, I was really worked up that still nothing is being done that will lead to any effective treatment. Just repeating tests I've had again and again. I feel so much better after this chat though, I feel like at least I'm not going insane. Some doctors have this shamanistic ritual in which they are the healer and we are subservient, and they're afraid of being questioned, or of a patient who wishes to take charge of their own treatment. I will see my own Rheumy on wednesday, if I don't get a stronger opiate AND Lyrica, I change Rheumy, and import some Lyrica from India. Based on his opinion, I believe firmly that I have fibromyalgia.

My GP also refused to give me any sleeping pills because he says they're too addictive. I believe it shouldn't be his choice to make, but mine. A risk of addiction would be worth a nights sleep for a change, I only wanted them for times when I have something important the following day. Not to worry, India awaits.

Take care every body,

P.S.

Any one who was following the saga with my sister - it looks like she will ultimately get the anti-TNF therapy, but it could take a couple more months of red tape/bureaucracy. I didn't realise how hard it is to get hold of in England, I only have it due to being on a trial.

If your hip ain't falling off, you ain't getting no Humira!
21, Male, England.
Dx: Psoriatic Arthritis, Chronic Back Pain, Dyspraxia
Rx: 25mg Methotrexate Sub-Cut Injection & 50mg Etanercept (Enbrel) Sub-Cut Injection

Oh, and plenty of Tramadol, Codeine, Diclofenac, Dihydrocodeine, Paracetamol, Diphenhydramine, and scotch

Contact: facebook.com/ jabutler // burnley219 (a) googlemail.com (Anti-spam)

jano437
Veteran Member


Date Joined Jul 2005
Total Posts : 1609
   Posted 8/23/2010 12:35 PM (GMT -7)   
Good luck. I hope you get some answers
Diagnosed July 2005 with Pancolitis
Lialda 2 a day
Pro-Bio, multivitamin
proctofoam as needed
Humira every two weeks
IBD related Arthritis


wearyRAsufferer
Veteran Member


Date Joined Mar 2010
Total Posts : 2329
   Posted 8/23/2010 6:21 PM (GMT -7)   
oh the joys of anticipating a dr. visit- hoping that we will get answers to our questions, have our fears quieted, find solutions to our problems...only to feel blown off, have new questions and start second guessing ourselves...

Sorry it was a crappy appointment Jay.

Have you ever tried benedryl as a sleep aid? 2 makes me sleep like a baby.

All the best to your sister- sounds like a TNF may be in the near future- way to go!

mama6
Regular Member


Date Joined Jul 2010
Total Posts : 416
   Posted 8/23/2010 8:26 PM (GMT -7)   
So sorry to hear the dissapointing news, Jay. i would def. do like you talked about and sit down with a list for the Rhuemy. If you get no-where get another one if possible. Is it possible to see the one you talked to or not? You can't get Lyrica there? Here the subscribe it like candy. That or Cymbalta every time. I hope they help you. Keep us posted on you and your sis. Heather
Big Hugs, Mama6

DX. with Fibromyalgia, Narcolepsy, Poss. RA or Psoratic Arthritis, Herniated disc 3x in last 7 months
Meds: Nuvigl, Cymbalta, Tramadol

Mother to 5 wonderfull kids. Oldest is 18 and just left the nest for animation school. Youngest just started 2nd grade. So I am crazy, and feeling my age plus some.

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 8/23/2010 10:04 PM (GMT -7)   
Why are they so blinkered? What are they scared of? Don't you fit the trial criteria if you have fibro as well? Do you mess up their outcomes or something? Why no fentenyl? It is so good for that background pain for me or was now I'm on the other patch. I've even been on oxyconton but wouldn't be able to drive or work on it so only good for flare times for me, but it does let me sleep!

As for your sister I know here in OZ you have to fail 3 DMARDS before they will let you try a TNF inhibitor. Lots of red tape because of the expense and it gets hairy if you fail a TNF like I did. I know my rheumy couldn't put it down as a fail because I also found remicade useless, that would have disqualified me from any biological treatment for 2 years. So there are some very bizarre rules out there to make it hard to get these expensive wonder drugs...

How frustrating for you, lets hope wed goes better, golitho

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 8/23/2010 10:40 PM (GMT -7)   
I agree with golitho - how frustrating for you.
I have a few specialists who hate to be questioned on their almighty or lack of judgement re my health and I have lost any repor(?sp) with one of them due to the fact that I question her.
Not much help to you but do know how you feel here.
Jo
Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis

JayBespoke
Regular Member


Date Joined Jul 2010
Total Posts : 297
   Posted 8/24/2010 12:38 AM (GMT -7)   
Thanks, Weary. Is benadryl diphenhydramine? I think it is. I know it as Nytol, and even 3 tablets doesn't touch me. I take it to potentiate tramadol though, given the doctors here are reluctant to prescribe effective medications... However to my surprise Hydroxyzine did help sleeping and anxiety a little, though nothing like a Z-drug or a diazepam would.

mama, I can try to get referred to the rheumy I saw, but I'll be fighting red tape all the way I'm sure. I have the advantage of having my own house in one county and my parents in another, which effectively doubles the number of hospitals I'm allowed to visit. (It's a 'post-code lottery', or so the papers have branded it)

Lyrica is available, but many doctors just won't DX fibromyalgia. I was told my clinic won't (off the record) because their research interests are in biologics... It is about $16 for 10 tablets if I were to import them. What dose are people taking? I was thinking 150mg each morning..

golith - The trial finished 3 weeks ago, so I don't actually know how long I'll be seeing the trial doctors! They'll stick around till the trial participants are 'stable', then i'll "reintegrate" back into standard (sub-standard) health care.

The requirements here for Anti-TNF is at least 3 swollen joints (with a significant level of fluid, any old swelling won't do) and to have tried and failed on 2 DMARDS. (Technically the license for TNF-blockers states 4, but they don't pay attention to this)

SyndeyJo - It seems to me that many health care professions (doctors, nurses) seem to be very reluctant to embrace a patient who actively asks questions, especially when the questions actually require a degree of knowledge or might require them to look something up (i.e. the "Number needed to harm" vs "Number needed to treat" is something I try to find out on new treatments

It's almost as if they're afraid that the patient will intrude on their egotistical, shamanistic ritual, in which they are the healer, and we are the subservient to be healed! I guess this is just the more insecure, or pompous doctors. The rheumy I saw yesterday was nothing like this, and engaged me about the various issues we were discussing on a plane-level.

If I mention X study to a doctor normally, they dismiss the "research" as being unrealistic, without even listening to what "research" I'm pointing too...... some family doctors are too far removed from the scientific model that they genuinely become inclined to believe they're a great healer, and not merely a mediator of medication.

And Jo, I think you may have meant Rapport, at least, that's the English spelling. The Ts are silent because it is french derived, and means rapporter - " to bring back". (A reporter "brings back" news) I think in your sense it comes from the idea that someone in rapport will "bring back" idiosyncrasies in the conversation from the other person, mirror posture, induce more back-channel behavior, etc.... sorry for the etymology lesson, it's a geeky hobby of mine, hah.

Take care everyone, thank you.

James
21, Male, England.
Dx: Psoriatic Arthritis, Chronic Back Pain, Dyspraxia
Rx: 25mg Methotrexate Sub-Cut Injection & 50mg Etanercept (Enbrel) Sub-Cut Injection

Oh, and plenty of Tramadol, Codeine, Diclofenac, Dihydrocodeine, Paracetamol, Diphenhydramine, and scotch

Contact: facebook.com/ jabutler // burnley219 (a) googlemail.com (Anti-spam)

MELttdown
Regular Member


Date Joined Aug 2010
Total Posts : 49
   Posted 8/24/2010 4:33 AM (GMT -7)   
James, loved the etymology lesson... I'm certainly not on your level, but am a sponge and enjoy the english language... keep 'em coming! lol

As for your predicament, I feel for you. I really do. A lot of what you were talking about went over my head (L plates here!) and had to google some of the meds you were talking about (Lyrica sounds pretty full-on... has some pretty serious possible side-effects) so I'll restrict my comments to the few parts I fully understood!

My GP first suggested, before my tests were even done, that I could have fibro. In fact, it was one of the first things he suggested in the way of possible diagnoses - so I find it extremely interesting that your GP won't even entertain the idea.

I was prescribed diazepam when I was suffering from "sciatica" years ago (turns out it was spondyloarthritis all along... ho hum). It was a god-send at the time however the "hangover" I experienced the next day was not the best (in combination with god-awful pain, I was either tired from not sleeping, or groggy from taking diazepam). However, taking diazepam did mean I didn't dread going to bed, and that was such a major relief for me.

Weary, I really related to your words: "oh the joys of anticipating a dr. visit- hoping that we will get answers to our questions, have our fears quieted, find solutions to our problems...only to feel blown off, have new questions and start second guessing ourselves..." By the sounds of things, I am not alone in this respect either. From years of this, it always sits at the back of my mind - I am quietly afraid, when I go to each doctor's visit, that they'll turn around and say, "you're just stressed" (got that for a long time before this diagnoses).

It's such a shame you can't just get a referral to the rheumatologist of your choice. I can't imagine how frustrated you must feel. I look forward to hearing what your current "rheumy" has to say tomorrow...

Mel

JayBespoke
Regular Member


Date Joined Jul 2010
Total Posts : 297
   Posted 8/24/2010 5:53 AM (GMT -7)   
Thanks for your post mel,

Tomorrow, I'm going armed with PDFs from the British Pain Society, treatment guides, drug studies, lists of side effects, pain logs, and with the fact that another Rheumatologist believes I have it. I'm going to tell the doctor I want him to perform the point test to satisfy himself, and tell him i'd like Lyrica, and then whatever opioid therapy he thinks most appropriate (I.e. OxyContin, Fentanyl - or just Oxycodone for breakthrough pain.

If he doesn't agree, I'll probably cry and begin to self-medicate. Lyrica isn't controlled so it is perfectly legal (yet expensive, Looking at $100 USD per month, imported). As for pain relief........ I don't know what I do (and if I did, I probably couldn't say without breaking forum rules!)

A short term course of diazepam would do wonders for me at the moment, Mel. I'm probably going to let my GP run his million-and-one blood tests on me, just because it probably won't hurt to have a different lab check me for once, and then I'll tell him I'm no longer interested in receiving treatment from him.

Thanks

James

....Watch this space in 24 hours.....

P.S.

Mel, regarding your L plates - you're doing the right thing learning as much as you can. When I was first diagnosed, I was seen by a Professor Paul Emery www.leeds.ac.uk/CAREIV/Biosketches/Paul Emery.htm, a pretty eminent Rheumy (I'm told). He said to me that the best way to fight this disease is knowledge, and that I should learn all that I can about it, and its treatments. Incidentally, he was the only Rheumatologist I've seen (out of 7, or so) who genuinely seemed to understand how it feels, and made a good attempt at explaining it - i.e. he was acutely aware of the lethargy and malaise caused "I know, it makes you feel like s**t, doesn't it?", unlike others, who are happy to ignore you providing you're not swollen to twice your size.

x
21, Male, England.
Dx: Psoriatic Arthritis, Chronic Back Pain, Dyspraxia
Rx: 25mg Methotrexate Sub-Cut Injection & 50mg Etanercept (Enbrel) Sub-Cut Injection

Oh, and plenty of Tramadol, Codeine, Diclofenac, Dihydrocodeine, Paracetamol, Diphenhydramine, and scotch

Contact: facebook.com/ jabutler // burnley219 (a) googlemail.com (Anti-spam)

Post Edited (JayBespoke) : 8/24/2010 6:58:14 AM (GMT-6)


wearyRAsufferer
Veteran Member


Date Joined Mar 2010
Total Posts : 2329
   Posted 8/24/2010 10:08 AM (GMT -7)   
Hey Jay- benedryl is actually a name brand antihistimine. Works like a charm- if you can get it try it.

MELttdown
Regular Member


Date Joined Aug 2010
Total Posts : 49
   Posted 8/26/2010 2:01 AM (GMT -7)   
Hey, James... I'm hanging out to find out what happened at your appointment...

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 8/26/2010 7:53 AM (GMT -7)   
Jay, I hope things go good for ya at your rheumy appointment...
try to hang in there, if it doesn't go good then go with the rheumy you saw
at the hospital...can you use melatonin if not then the benadryl...
Sure hope the Lyrica can help you...
(Some doctor's do think they know everything, sure would like to burst their big
heads, like popping a balloon/with a sharp needle...)
(((((((((((((((((((((((((((((((Jay))))))))))))))))))))))))))))))))
...sorry if I said anything stupid...
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 8/26/2010 6:31 PM (GMT -7)   
Yeah James what happened on Wednesday? Hanging out to know the outcome? golitho

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 8/30/2010 7:48 AM (GMT -7)   
Jay, getting worried about you...have you seen the doctor yet???
finger crossed for you in hopes that your able to get Lyrica.....
((((((((((((((((((((((((((((((((Jay))))))))))))))))))))))))))))))))))
healing hugz and well wishes....
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********

JayBespoke
Regular Member


Date Joined Jul 2010
Total Posts : 297
   Posted 8/30/2010 10:42 AM (GMT -7)   
Hi Everyone!

Sorry about the delay, my Rheumy is in another county and my house over that way has no working internet connection, so I've been unable to use the internet until now! (Internet withdrawal makes Opiates seem trivial...) Oh, I also went to se Guns n' Roses last night...... serious back pain from standing up for so long!

After being dismissed by my doctor last monday, I went to see MY Rheumy for the last of my clinical-trial appointments, meaning I'm back on standard government healthcare as of now. (Meaning I can be seen only every 3 months and not monthly... without choice in doctor)

After explaining everything, the doctor acknowledged that it does indeed sound like Fibromyalgia, especially given the number of tender points. He said he would not prescribe Lyrica or Gabapentin without trialling other medications first. (After all, there's no generic for Lyrica, which basically means it is unavailable in UK) - I have been prescribed 25mg Amitriptyline (Elavil, Laroxyl...) to be taken once at night.

The packaging states I cannot drink Alcohol with it, however my Rheumy said it would actually improve it's effectiveness! (and told me to be within 10ft of a bed if I do choose to drink on it), so it has helped with fatigue/insomnia over the last two days, pain subjectively seems more mild, but it is definitely too early to tell. I'll still be pressurizing for better medications next time I see my doctor (NOVEMBER!). I'm also ordering some valium (Diazepam) (OTR) to control muscle spasms and occasional sleeping difficulties.

Sorry if I haven't replied to any posts I was involved in recently! I hope everyone is OK, and ideally, better than OK.

much love!

P.S.

My PDR (physician's desktop reference) and a med school crash course in Rheumatology textbook arrived from Amazon today :) so I will definitely be armed with new vocabulary by november!

MELttdown
Regular Member


Date Joined Aug 2010
Total Posts : 49
   Posted 8/31/2010 3:02 AM (GMT -7)   
Welcome back James!

Your health system sounds... um.. interesting?? I got a referral to my rheumy from my gp (his choice). I'm new to this "game", but I assume I could just as easily have asked my GP to refer me to a specialist of my choice (my specialist is an old school friend of my GP who just moved here from Sydney) - it's not the referral that's hard - it's usually actually getting in / making an appointment with said specialist would is the hard part. And, as for how often I see him - well, that's between my specialist & myself, not our health system (although only approx 2/3 of the specialist's fees are covered).

It's got to be disappointing that you can't speak to your docs in an adult-to-adult "let's figure this out together" kind of way, and that you have to play this "one-step-at-a-time-before-we-get-to-what-you-really-need" game (to the point of ordering meds online to get a peaceful night's sleep).

Anyway, interesting / encouraging that your doc confirmed your self-diagnoses of fibro (despite the long wait between visits). I hope the meds he has you on now work for you, or that they keep the major pain at bay somewhat until your next appointment.

JayBespoke
Regular Member


Date Joined Jul 2010
Total Posts : 297
   Posted 8/31/2010 4:30 AM (GMT -7)   
Hey,

England's NHS certainly is interesting. A doctor will refer you (at his discretion) to a specialist of your choice... providing it is in the same county (A county is MUCH smaller than a US/Aussie state - so it is not unrealistic to wish to see a specialist outside of your local area). The waiting list to actually get an appointment, is long. Physical Therapy in my home county has a 10 week wait for an appointment, Rheumatology I believe is around the 8 week mark. There are no medical/surgery fees whatsoever in England except for prescriptions, which are about $10 USD for one months supply of any medication (whether it's worth 50c or $3000). Even gender reassignment surgery, and weight loss surgery, can be free providing the doctor agrees it is helpful to the persons health. Even abortions are free! I use "free" loosely, because we're hit HARD with tax. 20% VAT, 20-40% Income Tax, along with "National Insurance", a fee dependent on what you earn.

So yeah, on the plus side - healthcare for everyone, on the negative - a low standard of healthcare mostly, and a difficulty getting the best treatments. Brand name drugs are basically unheard of, everything on the NHS is generic, or as rare as gold dust.

It is very frustrating that we can't "figure it out together", especially when I am quite well read in immunology etc and am capable of forming my own conclusions. (I studied experimental HIV vaccine synthesis and Cancer drug delivery systems for my engineering degree)
... it is interesting that I saw 4 doctors, and received 4 different diagnoses, and the correct one took 5 months to find. ESPECIALLY considering I had self-diagnosed fibromyalgia after my first blood panel...

I'm not looking forward to 3 month gaps between appointments now, I mean - normally I'd see my rheumy again next month, and I could up/change my meds, but now I have to wait 3 months before I can say, up my Amiltrip', then another three months until I can try Gabapentin, then it'll be another 3 months while I try them both together, then another 3 months will pass before I finally get Lyrica.

I'm going to buy a 2 week supply of Lyrica myself, and try it out. If it helps, I'll tell my doctor (and probably get a shouting at) and ask for a script, if it works, I don't think he can argue!

Thanks for the concern, ciao

JayBespoke
Regular Member


Date Joined Jul 2010
Total Posts : 297
   Posted 8/31/2010 4:42 AM (GMT -7)   
test
21, Male, England.
Dx: Psoriatic Arthritis, Fibromyalgia, Dyspraxia
Rx: 50mg Etanercept (Enbrel) Sub-Cut Injection, 7.5mg MTX, 25mg Amitriptyline

Oh, and plenty of Tramadol, Dihydrocodeine, Domperidone, Hydroxyzine, and Scotch

Contact: facebook.com/ jabutler // burnley219 (at) googlemail.com (Anti-spam)
Feel free to contact me for any reason, unless you're in sales!

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 8/31/2010 12:20 PM (GMT -7)   
Jay,
I was going to posts, but......I'm shocked that a
Doctor can dx you with fibro but not give you the Lyrica to at
least try...So I can only tell ya that I had a bad reaction to Lyrica...
It (Lyrica) made me throw up every hour on the hour for over 12
hours and I almosted ended up in the er, Other's say it helps but
soon they need more and more of it as it gets built up in your
body...other than that, if you want to try it then I hope it can help.
They also are using Cymbalta for fibro and there is a link with Vitamin D
defencicy (SP?) which I'm very low on D, but you probably know all that...
Good Luck on the Lyrica...you should be allowed to at least try it to see if it can work for you...
(I know that for the first 15 minutes that I could keep it down that it was helping, but
then all heck broke loose...)
((((((((((((((((((((((((((((((((((Jay)))))))))))))))))))))))))))))))))
Healing HUGZ, sorry about the typos.........
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********

JayBespoke
Regular Member


Date Joined Jul 2010
Total Posts : 297
   Posted 8/31/2010 12:27 PM (GMT -7)   
Thanks for the advice :) I've been toying with the idea of starting a vitamin D supplement, or increasing dietary intake, but I am naturally skeptical of nutritional supplements when not treating a deficiency - If there's no deficiency, there is no logic in assuming more vitamins is better - that said, an empirical trial could be useful, even if I only benefit from a Placebo effect - I still benefit.

I've read some very mixed reports about Lyrica.... look at this article (pasted below). I question the journalistic integrity and intelligence of whoever wrote it, though.

http://www.fibromyalgia-information-relief.com/lyrica.html

Lyrica also has a worse Number-Needed-to-Treat and Number-Needed-to-Harm than gabapentin, but subjective reports claim it to be better, and Rheumatologists have told me Lyrica is the better drug. How much of this is pharma peddling I do not know... the more I learn, the uglier the medicine industry gets, and the less I wish to pursue a career in it.......

Take care

x
21, Male, England.
Dx: Psoriatic Arthritis, Fibromyalgia, Dyspraxia
Rx: 50mg Etanercept (Enbrel) Sub-Cut Injection, 7.5mg MTX, 25mg Amitriptyline

Oh, and plenty of Tramadol, Dihydrocodeine, Domperidone, Hydroxyzine, and Scotch

Contact: facebook.com/ jabutler // burnley219 (at) googlemail.com (Anti-spam)
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