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paperbagprincesses
Regular Member


Date Joined Apr 2011
Total Posts : 94
   Posted 8/20/2011 11:59 PM (GMT -6)   
I'm 21 years old and every doctor/physio etc except my first rheumatologist said I have some sort of inflammatory autoimmune arthritis. My joints hurt, swell, grind and they're stiff in the mornings and after sitting for a long time. I have dry eyes, dry mouth, nose ulcers, fatigue, flu like symptoms and a rash. My blood tests showed a slightly elevated ANA (x3) and ESR (2x), everything else normal (the rheumatologist did heaps of blood tests). I showed her my rash and she said it was eczema. She said my joint problems were because of an 'emotional response' and a 'mechanical problem'. My old GP put me on a course of Prednisone for 1 month which made me feel like a real person!

I got sent to a physio who felt fluid under my knee caps and said she thought my problems were definitely rheumatological (all her colleagues agreed) and she said there was nothing wrong with me mechanically and to see a new rheumatologist asap.

So I went to a new GP (my old GP wasn't really being overly helpful) and she said she thought that there was something going on and she said "I'd say you have Lupus".. I disagree, I think my symptoms aren't bad enough and I think Undifferentiated Connective Tissue Disease or mild Sero-Negative RA is more likely. (I've done a lot of research, but I'm not a doctor- obviously!). She re-referred me to a new rheumatologist. Anyway, I said to her "I've got this rash on my elbow and the rheumatologist said it's eczema, but I don't think it is". She looked at it and pressed at it and said it doesn't blanch.. She said it's a vascular rash and also a meningitis rash, but I obviously don't have meningitis. She said it's a very common autoimmune rash and because of this I'll definitely be taken seriously. She said she thinks I have a problem with my platelets and coagulation.. She also said she can feel a little nodule on my finger, no idea what that's about!

I went home and Googled all that and found my rash looks like Petechiae and everything she said about it corresponds.

I'm so confused, I feel like an old lady when I'm only 21! Does anyone have any idea about Petechiae? Or my symptoms and what they may mean? And why my blood tests aren't really suggesting what's going on? Any suggestions how I can help the rheumatologist come to the right conclusion?
(I've got records of everything and I've taken photos of rashes and swollen joints etc).

Thank you!!

wearyRAsufferer
Veteran Member


Date Joined Mar 2010
Total Posts : 1314
   Posted 8/21/2011 8:54 AM (GMT -6)   
I didn't google the name but what you described brought Still's Disease to my mind. Have you looked into that?

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 12063
   Posted 8/21/2011 3:27 PM (GMT -6)   
I have petechiae on my legs. I also have Lupus. My ANA is 1:360, but everything else is normal.
The photos are important since symptoms come and go so much.
Maybe you can have your regular doctor write a letter explaining what they have seen to your rhuemy?
Joy

paperbagprincesses
Regular Member


Date Joined Apr 2011
Total Posts : 94
   Posted 8/21/2011 7:14 PM (GMT -6)   
Thanks. WearyRAsufferer, it doesn't look like Still's Disease rash.

Couchtater, my ANA has been between 1:80-1:160 and it was negative after a course of Prednisone. I took two photos of my swollen knees to my rheumatology appointment and she said that I'd angled the camera and bent my knees to make it look swollen. My Mum saw and felt them and they were swollen.. My rheumatologist is just crap, so I'm going to see a new one.

Thanks.

wearyRAsufferer
Veteran Member


Date Joined Mar 2010
Total Posts : 1314
   Posted 8/22/2011 7:25 AM (GMT -6)   
I'll say he's crap! Kick him to the curb! I had a crap first RD too- the next one seemed to know what to do- got me right again- but lately he doesn't seem so good anymore.

paperbagprincesses
Regular Member


Date Joined Apr 2011
Total Posts : 94
   Posted 8/22/2011 7:28 AM (GMT -6)   
Thanks, but I found out it's going to take THREE MONTHS to see a new one...

tofer
New Member


Date Joined Aug 2011
Total Posts : 1
   Posted 8/22/2011 8:33 PM (GMT -6)   
Petechiae? are small little bruises or bleeds just under the skin. Usually when your platelet count is lowered. Or if there was some kind of strain. Mine show up on the bottom of my legs if i've been standing too long.
I think maybe i mis-spoke maybe its not always when your platelet count is lowered sometimes its if you have a change in your platelet count. they could have also come if you scratched at your skin or your clothing was too tight or cutting.
Auto-immune disorders tend to all have weird interchangeable symptoms. Sometimes the Dx takes a bit of time. I know its hard but hang in there.

paperbagprincesses
Regular Member


Date Joined Apr 2011
Total Posts : 94
   Posted 8/22/2011 9:00 PM (GMT -6)   
The doctor wasn't all that clear just that its often found in people with meningitis and autoimmune diseases. I haven't itched it or touched it. I'm not sure why it's there but I've had blood tests done for coagulation and stuff but don't know about the results. I have celiac disease and that was so easy to diagnosed (it's autoimmune) why can't this be easy!?
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