Enbrel and Antibiotics

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Ducky
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Date Joined Mar 2005
Total Posts : 3199
   Posted 5/25/2005 7:19 AM (GMT -6)   
:-)  Morning Everyone!!! :-) I need some medical expertise if you don't mind! tongue I am prone to bladder infections/kidney infections/UTIs... eyes well a friend of mine takes a low dose of an antibiotic daily 'cause she has the same problem and she has been UTI free for 2 years now... I thought I had read somewhere that you can't/shouldn't take Enbrel with antibiotics ... Is that true or not?  Also does it matter what the dosage of the antibiotics is?  I don't know enough about this stuff... I have an appointment today to talk to my Primary Care Doctor to get put on some antibiotics 'cause I have another bladder infection... sad (3rd one in 4 months...) She has talked about putting me on the lose dose of antibiotics before and I know it will come up again... But I don't want anything to upset the Enbrel... the dilema I have is that my Primary Care Doctor doesn't know I am on the Enbrel...  nono I know I need to tell her, but then it will stir up a big to-do and that is the last thing I need right now.... Any insight would be greatly appreciated!  :-) I may just call my rheumy and see what they say too... Thanks for all your help!  Happy Weather, Warm Hugs and as always - Best Wishes - Ducky 
 


oreo
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Date Joined Feb 2004
Total Posts : 528
   Posted 5/25/2005 8:18 AM (GMT -6)   
Ducky, my favorite phrase at times is "bite the bullet". You need to tell your PCP that you are on Enbrel. It may stir the pot but could also be beneficial to you cause then they might put you on a different antibiotic then they otherwise might. Does that make sense?
Okay, I checked with my best resource, the 2003 CPS manual. (Compendium of pharmaceuticals and specialties, a drug reference book) According to it, "Administration of Enbrel should be discontinued if a patient develops a severe infection or sepsis. Treatment with Enbrel should not be initiated in patients with active infections including chronic or localized infections." You could read into this either to continue with the Enbrel if the infection in minor or that you should discontinue it if you have an infection. My personal feeling is if I have an infection I do not want to be putting something into my system that is going to make fighting the infection harder. That of course is my personal opinion. It really is up to you and your Dr. what the course of treatment should be for you. When I was first Dx with a sinus infection in Jan. I stayed on the Enbrel for the first 4 days of treatment until I could get a hold of my rhuemetologist. He was the one who told me to go off the enbrel until the infection was gone. I was on and off the enbrel for 2 months while trying to beat the infection. The CPS doesn't say anything about being on Enbrel and antibiotics at the same time. It only talks about infections and Enbrel.
Good luck with this. UTI are horrible. I'll be thinking of you.
Oreo
Worry not for tomorrow, for tomorrow will take care of itself.
 
Remember healing comes one step at a time, sometimes it seems that its one forward and 2 back but ultimately, always in a forward direction!!!
 
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Ducky
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Date Joined Mar 2005
Total Posts : 3199
   Posted 5/25/2005 8:26 AM (GMT -6)   
:-)  Oreo - Thanks for the quick reply... I know I need to tell my PC dr about the Enbrel, but with being in the military, that may ruin my career...  sad so I am leery of it to say the least... I am on the 50mg shot once a week and yesterday was my injection... My doctor called and ahead and just prescribed me some antibiotics... yeah I don't even have to see her... I am on Microbid for 3 days... I am hoping that everything will be ok... I figure if I still have the infection after these 3 days then I will go off of the Enbrel and try a different round of antibiotics... as always - consulting with my rheumy...  eyes Will just have to play it by ear... as I am prone to UTIs, this may be an on going battle for me... Thanks for the advice I really do appreciate it!  Happy Weather, Warm Hugs and as always - Best Wishes - Ducky

 


oreo
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Date Joined Feb 2004
Total Posts : 528
   Posted 5/25/2005 8:34 AM (GMT -6)   
Wow, your career could be on the line!?! Tough spot to be in. Really keep up with the juice and other "natural" methods as well. Talk to your rhuemy about a maintenance dose of antibiotics. You probably will need to worry then about yeast or the like cause you won't have much immune system to keep them in check. Again, like always, whats worse, the cause or the cure? Doesn't it just bite? You need a med to conteract the effect of another med which you need to get rid of an infection which you have because of a med you are on!!!!!!!!!!!!!!!
Just hate this disease at times.
Gentle hugs!!!((((((((DUCKY))))))))
Oreo
Worry not for tomorrow, for tomorrow will take care of itself.
 
Remember healing comes one step at a time, sometimes it seems that its one forward and 2 back but ultimately, always in a forward direction!!!
 
Help HealingWell continue to help people.  Please donate today.  Every little bit helps.  To donate go to www.healingwell.com/donate
 


oreo
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Date Joined Feb 2004
Total Posts : 528
   Posted 5/25/2005 8:45 AM (GMT -6)   
Ducky, can I ask you a personal q? You do not have to answer if you don't want to. How come your job could be on the line if your PCP found out you are on Enbrel? It doesn't effect your job like an anti-depressant or anti-psychotic can. Can the military really discriminate over meds? Pardon my nievety(?) I live in a rose coloured world. LOL
You've got to like my rose tinted glasses!!!!!LOL
Oreo
Worry not for tomorrow, for tomorrow will take care of itself.
 
Remember healing comes one step at a time, sometimes it seems that its one forward and 2 back but ultimately, always in a forward direction!!!
 
Help HealingWell continue to help people.  Please donate today.  Every little bit helps.  To donate go to www.healingwell.com/donate
 


Ducky
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Date Joined Mar 2005
Total Posts : 3199
   Posted 5/25/2005 9:51 AM (GMT -6)   
yeah  Oreo - Please feel free to ask whatever you want... tongue My life is an open book! tongue Anyways - in my line of work, I have to be World Wide Deployable... Well, being on the Enbrel, I'm not.  Since the Enbrel needs to be kept cold and shipped in, that makes it hard if I am living in a tent in the middle of the middle east... So if I let my military doctor know that I am on the Enbrel, they can remove me from deployable status and recommend that I be separated from the Air Force.  If I was only taking the Enbrel for a short time to "cure" a disease, then it would be ok, but since this will be a constant in my life from now on, I technically can't perform my job to it's fullest extent.  Surprisingly enough, there are people in the military that are on anti-depressants and anti-psychotics and they are still deployable, 'cause all they take is a pill.  It's easy to get a 6 month supply of pills and send your overseas for a deployment, but it's not easy to get a 6 month supply of Enbrel and keep all of that cold to send to me while I am living in a tent that doesn't have a refrigerator... See what I mean?   sad I understand their position on things, just really don't like it so much.  That is why I am leery of telling my doctor.  I am not ready to get out just yet... My enlistment is up in 2007 and I can get out then, just not now... Plus if I put it off for a little bit longer, I can try and medically retire instead of just separating from the military.  It's a huge mess!!!! eyes Rose colored glasses, I have those too... it's like my own little reality...I put them on when I don't like what I see with the real world! tongue Like I said, ask whatever you want, I don't mind a bit!  Happy Weather, Warm Hugs and as always - Best Wishes - Ducky
 


oreo
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Date Joined Feb 2004
Total Posts : 528
   Posted 5/26/2005 9:39 AM (GMT -6)   
You write about the middle east and I can picture you there with a block of ice trying to keep it from melting. My Uncle is over in the middle east working with the military on a water purification project. He sends us updates and pics of what it is like over there. It was really cool the pics he sent the other week. Someone actually got pics of an awesome sandstorm coming in. Literally a wall of sand about 2 miles long and a mile high moving about 30 miles an hour towards them. It went from sunny to night in a matter of 2 minutes. The pics were really cool. No wonder the military has problems with the weather over there. We have nothing like that here.
If you retire for medical reasons can you get a full pension? My hubby worked with a guy who did his tour, retired for medical reasons and got full pension. (Cdn military) He then became a janitor for the school board and could bring in big bucks because he was collecting a pension and working full time. Not sure I would want to join the military just for those perks but know some who do. My cousin joined the military and has ended up with a buggered back due to basic training. He is now looking at working only as long as his back holds out. Because it was essentially the militaries fault that he hurt his back they can't oust him, he just moved specialty and is now a radar technician instead of a front line fighter. Thought that was pretty smart.
Hope all goes well and you can complete your tour. Could you leave early if you can medically retire? What is involved with medically retiring?
Gentle hugs your way!!!!!!!!!
Oreo
Worry not for tomorrow, for tomorrow will take care of itself.
 
Remember healing comes one step at a time, sometimes it seems that its one forward and 2 back but ultimately, always in a forward direction!!!
 
Help HealingWell continue to help people.  Please donate today.  Every little bit helps.  To donate go to www.healingwell.com/donate
 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 5/26/2005 10:25 PM (GMT -6)   
Ducky! BABY! soso sorry about your dilemma! a word to the wise if you totally do not want your doc to know about the enbrel....TAKE YOUR TEMP! if you have a fever definitely do NOT take the enbrel because you can get sepsis and very ill effects..that's why they stress INFECTION, because a fever usually accompanies it. use your judgement. personally, i was on antibiotics for 4 weeks for swollen glands and i continued the enbrel (but i think i did stretch them out to like every 10 days a shot) but the FEVER RULE IS TO LIVE BY!!!!!
talk to you later !
erin

ipswitch
New Member


Date Joined May 2005
Total Posts : 1
   Posted 5/27/2005 4:45 AM (GMT -6)   

Hi Ducky,

I am new to this forum. I hope you are feeling better. There does seem to be conflicting advice about Enbrel and antibiotics. I have now been told not to use Enbrel until a course of antibiotics is complete. I did have a bad experience with mixing Enbrel and antibiotics. I was prescribed an antibiotic for a skin condition and took it without problems for several weeks, while still taking Enbrel, then out of the blue I had a serious allergic reaction with a rash, breathing difficulties and abdominal pain. I have since been admitted to hospital 5 times for abdominal pain. Every time they decide to do a new test I am taken off Enbrel; it takes weeks to get the results, so my arthritis is raging out of control, each time I go back on Enbrel the abdominal pain becomes severe. I am stuck between a rock and a hard place, the Enbrel does work for my arthritis but seems to be linked to the abdominal pain; Infliximab stopped working after a few months and I seem to have tried just about everything else. I was in hosital yesterday for more tests and am seeing a surgeon in 4 weeks. We have a holiday planned to Canada in July and I just want to be fit enough to go I don't want to let my children down by having to cancel. Please be careful about taking antibiotics and Enbrel I know you have a different condition and my experience might be unusual but if possible it would be wise to take medical advice before combining Enbrel with antibiotics and to be alert for any side effects. All the best.

Ips


oreo
Veteran Member


Date Joined Feb 2004
Total Posts : 528
   Posted 5/30/2005 11:46 AM (GMT -6)   
Ips, sorry for the problems you are having. Wanted to say a big welcome to the arthritis forum. It is always great to have new people joinging us. Hope you stick around and get to know us.
Oreo
Worry not for tomorrow, for tomorrow will take care of itself.
 
Remember healing comes one step at a time, sometimes it seems that its one forward and 2 back but ultimately, always in a forward direction!!!
 
Help HealingWell continue to help people.  Please donate today.  Every little bit helps.  To donate go to www.healingwell.com/donate
 


Keah
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Date Joined Nov 2003
Total Posts : 7314
   Posted 6/10/2005 1:11 PM (GMT -6)   
I am on Enbrel and have Crohn's as well. I have been on and off several different antibiotics as Cipro and Flagyl and among the standards for CD care. I've also done several courses of Keflex for infected cysts and to avoid infections from skin biopsies and one Z Pack to clear up a chest infection. Through all of this, I have had no problems with the Enbrel or any of the antibiotics.

My concerns woud be the chronic infection and not necessarily the antibiotics. Would it be better for you to do the 25mg twice weekly injections? A lower dose might help keep your immune system of a more even keel. Also, Have you had recent bloodwork? What is your WBC? If it's not low, you are not at significant risk of superinfection. In any case, you will need to consider how to treat the chronic infection whether or not you continue on Enbrel.

Also, what will happen if you do get delpoyed? How will you manage your treatment? I can certainly understand that you want to keep this low key for now, but in the long run it could come back and bite you anyway.

I hope you find a way arounf these problems soon. Be well.
Keah a.k.a. Wormy
 God helps those who help themselves.
Please help us support this invaluable forum.

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Ducky
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Date Joined Mar 2005
Total Posts : 3199
   Posted 6/10/2005 2:47 PM (GMT -6)   
Keah - Thanks for the reply, I was on Microbid for 3 days... My rheumy doesn't want me to go on the 25 mg shots twice a week, says that since I've done so well on the 50 mg shot once a week I need to stay there.  My infection is gone and everything seems ok.  I haven't had any bloodwork since I initally got put on the Enbrel, back in March.  Probably won't have any til August unless something happens.  As far as deploying, I am not going to deploy.  Have recently started a new job that lets me teach aircraft maintenance to newly assigned airman.  Since I'll be doing this, I will not deploy for at least the next 3 years.  Had I gotten selected to deploy, then I would have told them about the Enbrel.  I probably would still have to go, just wouldn't be deployed in the desert somewhere.  Since when we deploy to the desert, we stay in tents and refrigerators aren't readily available.  Also, it is not my responsibility to report to my PCM about what treatment my rheumy has decided... that is supposed to be decided/discussed amongst them.  The insurance I have in the military has to go through my PCM, so one way or another, someone knows I'm on the Enbrel, it just hasn't registered yet.  And since now I'm in a job position that has a low risk of deployment, my medical records won't get scrutinized as much unless I raise a flag.

Diagnosed January 2005 - Psoriatic Arthritis/Dactylitis/Spondylitis 
   -Currently taking 50mg shot weekly of Enbrel
 
Diagnosed May 1998 - Graves Disease
   -Complete Thyroidectomy September 1999 - While 11 weeks pregnant


Keah
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Date Joined Nov 2003
Total Posts : 7314
   Posted 6/11/2005 2:06 PM (GMT -6)   
Hey Ducky, I just reread my post and it sounds kind of rude. I'm sorry, I didn't mean it to be. I often go through varying levels of denial between dealing with the effects of the Spondy & CD, so I tend to not think things through too far and then let the chips fall where they may. That works better for me than stressing over it ahead of time. My questions were not necessarily intended to have you answer me, but to make sure that you had looked at the possibilities.

I know how weird the military can be over medications. My sis had done ROTC and the Reserves through college. They tormented her over what classes and credits she needed and it resulted in her graduating a year late. Then all of a sudden they decided that she could not be commissioned because she needed synthroid. So what that she could have a 6 month supply in her pocket, they actually said that if she were in a combat situation and lost themeds or ran out, it would be a problem. The funny thing is that if she ran out and didn't take it at all, it would be at least 6 months before she even started to have any real problems.

Anyway, although I am a HUGE supporter of our troops, I am very glad everytime I hear that someone will not be deploying. I have 3 cousins in the Middle East now. They are all so young, I was just changing their diapers 6 months ago and now they are soldiers, off fighting a war.

I'm glad that the microbid helped and that you are currently infection free. Keep pouring water in to flush the urinary tract, maybe that will help to diffuse any future infections. Flushing things out decreases the possibility for infection to find a home.

Good Luck & God Bless.
Keah a.k.a. Wormy
 God helps those who help themselves.
Please help us support this invaluable forum.

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Ducky
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Date Joined Mar 2005
Total Posts : 3199
   Posted 6/11/2005 9:34 PM (GMT -6)   

Keah - I think we may have been having the same day... I re-read my post also and it sounded hostile to me.. I'm sorry I didn't mean it to be either... sad I didn't even realize it until I read your last post... wow... so sorry... sad

What does your sister need synthroid for?  confused I take it also 'cause I had Graves disease and had a total thyroidectomy... Of course, that was all done after I had gotten in the military, so I guess there wasn't anything they could do about it... Just like single parents... you can't be a single parent and join the Air Force, but once you're in and if you become a single parent, it's ok... How much sense does that make? 

Yes I am thankful that I won't be deploying for a while, however, my husband and ex-husband still deploy.  We are all in aircraft maintenance so we go all over.  I just wish they would stay home... I'm tired of worrying!  :-) Thankfully, they are both home now, so I don't have to worry about much.  The kids really don't like it when their daddy is gone and that is hard on me.  I'm sorry about your cousins over there, when will they be home?  Or do they even know yet?

Since the last infection, I have not had ANY caffeine to drink.  I'm paranoid it'll aggrevate something and I'll get another UTI.  Oh well, better for me anyway, so I've been slamming water, decaffeinated green tea, and juices... a little bit closer to doing something healthy for my body!  tongue   

Well I should go for now, it's late here and I've got to get to the other posts before I go to bed for the night... have a good evening!

Happy Weather, Warm Hugs and as always - Best Wishes - Ducky


Diagnosed January 2005 - Psoriatic Arthritis/Dactylitis/Spondylitis 
   -Currently taking 50mg shot weekly of Enbrel
 
Diagnosed May 1998 - Graves Disease
   -Complete Thyroidectomy September 1999 - While 11 weeks pregnant


Keah
Veteran Member


Date Joined Nov 2003
Total Posts : 7314
   Posted 6/11/2005 10:02 PM (GMT -6)   
Ducky, I didn't think your post was at all hostile. LOL

My sister has Hashimotos' thyroiditis, another autoimmune disease. It seems my family is full of them. She developed a cyst on her thyroid and had it aspirated a few times, then they eventually removed that entire lobe. She's now only got half her thyroid.

I'm glad your family is all home now and hope they stay there for a good long time. I don't know yet when my cousins will be back yet. One was recently burned in a car bombing and was scheduled to be medivaced to Ramstein but he choose to stay in Iraq with his unit.

I;m glad that you've made the switch to better beverages. I need to do that too, but I can't seem to give up my Pepsi. Ah well.

I hope that all continues to go well for you. Sleep well.
Keah a.k.a. Wormy
 God helps those who help themselves.
Please help us support this invaluable forum.

Follow my progress with TSO (whipworms)http://journals.aol.com/keah/KeahsTSOJournal/


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 6/12/2005 1:21 PM (GMT -6)   

Keah - your sister has the opposite disease of what I had... wow... Graves disease is Hyper-thyroidism and Hashimoto's is Hypo-thyroidism.. Is she going to have to have the rest of her thyroid removed?  I failed treatment, I was on PTU, Enderal and Prednisone... none of it helped I was taking up to 19 pills every 4 hours and it did nothing for me.  Since I got pregnant while on the treatment, they opted to go ahead and remove my whole thyroid... the Goiter was huge too... looked like I swalled a grapefruit!   tongue  

I would really love a cappuccino right now... I haven't had one in what seems like forever and it is the only thing that I miss out of all the stuff I used to drink. 

I hope and pray your cousins come back safe and sound... they will be in my prayers til their safe return. 

Happy Weather, Warm Hugs and as always - Best Wishes - Ducky 


Diagnosed January 2005 - Psoriatic Arthritis/Dactylitis/Spondylitis 
   -Currently taking 50mg shot weekly of Enbrel
 
Diagnosed May 1998 - Graves Disease
   -Complete Thyroidectomy September 1999 - While 11 weeks pregnant

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