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TNjewels
Regular Member


Date Joined May 2005
Total Posts : 384
   Posted 5/25/2005 5:50 PM (GMT -7)   
Does anyone suffer from tenosynovitis in the hands, arms, shoulder or feet? 
 
I couple of years ago I woke up one morning only to find my fingers swollen and any movement would make me cry out in pain.  Luckily I was able to get an appointment with my doctor and he ran a few blood tests.  He told me that I had a condition called tenosynovitis.  He went on to explain to me that it is "similar" to tendonitis because it involves the tendons but is much more painful.   It is caused by inflammation of tendons. The inflammation thickens the sheath of tissue that surrounds the tendon. This makes it difficult for the affected tendon to move freely.  A lot of times it is associated with RA.
 
I've had a very hard time dealing with this.  There are times I wake myself up because I'm in so much pain  At times I can't even dress myself.  I can't do anything but sit and wait for the pain and swelling to go away.  Last month I was diagnosed with it in my feet.  Last week my shoulder and whole arm started hurting from the pain.  It's spreading ... I'm not sure where it can go next, I already have it in my left shoulder and arm, both hands and both feet.
 
I was wondering if there is anyone else out there that suffers from this condition and how they deal with it.  Unfortunately pain pills don't seem to help.
 
Julie

curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 5/25/2005 6:46 PM (GMT -7)   
TnJewels,

I also have this problem.I do have some questions for you.Does your hands and feet feel like some on has a torch to them?I get woke up alot because of this and you are right pain meds do not help at all.

I have found that if I put my hands and my feet in the hottest water I can stand that seem's to help ease them up.I also have ra,oa,and crohns.My Rhemy told me the same thing that it's not uncommon to have this when you have ra.

My Father also has it to and he has ra also.Let me know how it goes.

Curley.......
a.k.a.Mela...........

oreo
Veteran Member


Date Joined Feb 2004
Total Posts : 528
   Posted 5/26/2005 8:07 AM (GMT -7)   
Julie, welcome to the forum. Have you been refered to a rhuemetologist? Maybe try that route and they specialize in the meds that help with swelling and inflammation. For a temporary solution try what culey mentioned. Soak your hands and feet in hot water. While they are soaking move them around to loosen up the joints. Sometimes epsom salts in the water help to reduce the inflammation. Get your self in to see a rhuemy and see if this is caused by RA. If so then get treated for the RA. Sometimes if you can work on the cause the symptoms subside a little.
Do you have anyother symptoms like psoriasis or eczema? There is an arthritis called psoriatic arthritis that can cause joint inflammation that mimics tendonitis. Generally you see mirrored joints affected. (ie fingers in both hands, both feet etc) Let us know how you are making out. It is great to meet you. Wish it was under better circumstances.
Gentle hugs.
Oreo
Worry not for tomorrow, for tomorrow will take care of itself.
 
Remember healing comes one step at a time, sometimes it seems that its one forward and 2 back but ultimately, always in a forward direction!!!
 
Help HealingWell continue to help people.  Please donate today.  Every little bit helps.  To donate go to www.healingwell.com/donate
 


TNjewels
Regular Member


Date Joined May 2005
Total Posts : 384
   Posted 5/26/2005 2:53 PM (GMT -7)   
Oreo,
I've been to my PCP and two Rheumy's ... it's tenosynovitis. When it's flaring up there is no way you could ever move it around, you would cry out in severe pain. The doctor said ice and splint it, don't move it till it quits hurting you'll do more damage. I'm already on Plaquenil, Mobic and Cymbalta. Other than a dose pack of pred there is nothing that will help. Not even pain pills. It's hard to describe the pain but it's nothing like joint pain ... it's the most painful thing I've had and I've passed three kidney stones ... two without the help of major drugs. I was just curious if there was anything out there suffering from the same condition. I've heard it is something you see in RA but there are a few on the lupus board that have it to. So it looks like it could be a AI side effect.

Thanks,
Julie

TNjewels
Regular Member


Date Joined May 2005
Total Posts : 384
   Posted 5/26/2005 2:55 PM (GMT -7)   
Curley,
No I don't have any burning hot pain. Do your fingers change color when they burn?

Julie

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 5/26/2005 4:44 PM (GMT -7)   
just caught my attention when you had mentioned changing color in your hands TN! they burn? do they go pale then bluish then red? if it's similar to that it may be a form of arthritis called Reynaud's (mainly affects the hands and nose and ears when exposed to undesirable conditons)
in pain too right now...can't move, in for the next 2 days.
take good care,
erin

oreo
Veteran Member


Date Joined Feb 2004
Total Posts : 528
   Posted 5/30/2005 8:57 AM (GMT -7)   
TN, hope that someone here has had similar symptoms that can help you. Never had the pain as bad as you write. Pretty close but mine was chronic and definately can't wait for the pain to subside because it never does. Better now, thank heavens. Hope the pain in getting better for you.
Oreo
Worry not for tomorrow, for tomorrow will take care of itself.
 
Remember healing comes one step at a time, sometimes it seems that its one forward and 2 back but ultimately, always in a forward direction!!!
 
Help HealingWell continue to help people.  Please donate today.  Every little bit helps.  To donate go to www.healingwell.com/donate
 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 5/30/2005 10:49 PM (GMT -7)   
Julie, I have PN in my hands. I noticed you are on Cymbalta, what doseway and how long have you been on it? Sorry for the ?'s, but I have been on Cymbalta. I was started on 30mg by pain med dr, but saw my PCP and he says for PN you need the 60mg. I have been on it going on 4 wks I think. The print-out from pharmacy says it takes 4 wks to notice any improvement. I do think the 60mg has helped some. Please let me hear from you. Susie


Keah
Veteran Member


Date Joined Nov 2003
Total Posts : 7314
   Posted 6/10/2005 10:42 AM (GMT -7)   
Julie, Tenosynovitis is part of most AI diseases. Mine comes from Ankylosing Spondylitis and it is worst around my shoulders, knees and spine. In the past, I have had minor problems with it in my hands and it got bad across the top of my feet. I could barely walk then.

Now I am treating the AS with Enbrel and it has brought some relief. I also had the tendon in my R shoulder injected with a combo of Crtisone & Lidocaine. Some days I couldn't lift my arm to use my mouse! The Rheumy that I have been seeing is out of his mind and I won't be going back to him. We had agreed at first that I should try Humira or Remicade, but then he got a little nutty and changed his mind. I'm hoping that the next one I see will script Humira. I need better relief from the pain.

You really should get to see a Pain Mgmt Doc. I have had several types of treatments that have really helped. Most recently was Radio Frequency "nerve blocks" to help the pain in my neck and shoulders. It has made an unbelievable difference.

I hope you find some relief soon.
Keah a.k.a. Wormy
 God helps those who help themselves.
Please help us support this invaluable forum.

Follow my progress with TSO (whipworms)http://journals.aol.com/keah/KeahsTSOJournal/


luigi
Regular Member


Date Joined Aug 2004
Total Posts : 62
   Posted 10/31/2005 1:23 PM (GMT -7)   
oh my god the most horrific pain anyone could even begin to imagine .... how about fever ... chills... night sweats.. and you cannot even move to change your clothes that are sopping wet.... there must be a special place in heaven for this horrible painful disease... how much longer i can stand it i just don;t know.... good luck to you all and let me know if anything works .....  you have to expereince it to know it... i am waiting for a healing and praying that it happens soon :)   take care

Boo
Veteran Member


Date Joined May 2004
Total Posts : 724
   Posted 11/1/2005 3:47 AM (GMT -7)   
What is Cymbalta? Does that also have antidepressant properties?
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