In pain, Tramadol not working, help?

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momto3
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Date Joined Nov 2006
Total Posts : 1331
   Posted 1/25/2011 9:36 AM (GMT -7)   
Hi everyone,
 
At my last visit to the rheumy, I received a script for Tramadol 50mg. I was taking Darvon, however it has been discontinued here in the U.S, so my doctor gave me the Tramadol script. I can't take it at bedtime because it interacts with my Trazadone that I take for sleep, so I try to take it during the day for pain, but it doesn't work at all. I work several nights shifts per week, and the lack of sleep is really making my RA flare up something awful.  At this point, I just don't know what to ask for regarding pain relief! I can't ask for pred, because my rheumy is treating for osteoporosis.
 
What does everyone else take for pain? Currently I'm only taking MTX 8 pills per week, and I've already tried the Plaquenil (had eye issues) and can't afford the Enbrel co-pay.
 
I really wish the Tramadol would have worked because it didn't give me that weird medicine head feeling.
 
Any ideas?
 
Thanks in advance!

dee2010
Regular Member


Date Joined Jun 2010
Total Posts : 50
   Posted 1/25/2011 11:11 AM (GMT -7)   
hi i found that tramadol just masked the main pain, just put a fog over it.

what dose are you taking at a time, i was allowed 100 mg 3x daily (2 pills)

sorry not much of a help!
just wishing you good luck finding the mix for you.
RA since feb 2010, Asthma, baker cysts.

peridislone 12.5mg, methotrexate 25mg, plaquenil 400mg, diclafenac 75mg, tramadol, co-codamol, folic acid, pumps

**davina**

momto3
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Date Joined Nov 2006
Total Posts : 1331
   Posted 1/25/2011 2:31 PM (GMT -7)   
Hi Dee,
 
Thanks! I'm at 50mg, and I did try to double the dose but it really made me feel wired, wide awake almost as if I had had too much caffeine.

dee2010
Regular Member


Date Joined Jun 2010
Total Posts : 50
   Posted 1/26/2011 2:56 AM (GMT -7)   
lol thats crazy

sorry can't help anymore, doctors don't like to give anything more than tramadol due to side effects and addictions
you could try and ask again

good luck t./c
RA since feb 2010, Asthma, baker cysts.

peridislone 12.5mg, methotrexate 25mg, plaquenil 400mg, diclafenac 75mg, tramadol, co-codamol, folic acid, pumps

**davina**

momto3
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Date Joined Nov 2006
Total Posts : 1331
   Posted 1/26/2011 6:13 PM (GMT -7)   
Hi Dee,
 
No, thanks for your help. I took the Darvon for a couple of years, and my doctor is fine with giving me whatever for pain management, addiction has never been an issue.  I just thought I would see what others take and what helps besides pred. It is crazy about the Tramadol!
 
No worries, take care!

bigecase
Regular Member


Date Joined Mar 2010
Total Posts : 170
   Posted 1/26/2011 7:42 PM (GMT -7)   
I also took tramodol and had the wired effect. I didnt realize thats what was causing me to be wide awake all night. It does not do much for pain. The only thing that has helped my pain is demerol. I have been taking it because of shoulder surgery. I am sure that I probably will not get a refill at my next visit. I have been on it since August 2010.

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 1/26/2011 10:25 PM (GMT -7)   
Hi Momto, I haven't chatted wth you for ages! Shame you can't take the prednisone that always works.
But I was on a pain patch for about 7-8 months last year while I was going through a rough patch. I had two different types both worked really well for getting rid of background pain. One was a fentenyl base , durogesic or something the other was a norspan patch. I had to change patches as I started to get migraines on the fentenyl. I'm told you can get a rebound from the opiates if you're prone to migraine. No migraines on the norspan.
When I was on tramadol I had the 50mg as BT meds and I was on a slow release style morning and night but I kept getting severe muscle cramps...
Didn't like them as much as the patches.
Maybe you could get a referal to a pain management clinic?
Sorry to hear youre having trouble.
Best wishes, golitho yeah

momto3
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Date Joined Nov 2006
Total Posts : 1331
   Posted 1/29/2011 12:50 PM (GMT -7)   
Hi Golitho!
 
How are you? I have thought about the pain management clinics before..I recently took my daughter in for an exam, and her doctor was shocked that all I take for my RA is the MTX. I like the idea of a pain patch, I will call my rheumy again and see what I can get. I sure miss the pred! That works like nothing else! I think it is all of the stress and lack of sleep that I am under, but like you mentioned the back ground pain just really drives me crazy day after day.
 
Thanks!

BadDay
Forum Moderator


Date Joined Jan 2011
Total Posts : 871
   Posted 1/29/2011 8:05 PM (GMT -7)   
Hi i'm on 200mg Tramadol Twice day Helping but yes as other said puts a fog over pain,i did get Relief from a Patch called Norspan However after a few months developed nasty rash to site but it did work for a while
Rhumatoid Arthritis 16Yrs. Asthma,Osteoperosis,back bisc colapses,Diabetes,Heart svt etc ,etc.
Cimzia, Metheltrexate,Tramal 200mg,Prednisone,Diabex,etc,etc /

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 2/3/2011 6:42 PM (GMT -7)   
Hi Mom, sorry went awol for awhile. Kids back to school , new classes starting, etc... plus did a flying visit over to catch up with my Mum and Dad for 5 days.
We are suffering a massive heatwave and I have to say my joints are surprisingly good.
I went back on humira after a years break and have had good results this time. I'm enjoying everyday as it comes as I had the worst year ever last year. A truely massive flare that took me about 4 months to recover from but I had horrendous pain and multiple joint involvement for most of the year .
I just can't believe how good I am now! I just have pesky tendon problems, wrists and feet mainly but my joints are brilliant. I wake painless. I feel healthy although fat from prednisone, I keep saying I'm fat and happy and I really am. After so long in so much pain it is a welcome relief to have such a break from it all.
I'm sorry to hear your daughter is suffering. Put her on fish oil supplements, my rheumy swears by them as a natural anti inflammatory.
I think a rheumy is the way to go, you don't want permanent damage at such a young age and a cortisone shot in her knees may help her anyway.
I'd try the patches for your pain, they really helped me when I was so low.
The other thing I do now is hydrotherapy once a week. Its with a trained physio and we exercise under water, its keeping me moving all my joints and gives me aerobic activity too. Really built my core strength. Its subsidised by our local hospital so very affordable.
My rheumy encourages me as it has made such a difference to my strength, plus my knees can now handle stairs, not too many but I can walk up and down them now, where before I had to do a crab like shuffle as the right one wouldn't bend enough for me to go down.
Sorry this has turned into a saga...great to have you back, golitho

momto3
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Date Joined Nov 2006
Total Posts : 1331
   Posted 2/4/2011 9:04 AM (GMT -7)   
Hi Golitho!
 
I'm so happy to hear you are doing well!! This is what we hope for when we have RA isn't it?! I'm so glad the humira is working for you, that is one I have not taken, and of course I love pred!! I wish I had some of that right about now!!  I think my downfall was when I decided to go back to work..I work from 10pm until 7am, and since it is a homeless shelter we aren't really supposed to sleep...that means I don't catch up on my sleep and it just seems to snowball through out the week. Lack of sleep for me always makes me have horrid joint pain! I like the idea of the pain patch and have another call into my rheumy. If I don't get any results with a call, I may just have to make another appointment. One time I asked him if he ever hears of lack of sleep increasing joint pain in his other patients and he said yes! I'm sure he will understand my predicament, since on Tuesday nights I work, and Weds I don't have the opportunity to sleep at all until bedtime.
 
My daughter has been complaining of her knees hurting for so long, and a couple of weeks ago she woke up with her knee so red and swollen she literally could not put any weight on it, and it was terribly painful for her..by the time we got her into the doctor that afternoon it had subsided and he said her knee was fine! I made an appointment with a sports medicine doctor since she is in cheerleading and he knew a great deal about RA. The minute he found out I had it, and she had had a swollen knee, he decided to test her as well.  To even think she may have what we have brings tears to my eyes, it is such an awful thing to have Golitho...for me it was life changing and nothing was ever the same again. But then I'm an adult and I've lived much of my life, she has not.  Although, you are so right, it is critical to get treatment right away as opposed to waiting and having joint damage.  Right now we are monitoring her very closely, last night she was feverish (no cold/flu) and fell asleep on the sofa after school, so it looks like a call to the pedi rheumy is in order. I had not thought about giving her the fish oil supplements! Of course I am looking for any treatment that is not the toxic stuff we must take on a daily basis.  I think that is one of my worst fears...is that she will be forced to take meds such as MTX, but surely they don't give those horrid pills to children.
 
Our local rec center offers pool exercise classes, and I have thought about that as well. I really need to do *something* if you know what I mean!! I may look into that since I'm pretty sure I could do that! Great idea!
 
No saga at all! Keep in touch:)
 
 

JayBespoke
Regular Member


Date Joined Jul 2010
Total Posts : 297
   Posted 2/5/2011 10:09 AM (GMT -7)   
I recently moved from Tramadol to Butrans (Buprenorphine) patches, initially 5mcg/hour, now 10mcg/hour - overall I'm finding it 100 times better than Tramadol, there's less side effects and it's definitely more effective.
www.JamesAButler.co.uk
21, Male, England.
Dx: Psoriatic Arthritis, Fibromyalgia, Dyspraxia
Rx: Enbrel (Etanercept), Amitriptyline, Buprenorphine, Tramadol, Domperidone, Melatonin, 5-HTP, Arcoxia, Diclofenac

momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 2/5/2011 10:18 PM (GMT -7)   
Jay...I noticed in your list of meds you have Domperidone listed, do you have Gastroparesis by chance?

kissmyAS
New Member


Date Joined Feb 2011
Total Posts : 3
   Posted 2/5/2011 11:26 PM (GMT -7)   
Hi Momto3,

My good friend was on Darvon and is in the same situation. I know how frustrated she is so I can imagine that you're fed up. A doctor once told me that taking Tramadol for pain is like urinating on a fire to put it out (although his word choice was slightly different). It never worked for me, either.

I know it's a huge jump to go from Darvon to OxyContin, but that's the medicine that has worked the best for me. I like the controlled release aspect of OxyContin and have experienced very few side effects. I first started with 20mg twice a day but now I'm down to 10mg once a day, which I believe is the lowest available dose. I'm guessing there has been some discussion on these boards about oxycodone ER going off the market. I'm hoping the generic version will make a comeback one of these days!

I probably tried ten different pain meds before finding a good fit for everyday use and I can't imagine what I'd do if I had to switch. I certainly wouldn't want to be in your shoes but it sounds like you're taking it in stride.

Good luck!

momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 2/6/2011 8:11 PM (GMT -7)   
Hi Kiss...Yes, it is frustrating when a drug that works is no longer on the market. I did get in touch with my nurse at the rheumy's office and all he would give out is Vicodin, which when I take it can't keep my eyes open for the life of me, and a two month supply of pred, which he rarely gives out. So for now I will take what I have, but when I go for my visit in March, you can bet Iwill be more persistant in asking for something that works better.  I really wish they made pain medications that didn't make me fall asleep or loopy,and the Darvon was perfect.

babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 2/21/2011 10:21 AM (GMT -7)   
MOM!!!!!
I'm Soooo happy that you are still on here! I was so hoping that I might be able to find you again..yay! I'm just on here for a quick stop before I go to another app..but am still home...still doing daycare..and I will be back on here later this afternnoon or this evening...I hope we can get back in touch.
HUGS!!
Jody

momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 2/22/2011 7:00 PM (GMT -7)   
Hey Jody,
 
It is nice to hear from you, and yes I post here every now and then.  Although not to the extent that I used to, life and work has just been too hectic.
 
Keep in touch.

babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 2/24/2011 10:17 AM (GMT -7)   
Hi again,
Not sure why, but I din't get notified of your response.  I'm so glad I looked again today.
How are things going with you,Mom?  How are the kids all doing?  I was reading about your daughter..I sure hope and pray that she doesn't have to deal with RA cry !  How are your boys doing?
You guys sure have had a terrible winter..wow..keep watching the storms hit out your way...yuck.
We're all about the same..still doing daycare, have 4 little boys right now..a bit of deja-vu, from when ours were all home.  Except, of course, ours weren't infants all at the same time!
We had our youngest get married last Sept, and now the next one is getting married in April.  Busy, emotional,  happy times.
As far as the RA goes, not too bad I guess.  Have been on Enbrel for about 3 yrs, and seems they think it is losing it's "oomp"  So, tomorrow I start Humira, and see if that will work a little better.
So nice to have a chance to get on here again..hopefully, I can get to  "know" some of the new folks
Hugs~
Jody

momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 2/24/2011 8:48 PM (GMT -7)   
Hi Jody..
 
Life is busy here! My oldest boy is now out of high school, and preparing to move out on his own very shortly. My other two are doing well, and as far as my daughter is concerned, we are watching her closely right now for more signs of RA. She went to a few physical therapy sessions here recently, and the therapist feels it is orthopedic in nature. Fingers crossed.
 
I work several nights a week at a homeless shelter and this is of course a busy time, with the cold temps and weather. My RA has started to flare with my work schedule, since there are days when I don't get to come home and sleep, my joints really hurt on these days.   However, I do have a script for pred, and that keeps me plugging along.
 
I hope the Humira kicks in and does well for you, I know that sometimes meds just run their course.
 
*mom*

babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 2/28/2011 1:01 PM (GMT -7)   
Hello again.
Here it is another dreaded Monday!  The weekends never last long enough! :-)
I don't know if I told you, but in the middle of all our upheavals over the past year or so...our youngest son became an x-ray tech, and now works as a med asst at my rheumy's office.  He absolutely loves his job, and the patients and the drs there love him as well....  Anyway..on Friday he brought over the Humira, and we did my first injection.  I must say he enjoyed himself WAY too much! tongue ..he says it's paybacks for all of the bloodsugar tests and insulin injections I gave him through the year..  But, I do hope it kicks in soon, cuz right now I am miserable!  I didn't realize how much all the meds were helping me, I guess, until I'm going without them.  I don't know how on earth you manage with just the mtx!  The Enbrel was a real lifesaver for me..and right now I ache like I did when I was first diagnosed...feet feel like I'm walking on broken glasss.  Not easy chasing after babies like this!
Oh well, this too shall pass...so no more whining!
So glad to hear that your son is doing well!  I've thought about him alot, so glad you all came through all that ok. But, I was always impressed with the way you handled things..they are blessed to have you!
There are several of the "old gang" on facebook now...I love still being in touch with them, but it's not the same as our old days of "chatting"  Boy, you guys all sure got me through some rough days ..
Think I might start a new post to "re-introduce" myself, and get some feedback from folks who have tried Humira....
"talk" again, soon
Hugs~~ Jody

momto3
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Date Joined Nov 2006
Total Posts : 1331
   Posted 3/1/2011 9:49 PM (GMT -7)   
Hi Jody,
 
How is the Humira working? I actually barely get by on just the MTX, that is why I'm on pred and pain medication right now.  I would love to start back on the biologics, but I work with a diverse population of people where colds, flu and sometimes TB are common place. I just can't risk squashing my immune system, because I would get sick much easier than I do now.
 
That is so wonderful for your son, congrats to him!
 
Yes, both boys are doing well. They both had to do time at their dads, but it looks like most of the teenage craziness is behind us, thank goodness! No one said parenting was easy eh?
 
I don't have a facebook, and have never really had the desire to obtain one, but my daughter has one and she loves chatting with her friends.
 
Please do re-introduce yourself, although I have never been able to figure out the rule requring people to introduce themselves on the message board.
 
I miss hearing from the old gang, yally, ducky etc I hope they are all doing well!! I'm glad you came back to the board!
 
Hopefully the Humira will kick in soon and you can get some relief, I know it is miserable!
 
Hang in there and let me know how you are getting along.

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 3/2/2011 8:13 PM (GMT -7)   
You know I'm on humira, I also teach at University and am completely surrounded by sneezing, fluey students but as long as I keep up my flu shots and pneumonia shots I don't seem to catch anything more frequently than I ever did pre humira. I just have to go on antibiotics if I do catch a cough.
Just thought I'd throw that in there. Mtx and prednisolone would not be enough for me on their own.
Regards, golitho

babyplace
Regular Member


Date Joined May 2007
Total Posts : 499
   Posted 3/7/2011 8:42 PM (GMT -7)   
Hi guys,
Been a crazy busy week..first chance I've had to get back here. Started a new baby two weeks ago, and another today..brings me up to four full-time kids, and one part time. Three of those are infants..yikes! I live on diaper mountain! :)..
I had a couple really tough days right after I started the Humira..I don't know how long it will take to kick in, but thankfully, I'm not near as bad as I was at the beginning...boy that was tough! The rhuemy said that I could take the shots weekly for a bit until I get it worked into my system, so that is an option. But, this Friday would be the day to take the second bi-weekly shot. If I can hold out until then, I will. Golitho, how long have you been on Humira? Do you remember how long it took to get working for you? I am sooo hopeful that it will make a difference for me..the Enbrel was so good for so long..I'm hoping for that again! Have also heard that some feel Humira worked better than Enbrel did..that would be great! I'm with you on the sickness, stuff, It's really weird...I do home daycare, and it seems that there is ALWAYS someone sick with something! But, I was sicker, more often before I started RA treatments than I am now. My husband gets sick way more than I do!
Mom, as far as the Enbrel co-pays, did you ever check into the Enbrel assistance program? I had it the whole time I was using Enbrel..and my co-pays were only 10.00 a month. Now I have Humira payment assistance, and from what I understand, the Humira, plus my plaquenil will be a combined total of 5.00. Love it!
As far as the "old gang" goes, yes, they are all doing good..I hear most often from Yally and Ducky, and CaMama is on as well. Once in while Raven messages, and Bear pops up from time to time. Oh! Erin is on too.. It's nice to keep in contact, that's for sure.
Well, guess it's time to sign off here...morning comes too early..:)
Take Care!
Jody

momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 3/8/2011 12:08 PM (GMT -7)   
Hi Jody,
 
Gosh I don't see how you do it! Taking care of my kids can be exhausting and  a couple are nearly grown! I can't imagine taking care of babies!!  I'm glad to hear the RA isn't as bad as it was for you, but I sure hope it gets better! Yes, if you can take Plaq, it is fantastic stuff! I remember it quite well and loved it!! That is something about my husband as well, he has been sick much more than I have as well with the exception of my flares and my belly issues. He seems to be getting punier the older he gets! I rarely get a cold like you said.
 
Maybe when I'm not working with such an at risk population and by that I mean at risk for TB, hepatitis and such, I will get back on the biologics.  Right now it is too risky for me, since I work with individuals who run the risk of getting much more than the common cold or flu. If I were on a biologic and came down with TB it would be the end of me.
 
I'm so happy to hear everyone is doing so well! Especially Erin! Back when she was on she was so sick if I remember correctly.  I miss hearing from Bear, maybe he can pop in here from tme to time he was such a sweetie!
 
Well it is now Tuesday, and the weekend went way to fast *sigh*, it is snowy and cold again, gosh I am so ready for Spring and some warm weather.  We have been spoiled a few times with weather in the 50's/60's, that I cannot wait for that to come around again!
 
I hope your week is great!!

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 3/8/2011 6:57 PM (GMT -7)   
Hi Mom and Jody, the humira took about 2 months to fully kick in for me. I was on it for a couple of years then had my ovaries removed in a cancer scare and it stopped working, we don't know whether it was the shock of the surgery, the anaesthetic or the lack of estrogen but I was swelling up and in a horrendous mess. So got pulled off the humira tried remicade and had an allergic reaction, then tried Orencia for about 10 months but nothing worked as well as the humira, so I asked to go back on the humira last November and thank God its working again.
I feel great, I'm managing my symptoms, have to be careful not to overdo it, but I'm back teaching, I can walk on the flat, I attend a weekly water based physio class. I feel really strong and in much less pain than before. Still have bad days bt overall I'm good.
I'm just enjoying each day now, not taking them for granted like I was. I had such a horrendous 12 month period.
You sound like you must be in need of that humira to work fast with all those new kids, Jody.
Can't you get vaccinated against TB, Mom? You should talk to your specialist, I feel so much healthier now I'm not in bad pain all the time. I'm sure my resistance is much better than it was. I didn't even catch a cold in the last 2 years!
Best wishes, golitho
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