New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

TayIsa
Regular Member


Date Joined Sep 2008
Total Posts : 281
   Posted 7/3/2011 8:30 PM (GMT -7)   
Oh my gosh...I am sooo tired alllllll the time. I am pure exhausted if I go to work.
I have RA, and am on amitryptiline,and plaquenil and take vitamin D too. I am tired all the time. Even when I go to bed early I am still tired when I get up. Summer is here and my job is cashier at a local grocery store, and so my hours pick up now that summer is here. By the time I am done for the day, be it 5 hours or 8 hours I am done like dinner....I am sore and tired beyond belief. I eat well, and be sure to eat healthy as I have kids and try to set good example of course. People I have read in here say that plaquenil is supposed to help lessen the tired feeling....so I was wondering if anyone had the opposite effect? Or maybe if I should go see dr. again?? last time I went and told them I was always tired nothing happened , she just asked me if I snore??? when I told her I believe I do she asked if I quit breathing, when I told her I didnt....topic seemed to have been dropped. It seems like I can never ever catch up on my sleep even when I get "naps" or to "sleep in" as much as a mom gets to of course.
Anyone else feel tired alot? any ideas how to help myself as last time I asked a doctor I got nowhere....
sorry to whine but ...I'm tired and I hope someone out there understands as everyone here seems to want me to suck it up and "get over it"
Have a good evening all....I'm going to bed. Thanks for any input. :)

Vannie
Veteran Member


Date Joined Aug 2010
Total Posts : 795
   Posted 7/3/2011 9:11 PM (GMT -7)   
Hi, TayIsa,

I do have a lot of fatigue, too. I think it is probably my RA because I don't have it under control yet. I take Celebrex, MTX and Tramadol for pain. I was Dx May 10th, so I am still trying to get acclimated to my new life. I don't have any energy left after I work, but I work in an office. I don't think I could work in a grocery store. Maybe you need to add something to your meds, or change meds...??? Are your joints still swollen and stiff? Are you anemic?

Best Wishes,
V
Fibromyalgia, Seronegative RA, Asthma, High BP, DDD, Bulging Discs in Cervical & Lumbar Spine, GERD, Prediabetic
Prednisone, Lexapro, Cardizem, Lisinopril, Advair, Lipitor, Vit D, Joint Supplements, Soma, Tramadol, Fish Oil Supplements
I take one day at a time, and try to save my energy for the joy in life.

De La Rosa
Regular Member


Date Joined Mar 2009
Total Posts : 227
   Posted 7/3/2011 10:53 PM (GMT -7)   
I totally understand what you are talking about. I feel totally exhausted all the time. My doctor asked me if I was sleeping well? Well, of course I told him no. How can you sleep well when your back hurts and your neck hurts and your hip hurts. Its hard to get to sleep, hard to stay asleep. Well, he generally assumed that if I slept better I would not be so exhausted. I complain about it every time I see the rheumatologist. He doesn't seem to take it seriously.

I feel the same way you do. When I work, that's all I can do. My kids are grown, now, so I at least don't have that additional responsibility. I don't think sleep will totally do it. I don't know what will. I have been interested in taking plaquenil, but at the present time I don't have any insurance, so I'll have to forgo any medication changes. I'm lucky that all of my meds have been covered by patient assistance.

Hang in there, and keep bringing it up with your doctor. Good luck. I know how overwhelming it seems. It feels like working takes all you have, and that there is just nothing left of you. Fatigue really lowers your quality of life. I think it is worse than the pain.

TayIsa
Regular Member


Date Joined Sep 2008
Total Posts : 281
   Posted 7/4/2011 7:23 AM (GMT -7)   
Thank-you for your posts Vannie and De La Rosa.
Vannie, yes I still get the swelling and pain, and stiffness. No I am not anemic, they have checked me for that.
De La Rosa, thanks for the kind words. I am sorry that you actually get what I mean cause it sucks that you feel this way too. But I am also glad SOMEBODY gets it.
I have kids that are wonderful and try to help alot. They are even trying to be super quiet in the mornings that I get to "sleep in" so I can stay asleep for a bit longer. But of course knowing my boys are up and at it, I feel guilty and do not stay in bed much longer after they have gotten up.
I will talk with my doctor again, but being summer Its lots of fun trying to "beat" the tourists to getting an appointment.
Take care both of you and thanks again.
TayIsa

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 8365
   Posted 7/4/2011 8:00 AM (GMT -7)   
I guess being tired with RA is very common...I too get exhausted easy, I wonder if your doctor
knows about this and doesn't really have a clue as to what you could do...maybe go to
a food health food store and look into a supplement, (not an energy drink)...
well wishes to you, keep us posted...Maybe more protein in your diet would help, maybe try
greek yogart (sp?)...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 12534
   Posted 7/4/2011 11:45 AM (GMT -7)   
TayIsa,
You say you snore? Do you feel like you wake up a lot during the night and it's not the pain waking you?
You might have sleep apnea.
I have it and before I started using the CPAP machine I drugged myself around. I felt so tired all the time. I couldn't get enough sleep.
Ask your doctor to set you up with a sleep study.
Joy

TayIsa
Regular Member


Date Joined Sep 2008
Total Posts : 281
   Posted 7/4/2011 7:44 PM (GMT -7)   
Thanks Chartreux and couchtater for your responses.
I dont wake up from snoring in the night, but sleep apnea could be part of the problem....but when I asked my rhuemy or my doctor never got anywhere, thinking I should make another appointment and try again. I just get an attitude and frustrated when I have to practically beg or FORCE by screaming at them for them to listen....so I try to figure things out myself so I can go in and say THIS IS WHATS WRONG NOW FIX IT....
Thanks for your input Trust me I am taking it all in and using it. :) have a great day

momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 7/5/2011 8:36 AM (GMT -7)   
Hi Tayisa...I am also tired most of the time, it's terrible isn't it? I have trouble sleeping and take Trazadone, and have found that also contributes to my fatigue (Trazadone).  My mom took Amitryptiline (sp?) sorry! and one of the side effects was fatigue or sleepiness from the medication, so that could be contributing to some of your tiredness, you may want to check with your doctor. Although most of it is probably from the RA in general shakehead I have found the only thing that combats it for me is pred, and that is not the best thing for it.

TayIsa
Regular Member


Date Joined Sep 2008
Total Posts : 281
   Posted 7/5/2011 8:48 AM (GMT -7)   
momto3 thanks for your input to my problem. I have tried pred, and am in all honestly trying to stay far far away from it. I dont like how it made me feel, or what effects it had on other functions of my body. I really dont want to become dependant on a steroid either....as I am dependent on the plaquenil I guess cause I definitley know when I have forgotten to take it cause I dont feel as "pain less" (not free) the day after I forget.
Thanks again and have a great day

wearyRAsufferer
Veteran Member


Date Joined Mar 2010
Total Posts : 1610
   Posted 7/5/2011 11:49 AM (GMT -7)   
I too am always tired even with controlled RA. My doctor refuses to believe it is RA related. He had my GP change my BP med- nothing. Took me off MTX- nothing. Says to have a sleep study done for possible sleep apnea. My husband says I snore (but only when he's having trouble sleeping does he hear me) and he says I don't gasp or stop breathing. Just snore like a salior LOL.

momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 7/6/2011 7:26 PM (GMT -7)   
Hi Tayisa..I wasn't suggesting for you to take pred, I was simply saying that is the only thing that I have found that works.  I used to take plaquenil before it started to bother my eyes and I had to discontinue use. Plaquenil was a great energy booster, that is for certain!  Your other medication tends to have a sedating side effect, that is most likely why you are more tired.  It is difficult to take those types of meds, and not feel some sort of tiredness from them.

TayIsa
Regular Member


Date Joined Sep 2008
Total Posts : 281
   Posted 7/10/2011 10:48 AM (GMT -7)   
Thanks Weary and Momto3 for your posts. It is reassuring that I am not CRAZY or LAZY by feeling tired all the time. As people seem to think I am....
I go to work and get the stuff done I need to do but feel like I am struggling all the time to function as I am tired and want to sleep. I was wondering if possible stress is not helping either.
Hope you both have a great day.

Vannie
Veteran Member


Date Joined Aug 2010
Total Posts : 795
   Posted 7/10/2011 11:12 AM (GMT -7)   
I have been fatigued for years...I was undiagnosed for a long time. I am seronegative. The fatigue has gotten really bad this last year. I though if/when I got my RA under control, the fatigue would ease. I guess not...???
Fibromyalgia, Seronegative RA, Asthma, High BP, DDD, Bulging Discs in Cervical & Lumbar Spine, GERD, Prediabetic
Prednisone, Lexapro, Cardizem, Lisinopril, Advair, Lipitor, Vit D, Joint Supplements, Soma, Tramadol, Fish Oil Supplements
I take one day at a time, and try to save my energy for the joy in life.

TayIsa
Regular Member


Date Joined Sep 2008
Total Posts : 281
   Posted 7/12/2011 11:01 AM (GMT -7)   
That's what my rhuemy told me....once the meds are in your system you will feel better...
well sorry but I dont :( Hope you figure things out Vannie so you can be at your best self. Thanks for responding.

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 7/12/2011 11:20 PM (GMT -7)   
I was exhasted last year when my RA wasn't so well controlled. I'd have to take a nap between my morning and afternoon class a half hour power nap and then come home and nap too before I could face dinner and kid's homework etc.
But this year even though my sleep is still not great I have boundless energy. I feel like the energiser bunny, I could run all day. The new combination of meds has worked for me. I'm sure its the disease, when I flare I feel terrible, I can't get out of bed, can hardly stand up. I think we foget it doesn't just affect joints but organs too like our heart, liver and kidneys.
Not that I can give you a solution only that I feel 10 years younger now than I did last year. There may be a combination of meds out there that does the same for you. Best wishes, golitho

there's Hope
Regular Member


Date Joined Nov 2006
Total Posts : 145
   Posted 7/13/2011 12:20 AM (GMT -7)   
the elavil (amitriptiline) makes you drag until its at a good level. I just got off it, switched on to cymbalta, but it totally made me dopey. The pain keeps me up at night and the med doesnt help. I agree, all I do is work and sleep/rest so I can go back to work. Pray it gets better!!! But I feel ya TayIsa! You are so not alone!!
29 year old female. Dx with UC in June 2003. Flare up in June 2006 led to CD dx. Also suffering from PTSD, Anxiety and Depression. Recently dx with Rheumatoid Arthritis.
Current Meds: Humira, Methotrexate, Sulfazine, Zofran, Cymbalta, Nurotin, Folic Acid, Vicoden, Tramadol, Prednisone

TayIsa
Regular Member


Date Joined Sep 2008
Total Posts : 281
   Posted 7/13/2011 1:32 PM (GMT -7)   
Thanks Golitho and there's Hope. Your posts are really appreciated. I am glad (selfishly) that there are others out there and I am not just being lazy...BUT DEFINITELY NOT GLAD TOO!!

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 12534
   Posted 7/13/2011 3:45 PM (GMT -7)   
You are NOT lazy! You have a chronic illness that makes you tired. If people can understand that you need to rest then forget trying to make them understand. Rest when you need to but don't become a couchtater. :)
Joy

TayIsa
Regular Member


Date Joined Sep 2008
Total Posts : 281
   Posted 7/13/2011 4:22 PM (GMT -7)   
couchtater, Thanks soooo much. I wish there was a way to explain the pure exhaustion to some people who just dont understand. I have read the "spoon theory", and thought this was a good way. I have used it to explain to some people.
Hope you are having a good day. ((gentle hugs)) and thanks again

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 12534
   Posted 7/13/2011 4:33 PM (GMT -7)   
Just tell them your batteries are low and you need to recharge them.
Joy

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 7/14/2011 10:58 PM (GMT -7)   
I tell my kids I need a nana nap! Even though I don't have any Grand kids.

carmen
Regular Member


Date Joined Feb 2003
Total Posts : 499
   Posted 7/15/2011 3:53 AM (GMT -7)   
amitriptyline , makes me totally exhausted, try not taking it for a day and see if that helps with the exhaustion.

TayIsa
Regular Member


Date Joined Sep 2008
Total Posts : 281
   Posted 7/15/2011 8:41 PM (GMT -7)   
Thanks couchtater,golitho and carmen. Great Ideas!!
Carmen, I am to skip 2 days of taking my plaquenil a week, and I have not taken my amitriptyline on that day .... didnt really seem to help with exhaustion..but that certainly was a great idea.... thanks for helpin out.
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, November 23, 2014 8:38 PM (GMT -7)
There are a total of 2,276,375 posts in 253,009 threads.
View Active Threads


Who's Online
This forum has 158710 registered members. Please welcome our newest member, Howard3569.
403 Guest(s), 25 Registered Member(s) are currently online.  Details
07vNH, roobie, DianeB, lostwife2, Tunnelvisionary, mikeb2308, lymebarthiker, aeshleyrose, Kanale27, Play4parr, Scaredy Cat, Flametiger, BillyBob@388, Sherrine, teragram, Dewayne, opnwhl4, Old Mike, Garden Peace, quincy17, ela9050, delilahblue, Skysmommy, (Seashell), Cornell


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer