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emirk
New Member


Date Joined Mar 2005
Total Posts : 15
   Posted 3/26/2005 9:55 AM (GMT -7)   
yeah    I have what I think is a strange problem.  anyway, it is new to me.  I am confused confused by confused   it. 
Anyone else here suffering from shaking hands?  I did not notice it till friends and hubby said that when Iwas eating - holding a fork/spoon my hands were shaking so much.,  Now, I am aware that when I read a book , hold the phone sometimes even when I type etc my hands shake.
 
sad  I have had RA for some time, taken just about all the meds out there.  Currently on Plaquinil 200mg 2x day, 5mg pred, Darvon 65mg 20mg Bextra and recently added Humira 1 40unit shot every 7 days.  The humira helps! The shakes were here before the humira, actually after I stopped the Enbrel and was only on the other stuff.  I suffer from RA, PA Fibro and whole list of other problems associated with Immune system problems, and the effects of the meds, much like most of us.
 
confused  As you may or may not know I have had lots of problems in the past 2 yrs, read my story it is on this site, and I am wondering if all of this stuff is causing the shakes.
 
  nono I  know you guys arent docs, but sometimes, I have found in "talking" with other sufferers we can answer this type of question better than the docs. I of course,will tell me Rheumy and my Ortho Surgeon when I see them both early in April.  It is disturbing that yet something else is attacking me. confused
We have had lots going on here, sad IL passed away about a month ago after a long painful illness, yeah e have bought a new home, sold our current condo, preparing to make settlement and move within the month, so all of this may have something to do with the shakes, ya think? devil
I am looking forward to hearing what anyone has to say about "shaking hands" or shaking anything,
Please write to me here or at emirk@comcast.net 
I want to wish healing vibes to everyone hurting, or even not hurting just suffering with Arthur etc, and of course {{{{{{{{{{gentle hugs to all}}}}}}}}}}}}}
Elaine in NJ yeah
I was diag. with Ra in 2000, but probably had for 10+ yrs, have had both knees totally replaced.  Suffer with major left hip problems: Stress fracture for 2 yrs, turned into a fracture without trauma: had repaired -non union: Converted to Total Hip Replacement became infected spent 3 mos in the hospital Jan-Mar 2004: Had THR removed because of infection that refused to heal in Oct 2004, now have a girdlestone - which will probably keep permanently, at least for now.  I am in a wheel chair, learning how to use a walker - feeling like a baby learning how to walk all over again.
 
Have RA, Fibro, OA, probably Psoriac Arthritis, and probably Lupus according to the latest blood tests Rheumy performed.  Just loads of fun!
 
Emirk in NJ
 


nic-nac
Veteran Member


Date Joined Mar 2003
Total Posts : 708
   Posted 3/26/2005 12:41 PM (GMT -7)   

Dear Emirk, Maybe we are sisters after all, what do you think?? I have had this shaking problem for at least 6 months now. Your right when you say its noticable to others , because Hubby, my Mom, and others have noticed it. Its especially noticable when I'm reading a newspaper or eating. Other times its very hard to type. Also, sometimes its a little more then shaking its like Jerking. It seems as though I backspace more then I type at times. The meds that you and I are on that are the same are Bextra, and Prednisone. Also we are both on pain meds though not the same ones. I have not worried about this very much as I attributed it to the meds. Now you have me curious however and wonder if anyone else on here has this shaking or jerking. Please write and tell us if you do.

         Also, I want to take this time to wish everyone a happy and joyous Easter. I know Annie is on everyones mind and I'm sure we will all be saying prayers and wishing for more positive signs of recovery.

           Save some chocolate for the little kids, and don't eat too many Easter eggs. Luv and Hugs, Nic



erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 3/26/2005 2:39 PM (GMT -7)   
elaine, i would definitley inform the doc. the DMARDs for RA can cause nervous system disorders which would be characteristic of trembling hands. also a good idea to get your fasting blood sugar checked or creatinine clearance (urine in 24 hours) because prednisone and certain other drugs for pain or inflammation can make your blood glucose levels fall and therefor you become hypoglycemic (fatigue, shakes, trembly hands, dizziness). have you ever had a history of seizures? or family history? muscle weakness may cause hand tremors too. i know it's a pain in the butt, but it might be worth getting checked out by a neurologist if they persist or get worse. hopefully it's just from being overstressed! i am so glad humira has helped you. did you notice a better improvement from humira than the enbril? i'm thinking about changing drugs if the rheumy ok's it. keep track of this trembling. hope i've been some assistance. i hope you recieve some answers soon. take care. happy easter! erin

emirk
New Member


Date Joined Mar 2005
Total Posts : 15
   Posted 3/26/2005 4:05 PM (GMT -7)   
Erin, Thnx for your reply! I have to tellyou that i have had wonderful response to Humira, no RA problems past some early am stiffness (less than 30 min!). As for the shaking hands, I know it is not low blood sugar, I do check my sugar at least once a week, it is low in the am , but the shaking is during the day,not later in the day

I will be talking with the Rheumy early in April,

thnx for you help and interest in helping me.
{{{{{{{{gentle hugs}}}}}}}}}}}
Elaine in NJ
I was diag. with Ra in 2000, but probably had for 10+ yrs, have had both knees totally replaced.  Suffer with major left hip problems: Stress fracture for 2 yrs, turned into a fracture without trauma: had repaired -non union: Converted to Total Hip Replacement became infected spent 3 mos in the hospital Jan-Mar 2004: Had THR removed because of infection that refused to heal in Oct 2004, now have a girdlestone - which will probably keep permanently, at least for now.  I am in a wheel chair, learning how to use a walker - feeling like a baby learning how to walk all over again.
 
Have RA, Fibro, OA, probably Psoriac Arthritis, and probably Lupus according to the latest blood tests Rheumy performed.  Just loads of fun!
 
Emirk in NJ
 


DianaK67
Regular Member


Date Joined Jul 2003
Total Posts : 210
   Posted 3/29/2005 3:49 PM (GMT -7)   
Hi guys, I think you all know what I'm going to say. Please talk to your doc about those symptoms. It's very scary, but the new biologics can cause nervous systom problems like multiple sclerosis. I have had this scare because I had changes in vision and I'm still not cleared. Not okayed to be back on Humira yet. I loved it!! Wish I could still take it. Haven't felt like that in years. Just be careful. Check with the doctor and see. When I took meds for premature labor I shook each morning and it subsided eventually. Other meds can cause this without it being a nuerological issue. I hope so. I just worry.

Let us know, ok?

Diana
Here's to the good days!


oreo
Veteran Member


Date Joined Feb 2004
Total Posts : 528
   Posted 4/6/2005 7:05 AM (GMT -7)   
I agree with diana. Talk to your Dr. about it. It could be an early sign to something else that if caught in time could be reversable.
Keep us posted.
Oreo
Worry not for tomorrow, for tomorrow will take care of itself.
 
Remember you are special and God loves you very much!!!!


rockypoint
New Member


Date Joined Apr 2005
Total Posts : 11
   Posted 4/12/2005 6:19 PM (GMT -7)   

emyrk

You sound A LOT like a patient with Lyme disease. These guys are told during the many years they endure this disease without knowing that they have lupus, MS, RA, GERD, anxiety, depression, unknown nerve damage causing tremors and shakes, bone and muscle pains, etc. I will tell you to get checked for Lyme from a doctor who knows about that. Look at one of the selected postings at the main page of healingwell.com from ltgirl about Pain, Lyme? She describes completely the full list of symptoms (all of which you have). Few doctors are good at this and the labs are terrilbe and she explains that and where to find a doctor and the good labs. Do not go to a regular doctor to be checked because they do not know and the labs are miserable. The test needs to be done in one or two of the specialized labs in the US (such as IGenex in Palo Alto, CA). The lyme disease foundation or the lyme disease association have referal requests for doctors fully educated about lyme close to you. ILADS.org is the best resource for this. Good luck


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 4/12/2005 7:24 PM (GMT -7)   
Rockypoint,
I applaud you for being a wonderful advocate for Lyme's Disease , of which i feel is a natonal crisis. That is how i got to be in the position i am now. Had an undiagnosed and untreated, then mistreated lyme for over 10 years before i had proper DNA testing from special labs for lyme titers and bacterias. for a very long time i was debilatated and suffered through the terrible pitfalls of lyme. it damaged extensively every major organ and system in my body and now am left with crippling RA and several neuro conditions. it is very hard to find a doctor who knows how to treat lymes. i feel that a lot has to be done to get a grasp on this disease as you know as well. so glad to hear someone speak up about it. bless you! sincerely , erin

oreo
Veteran Member


Date Joined Feb 2004
Total Posts : 528
   Posted 4/14/2005 7:15 AM (GMT -7)   
Rockypoint, welcome and thanks for sharing your expertise. It is great to see the number of people who are joining us with more knowledge and expertise. We love hearing from all of you.
Oreo
Worry not for tomorrow, for tomorrow will take care of itself.
 
Remember you are special and God loves you very much!!!!
 
Help HealingWell conitue to help people.  Please donate today.  Every little bit helps.  To donate go to www.healingwell.com/donate
 


nanny
New Member


Date Joined Apr 2005
Total Posts : 5
   Posted 4/29/2005 2:29 PM (GMT -7)   
I AM ABOUT ALL OF EVERYTHING I HAVE READ....TAKE ALMOST SAME MED.....I SHAKE I SHAKE AND I SHAKE...IT IS AWFUL WHEN I TRY TO WRITE OR WRITE A CHECK AND PEOPLE ARE STANDING THERE WATCHING YOU. THE TREMBLES...NOT ONLY DO MY HAND SHAKE BUT MY FACE AND HEAD WHEN I AM TRYING TO EAT OR PICK UP GLASS TO DRINK...IT FEELS LIKE WHEN YOU SEE SOMEONE WITH PARKENSON DISEASE....ALTHOUGH I DONT THINK I HAVE IT....GOT GOOD CASE FM CFS AND RA

I WISH THERE WERE AN ANSWER...I ASK AND DR SAYS IT IS ALL OF THE ABOVE. WILL WE EVER GET CLOSE TO NORMAL..

I THOUGHT I WOULD REPLY AND LET YOU KNOW MY HANDS SHAKE TO

BLESSING
NANNY

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 4/29/2005 4:10 PM (GMT -7)   
Nanny, it sounds like a nervous system disorder. have you been under a neurologists care? keep in touch.
sincerely, erin

nanny
New Member


Date Joined Apr 2005
Total Posts : 5
   Posted 4/30/2005 12:49 PM (GMT -7)   
NO I HAVENT. I REALLY DID NOT THINK OF THAT....I HAVE THOUGHT ALL ALONG IT WAS MY MEDICINE.....I WILL TELL MY DOCTOR AND SEE WHAT HE SAYS
THANKS FOR THE ADVICE......I NEED AS MUCH AS I CAN GET..I JUST DONT THINK STRAIGHT SOMETIMES..
HUGS
NANNY

oreo
Veteran Member


Date Joined Feb 2004
Total Posts : 528
   Posted 5/2/2005 8:08 AM (GMT -7)   
Nanny, welcome. I would go and get it looked at. If your regular MD doesn't want to do anything, ask for a referral to a neurologist. It is better to find out then to keep worrying and thinking about it. Keep it touch. My prayers are with you.
Oreo
Worry not for tomorrow, for tomorrow will take care of itself.
 
Remember healing comes one step at a time, sometimes it seems that its one forward and 2 back but ultimately, always in a forward direction!!!
 
Help HealingWell continue to help people.  Please donate today.  Every little bit helps.  To donate go to www.healingwell.com/donate
 


nanny
New Member


Date Joined Apr 2005
Total Posts : 5
   Posted 5/2/2005 9:18 AM (GMT -7)   
thank you erin and oreo.
i go to the dr,.this aft and i will tell him and see what he thinks. i take a lot of med.and one of them may be causing it and then again may not.....anyhow i would like to know......
 
thank you..
nanny

oreo
Veteran Member


Date Joined Feb 2004
Total Posts : 528
   Posted 5/2/2005 11:08 AM (GMT -7)   
Good luck at the Dr.'s. Let us know what he has to say. Will be praying for you.
Oreo
Worry not for tomorrow, for tomorrow will take care of itself.
 
Remember healing comes one step at a time, sometimes it seems that its one forward and 2 back but ultimately, always in a forward direction!!!
 
Help HealingWell continue to help people.  Please donate today.  Every little bit helps.  To donate go to www.healingwell.com/donate
 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 5/2/2005 3:13 PM (GMT -7)   
nanny,
just wanted to see how you made out at your appt.!
best wishes
erin

nanny
New Member


Date Joined Apr 2005
Total Posts : 5
   Posted 5/3/2005 3:46 PM (GMT -7)   
good evening
well i got dressed yesterday and went to the doctor....i signed in and sat there for about fifteen minutes..the receptionist said ms.shirley..i say yes..what are you here for....i said you called me to remind me i was to come today...we are sorry, but it is next thuesday...i thanked her and left..told her i would see her then.....got up this morning ate boiled egg and took my med....and got reflux real real bad....had to call dr.and go back in...i have an esopahgus problem .  it is to narrow and has a pouch that causes acid reflex.  well for two hours i geratated hot water ....it just came up....five min. at a time.  i took two nexium and pepic ac and they came up....all at different times......bought some half and half and dranked a little of that and it came up...it wasnt vomiting....it was burping and it coming on out....my throat is burning from the acid...but anyhow i feel better than i did.....
thank you all for your concern and i am concerned about all of you other wise i would not be on this....it is a very sweet and kind board...and i reallly am doing better than what i had been doing.  i have come a long way....and this board helps me to keep the fear down some....
here is hoping that we all have a restful night and a good day tomorrow.
love
nanny

oreo
Veteran Member


Date Joined Feb 2004
Total Posts : 528
   Posted 5/5/2005 7:04 AM (GMT -7)   
Nanny, sorry to hear about your new problem. It seems with any chronic illness there always seems to be something new popping up. I witsh you luck as you deal with this new problem. Keep us updated on what is going on in your life. We enjoy having you on the site.
Oreo
Worry not for tomorrow, for tomorrow will take care of itself.
 
Remember healing comes one step at a time, sometimes it seems that its one forward and 2 back but ultimately, always in a forward direction!!!
 
Help HealingWell continue to help people.  Please donate today.  Every little bit helps.  To donate go to www.healingwell.com/donate
 


emirk
New Member


Date Joined Mar 2005
Total Posts : 15
   Posted 5/19/2005 1:49 PM (GMT -7)   
redface  Havent been around for a while, sorry.,   Wehave moved,and have been busy with that.  But I wanted to tell you that the shaking hands seem to have stopped!  I spoke with the doc about 4 weeks ago, and he said it was probably just themeds, but to keep an eye on it.  He works closly with my PCP, and they t
both think it is nothing to worry about at this time. Definately not Parkinsons.  No lyme in my future or past, I am housebound in a chair, so outside playing in the dirt or hiking for me!
 
I am in a major flareup of my RA today, have been for a few days.  Finally called the doc today, he said I should take my prednisone as if it were a dosepack.  So, today I took 35mg, tomorrow 30mg, then 25, 20, 15, 10 and finally back to 5 which is where I have been for a long time  Not sure what caused this flare up, but I have to say I dont remember when i felt this rotten.  I am very fatigued and sore!  35 mg of Pred helped with the fatigue, but not the pain.  I dont feel like "superwoman" yet,but figure by the weekend I will!
 
We are happily almost settled in our beautiful new rancher, with wide doorways andlower light switches and no steps except for from the front door and the garage.  I have had a ramp built so I can go out thru the garage, andwith pt I am learning to go out the 2 wide front steps out front on a walker.  PT says i am not functional at all without the chair - and this is as good as it is going to get!  I expected it, just not this soon.  OUr new home is in an "Active Adult Community" read: 55+  NO KIDS!  Which for us is great.  Our kids are grown, and if we ever have g-kids they will be allowed to visit and stay over for short stays but not allowed to live here.  This house is bright and sunny so I dont mind not being able to get out!
 
It is good to be back, and once again, please excuse me for not writing sooner.  trying to get settled and get over the death of mil after along illness.  getting settled in a new house in a wheel chair is not easy, have had to rely on other for lots of things.  Hubby works flull time, so he is notmuch help.
Please write to me
Elaine in NJ
{{{{{{{{{{{gentle hugs and healing vibes to all}}}}}}}}}}}}}}
 
 
I was diag. with Ra in 2000, but probably had for 10+ yrs, have had both knees totally replaced.  Suffer with major left hip problems: Stress fracture for 2 yrs, turned into a fracture without trauma: had repaired -non union: Converted to Total Hip Replacement became infected spent 3 mos in the hospital Jan-Mar 2004: Had THR removed because of infection that refused to heal in Oct 2004, now have a girdlestone - which will probably keep permanently, at least for now.  I am in a wheel chair, learning how to use a walker - feeling like a baby learning how to walk all over again.
 
Have RA, Fibro, OA, probably Psoriac Arthritis, and probably Lupus according to the latest blood tests Rheumy performed.  Just loads of fun!
 
Emirk in NJ
 


nanny
New Member


Date Joined Apr 2005
Total Posts : 5
   Posted 5/20/2005 8:25 AM (GMT -7)   
good morning emirk
hope that you feel better today... i am making progress and i hope that it will stay that way....i read your latest email.and i have a few questions to ask you.....hope that you can answer....
i am on predinsone. and i wish you would tell me what side effects you have with it.....mine is my face and belly...but the way my belly feels inside i dont understand......i swell up like nine months preg. just eating a bite and i then it is that way all day.

it feels like i could take a pin and let the air out. i am being weaned off of it now, but i still have the effects of it....oh and the weight i have put on.....will it ever come off...

looking for some answer.....and you have a good day today....

blessings shirley

oreo
Veteran Member


Date Joined Feb 2004
Total Posts : 528
   Posted 5/25/2005 6:41 AM (GMT -7)   
Elaine, sound like a beautiful house. I'm sure the next house I move into will be a bungalow. Hard to find a nice one in the city as most new houses are 2 story. Bungalows take up too much land. Wish you pain free days. Keep working on the walker. I had a resident who was in a wheelchair who over the course of a year was able to get up and walking. Sure it was more will (read stubborn) than way but here she is 6 months later and still walking. Not super but for her it was a miracle. Hope a miracle comes your way. Even if only for a short jaunt to the porch and back once a day. Does your porch get the morning or afternoon sun? I love sitting in the morning sun as it is peaceful and not that hot.
Gentle hugs for you.
Oreo
Worry not for tomorrow, for tomorrow will take care of itself.
 
Remember healing comes one step at a time, sometimes it seems that its one forward and 2 back but ultimately, always in a forward direction!!!
 
Help HealingWell continue to help people.  Please donate today.  Every little bit helps.  To donate go to www.healingwell.com/donate
 


emirk
New Member


Date Joined Mar 2005
Total Posts : 15
   Posted 5/25/2005 7:13 AM (GMT -7)   

Hi Oreo

You asked about our porch, well we have a sun room that gets the morning sun, which as far as I am concerned is better than sitting out on a porch.  I dont do well in the sun, cause of all the meds, but sitting in the sun room, is just as good, and safer,.

We love our new house.  We live in the burbs, not the city, so we were able to get a newer home that is a rancher.  What city do you live in?

I am walking quite a bit now,but not enough for me.  This house is very spread out, and I have problems with transitions from bare floors to carpets, but it is getting easier.  This week has been difficult - rainy weather and a RA flare up, so not doing real good.

 

Like you said, I am stubborn, and refuse to give into not doing something, so eventually I hope to be able to walk more.  New wheel chair on the way, too, power one, but better than thepower one I have now.  I will never be able to walk more than 20-30 ft, no left hip! as well as RA, but chugging along.

Hope you have pain free days, andof course I am sending {{{{{{{{gentle hugs}}}}}}}your way too.

Keep on chugging along!

Regards

Elaine in NJ


I was diag. with Ra in 2000, but probably had for 10+ yrs, have had both knees totally replaced.  Suffer with major left hip problems: Stress fracture for 2 yrs, turned into a fracture without trauma: had repaired -non union: Converted to Total Hip Replacement became infected spent 3 mos in the hospital Jan-Mar 2004: Had THR removed because of infection that refused to heal in Oct 2004, now have a girdlestone - which will probably keep permanently, at least for now.  I am in a wheel chair, learning how to use a walker - feeling like a baby learning how to walk all over again.
 
Have RA, Fibro, OA, probably Psoriac Arthritis, and probably Lupus according to the latest blood tests Rheumy performed.  Just loads of fun!
 
Emirk in NJ
 


oreo
Veteran Member


Date Joined Feb 2004
Total Posts : 528
   Posted 5/26/2005 7:27 AM (GMT -7)   
Hi Elaine, I live in Kitchener, Ontario. about a hour south west of Toronto. Small compared to some cities but big enough for me. We have about 200,000 people. The Region of Waterloo (comprised of 3 cities and out lying townships) is now hiting the 1/2 million mark. We are very rapidly losing farm land. I live in a new subdivision. We moved in here about 1 year ago. First anniversary is actually next Tues. At the end of my road is a corn field but if the developer gets their way it will hold 180 single family homes within 2 years. As I said we are developing very quickly.
Arthritis is holding well these days. Some pain and stiffness but what can I expect. For years I was hoping that if I took the right med I could be essentially pain free and not even know that I had arthritis. I have since learned a pipe dream. I don't think I will ever be pain free again. Kind of depressing when I stop to think that I could have over 50 more years to live. I just turned 30 but if I listen to my body in the am. I feel about 60 or 70. recently been worse but my hubby and I put in a deck on the weekend and I have been spending a few hours getting the front garden ready to plant. My body is telling me I have way over done it. Working 6 shifts in 7 days starting on Sat. So Will probably be cursing myself for agreeing to it by next weekend. The paycheck will be worth it though.
Hope the walking keeps getting better. The sun room sounds beautiful. Does it get hot in the room? Never really spent much time in a sunroom.
Gentle hugs your way.
Oreo
Worry not for tomorrow, for tomorrow will take care of itself.
 
Remember healing comes one step at a time, sometimes it seems that its one forward and 2 back but ultimately, always in a forward direction!!!
 
Help HealingWell continue to help people.  Please donate today.  Every little bit helps.  To donate go to www.healingwell.com/donate
 


WA_gal
New Member


Date Joined Feb 2007
Total Posts : 1
   Posted 2/25/2007 1:32 AM (GMT -7)   
eyes  Hi, I was in a car accident over 40 years ago.  My hands have been shaking for years and years.  I have chronic pain syndrome and very bad TMJ which now has arthritis set in.  I can't take antiflammatory drugs of any kind due to another issue.  I have heard there is something I could take to stop the shaking of my hands.  It would be nice to be able to eat soup and do many things I've had to limit and be able to carry more than one cup at a time, etc.  Doe anyone know of something that would work for the shaking?  Thank you, WA-gal

babybloo
Regular Member


Date Joined Aug 2005
Total Posts : 289
   Posted 2/26/2007 7:04 AM (GMT -7)   
Hey guys,

All of my symptoms actually started with a concern for shakey hands. They called it intention tremors. They are still there, no worse no better and for a while there was concern about MS but that fell through when everyone decided I was crazy. Now that that is gone maybe I ought to bring it up again huh? Anyhow, my problem occurs when I reach for things or am trying to do intricate things. I drop stuff a lot but it is before I actually get a hold on them. Let me know if you all get any real information on this.

Theresa
dx: Rheumatoid Arthritis.  Duration: 10yrs. Dx'ed 2006.  Asthma, hypertension, hypothyroid
 
Meds: Methotrexate 25mg wkly, Medrol Dose pack PRN, Enbrel 50mg wkly, Folic Acid, Fish Oils, Ultram 50mg TID,  Advair 250/50, Diovan HCT 160mg/25mg QD, Synthroid .1mg QD, Women's One a Day, tylenol PRN.
 
 

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